New

[Guest guest]

Our son, now 23, had disjointed sleeping patterns all his life, from

infancy. Finally, when he was in his late teens, we heard that some

autistics have a sensitivity to phenols found in apples and apple

products. So we removed all of those from his diet, and he began to

sleep soundly through the night for the first time in his life. You

have to really be a detective to do this; it's amazing what products

have apples or apple juice in them. Just because a bottle says " 100%

juice " doesn't mean it's 100% of the juice on the label; it can have an

amazing cast of " supporting juices, " and 9 times out of 10 one of those

is apple.

It might be a good idea to move all the things you don't want him

messing with (like your clocks) to storage with a friend, relative, or

actual storage facility until he has a handle on personal property.

Have you thought about a behavior therapist for him? These folks are

*very* well-equipped to deal with just the sort of behaviors you've been

dealing with, only they know some tricks to either damp those things

down or stop them altogether.

Obsession goes by many names in the autistic community. We call Louie's

his " areas of expertise. " His have to do with media, mostly tv, radio,

and newspapers. Although he's cut back on saving his newspapers, thank

goodness, at the demand of the caregivers in his supported living home

(he no longer lives at home, and hasn't for 2 years now). In the past,

he's developed expertise in the Simpsons, Pokemon, Batman, and baseball

(this one remains, although it's not the center of his attention anymore

and hasn't been for years). They come, they go, until one thing sticks

and stays. Louie calls his reading about media " research. " All the

research librarians in the city know him. This is a part of his

autism, and you will find that most all autistic people have their own

areas like this. The thing to do is make it a learning thing. Get your

guy books on electricity and lighting and how they function, histories

of incandescent lighting, anything you can find on the subject at his

reading level. Once he satisfies his curiosity on this, he may well

move on to something else. Don't worry about buying books, that's why

we have public libraries. Our kids have both had library cards since

they were 6 and could get them. If his interest in lighting remains, it

can (when he's an adult) be focussed toward working with lighting in one

of several capacities.....all of which he can use to make a living.

And btw, he may like to see the lights come on and go off because he can

actually hear them. This acuity of hearing is not uncommon in the

autistic community.

Our autistic son (Louie is an high functioning autistic *and* and

Asperger's Syndrome autistic) was raised with much the same rules as his

elder mostly-typical sister: he got away with nothing that was " bad kid

things, " but we made allowances for what were obviously " autistic kid

things " until we could figure out a way to address them. He had clearly

stated rules. At one time, those rules were posted on the wall; it made

him feel more secure about them, to see them written and unchanging like

that. We saw no reason that he should get away with murder just because

he is autistic.

I hope some little part of this helps. And welcome in! This is a

really good place to find information and support.

Annie, who loves ya annie@...

--

“Ever since I can remember, I’ve had memories.”--Colin Mochre

[Guest guest]

Debby....

God bless you! Anytime I see a parent with more than ONE special needs child, I feel guilty! I think my hands are full and have been full with my one...but to have two or three....well.....it puts my pity party in perspective.

Welcome to our group...it's good for information, venting, and support.

What are all these things? cyclothymic bp, phonoligal, bp2

My 15 year old daughter is HF aspergers with social anxiety; perhaps bipolar as well. Life is interesting, for sure. Roller Coaster-like mostly.

Maralee

new

Hi I am new to your group. I belong to a bp group, but also need to find a connection with you all who have asperger children.I have 2 special needs boys. Bradley has aspergers, cyclothymic bp, anxiety, phonoligal and other. Kristofer is bp2, OCD and anxiety. My Daughter we are hoping for the best, but she's looking bp too. I have 3 bp relatives (brothers, mother) so its a big genetic thing.I have been having a real hard time with getting Bradley an IEP. He needs an aide to help with the distractions and social skills. But they are fighting me tooth and nail. He has a high IQ so they claim his grades are fine - B & C's. According to his Drs. he should be getting A & B's. Any advice is welcome.Hope to find some good friends and support here.Debby

[Guest guest]

It is scary isn't it ? I hope you feel comfortable here to talk about

whatever you would like. Ask all the questions you can think of.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

new

> I have a daughter with autism and I am new to the site my daughter

> gets teased by people all the time she is 28 years old. I hope to

> make some new friends. My daughter has been teased all her life and

> it is scary too

>

>

>

>

>

>

[Guest guest]

It is scary isn't it ? I hope you feel comfortable here to talk about

whatever you would like. Ask all the questions you can think of.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

new

> I have a daughter with autism and I am new to the site my daughter

> gets teased by people all the time she is 28 years old. I hope to

> make some new friends. My daughter has been teased all her life and

> it is scary too

>

>

>

>

>

>

[Guest guest]

It is scary isn't it ? I hope you feel comfortable here to talk about

whatever you would like. Ask all the questions you can think of.

MISSY

SAHM to some special kids!!!

Excuse Me While I Go

Raise Tomorrow's Future.

new

> I have a daughter with autism and I am new to the site my daughter

> gets teased by people all the time she is 28 years old. I hope to

> make some new friends. My daughter has been teased all her life and

> it is scary too

>

>

>

>

>

>

[Guest guest]

Hi All! Thank you for letting me become a member of this group. I have been researching the internet and I'm going nuts with all the information. My daughter is 7 1/2 months old and undiagnosed scoliosis. I type this because, she has a curve to the left, shoulder misplaced and ribs starting to protrude and her doctor's appointment is not until next week! (the app. was made last week) :(I have noticed the arch more predominant and her favoring her one side. My question is: Should I take her to the ER so that 'something' can be done right away? That way, I'll still keep her dr app. so they can take another x-ray to see if it has progressed?Like I said, I'm going nuts! Then......once the x-rays are taken......what next? What questions should I be

asking? I notice that I treat her like a doll now...am I strange? I should take her to the ER to rest my worries so that the healing process can begin.....Any advice/mommy calming techniques are greatly appreciated!! -CarlyImpatient mommy of Krystina, (2-26-09)

[Guest guest]

Welcome to CAST, you have come to the right place. My advice to you would be not to take her to the ER unless she is having breathing issues, there is really nothing to my knowledge that they can do right away. Are you going to a Ped Ortho and what Hosp are you going to next week? Listen to the parents on this group, they know what they are talking about and please read the files that are on here. It's very informative information. Don't stress too much, you have found your child's curvature very early and it is treatable. You will need to also have an MRI done to rule out any congenital disorders, or Chiari Malformations, or Tethered cords ect. Dont worry, that is very unlikely, but you need to do everything in the proper order. Please try to stay calm. You are on the right road. Good luck and keep us posted Joanmom to Hayden 2 1/233 degrees1st cast

down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, October 15, 2009 11:16:57 AMSubject: New

Hi All! Thank you for letting me become a member of this group. I have been researching the internet and I'm going nuts with all the information. My daughter is 7 1/2 months old and undiagnosed scoliosis. I type this because, she has a curve to the left, shoulder misplaced and ribs starting to protrude and her doctor's appointment is not until next week! (the app.. was made last week)

I have noticed the arch more predominant and her favoring her one side. My question is: Should I take her to the ER so that 'something' can be done right away? That way, I'll still keep her dr app. so they can take another x-ray to see if it has progressed?

Like I said, I'm going nuts!

Then......once the x-rays are taken......what next? What questions should I be asking? I notice that I treat her like a doll now...am I strange? I should take her to the ER to rest my worries so that the healing process can begin.....

Any advice/mommy calming techniques are greatly appreciated! !

-Carly

Impatient mommy of Krystina, (2-26-09)

[Guest guest]

Carly,

Welcome to CAST! I am rather new at all of this, too (one month), but I wanted to tell you that you are not alone in your fear. On Sept. 23rd, we found out our son, has Progressive Infantile Scoliosis because we followed our parental gut and had our pediatricain refer us to an orthopaedic specialist. It is still rather shocking to us and we are waiting for our doctor to return from a symposium where he is going to be presenting our son's case to his colleagues because Jack's curve is rare in its thorasic lumbar region.

Take a deep breath. Don't go to the ER, as others have said...they will take an unnecessary x-ray and do not have the expertise to diagnosis this making it more of a pain and struggle for your child and for you. I would say continue with your regular pediatrician and if they don't "see" what you see, I'd take your own step to seek out a pediatric orthopaedic specialist. Here, they will have the appropriate equipment for children and the training to work with you and your child, making this all a LITTLE easier to bare. I am certain that if they find a curvature, and it has the measurements which necessiate an MRI to rule out other issues, they'll prescribe that.

We had to do that, too, and Jack's MRI turned out clear...thank GOD!

This is a very trying and scary journey...anytime you fear something is wrong with your child, you will feel this...BUT...try to stay calm in the face of this and remember that we are all HERE. Read as much as you can to educate yourself... I found thie I.S.O.P and SRS.org sites helpful, and of course, this amazing group! The more you feel like you understand about the diagnosis (if it is this), the better prepared you are going into the discussions with doctors and the more articulate you will be to be an advocate for your child!!!

Please know I get it. WE all do. And we're going through it with you.

Prayers help, too! I have found this tremendously lifting; getting prayers and love and support from friends, family and even strangers...it's amazing.

I wish you all of the best and pray for you patience and calm as you wait.

Hugs from a stranger, but friend,

Chrissy

Subject: Re: NewTo: infantile_scoliosis Date: Thursday, October 15, 2009, 1:19 PM

Welcome to CAST, you have come to the right place. My advice to you would be not to take her to the ER unless she is having breathing issues, there is really nothing to my knowledge that they can do right away. Are you going to a Ped Ortho and what Hosp are you going to next week? Listen to the parents on this group, they know what they are talking about and please read the files that are on here. It's very informative information. Don't stress too much, you have found your child's curvature very early and it is treatable. You will need to also have an MRI done to rule out any congenital disorders, or Chiari Malformations, or Tethered cords ect. Dont worry, that is very unlikely, but you need to do everything in the proper order. Please try to stay calm. You are on the right road. Good luck and keep us posted Joanmom to Hayden 2 1/233 degrees1st cast

down from 62 degrees Treated at ish Rite Hospital Dallas, TX

From: Carly Crane <oki_carlyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Thu, October 15, 2009 11:16:57 AMSubject: [infantile_scoliosi s] New

Hi All! Thank you for letting me become a member of this group. I have been researching the internet and I'm going nuts with all the information. My daughter is 7 1/2 months old and undiagnosed scoliosis. I type this because, she has a curve to the left, shoulder misplaced and ribs starting to protrude and her doctor's appointment is not until next week! (the app.. was made last week)

I have noticed the arch more predominant and her favoring her one side. My question is: Should I take her to the ER so that 'something' can be done right away? That way, I'll still keep her dr app. so they can take another x-ray to see if it has progressed?

Like I said, I'm going nuts!

Then......once the x-rays are taken......what next? What questions should I be asking? I notice that I treat her like a doll now...am I strange? I should take her to the ER to rest my worries so that the healing process can begin.....

Any advice/mommy calming techniques are greatly appreciated! !

-Carly

Impatient mommy of Krystina, (2-26-09)