Re: Height/Weight/Head size

[Guest guest]

Yes, interesting. My son's head hasn't been in those percentiles but still, for a 50% height, off the chart weight (under 3%), a head circunference in the 75% could be considered big, right?

To: infantile_scoliosis Sent: Mon, November 9, 2009 11:53:20 PMSubject: Re: Height/Weight/Head size

Interesting that you all would mention this...big heads run in my husband's family too. How weird is that?? Grant and Grace have always had big heads for their age.

Jane

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 5:26:02 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Joan,

LOL i bet you do remember that like yesterday! Big heads do run in the family...on my hubbys side! So maybe its just something he will outgrow. I pray thats it!

From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Monday, November 9, 2009, 6:31 PM

,

Bex has ranged in the 5-10 percentile for weight, 50-75th for height, and 90-96 for head size, if that helps! As you know, he didn't have Chiari, but he does have a small Syrinx cyst.

Great job educating the doctor's office!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 4:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier.. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

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[Guest guest]

Yes, interesting. My son's head hasn't been in those percentiles but still, for a 50% height, off the chart weight (under 3%), a head circunference in the 75% could be considered big, right?

To: infantile_scoliosis Sent: Mon, November 9, 2009 11:53:20 PMSubject: Re: Height/Weight/Head size

Interesting that you all would mention this...big heads run in my husband's family too. How weird is that?? Grant and Grace have always had big heads for their age.

Jane

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 5:26:02 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Joan,

LOL i bet you do remember that like yesterday! Big heads do run in the family...on my hubbys side! So maybe its just something he will outgrow. I pray thats it!

From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Monday, November 9, 2009, 6:31 PM

,

Bex has ranged in the 5-10 percentile for weight, 50-75th for height, and 90-96 for head size, if that helps! As you know, he didn't have Chiari, but he does have a small Syrinx cyst.

Great job educating the doctor's office!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 4:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier.. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My

son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

To: infantile_scoliosis Sent: Mon, November 9, 2009 7:15:48 PMSubject: Height/Weight/Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My

son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

To: infantile_scoliosis Sent: Mon, November 9, 2009 7:15:48 PMSubject: Height/Weight/Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My

son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

To: infantile_scoliosis Sent: Mon, November 9, 2009 7:15:48 PMSubject: Height/Weight/Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

Subject: Re: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

Subject: Re: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

Subject: Re: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

My son's head circumference went up percentage wise on the charts for a while too...then it peaked and started going down (although he is still way up there). I think I remember the neurosurgeon saying that was typical.

To: infantile_scoliosis Sent: Tue, November 10, 2009 11:55:27 AMSubject: Re: Height/Weight/Head size

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

From: Dolley <b_dolleyyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

My son's head circumference went up percentage wise on the charts for a while too...then it peaked and started going down (although he is still way up there). I think I remember the neurosurgeon saying that was typical.

To: infantile_scoliosis Sent: Tue, November 10, 2009 11:55:27 AMSubject: Re: Height/Weight/Head size

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

From: Dolley <b_dolleyyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

My son's head circumference went up percentage wise on the charts for a while too...then it peaked and started going down (although he is still way up there). I think I remember the neurosurgeon saying that was typical.

To: infantile_scoliosis Sent: Tue, November 10, 2009 11:55:27 AMSubject: Re: Height/Weight/Head size

,

I had forgotten what it was called but once you said that i remember our NS had said thats exactly what Isaiah has too. The extra fluid on the outside of the brain. Hopefully it will resolve but i wonder if it isnt worse since he is now off the chart. I will see what his NS says when they measure his head. We see him on the 23rd. Interesting your child also has torticollis as Isaiah does as well. HUMMM...

From: Dolley <b_dolleyyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, November 10, 2009, 9:39 AM

My son's head size was off the chart for quite a while (and is now at the top of the chart). He actually had a condition called benign extra axial fluid of infancy. Basically he had extra cerebral spinal fluid, but on the outside of his brain - in the subdural space - unlike true hydrocephalus which is in the ventricles. Although, his ventricles are somewhat prominent, the neurosurgeon does not consider him to have hydrocephalus. The condition typically resolves itself by 18 - 24 months of age. The fluid has decreased substantially, but has not completely resolved yet so we are continuing to monitor it with a CT Scan or MRI every 8 months or so. He is 3 years old now. Hopefully this next one will show it has completely resolved. My son was born three months premature, so it's hard to say what is related to the scoliosis, what is related to the prematurity, and what is just something

else. I have always wondered if the large head size along with the torticollis he had as an infant actually caused the scoliosis.

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 7:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

Noelle doesn't have chiari, but she is 95% percentile for head since birth and her pediatrician and I always joke about it! I have a big head too! lol She is also very tall. Hope that makes you feel better..... - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 12:15 AM

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

Noelle doesn't have chiari, but she is 95% percentile for head since birth and her pediatrician and I always joke about it! I have a big head too! lol She is also very tall. Hope that makes you feel better..... - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 12:15 AM

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

Noelle doesn't have chiari, but she is 95% percentile for head since birth and her pediatrician and I always joke about it! I have a big head too! lol She is also very tall. Hope that makes you feel better..... - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Height/Weight/Head sizeTo: infantile_scoliosis Date: Tuesday, November 10, 2009, 12:15 AM

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

,

Thanks! it actually does!!

From: <missikay10yahoo (DOT) com>Subject: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Tuesday, November 10, 2009, 12:15 AM

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

[Guest guest]

Patriicia,

Ian has been the same as well. Small, very thin and then the big ol' head!

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Tue, November 10, 2009 9:35:32 AMSubject: Re: Height/Weight/Head size

Yes, interesting. My son's head hasn't been in those percentiles but still, for a 50% height, off the chart weight (under 3%), a head circunference in the 75% could be considered big, right?

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 11:53:20 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Interesting that you all would mention this...big heads run in my husband's family too. How weird is that?? Grant and Grace have always had big heads for their age.

Jane

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 5:26:02 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Joan,

LOL i bet you do remember that like yesterday! Big heads do run in the family...on my hubbys side! So maybe its just something he will outgrow. I pray thats it!

From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Monday, November 9, 2009, 6:31 PM

,

Bex has ranged in the 5-10 percentile for weight, 50-75th for height, and 90-96 for head size, if that helps! As you know, he didn't have Chiari, but he does have a small Syrinx cyst.

Great job educating the doctor's office!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 4:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier.. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

Patriicia,

Ian has been the same as well. Small, very thin and then the big ol' head!

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Tue, November 10, 2009 9:35:32 AMSubject: Re: Height/Weight/Head size

Yes, interesting. My son's head hasn't been in those percentiles but still, for a 50% height, off the chart weight (under 3%), a head circunference in the 75% could be considered big, right?

From: Jane Bigler <janemharyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 11:53:20 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Interesting that you all would mention this...big heads run in my husband's family too. How weird is that?? Grant and Grace have always had big heads for their age.

Jane

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 5:26:02 PMSubject: Re: [infantile_scoliosi s] Height/Weight/ Head size

Joan,

LOL i bet you do remember that like yesterday! Big heads do run in the family...on my hubbys side! So maybe its just something he will outgrow. I pray thats it!

From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Height/Weight/ Head sizeTo: infantile_scoliosis @yahoogroups. comDate: Monday, November 9, 2009, 6:31 PM

,

Bex has ranged in the 5-10 percentile for weight, 50-75th for height, and 90-96 for head size, if that helps! As you know, he didn't have Chiari, but he does have a small Syrinx cyst.

Great job educating the doctor's office!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

From: <missikay10yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Mon, November 9, 2009 4:15:48 PMSubject: [infantile_scoliosi s] Height/Weight/ Head size

Hello all,We went today for Isaiah's 15 mo well baby check. I had just posted that at his 12 mo check he was approx. average in height and weight. Well not the case anymore!! He was in the 20% for weight and 70% for height. So i guess he does fit into the "typical" body frame for a scoli kid as we had discussed earlier.. I am concerned about his head size. He has always had a big head usually 97%tile on the charts but today he is over 100%...totally off the charts! His neurosurgeon who did his Chiari surgery had said it was large and had some extra fluid but it wasnt large enough to be considered hydrocephalus and he did not need a shunt. We see him again this month and im afraid of what he might say now...does anyone else have a child with such a big head size, low weight and scoli? Is this typical for scoli kids? His new doctor is a family practice doc in a small town so i think he mostly sees geriatric patients so you can imagine his

suprise at all of Isaiah's medical issues...and the cast, well they couldnt hold back their curiosity so i ended up explaining PIS and casting to the whole office staff, all 6 of them. LOL. I did take Dr Mehta's article and an ISOP pamphlet to the doctor so hopefully he will educate himself as much as possible on the condition so he will be able to treat Isaiah as effectively as possible. This sure isnt Texas thats for sure!Any thoughts on the head size? Should i be concerned??Thanks, mom to Isaiah 15 mos old1st cast 50 degrees down to 21 degrees treated at TSRHCChiari I malformation

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!