Guest guest Posted January 26, 2010 Report Share Posted January 26, 2010 Connie,Thanks for sharing your latest visit with us. I know you will do the right thing for , as far as surgery goes. Remember that there is a fine line to walk between letting a child have vertical growth, and the spine being too curved to achieve any vertical growth. I'm so happy to hear the lungs are doing well, still. Hopefully over the next 6+ months the osteopenia will improve so when the time does come for fusion surgery, he'll be able to get as much correction as possible, without causing more damage to the spine. Sounds like your surgeons are very open to pushing the envelope with . Good for you. Take care and keep us posted.CarmellMom to Kara, idiopathic scoliosis and hypothyroidism, Blake 19, GERD, and Braydon 14, VACTERL-congenital scoliosis (fusion surgery 5/96), VEPTR patient #137 (implant 8/01), Thoracic Insufficiency Syndrome (TIS), rib anomalies, missing coccyx, fatty filum/TC (released 4/99 & 12/06), anal stenosis, chronic constipation, horseshoe (cross-fused) kidney, dbl ureter in left kidney, ureterocele (excized 6/95), kidney reflux (reimplant surgery 1/97), neurogenic bladder, dysplastic right leg w/right clubfoot with 8 toes (repaired 2/96, 3/96, 1/97, 3/04), tibial torsion, 4cm length discrepancy-wears 3cm lift, valgus deformity, GERD, Gastroparesis, SUA, etc. http://carmellb-ivil.tripod.com/myfamily/ Congenital scoliosis support grouphttp://health.groups.yahoo.com/group/CongenitalScoliosisSupport/ Quote Link to comment Share on other sites More sharing options...
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