Re: Heidi, thanks for Best Advice Document

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Thank you, blessings to you! Heidi, Bexon's Mama, (2 and a half years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23)

To: infantile_scoliosis Sent: Fri, January 1, 2010 12:23:28 PMSubject: Heidi, thanks for Best Advice Document

Heidi,Thanks for the document you sent to me with all the wonderful advice. I copied it and put it on my desktop because I know I will be referring to it frequently when Jay has his cast put on in a couple weeks. Blessings, , Mom to Sadie (13), Nick (11), Grandma raising Kiara (4) NF1, Jay (2) NF1, Scoliosis>> Hi ,> > WELCOME to CAST!!!> > I just re-sent a document I put together a few weeks ago, it will be typo-corrected and improved upon, and I believe will go up on the ISOP web site in early 2010. It contains most of the best advice on what to expect with the first cast. I hope it helps!!!>

 Heidi, Bexon's Mama, (2 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) > > > > > ____________ _________ _________ __> From: Garvin <vgarvin7@.. .>> To: infantile_scoliosis @yahoogroups. com> Sent: Thu, December 31, 2009 9:13:38 AM> Subject: [infantile_scoliosi s] Scoliosis caused by NF1> >  > Thanks Patty, & Tonya for the welcome. I plan to take your advice and read the articles if I can find them. I have already learned much just reading your email amongst yourselves.> > From what I can see so far, casting appears to help most children. I guess what my main concern is "How effective is it in

children who have scoliosis which is caused by neurofibromatosis, or other neurological diseases?"Â Â > > And we still have not received an answer from the doctor regarding what type of casting he uses.> > > Mom to Sadie (13), Nick (11), Grandma raising Kiara (4) and Jay (2) at 58*>