Re: I'M NEW....NEED INFO AND SUPPORT

[Guest guest]

Welcome Vicki and MIke. We are glad to have you here. Sorry that Mike has

come down with SD, but at least you are in the right place.

With the problems that MIke is also having with his liver, I would suggest

that you contact his doctor immediately. SD is a very odd disease and how it

effects us. You don't want to take any chances. Please call the doc. It

maybe something simple or it could be very serious. When in doubt, always

consult the doc.

Please hang around and be sure to ask anything. This group is a definite

lifeline for many of us and we are an extended family. You will find that

you are not alone and all the weird things that our bodies do, someone else

has experienced the same or similar thing. Feel free to vent too. We are

here to support each other. Welcome to you both.

Much love,

Terry

[Guest guest]

Welcome Vicki and MIke. We are glad to have you here. Sorry that Mike has

come down with SD, but at least you are in the right place.

With the problems that MIke is also having with his liver, I would suggest

that you contact his doctor immediately. SD is a very odd disease and how it

effects us. You don't want to take any chances. Please call the doc. It

maybe something simple or it could be very serious. When in doubt, always

consult the doc.

Please hang around and be sure to ask anything. This group is a definite

lifeline for many of us and we are an extended family. You will find that

you are not alone and all the weird things that our bodies do, someone else

has experienced the same or similar thing. Feel free to vent too. We are

here to support each other. Welcome to you both.

Much love,

Terry

[Guest guest]

Welcome Vicki and MIke. We are glad to have you here. Sorry that Mike has

come down with SD, but at least you are in the right place.

With the problems that MIke is also having with his liver, I would suggest

that you contact his doctor immediately. SD is a very odd disease and how it

effects us. You don't want to take any chances. Please call the doc. It

maybe something simple or it could be very serious. When in doubt, always

consult the doc.

Please hang around and be sure to ask anything. This group is a definite

lifeline for many of us and we are an extended family. You will find that

you are not alone and all the weird things that our bodies do, someone else

has experienced the same or similar thing. Feel free to vent too. We are

here to support each other. Welcome to you both.

Much love,

Terry

[Guest guest]

Hi Vicki, glad you found the site. There is alot to read on but I am sure it

will interest you. We have 2 sites but feel free to ask the group any questions

you may have. Good Luck and Take Care,

Sheri

www.stillsdisease.org

http://groups.yahoo.com/group/Stillsdisease

Hope you can find the info you are looking for.

I'M NEW....NEED INFO AND SUPPORT

HI ALL....My boyfriend has had stills disease for about a year and is

suffering from severe pain in his hips, knees and other joints. He was also

diagnosed with auto immune hepititis and can not take most medication besides

prednisone. He sweats terribly at night and complains constantly of pain in

his liver area. He's had two seperate occasions of severe heart pain (as though

he's having a heart attack ) and I'll tell you ....I was very scared. I would

really like some information regarding this disease and maybe some support for

both of us.. Thankyou for your help. Vicki & Mike

---------------------------------

[Guest guest]

Hi Vicki, glad you found the site. There is alot to read on but I am sure it

will interest you. We have 2 sites but feel free to ask the group any questions

you may have. Good Luck and Take Care,

Sheri

www.stillsdisease.org

http://groups.yahoo.com/group/Stillsdisease

Hope you can find the info you are looking for.

I'M NEW....NEED INFO AND SUPPORT

HI ALL....My boyfriend has had stills disease for about a year and is

suffering from severe pain in his hips, knees and other joints. He was also

diagnosed with auto immune hepititis and can not take most medication besides

prednisone. He sweats terribly at night and complains constantly of pain in

his liver area. He's had two seperate occasions of severe heart pain (as though

he's having a heart attack ) and I'll tell you ....I was very scared. I would

really like some information regarding this disease and maybe some support for

both of us.. Thankyou for your help. Vicki & Mike

---------------------------------

[Guest guest]

Hi Vicki, glad you found the site. There is alot to read on but I am sure it

will interest you. We have 2 sites but feel free to ask the group any questions

you may have. Good Luck and Take Care,

Sheri

www.stillsdisease.org

http://groups.yahoo.com/group/Stillsdisease

Hope you can find the info you are looking for.

I'M NEW....NEED INFO AND SUPPORT

HI ALL....My boyfriend has had stills disease for about a year and is

suffering from severe pain in his hips, knees and other joints. He was also

diagnosed with auto immune hepititis and can not take most medication besides

prednisone. He sweats terribly at night and complains constantly of pain in

his liver area. He's had two seperate occasions of severe heart pain (as though

he's having a heart attack ) and I'll tell you ....I was very scared. I would

really like some information regarding this disease and maybe some support for

both of us.. Thankyou for your help. Vicki & Mike

---------------------------------

[Guest guest]

Hey there Vicki and Mike. My name is Patty and I also use Melt. It sounds

like Mike is very sick as some are and I wish him well. You can come to us

for support any time. We here are like family and welcome all. As Sheri

stated there is the most information here and the members also give us other

links when someone may be looking. I hope Mike feels better soon and you

must be very caring to join us. We will support you definately. Good eve,

Pattymelt

I'M NEW....NEED INFO AND SUPPORT

> HI ALL....My boyfriend has had stills disease for about a year and is

suffering from severe pain in his hips, knees and other joints. He was also

diagnosed with auto immune hepititis and can not take most medication

besides prednisone. He sweats terribly at night and complains constantly

of pain in his liver area. He's had two seperate occasions of severe heart

pain (as though he's having a heart attack ) and I'll tell you ....I was

very scared. I would really like some information regarding this disease

and maybe some support for both of us.. Thankyou for your help. Vicki &

Mike

>

>

> ---------------------------------

>

[Guest guest]

Dear Viki & Mike,

I am known on the island of Stills, as Sue #2. Welcome to a very supportive and

loving group, you will find much comfort here as I have. Mike, you sound very

ill and I would definitely carry this further with your doctor right away.

Please stay with us, we will offer you as much as we can. There is usually

someone always around on this site, no matter what time it is in the late

evening or early hours of the morning, when you cannot even sleep ,and this is

very comforting to a lot of us. You will gain a lot of knowledge of stills

here and have a lot of your questions answered. When I " flare " my symptoms

consist of high fevers, very painful chest pain and I feel like I am having a

heart attack, my abdomen gets very sore, the muscle joints are red and swollen,

high fatigue and sometimes I get very bad sores in my mouth. I do have a rash,

but it differs from others here. I will get a lacey, butterfly rash on my face,

very faint, it will not itch, but I get a very serious looking and very

different rash from anyone else here, from my hips down. My skin turns dark,

dark purple, almost black and it itches very much and this rash covers 90% of my

body from the waist down, and because of the itching, I will scratch it, and

make it open in some areas. It is a most unusual rash. During my good days, I

will usually get a fever about the same time, and mine are usually in the

morning and they are very small fevers, by the afternoon they are gone, but I

have tremendous amount of sweating too. At this time of the year, when people

are in long sleeve shirts, sweaters and turtlenecks, I am in a short sleeve

shirt, because I sweat so much. Right now, because I have only been here a

little over a year, I am on prednisone daily, colchicine, plaquenil and sleep

aids. We have slowly been trying drugs out on me until I find the right

" cocktail " . I wish you both the best, and I hope that I have offered some

helpful information. I look forward to corresponding more with you in the near

future.

Love, sue #2

[Guest guest]

Dear Viki & Mike,

I am known on the island of Stills, as Sue #2. Welcome to a very supportive and

loving group, you will find much comfort here as I have. Mike, you sound very

ill and I would definitely carry this further with your doctor right away.

Please stay with us, we will offer you as much as we can. There is usually

someone always around on this site, no matter what time it is in the late

evening or early hours of the morning, when you cannot even sleep ,and this is

very comforting to a lot of us. You will gain a lot of knowledge of stills

here and have a lot of your questions answered. When I " flare " my symptoms

consist of high fevers, very painful chest pain and I feel like I am having a

heart attack, my abdomen gets very sore, the muscle joints are red and swollen,

high fatigue and sometimes I get very bad sores in my mouth. I do have a rash,

but it differs from others here. I will get a lacey, butterfly rash on my face,

very faint, it will not itch, but I get a very serious looking and very

different rash from anyone else here, from my hips down. My skin turns dark,

dark purple, almost black and it itches very much and this rash covers 90% of my

body from the waist down, and because of the itching, I will scratch it, and

make it open in some areas. It is a most unusual rash. During my good days, I

will usually get a fever about the same time, and mine are usually in the

morning and they are very small fevers, by the afternoon they are gone, but I

have tremendous amount of sweating too. At this time of the year, when people

are in long sleeve shirts, sweaters and turtlenecks, I am in a short sleeve

shirt, because I sweat so much. Right now, because I have only been here a

little over a year, I am on prednisone daily, colchicine, plaquenil and sleep

aids. We have slowly been trying drugs out on me until I find the right

" cocktail " . I wish you both the best, and I hope that I have offered some

helpful information. I look forward to corresponding more with you in the near

future.

Love, sue #2

[Guest guest]

Dear Viki & Mike,

I am known on the island of Stills, as Sue #2. Welcome to a very supportive and

loving group, you will find much comfort here as I have. Mike, you sound very

ill and I would definitely carry this further with your doctor right away.

Please stay with us, we will offer you as much as we can. There is usually

someone always around on this site, no matter what time it is in the late

evening or early hours of the morning, when you cannot even sleep ,and this is

very comforting to a lot of us. You will gain a lot of knowledge of stills

here and have a lot of your questions answered. When I " flare " my symptoms

consist of high fevers, very painful chest pain and I feel like I am having a

heart attack, my abdomen gets very sore, the muscle joints are red and swollen,

high fatigue and sometimes I get very bad sores in my mouth. I do have a rash,

but it differs from others here. I will get a lacey, butterfly rash on my face,

very faint, it will not itch, but I get a very serious looking and very

different rash from anyone else here, from my hips down. My skin turns dark,

dark purple, almost black and it itches very much and this rash covers 90% of my

body from the waist down, and because of the itching, I will scratch it, and

make it open in some areas. It is a most unusual rash. During my good days, I

will usually get a fever about the same time, and mine are usually in the

morning and they are very small fevers, by the afternoon they are gone, but I

have tremendous amount of sweating too. At this time of the year, when people

are in long sleeve shirts, sweaters and turtlenecks, I am in a short sleeve

shirt, because I sweat so much. Right now, because I have only been here a

little over a year, I am on prednisone daily, colchicine, plaquenil and sleep

aids. We have slowly been trying drugs out on me until I find the right

" cocktail " . I wish you both the best, and I hope that I have offered some

helpful information. I look forward to corresponding more with you in the near

future.

Love, sue #2