Re: To treat or not to treat

[Guest guest]

Ok, my little 2cents worth. I did Infergen in 2000, or just before S-P got

the " bundle " approved. At least I started before the approval. I wanted the

Riba, but couldn't get it stateside, so I got Mexican Riba imported through

a " compassionate " thingy. The AIDS group in NYC handled it for me. They were

wonderful.

I went non-detectable on the Mexican Riba and Infergen combo before 8 weeks,

which was my first post-treatment quantitative count. I stayed

non-detectable until I had to switch from the Mexican Riba to some S-P

leftovers that some folks on the S-P combo weren't able to use. As soon as I

went to (what I consider inferior) S-P riba the virus count came back with a

vengance. And the fatigue and other sides weren't really that bad until I

went to the S-P product.

I agree that the Infergen product has been underused. I heartily support its

use with a quality Riba. I don't EVER want to use an S-P product again. I'm

afraid of them.

I can't compare the Infergen to Intron A as I never did a course of Intron

A. I was on a trial for the Intron combo, but was only on 4 weeks and

dropped out. The Riba rage was just unbearable. I wanted to commit murder

and mayhem on close family members.

Sally

Re: To treat or not to treat

Ya know, Liz, it REALLY ticks me off that infergen

wasn't used more from the beginning. It was out

there. I think a lot of people who did monotherapy in

early 90's did infergen. ( FYI-I think Dr Cecil

recommended massive doses when first starting

treatment)

Then frikking Shearing-Plough came out with the

" bundle " of Intron A and ribaviron. No one else could

use the riba, so I think infergen got put out to

pasture, so to speak. And, I'm thinking infergen was

easier to tolerate, but not sure.

I did the old 3xwk shot and riba; I would've GLADLY

taken DAILY shots if I didn't have to take the stupid

riba. I looked forward to shot days, as I felt better

than days with just riba. In fact, I used the pen,

and there was enough juice that I actually did every

other day...only one day without a shot...not the

normal 2.

Do I sound bitter? hehehe.

PS - to all owners and moderators - it was very

difficult writing the word " frikking " but you get

enough grief from ppl when a bad word is used! LOL

Take care,

Jane

--- elizabethnv1 wrote:

> This one for infergen yes , but I can come up with

> other % for svr with other newer meds . Ifergen is

> for nonresponders usually but I will see what other

> numbers I can come up with from the protease

> inhibitors . I like to keep a positive attitude, lol especially since

> I just started treatment for the 4th time .

> Re: To treat or

> not

> > to treat

> >

> >

> > , We were not talking about an ETR.

> We

> > are talking about SVR. Here is what you posted

> about

> > SVR.

> >

> >

> >

> >

>

>

>

> It's a pleasure having you join in our

> conversations. We hope you have found the support

> you need with us.

>

> If you are using email for your posts, for easy

> access to our group, just click the link--

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>

> Happy Posting

>

>

>

>

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