Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Hi Rain, It can take quite a while to go thru the archives since it only shows a few messages each page (if any at all). My son began inositol right before he turned age 12. From what I've read on it, stomach upset/gassiness is the only real side effect, if you even have that. had no problems. Here's a paragraph from an article: " ....Since that time, we have also seen some positive results child cases as well. I have also received some positive e-mails and phone calls from O-C around the country who have heard of inositol, and tried it. Although it was probably not as precise as we would have liked, we based our children's doses on body weight, figuring roughly that a 40-lb. child could tolerate a maximum dose of up to 6gms. of inositol per day. " Article link: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html If your child is on any other meds, you probably don't need to go up to 6 grams (or less depending on weight). Hope this helps a bit! > > Hello, > > I've tried to search the archives on inositol but only turned up one > message. I must not being doing it correctly. I'd like to know if > anyone on this list has had a child as young as 5 on inositol? If > so, what was there starting dose and did your child have any side > affects from it? > > Thank you, > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Hi Rain, It can take quite a while to go thru the archives since it only shows a few messages each page (if any at all). My son began inositol right before he turned age 12. From what I've read on it, stomach upset/gassiness is the only real side effect, if you even have that. had no problems. Here's a paragraph from an article: " ....Since that time, we have also seen some positive results child cases as well. I have also received some positive e-mails and phone calls from O-C around the country who have heard of inositol, and tried it. Although it was probably not as precise as we would have liked, we based our children's doses on body weight, figuring roughly that a 40-lb. child could tolerate a maximum dose of up to 6gms. of inositol per day. " Article link: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html If your child is on any other meds, you probably don't need to go up to 6 grams (or less depending on weight). Hope this helps a bit! > > Hello, > > I've tried to search the archives on inositol but only turned up one > message. I must not being doing it correctly. I'd like to know if > anyone on this list has had a child as young as 5 on inositol? If > so, what was there starting dose and did your child have any side > affects from it? > > Thank you, > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 23, 2004 Report Share Posted December 23, 2004 Hi Rain, It can take quite a while to go thru the archives since it only shows a few messages each page (if any at all). My son began inositol right before he turned age 12. From what I've read on it, stomach upset/gassiness is the only real side effect, if you even have that. had no problems. Here's a paragraph from an article: " ....Since that time, we have also seen some positive results child cases as well. I have also received some positive e-mails and phone calls from O-C around the country who have heard of inositol, and tried it. Although it was probably not as precise as we would have liked, we based our children's doses on body weight, figuring roughly that a 40-lb. child could tolerate a maximum dose of up to 6gms. of inositol per day. " Article link: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html If your child is on any other meds, you probably don't need to go up to 6 grams (or less depending on weight). Hope this helps a bit! > > Hello, > > I've tried to search the archives on inositol but only turned up one > message. I must not being doing it correctly. I'd like to know if > anyone on this list has had a child as young as 5 on inositol? If > so, what was there starting dose and did your child have any side > affects from it? > > Thank you, > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Thank's, you've been a big help. I am going to print out the reference to show our pediatrician. Rain -- In , " " <@h...> wrote: > > Hi Rain, > It can take quite a while to go thru the archives since it only shows > a few messages each page (if any at all). > > My son began inositol right before he turned age 12. From what I've > read on it, stomach upset/gassiness is the only real side effect, if > you even have that. had no problems. Here's a paragraph > from an article: > > " ....Since that time, we have also seen some positive results child > cases as well. I have also received some positive e-mails and phone > calls from O-C around the country who have heard of inositol, and > tried it. Although it was probably not as precise as we would have > liked, we based our children's doses on body weight, figuring roughly > that a 40-lb. child could tolerate a maximum dose of up to 6gms. of > inositol per day. " > Article link: > http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html > > If your child is on any other meds, you probably don't need to go up > to 6 grams (or less depending on weight). > > Hope this helps a bit! > > > > > > > > Hello, > > > > I've tried to search the archives on inositol but only turned up > one > > message. I must not being doing it correctly. I'd like to know if > > anyone on this list has had a child as young as 5 on inositol? If > > so, what was there starting dose and did your child have any side > > affects from it? > > > > Thank you, > > > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Thank's, you've been a big help. I am going to print out the reference to show our pediatrician. Rain -- In , " " <@h...> wrote: > > Hi Rain, > It can take quite a while to go thru the archives since it only shows > a few messages each page (if any at all). > > My son began inositol right before he turned age 12. From what I've > read on it, stomach upset/gassiness is the only real side effect, if > you even have that. had no problems. Here's a paragraph > from an article: > > " ....Since that time, we have also seen some positive results child > cases as well. I have also received some positive e-mails and phone > calls from O-C around the country who have heard of inositol, and > tried it. Although it was probably not as precise as we would have > liked, we based our children's doses on body weight, figuring roughly > that a 40-lb. child could tolerate a maximum dose of up to 6gms. of > inositol per day. " > Article link: > http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html > > If your child is on any other meds, you probably don't need to go up > to 6 grams (or less depending on weight). > > Hope this helps a bit! > > > > > > > > Hello, > > > > I've tried to search the archives on inositol but only turned up > one > > message. I must not being doing it correctly. I'd like to know if > > anyone on this list has had a child as young as 5 on inositol? If > > so, what was there starting dose and did your child have any side > > affects from it? > > > > Thank you, > > > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 24, 2004 Report Share Posted December 24, 2004 Thank's, you've been a big help. I am going to print out the reference to show our pediatrician. Rain -- In , " " <@h...> wrote: > > Hi Rain, > It can take quite a while to go thru the archives since it only shows > a few messages each page (if any at all). > > My son began inositol right before he turned age 12. From what I've > read on it, stomach upset/gassiness is the only real side effect, if > you even have that. had no problems. Here's a paragraph > from an article: > > " ....Since that time, we have also seen some positive results child > cases as well. I have also received some positive e-mails and phone > calls from O-C around the country who have heard of inositol, and > tried it. Although it was probably not as precise as we would have > liked, we based our children's doses on body weight, figuring roughly > that a 40-lb. child could tolerate a maximum dose of up to 6gms. of > inositol per day. " > Article link: > http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html > > If your child is on any other meds, you probably don't need to go up > to 6 grams (or less depending on weight). > > Hope this helps a bit! > > > > > > > > Hello, > > > > I've tried to search the archives on inositol but only turned up > one > > message. I must not being doing it correctly. I'd like to know if > > anyone on this list has had a child as young as 5 on inositol? If > > so, what was there starting dose and did your child have any side > > affects from it? > > > > Thank you, > > > > Rain Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 thanks! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 wow let us know how it works that sounds great! In a message dated 2/5/2005 4:30:43 PM Atlantic Standard Time, Cotter@... writes: > > We got our inositol yesterday. I am taking it and so is my 8 year old > daughter who is extremely shy, probably has selective mutism from all > I've read on it, and is afraid of things 8 yo's shouldn't be (like going > upstairs alone in the only home she can remember living in). She is > also afraid of the " black white man with the long black hair " ( > -- she can't say his name), and other people from the news, etc. > that she will never meet. She also does some OCD-type things like > " having " to hug her brother or me a certain number of times a day. I > explained to her that this vitamin will help her with her fears and > shyness. Last evening we were at a friend's house and she whispered to > me that we should go home so she could take her evening dose of her > vitamin. I asked her what the hurry was and she said, " I want to stop > being scared and shy soon. " Guess she won't give me a problem taking > it. I am optomistically hoping that it will help her. She will be 9 on > 3/1 and is starting to really be ostracized for not talking by some > people and is tired of being babied by others. > Kim in IA ( 15 OCD, Collena 8 not diagnosed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 wow let us know how it works that sounds great! In a message dated 2/5/2005 4:30:43 PM Atlantic Standard Time, Cotter@... writes: > > We got our inositol yesterday. I am taking it and so is my 8 year old > daughter who is extremely shy, probably has selective mutism from all > I've read on it, and is afraid of things 8 yo's shouldn't be (like going > upstairs alone in the only home she can remember living in). She is > also afraid of the " black white man with the long black hair " ( > -- she can't say his name), and other people from the news, etc. > that she will never meet. She also does some OCD-type things like > " having " to hug her brother or me a certain number of times a day. I > explained to her that this vitamin will help her with her fears and > shyness. Last evening we were at a friend's house and she whispered to > me that we should go home so she could take her evening dose of her > vitamin. I asked her what the hurry was and she said, " I want to stop > being scared and shy soon. " Guess she won't give me a problem taking > it. I am optomistically hoping that it will help her. She will be 9 on > 3/1 and is starting to really be ostracized for not talking by some > people and is tired of being babied by others. > Kim in IA ( 15 OCD, Collena 8 not diagnosed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 My son has been using Inositol for two years now and has had amazing results. I thought you might want to read some links that I've bookmarked: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html http://www.homestead.com/westsuffolkpsych/Inositol.html http://www.homestead.com/westsuffolkpsych/Articles.html http://www.healthbulletin.org/depression/depression2.htm http://www.naturaladd.com/resources/articles/natural.html Regards, > can anyone tell me more about inositol? does it raise serotonin? what other > natural things raise serotonin? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 My son has been using Inositol for two years now and has had amazing results. I thought you might want to read some links that I've bookmarked: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html http://www.homestead.com/westsuffolkpsych/Inositol.html http://www.homestead.com/westsuffolkpsych/Articles.html http://www.healthbulletin.org/depression/depression2.htm http://www.naturaladd.com/resources/articles/natural.html Regards, > can anyone tell me more about inositol? does it raise serotonin? what other > natural things raise serotonin? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 My son has been using Inositol for two years now and has had amazing results. I thought you might want to read some links that I've bookmarked: http://www.homestead.com/westsuffolkpsych/Inositol_and_OCD.html http://www.homestead.com/westsuffolkpsych/Inositol.html http://www.homestead.com/westsuffolkpsych/Articles.html http://www.healthbulletin.org/depression/depression2.htm http://www.naturaladd.com/resources/articles/natural.html Regards, > can anyone tell me more about inositol? does it raise serotonin? what other > natural things raise serotonin? > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 We got our inositol yesterday. I am taking it and so is my 8 year old daughter who is extremely shy, probably has selective mutism from all I've read on it, and is afraid of things 8 yo's shouldn't be (like going upstairs alone in the only home she can remember living in). She is also afraid of the " black white man with the long black hair " ( -- she can't say his name), and other people from the news, etc. that she will never meet. She also does some OCD-type things like " having " to hug her brother or me a certain number of times a day. I explained to her that this vitamin will help her with her fears and shyness. Last evening we were at a friend's house and she whispered to me that we should go home so she could take her evening dose of her vitamin. I asked her what the hurry was and she said, " I want to stop being scared and shy soon. " Guess she won't give me a problem taking it. I am optomistically hoping that it will help her. She will be 9 on 3/1 and is starting to really be ostracized for not talking by some people and is tired of being babied by others. Kim in IA ( 15 OCD, Collena 8 not diagnosed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 We got our inositol yesterday. I am taking it and so is my 8 year old daughter who is extremely shy, probably has selective mutism from all I've read on it, and is afraid of things 8 yo's shouldn't be (like going upstairs alone in the only home she can remember living in). She is also afraid of the " black white man with the long black hair " ( -- she can't say his name), and other people from the news, etc. that she will never meet. She also does some OCD-type things like " having " to hug her brother or me a certain number of times a day. I explained to her that this vitamin will help her with her fears and shyness. Last evening we were at a friend's house and she whispered to me that we should go home so she could take her evening dose of her vitamin. I asked her what the hurry was and she said, " I want to stop being scared and shy soon. " Guess she won't give me a problem taking it. I am optomistically hoping that it will help her. She will be 9 on 3/1 and is starting to really be ostracized for not talking by some people and is tired of being babied by others. Kim in IA ( 15 OCD, Collena 8 not diagnosed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 5, 2005 Report Share Posted February 5, 2005 We got our inositol yesterday. I am taking it and so is my 8 year old daughter who is extremely shy, probably has selective mutism from all I've read on it, and is afraid of things 8 yo's shouldn't be (like going upstairs alone in the only home she can remember living in). She is also afraid of the " black white man with the long black hair " ( -- she can't say his name), and other people from the news, etc. that she will never meet. She also does some OCD-type things like " having " to hug her brother or me a certain number of times a day. I explained to her that this vitamin will help her with her fears and shyness. Last evening we were at a friend's house and she whispered to me that we should go home so she could take her evening dose of her vitamin. I asked her what the hurry was and she said, " I want to stop being scared and shy soon. " Guess she won't give me a problem taking it. I am optomistically hoping that it will help her. She will be 9 on 3/1 and is starting to really be ostracized for not talking by some people and is tired of being babied by others. Kim in IA ( 15 OCD, Collena 8 not diagnosed) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2005 Report Share Posted February 6, 2005 I bought some online,8 ounces for $10.49. www.wholesalesupplementstore.com. I never had any problems shopping online. It is Jarrow Formulas Pharmaceitical grade. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2005 Report Share Posted February 6, 2005 I bought some online,8 ounces for $10.49. www.wholesalesupplementstore.com. I never had any problems shopping online. It is Jarrow Formulas Pharmaceitical grade. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 6, 2005 Report Share Posted February 6, 2005 I bought some online,8 ounces for $10.49. www.wholesalesupplementstore.com. I never had any problems shopping online. It is Jarrow Formulas Pharmaceitical grade. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 Hi all, this is Amy's husband Mark: I don't normally post in this group, I read through the conversations with my wife and discuss the information contained. As you all have experienced, raising a child with this disorder is a huge challenge. One that leaves a lot of parents dazed, confused, feeling helpless and wanting to discover the " magic " cure for it all. We've been there, done that many times and probably will continue to do so. The truth is, if your child has been diagnosed with a " chronic " condition be prepared to be in it for the long haul. Although there have been huge advances in treatment of mental illnesses over the past 50 years there is no real cure (something that would completely resolve every symptom) for chronic mental illness. Because we can not enter into the mind of our children we ourselves can only ponder the suffering, the feeling of wanting to be " normal " and the severe anxiety brought about by the illness. As parents we have a very misinformed and judgmental society pointing fingers and blaming us. We ourselves have gone through having school systems tell us that our child was " normal " and that we were over dramatizing her issues. We've had neighbors and their children become aggressive and hostile because our child is ill. If a " magic " cure existed we, as I'm sure all of you would run not walk to the nearest place to obtain it. Studies have been and are being conducted on the effects of Inositol augmenting SSRI treatment. Outside of a clinically controlled environment I would use extreme caution and would be having discussions with the psychiatrist treating my child before introducing any other substance. I can relate with the desperation you all feel and the need to help your children. One thing to keep in mind is that there is huge controversy in the medical community about the effectiveness of Inositol as a treatment or augmentation to other drug treatment for OCD. Recent FDA disclosures concerning SSRI's and potentially dangerous side effects (suicidal idealizations, tendencies toward violence...) published in October of 2004 raise the caution flag a bit higher on the pole. Until full clinical evaluation is complete and Inositol is proven to be the " magic " cure we ourselves are going to stay away from it. I have included excerpts from the OCD Foundations web site's Research Digest concerning Inositol. The link to the below information is: http://www.ocfoundation.org/ocf1310a.htm In your browser click on Edit and Find on this page...type in Inositol, it will take you to the excerpts below. The owner of this mail list has posted a letter to my wife directly stating that unless a therapy or treatment is scientifically proven as effective it is not to be discussed in this list. It seems that Inositol sits on the edge of that controversy and I myself have wondered why the lengthy discussions have been permitted to continue here. **************************************************************************** ******************************************************************* Cognitive-Behavioral Therapy As An Adjunct To Serotonin Reuptake inhibitors In Obsessive-compulsive Disorder: An Open Trial. Journal of Clinical Psychiatry, 60: 584-590, 1999, H.B. Simpson, K.S. Gorfinkle and M.R. Liebowitz. Many studies have reported that behavior therapy can help significantly OCD patients. The advantage of the present study is that it was designed to separate the medication and behavior therapy effects. Results from this trial show that cognitive-behavior therapy using exposure and ritual prevention can lead to a significant reduction in OCD symptoms in patients who remain symptomatic despite an adequate trial of an OCD medication. A previous study suggested that Inositol, one of the B vitamins, may be effective in the treatment of OCD. The following two studies evaluated Inositol as an augmenting agent of serotonin reuptake inhibitors (SRIs). The addition of Inositol to the ongoing SRI treatment was not beneficial in either study. Inositol Augmentation Of Serotonin Reuptake Inhibitors In Treatment-Refractory Obsessive-compulsive Disorder: An Open Trial. International Clinical Psychopharmacology, 14: 353-356, 1999, S. Seedat and D.J. Stein. Ten OCD patients who had failed to respond to current and previous trials of SRIs participated in a trial of Inositol (18 mg/day) augmentation for 6 weeks. Inositol augmentation of a SRI did not lead to significant improvement in the majority of these patients. Inositol Versus Placebo Augmentation Of Serotonin Reuptake Inhibitors In the Treatment Of Obsessive-compulsive Disorder: A Double Blind Cross-Over Study. International Journal of Neuropsychopharmacology, 2: 193-195, 1999. M. Fux, J. and R. H. Belmaker. This double-blind study compared the addition of Inositol versus placebo to ongoing SRI treatment in ten OCD patients. No significant difference was found between Inositol and placebo treatment augmentations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 Hello to Amy's husband, Mark, I've posted about our personal experience with inositol, but not to augment an SSRI. We chose to give inositol a try before using any other meds and it worked for my son. I've never suggested that there was a magic cure. I've never " recommended " that anyone should use inositol. I've only posted our results used in combination with ERP. Do I believe in it for my son ... absolutely. By note to Louis, is inositol off limits on this list? Regards, in Georgia > Hi all, this is Amy's husband Mark: > > I don't normally post in this group, I read through the conversations with > my wife and discuss the information contained. As you all have experienced, > raising a child with this disorder is a huge challenge. One that leaves a > lot of parents dazed, confused, feeling helpless and wanting to discover the > " magic " cure for it all. We've been there, done that many times and > probably will continue to do so. The truth is, if your child has been > diagnosed with a " chronic " condition be prepared to be in it for the long > haul. Although there have been huge advances in treatment of mental > illnesses over the past 50 years there is no real cure (something that would > completely resolve every symptom) for chronic mental illness. Because we > can not enter into the mind of our children we ourselves can only ponder the > suffering, the feeling of wanting to be " normal " and the severe anxiety > brought about by the illness. As parents we have a very misinformed and > judgmental society pointing fingers and blaming us. We ourselves have gone > through having school systems tell us that our child was " normal " and that > we were over dramatizing her issues. We've had neighbors and their children > become aggressive and hostile because our child is ill. If a " magic " cure > existed we, as I'm sure all of you would run not walk to the nearest place > to obtain it. Studies have been and are being conducted on the effects of > Inositol augmenting SSRI treatment. Outside of a clinically controlled > environment I would use extreme caution and would be having discussions with > the psychiatrist treating my child before introducing any other substance. > I can relate with the desperation you all feel and the need to help your > children. One thing to keep in mind is that there is huge controversy in > the medical community about the effectiveness of Inositol as a treatment or > augmentation to other drug treatment for OCD. Recent FDA disclosures > concerning SSRI's and potentially dangerous side effects (suicidal > idealizations, tendencies toward violence...) published in October of 2004 > raise the caution flag a bit higher on the pole. Until full clinical > evaluation is complete and Inositol is proven to be the " magic " cure we > ourselves are going to stay away from it. I have included excerpts from the > OCD Foundations web site's Research Digest concerning Inositol. The link to > the below information is: http://www.ocfoundation.org/ocf1310a.htm In your > browser click on Edit and Find on this page...type in Inositol, it will take > you to the excerpts below. > > The owner of this mail list has posted a letter to my wife directly stating > that unless a therapy or treatment is scientifically proven as effective it > is not to be discussed in this list. It seems that Inositol sits on the > edge of that controversy and I myself have wondered why the lengthy > discussions have been permitted to continue here. > > ********************************************************************** ****** > ******************************************************************* > Cognitive-Behavioral Therapy As An Adjunct To Serotonin Reuptake > inhibitors In Obsessive-compulsive Disorder: An Open Trial. > > Journal of Clinical Psychiatry, 60: 584-590, 1999, H.B. Simpson, K.S. > Gorfinkle and M.R. Liebowitz. > Many studies have reported that behavior therapy can help significantly > OCD patients. The advantage of the present study is that it was designed to > separate the medication and behavior therapy effects. Results from this > trial show that cognitive-behavior therapy using exposure and ritual > prevention can lead to a significant reduction in OCD symptoms in patients > who remain symptomatic despite an adequate trial of an OCD medication. A > previous study suggested that Inositol, one of the B vitamins, may be > effective in the treatment of OCD. The following two studies evaluated > Inositol as an augmenting agent of serotonin reuptake inhibitors (SRIs). The > addition of Inositol to the ongoing SRI treatment was not beneficial in > either study. > > Inositol Augmentation Of Serotonin Reuptake Inhibitors In > Treatment-Refractory Obsessive-compulsive Disorder: An Open Trial. > > International Clinical Psychopharmacology, 14: 353-356, 1999, S. Seedat and > D.J. Stein. > Ten OCD patients who had failed to respond to current and previous > trials of SRIs participated in a trial of Inositol (18 mg/day) augmentation > for 6 weeks. Inositol augmentation of a SRI did not lead to significant > improvement in the majority of these patients. > > Inositol Versus Placebo Augmentation Of Serotonin Reuptake Inhibitors In > the Treatment Of Obsessive-compulsive Disorder: A Double Blind Cross-Over > Study. > > International Journal of Neuropsychopharmacology, 2: 193-195, 1999. M. Fux, > J. and R. H. Belmaker. > This double-blind study compared the addition of Inositol versus placebo > to ongoing SRI treatment in ten OCD patients. No significant difference was > found between Inositol and placebo treatment augmentations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 Hello to Amy's husband, Mark, I've posted about our personal experience with inositol, but not to augment an SSRI. We chose to give inositol a try before using any other meds and it worked for my son. I've never suggested that there was a magic cure. I've never " recommended " that anyone should use inositol. I've only posted our results used in combination with ERP. Do I believe in it for my son ... absolutely. By note to Louis, is inositol off limits on this list? Regards, in Georgia > Hi all, this is Amy's husband Mark: > > I don't normally post in this group, I read through the conversations with > my wife and discuss the information contained. As you all have experienced, > raising a child with this disorder is a huge challenge. One that leaves a > lot of parents dazed, confused, feeling helpless and wanting to discover the > " magic " cure for it all. We've been there, done that many times and > probably will continue to do so. The truth is, if your child has been > diagnosed with a " chronic " condition be prepared to be in it for the long > haul. Although there have been huge advances in treatment of mental > illnesses over the past 50 years there is no real cure (something that would > completely resolve every symptom) for chronic mental illness. Because we > can not enter into the mind of our children we ourselves can only ponder the > suffering, the feeling of wanting to be " normal " and the severe anxiety > brought about by the illness. As parents we have a very misinformed and > judgmental society pointing fingers and blaming us. We ourselves have gone > through having school systems tell us that our child was " normal " and that > we were over dramatizing her issues. We've had neighbors and their children > become aggressive and hostile because our child is ill. If a " magic " cure > existed we, as I'm sure all of you would run not walk to the nearest place > to obtain it. Studies have been and are being conducted on the effects of > Inositol augmenting SSRI treatment. Outside of a clinically controlled > environment I would use extreme caution and would be having discussions with > the psychiatrist treating my child before introducing any other substance. > I can relate with the desperation you all feel and the need to help your > children. One thing to keep in mind is that there is huge controversy in > the medical community about the effectiveness of Inositol as a treatment or > augmentation to other drug treatment for OCD. Recent FDA disclosures > concerning SSRI's and potentially dangerous side effects (suicidal > idealizations, tendencies toward violence...) published in October of 2004 > raise the caution flag a bit higher on the pole. Until full clinical > evaluation is complete and Inositol is proven to be the " magic " cure we > ourselves are going to stay away from it. I have included excerpts from the > OCD Foundations web site's Research Digest concerning Inositol. The link to > the below information is: http://www.ocfoundation.org/ocf1310a.htm In your > browser click on Edit and Find on this page...type in Inositol, it will take > you to the excerpts below. > > The owner of this mail list has posted a letter to my wife directly stating > that unless a therapy or treatment is scientifically proven as effective it > is not to be discussed in this list. It seems that Inositol sits on the > edge of that controversy and I myself have wondered why the lengthy > discussions have been permitted to continue here. > > ********************************************************************** ****** > ******************************************************************* > Cognitive-Behavioral Therapy As An Adjunct To Serotonin Reuptake > inhibitors In Obsessive-compulsive Disorder: An Open Trial. > > Journal of Clinical Psychiatry, 60: 584-590, 1999, H.B. Simpson, K.S. > Gorfinkle and M.R. Liebowitz. > Many studies have reported that behavior therapy can help significantly > OCD patients. The advantage of the present study is that it was designed to > separate the medication and behavior therapy effects. Results from this > trial show that cognitive-behavior therapy using exposure and ritual > prevention can lead to a significant reduction in OCD symptoms in patients > who remain symptomatic despite an adequate trial of an OCD medication. A > previous study suggested that Inositol, one of the B vitamins, may be > effective in the treatment of OCD. The following two studies evaluated > Inositol as an augmenting agent of serotonin reuptake inhibitors (SRIs). The > addition of Inositol to the ongoing SRI treatment was not beneficial in > either study. > > Inositol Augmentation Of Serotonin Reuptake Inhibitors In > Treatment-Refractory Obsessive-compulsive Disorder: An Open Trial. > > International Clinical Psychopharmacology, 14: 353-356, 1999, S. Seedat and > D.J. Stein. > Ten OCD patients who had failed to respond to current and previous > trials of SRIs participated in a trial of Inositol (18 mg/day) augmentation > for 6 weeks. Inositol augmentation of a SRI did not lead to significant > improvement in the majority of these patients. > > Inositol Versus Placebo Augmentation Of Serotonin Reuptake Inhibitors In > the Treatment Of Obsessive-compulsive Disorder: A Double Blind Cross-Over > Study. > > International Journal of Neuropsychopharmacology, 2: 193-195, 1999. M. Fux, > J. and R. H. Belmaker. > This double-blind study compared the addition of Inositol versus placebo > to ongoing SRI treatment in ten OCD patients. No significant difference was > found between Inositol and placebo treatment augmentations. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 I just wanted to drop my .02....i've only been in the group for a few months. My ds (6) started to get pretty bad....and we were still searching for a therapist. I knew we were a few months from really getting into treatment/meds. It was getting difficult to take him anywhere. He's got the " touching " , " just right feeling " odc mostly, and we'd be walking down an isle in Walmart, and he'd have to kneel down to touch each knee on the floor...and everytime we changed isles. I decided to try the inositol...and after a week I could see mild improvment, and now a month later, the touching aspect is almost gone. We're only dealing now with the " perfectionism " at school. I know inositol is not a proven answer, but until we could start therapy, I had to try something. And know I think therapy will go much easier. Thanks to all of you for talking about this! Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 21, 2005 Report Share Posted February 21, 2005 I just wanted to drop my .02....i've only been in the group for a few months. My ds (6) started to get pretty bad....and we were still searching for a therapist. I knew we were a few months from really getting into treatment/meds. It was getting difficult to take him anywhere. He's got the " touching " , " just right feeling " odc mostly, and we'd be walking down an isle in Walmart, and he'd have to kneel down to touch each knee on the floor...and everytime we changed isles. I decided to try the inositol...and after a week I could see mild improvment, and now a month later, the touching aspect is almost gone. We're only dealing now with the " perfectionism " at school. I know inositol is not a proven answer, but until we could start therapy, I had to try something. And know I think therapy will go much easier. Thanks to all of you for talking about this! Quote Link to comment Share on other sites More sharing options...
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