Please Help !

[Guest guest]

Good luck !

Remind me not to get involved with a Military man in my next life!!!

Kendra

aschton@... wrote:

Well, welcome to your tax dollars at work !!!!

Most people think they have problems with THEIR insurance

- they

should try dealing with Congress ! My husbands an Army officer

and

CONGRESS (Going under the name of TRICARE )only allows those

of us

who live within a 30 minutes radius of a military facility to be

seen

by the military Doc. we are assigned to. Only way to switch Doc.'s

is

to pay for it out of pocket or get another assignment.

The really

frustrating part is that since there are no Pediatric Neurosurgeons

at the Facility here she can go to an approved civilian one ( which

Dr. Flannery is). We just have to have that referral.

Never fear, though. I WILL prevail. I've been through it

all

before - I was an infertility patient for 5 years ( Now THAT was

a

nightmare).

By the way, OF COURSE, you know more than our Ped. A very

large

percentage of military Doctors are former MD's who have lost their

license to practice. The military hires them because they

are

desperate. Another fun fact ? There is a congressional law

that

prohibits any military member (past or present) from ever suing

a

military Doctor or facility for malpractice. Wonderful, huh ?

Well, wish me luck. Tommorrow I start fighting !!!

> In a message dated 5/17/00 10:58:48 AM Pacific Daylight Time,

> aschton@y... writes:

>

> << I only went to

> Plagiocephely.org and found tons of information and none

of it

> suggested that plagio was about premature closure of the

sutures ,

> actually I'm pretty sure that condition had another name.

> >>

> -grab Kay and run screaming from your dr's office.

Boy I

know more

> than him! Craniosynostosis is when the suture lines prematurely

fuse. It is

> only correctable by surgery & in fact a 3D CT scan should

be used

rtaher than

> only x-rays to correctly diagnose this condition. Plagiocephaly

is

a

> flatness, not fusing. It can be corrected with helmet or

band

therapy, but

> in the past was treated by surgery because it was mis-diagnosed.

Pin them

> down & ask them if her suture lines are open or fused.

You are

talking apple

> & oranges & they are doing a grave disservice to your

family. Do

not let

> them schedule a surgery ( chime in here!!) until they

get

their

> facts straight & learn to communicate clearly with you.

I don't

mean to

> alarm you, but you e-mail really concerns me that you dr is leading

you down

> the wrong path. Kimry PLEASE KEEP US POSTED!

[Guest guest]

,

We have a few graduates. Kimry's Abbey, Dave & 's

(you probably haven't heard of them, they haven't posted in a while), Polly's

........

I have only heard of "gold stars" for the doc band. I don't think

we have any helmet graduates. Anyone???

Hanna just her second adjustment. There has been a little improvement.

No more "corner".

Keep us tuned in with the BATTLE!!!

Kendra

aschton@... wrote:

Kendra !

You'd LOVE it ,if you had two Hanna's to LOVE !! twins are

a lot of

fun. (Most of the time)

I'm glad you had an easy delivery. I did too. It was 6 hrs from

start to finish and I only pushed for 30 minutes total ( well,

for

only about 15 actually. I was throwing up the other 15 and that's

how

Kailey was delivered :0 ) I know the delivery didn't hurt

Kailey,

but I feel pretty sure all of that "squished" time did. I mean,

I was

walking around at 4-5 cm for 3 weeks ! And Colby was on top of

her !

I know I am blessed to have carried my twins to term and they were

perfect, but I don't think being inside that long was all that

great

for either of them. They were 5.9 and 5.4 pounds respectively

and

both over 19 inches and I'm only 5' 4" !

I don't believe (now)that sleeping on her back hurt Kailey's head,

I

think it just made it worse. I actually thought it was a

good thing

that she liked to sleep on her back. It was Colby that we stressed

over - he would ONLY sleep on his tummy . We were terrified

that he

would be a SID case. ( He has a beautiful head, though. Of course

during Labor and delivery Kay did all the work. He kind of "fell"

out! LOL

Anyway,I thank God for all the people who have responded to me

here,

especially you. Just curious, Have there been any "band/ helmet

graduates" since this site was started ? What were the outcomes

, if

so?

Take care,

> > > In a message dated 5/15/00 10:30:56 PM Pacific Daylight Time,

> > > kbgarv@t... writes:

> > >

> > > << First of all, your daughter is just fine!

Was she twin A?

It

> > is very

> > > common for "A" baby to get squished by "B".

> > > >>

> > > Funny story...tonite our 6 yr old was asking about twins

& how

are

> > they in

> > > the tummy. My hubby automatically replied that they

are side by

> > side. I

> > > reflex action said "no, sometimes they are on top of each

other

&

> > twin A gets

> > > squished on the bottom." I don't have twins, but I

have at

least

> > learned

> > > that much about twins from reading these posts:) Kimry

> > > Also on a funny note...did anyone else hear that breast inplants

> > are now FDA

> > > approved. HUMMMMM, maybe that is why the helmet FDA

approval is

> > back logged,

> > > they were workin on the implant thing!!!!!!!!!!

> >

> > ------------------------------------------------------------------

-----

> >

> > ------------------------------------------------------------------

-----

> >

[Guest guest]

In a message dated 5/17/00 9:22:01 PM Pacific Daylight Time,

aschton@... writes:

<< A very large

percentage of military Doctors are former MD's who have lost their

license to practice. The military hires them because they are

desperate >>

-for real? No way, what a way to take care of the people that take

care of our country! Keep fighting, you obviously got your way on the

fertility issue:), so we already all know that you can do this. BTW, a long

time ago, the very first Cranial Tech. parents board (where no one ever

fought, I know, I know, I'm a trouble maker! I'm sorry!) I thought there was

another military family posting, was that you? Has CT been able to offer any

insight on other military experiences (forgive me if you already stated that

originally.) Kimry

[Guest guest]

In a message dated 5/17/00 9:41:40 PM Pacific Daylight Time,

aschton@... writes:

<< What were the outcomes , if

so?

>>

-I know Kendra shared w/you that Abby is a graduate. She started at

4.5 mos, wore 2 bands (totalling 6 months). Her correction was great, the

flatness and the ear alignment. Plus her forehead looks even now. The

bossing (tall area at the back of her head) is still there, but when we

started this, they told me that we could not correct that area. Her head

looks wide, but she seems to be " growing into " the shape & it's not looking

so big any more. There is no way I could have handled this condition left

untreated, I am very happy that we got the band for her. Kimry

[Guest guest]

In a message dated 5/18/00 7:28:34 AM Pacific Daylight Time,

aschton@... writes:

<< After I tossed and turned all night, getting ready to deal with our

Ped. today - her nurse just called to let me know that our Doc. got

into the office this morning, called Dr. Flannery in Augusta, and

after being " educated " , agreed to let Kailey be evaluated !!!!!

YYYEEESSS !!!!!!!!! >>

Yay! Congratulations! Kimry

[Guest guest]

graduation from the helmet could be in as little as 6 weeks according to the

orthotist we saw this morning.just in time for the new england weather.livie

had a fairly big piece taken out of the helmet this morning .our last

adjustment was 3 weeks ago and a chunk was taken out then and she has filled

into that spot nicely i was told.so a piece was taken ut of the front of it

today and we go back in 3 weeks.we see the neurosurgeon next week on the 25th

for a reeval.here's hoping she says we're done soon.i also met a woman this

morning when i was grocery shopping(all groan here) and she remarked on the

helmet.she said 8 years ago her daughter wore a helmet for plagio.the cashier

just looked at the 2 of us like we were nuts.i've never met this woman yet

she knew exactly what i was talking about.she said it helped her daughter

though she doesn't wear pony tails because her ears are off center.but

developmentally she caught right up.nice to know there's hope at the end of

this long tunnel for livie.

lynne

[Guest guest]

Hello All !

A wonderful, funny thing happened this morning -

After I tossed and turned all night, getting ready to deal with our

Ped. today - her nurse just called to let me know that our Doc. got

into the office this morning, called Dr. Flannery in Augusta, and

after being " educated " , agreed to let Kailey be evaluated !!!!!

YYYEEESSS !!!!!!!!! I guess I'll have to give her some credit for

taking the time and the initiative to get informed. (She actually is

a pretty good Dr. normally. A new mother herself) Now, if she

bothers to educate her collegues - who knows?????? (knowledge is a

powerful thing !)

Anyway, they are going to call ahead with the referral number, so

we're all set for the 30th I guess ( Now I just have to find a hotel,

and a sitter for Colby, and a map .......................) --

In Plagiocephalyegroups, AAKARA@a... wrote:

> In a message dated 5/17/00 9:22:01 PM Pacific Daylight Time,

> aschton@y... writes:

>

> << A very large

> percentage of military Doctors are former MD's who have lost their

> license to practice. The military hires them because they are

> desperate >>

> -for real? No way, what a way to take care of the people

that take

> care of our country! Keep fighting, you obviously got your way on

the

> fertility issue:), so we already all know that you can do this.

BTW, a long

> time ago, the very first Cranial Tech. parents board (where no one

ever

> fought, I know, I know, I'm a trouble maker! I'm sorry!) I thought

there was

> another military family posting, was that you? Has CT been able to

offer any

> insight on other military experiences (forgive me if you already

stated that

> originally.) Kimry

[Guest guest]

Sadly enough, Kimry, the part about the Military MD's is very true.

as a matter of fact about 2 years ago, a large newspaper ( I don't

rememeber which one ) did an investigation into it and spilled the

beans. It was then published in all the military magazines, although

I think we all pretty much knew it all ready. As bad as our medical

care is - it's just the icing on a badly burnt cake !

Anyway. No I have never been to any of the other sites - I was just

really fortunate to have encountered an old posting on another board

from a Mom whose child was having similar problems as Kailey. That

led me here, and after I realized what was up with Kailey ( twin

w/large, square flat head - two " points " - one on each side, lopsided

facial features, etc....) I started to gather a lot more info. Now

the ball is rolling, and my baby might have a chance to get better.

I have to say everyone here has been so helpful and encouraging !

it's wonderful !

take care

-- In Plagiocephalyegroups, AAKARA@a... wrote:

> In a message dated 5/17/00 9:22:01 PM Pacific Daylight Time,

> aschton@y... writes:

>

> << A very large

> percentage of military Doctors are former MD's who have lost their

> license to practice. The military hires them because they are

> desperate >>

> -for real? No way, what a way to take care of the people

that take

> care of our country! Keep fighting, you obviously got your way on

the

> fertility issue:), so we already all know that you can do this.

BTW, a long

> time ago, the very first Cranial Tech. parents board (where no one

ever

> fought, I know, I know, I'm a trouble maker! I'm sorry!) I thought

there was

> another military family posting, was that you? Has CT been able to

offer any

> insight on other military experiences (forgive me if you already

stated that

> originally.) Kimry

[Guest guest]

Thanks Liz ! I wish you'd been there ! We were too

overwhelmed by the whole twin experience to be all that angry, then.

We WERE upset about them leaving her in the swing , though. We

couldn't keep them in our room, because I had complications and every

time my hubby would go to be with them - there she'd be, off in the

corner in the swing. ( She was only 3 hours old the first time !)

basically, she became addicted to the automatic swing and our parents

had to go out and buy us one the day after we came home. Can you

believe ?

> >> In a message dated 5/15/00 10:30:56 PM Pacific Daylight Time,

> >> kbgarv@t... writes:

> >>

> >> << First of all, your daughter is just fine! Was she twin A? It

> >is very

> >> common for " A " baby to get squished by " B " .

> >> >>

> >> Funny story...tonite our 6 yr old was asking about twins & how

are

> >they in

> >> the tummy. My hubby automatically replied that they are side by

> >side. I

> >> reflex action said " no, sometimes they are on top of each other &

> >twin A gets

> >> squished on the bottom. " I don't have twins, but I have at least

> >learned

> >> that much about twins from reading these posts:) Kimry

> >> Also on a funny note...did anyone else hear that breast inplants

> >are now FDA

> >> approved. HUMMMMM, maybe that is why the helmet FDA approval is

> >back logged,

> >> they were workin on the implant thing!!!!!!!!!!

> >

> >

> >-------------------------------------------------------------------

-----

> >Accurate impartial advice on everything from laptops to table saws.

> >1/3020/4/_/689409/_/958587637/

> >-------------------------------------------------------------------

-----

> >

> >

[Guest guest]

What great news! Finally a step in the right direction! Ann

________________________________________________________________

YOU'RE PAYING TOO MUCH FOR THE INTERNET!

Juno now offers FREE Internet Access!

Try it today - there's no risk! For your FREE software, visit:

http://dl.www.juno.com/get/tagj.

[Guest guest]

Yay!!!!!!!

kg

aschton@... wrote:

Hello All !

A wonderful, funny thing happened this morning -

After I tossed and turned all night, getting ready to deal with

our

Ped. today - her nurse just called to let me know that our Doc.

got

into the office this morning, called Dr. Flannery in Augusta, and

after being "educated", agreed to let Kailey be evaluated !!!!!

YYYEEESSS !!!!!!!!! I guess I'll have to give her some

credit for

taking the time and the initiative to get informed. (She actually

is

a pretty good Dr. normally. A new mother herself) Now, if

she

bothers to educate her collegues - who knows?????? (knowledge

is a

powerful thing !)

Anyway, they are going to call ahead with the referral number,

so

we're all set for the 30th I guess ( Now I just have to find a

hotel,

and a sitter for Colby, and a map .......................)

--

In Plagiocephalyegroups, AAKARA@a... wrote:

> In a message dated 5/17/00 9:22:01 PM Pacific Daylight Time,

> aschton@y... writes:

>

> << A very large

> percentage of military Doctors are former MD's who have

lost their

> license to practice. The military hires them because

they are

> desperate >>

> -for real? No way, what a way to take care of the

people

that take

> care of our country! Keep fighting, you obviously got your

way on

the

> fertility issue:), so we already all know that you can do this.

BTW, a long

> time ago, the very first Cranial Tech. parents board (where no

one

ever

> fought, I know, I know, I'm a trouble maker! I'm sorry!)

I thought

there was

> another military family posting, was that you? Has CT been

able to

offer any

> insight on other military experiences (forgive me if you already

stated that

> originally.) Kimry

[Guest guest]

First of all I think we all wish we had done more in the beginning but we

can't beat ourselves up about it and seconbdly, tell me who these nurses

were that called your baby " BAD " etc and I will go reem them a new ... You

DON'T have to put up with that from ANYONE and I would be talking legal

measures if I had heard this from the nurses at our hospital! I'm sure your

baby is beautiful and there are no " bad " babies if the nurses there couldn't

serve her needs and they felt incompetent enough to call a new born names,

that is their problem. This stuff really irritates me. There you are with a

new baby and the people that are supposed to " NURSE " you and the baby are

always pulling something. - Liz

-----Original Message-----

From: aschton@... <aschton@...>

Plagiocephalyegroups <Plagiocephalyegroups>

Date: Wednesday, May 17, 2000 11:16 AM

Subject: Re: Please Help !

>-

>That is a funny story. Not only was Kailey crossways on the bottom,

>but we had an ultrasound every 2 weeks from 7 weeks on, and at every

>one her Brother (who was horizontal on top)would be kicking her in

>the head ! we'd watch and every few seconds he'd kick his feet out

>towards her head and she'd move at impact.

>It wasn't until I was 32 weeks that they went into the side by side

>position (head down). Unfortunately for Kailey -the tech told us her

>head was already too far down in my pelvis to even be measured (they

>could no longer see all of it)- I didn't deliver her until 37 weeks

>+. My poor baby -her punkin' head was squished down in there all

>that time.( 5 weeks)

> After she was born, she screamed and screamed for so long that they

>put her in the swing in the nursery when she was only 3 hours old.

>She kept this up for about 3 weeks, and it's ironic now, but my MOm

>kept saying she thought Kailey was screaming so much because her head

>hurt. In retrospect , I believe she was right. Kailey's head looked

>really bad then and if you so much as touched it - she'd scream like

>she'd been burnt or something. This was also bad because she was

>born with a ton of hair and we had to wash it.

> Now, though , Kay is SO laid back. She never cries unless she's

>hungry, she smiles from the time she wakes up @ 10 am until she goes

>to bed @9. She's totally content to just be left to entertain

>herself. If you knew her now, you'd never believe that all the nurses

>kept telling us that she was a " bad " baby and she was labeled

>the " terror of the nursery " .

> Anyway, I'm sorry I'm rambling and you now know Kay's life story.

>Your comment about twins got me to remembering and now I really DO

>wonder if I hurt my daughter by not paying more attention back then.

>We probably could have helped her more.

> well, take care

>

>-- In Plagiocephalyegroups, AAKARA@a... wrote:

>> In a message dated 5/15/00 10:30:56 PM Pacific Daylight Time,

>> kbgarv@t... writes:

>>

>> << First of all, your daughter is just fine! Was she twin A? It

>is very

>> common for " A " baby to get squished by " B " .

>> >>

>> Funny story...tonite our 6 yr old was asking about twins & how are

>they in

>> the tummy. My hubby automatically replied that they are side by

>side. I

>> reflex action said " no, sometimes they are on top of each other &

>twin A gets

>> squished on the bottom. " I don't have twins, but I have at least

>learned

>> that much about twins from reading these posts:) Kimry

>> Also on a funny note...did anyone else hear that breast inplants

>are now FDA

>> approved. HUMMMMM, maybe that is why the helmet FDA approval is

>back logged,

>> they were workin on the implant thing!!!!!!!!!!

>

>

>------------------------------------------------------------------------

>Accurate impartial advice on everything from laptops to table saws.

>1/3020/4/_/689409/_/958587637/

>------------------------------------------------------------------------

>

>

[Guest guest]

OH MY HEAVENS! Have these people never heard of DR. Sears! I would be suing

that place and taking names of each and every nurse I had any contact with!

I have definately missed my calling - I should have been a delivery

room/nursery nurse becasue I don't deal with that ____! I would have called

the hospital prez from my room if i EVER saw Lillian put in a swing at a few

hours old, esp by people paid to care for her! Actually i probably wouldn't

havev realized til i got home - Which is what happened with us because I had

Freddy Kruger for a nurse who refused to let me sleep and I thought would

kill my baby if I told her to let me alone and other nursees that would

rather go smoke than show me how to breastfeed, meantime, Lillian's blood

sugar dropped to nothing from not eating, This is why we need advocates in

delivery rooms! - Liz

-----Original Message-----

From: aschton@... <aschton@...>

Plagiocephalyegroups <Plagiocephalyegroups>

Date: Thursday, May 18, 2000 7:41 AM

Subject: Re: Please Help !

>Thanks Liz ! I wish you'd been there ! We were too

>overwhelmed by the whole twin experience to be all that angry, then.

>We WERE upset about them leaving her in the swing , though. We

>couldn't keep them in our room, because I had complications and every

>time my hubby would go to be with them - there she'd be, off in the

>corner in the swing. ( She was only 3 hours old the first time !)

>basically, she became addicted to the automatic swing and our parents

>had to go out and buy us one the day after we came home. Can you

>believe ?

>

>

>> >> In a message dated 5/15/00 10:30:56 PM Pacific Daylight Time,

>> >> kbgarv@t... writes:

>> >>

>> >> << First of all, your daughter is just fine! Was she twin A? It

>> >is very

>> >> common for " A " baby to get squished by " B " .

>> >> >>

>> >> Funny story...tonite our 6 yr old was asking about twins & how

>are

>> >they in

>> >> the tummy. My hubby automatically replied that they are side by

>> >side. I

>> >> reflex action said " no, sometimes they are on top of each other &

>> >twin A gets

>> >> squished on the bottom. " I don't have twins, but I have at least

>> >learned

>> >> that much about twins from reading these posts:) Kimry

>> >> Also on a funny note...did anyone else hear that breast inplants

>> >are now FDA

>> >> approved. HUMMMMM, maybe that is why the helmet FDA approval is

>> >back logged,

>> >> they were workin on the implant thing!!!!!!!!!!

>> >

>> >

>> >-------------------------------------------------------------------

>-----

>> >Accurate impartial advice on everything from laptops to table saws.

>> >1/3020/4/_/689409/_/958587637/

>> >-------------------------------------------------------------------

>-----

>> >

>> >

[Guest guest]

8 years ago is great for gettting this trx I hope you can get in contact

with her its nice to share stories, also, I wonder about those women in the

article in Baby Talk or American Baby whichever, I was never able to find

them through phone listings - Liz

-----Original Message-----

From: DOLY1023@... <DOLY1023@...>

Plagiocephalyegroups <Plagiocephalyegroups>

Date: Thursday, May 18, 2000 10:00 AM

Subject: Re: Please Help !

>graduation from the helmet could be in as little as 6 weeks according to

the

>orthotist we saw this morning.just in time for the new england

weather.livie

>had a fairly big piece taken out of the helmet this morning .our last

>adjustment was 3 weeks ago and a chunk was taken out then and she has

filled

>into that spot nicely i was told.so a piece was taken ut of the front of it

>today and we go back in 3 weeks.we see the neurosurgeon next week on the

25th

>for a reeval.here's hoping she says we're done soon.i also met a woman

this

>morning when i was grocery shopping(all groan here) and she remarked on the

>helmet.she said 8 years ago her daughter wore a helmet for plagio.the

cashier

>just looked at the 2 of us like we were nuts.i've never met this woman yet

>she knew exactly what i was talking about.she said it helped her daughter

>though she doesn't wear pony tails because her ears are off center.but

>developmentally she caught right up.nice to know there's hope at the end of

>this long tunnel for livie.

>lynne

>

>------------------------------------------------------------------------

>Did you know that eGroups offers

>calendars, group polls, storage files and more.

>Check out these great features at:

>1/3938/4/_/689409/_/958669470/

>------------------------------------------------------------------------

>

>

[Guest guest]

Kimry--The military also hires foreign nationals to work within the military

system who are here on work permits. They don't have to have board

certification like a regular doctor as long as the work on the base. I

tried to complain in California against one through the state regulatory

commission and they couldn't touch the woman. However when her permit

expired in 2 years she would not get an extention. But something I did find

out. She could practice for 1 year in her country and then reapply to come

back for 2 more years. It is a standard practice from what I was told in

California to staff the clinics when military personnel are not available.

Great medical benefits, huh?

Wanda

>From: AAKARA@...

>Reply-Plagiocephalyegroups

>Plagiocephalyegroups

>Subject: Re: Please Help !

>Date: Thu, 18 May 2000 08:46:06 EDT

>

>In a message dated 5/17/00 9:22:01 PM Pacific Daylight Time,

>aschton@... writes:

>

><< A very large

> percentage of military Doctors are former MD's who have lost their

> license to practice. The military hires them because they are

> desperate >>

>-for real? No way, what a way to take care of the people that take

>care of our country! Keep fighting, you obviously got your way on the

>fertility issue:), so we already all know that you can do this. BTW, a long

>time ago, the very first Cranial Tech. parents board (where no one ever

>fought, I know, I know, I'm a trouble maker! I'm sorry!) I thought there

>was

>another military family posting, was that you? Has CT been able to offer

>any

>insight on other military experiences (forgive me if you already stated

>that

>originally.) Kimry

________________________________________________________________________

Get Your Private, Free E-mail from MSN Hotmail at http://www.hotmail.com

[Guest guest]

When I was in the Air Force I was a paralegal. I worked in the claims

office. We had a medical malpractice suit that involved a military member

who ended up dying. He went several times to the hospital and complained of

headaches and of course he was prescribed motrin. Well, he had a brain tumor.

Military members cannot sue the military, they are " Ferris barred. " Which

was a case that set the precedence. However the military dependents CAN sue.

a little food for thought......

Tanda