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Re: Another question....

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a, unfortunately the levels which are quite vast for 'normal' no longer work for me since thyroid disease. I found in my case, until I went hyperT/Graves, not one dr paid attention to symptoms or tests that fell in the vast normal range they use. Looking back now, all those years ago, there is not much doubt in my mind that thyroid disease was there......but the testing which I didn't know to get a copy of, or how to decipher it, showed in the 'normal' range so I was sent home with nothing. I was told to eat less, exercise more, deal with stress, get more rest, take vitamins, blah, blah, blah. They were more willing to think that because of my age, it could be perimenopause or anything else except thyroid.

Later, at the end of 2001, after being sick with a virus and never feeling better afterwards, I finally went back to my pcp who said my symptoms sounded like thyroid issues. However, from the time he said that, until the blood work was drawn, he decided to change his mind......and not even check the TSH. That would come back to bite him in the butt, so to speak, as I requested copies of the labs, and TSH wasn't even there.

When I brought that to their attention, by phone, they quickly called the lab and had it ran. I had already received my little post card in the mail stating that everything was just 'fine'. Something about that post card really angered me. If I had been 'fine', I wouldn't have been feeling as lousy as I was and I refused to not pursue the matter. When you're fine, you feel accordingly, and I did not. When the results from the TSH were ran, they were 0.01. This alerted the lab that something else was awry, so they did a T3 and T4. Both T3 and T4 were extremely high which meant something else was wrong, maybe hyperthyroidism.

Those normal ranges that the dr's say are 'normal' no longer work for me. I finally was able to get off the atd's, for hyperT/Graves, but even 5-6 months later, many hypo symptoms abounded. I had a TSH of 3.17 and that is not a good place for me. I was gaining weight, no changes in eating, lethargic, surly in temper, and just plain ole mean. Nobody likes to feel 'bad' all the time, and I sure didn't. That is when we have to get stubborn and not just 'accept' that this is our lot in life. Finding the right dr is like looking for a needle in a haystack, but to get diagnosed is the best thing to start. I truly believe that had I not gone hyperT in 2001, my thyroid issues would have gone unnoticed for many more years. It took that one event and getting very sick before any dr was willing to say there was a problem, and that he had 'been wrong'.

SandyE~Houston

From: a

To: Texas_Thyroid_Groups

Sent: Saturday, January 08, 2005 9:11 AM

Subject: Another question....

Is this common for levels to be within "normal limits" but yet still very low? or am I a one of a kind? I don't actually know what my levels are at the moment, blood tests are being done on wednesday to determine that.They could be below normal by now. I mean 3 mths ago they were just above being too low. I just don't get why Dr.'s can't think outside the box and see that symptoms are there...I have been tested for anything and everything else, and nothing else shows up. Sorry for ranting, I am just so tired of feeling run down, along with all of the other things that come along with it. Thanks for the help!kristina

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