New to

[Guest guest]

I am new to this list as well and am still exploring how to treat my son

medically.

I am wondering if anyone can point out the distinction between allergy

treatment vs treatment vs a DAN! doctor. I am thinking they are all

interrelated, but wonder how to talk to an allergist about when I am so

new at this -- in other words, I am not sure what to ask for yet. Maybe

there is a good resource I should read before I ask all these questions! I

am reading Dr. McCandlesses Book, Children with Starving Brains. Any other

suggestions?

Also, I am thinking of taking my son to Dr. Layton in Towson, MD.

Thanks in advance for any advice you may have.

S.

[Guest guest]

We take our 5 year old to Dr. Layton and have been very impressed. Our son has

come a long way in the last year we have been seeing Dr. Layton. I have

discussed with him and he knows about it. There are differences between

Dan protocol and but there are also some similarities such as treatment

with antivirals, antifungals, and in some cases SSRI. Dr. Mccandless book is a

great resource. Do you have the newest edition? In the 2nd edition she

discusses TTFD and B12 shots. We just started TTFD so I cannot comment on it

yet. The B12 has been incredible. Much more connected and verbal. Also a nice

gain in processing. We also have had a lot of improvement with antiviral

medication. Dr. Layton does not treat us for allergies. We drive 8 hrs. so it

wouldn't be feasible. He does give my son Secretin. This has also been a great

source of improvement for his speech. doesn't advocate all the supplements

that are covered in Dr. C's book. I hope this helps. Allergy treatment is also

important but we addresses it with NAET. This treatment is not without

controversy so you would need to look into it. They have a website.

www.naet.com . It worked for us. I think and DAN both have a lot of good

points. Kids are recovering with both. I think follow your instincts and with

any doctor you choose stay up on things by reading a lot of different boards

and ask a of questions. I also think prayer is key!

New to

I am new to this list as well and am still exploring how to treat my son

medically.

I am wondering if anyone can point out the distinction between allergy

treatment vs treatment vs a DAN! doctor. I am thinking they are all

interrelated, but wonder how to talk to an allergist about when I am so

new at this -- in other words, I am not sure what to ask for yet. Maybe

there is a good resource I should read before I ask all these questions! I

am reading Dr. McCandlesses Book, Children with Starving Brains. Any other

suggestions?

Also, I am thinking of taking my son to Dr. Layton in Towson, MD.

Thanks in advance for any advice you may have.

S.

[Guest guest]

Nothing seems to work for my son, B-12 makes him crazy, secretin didn't help

much, I would like to find a doctor that I can get the antivirals etc. from

but I am having trouble with that. If anyone can help I would appreciate it.

Thanks

Sheri Steffens

[Guest guest]

No, I am not going to Dr. Layton, but I would like to know about him? I am

getting pretty desperate here, and can't seem to find the answers, and have

tried lots of things.

Sheri

[Guest guest]

Are you the one who was going to try Dr. Layton? He perscribes antivirals.

They have really helped my 5 yr. old.

Re: New to

Nothing seems to work for my son, B-12 makes him crazy, secretin didn't help

much, I would like to find a doctor that I can get the antivirals etc. from

but I am having trouble with that. If anyone can help I would appreciate it.

Thanks

Sheri Steffens

[Guest guest]

Hello !

I'm assuming from your post that you're probably in the great

and soggy mid east )

First, you've take the first step of a thousand mile journey

by signing on this listserve. Lots of good info is passed here.

Second, I think allergy treatment, and DAN are all interconnected

(shhh don't tell Dr G this!)

Bertrand spoke at a recent ASA mtg in Anne Arundel Cty on DAN.

DAN is looking for a medical treatment, but they keep banging away

on that GENE nail. While gene may play a part in our children's condition,

a treatment is years away. Too far away IMHO to be of benefit to someone

like my 8 yr old son. DAN also doesn't explain the viral aspect

of this disease. They did publish a protocol which involves

high doses of vitamins/minerals. But if you read more on supplements,

you'll find that high doses aren't good for you ...

We saw Dr Layton for 2 yrs. But at $200-300/hr ....

He came highly recommended and we were looking

for a local allergist to deal with 's lovely environmental allergies

in this area of the US. But Dr Layton wouldn't test for environmental allergies.

I could understand not doing the skin pricks (very painful

and might set off a dysf. immune system) but why not a blood test?

Dr Layton was helpful in getting us started on the Feingold diet.

He told us to start giving eggs (which he tested allergic to)

but IN things - not by themselves. and dern it - wouldn't you know it

I can finally start using eggs again!

Dr McCandless has written a very informative book - she even

gives Dr G credit as being a 'pioneer' but I don't quite agree

with chelating a child ... there are parents on this listserve

who will tell you their child's mercury level went down/became normal

after starting and stabilizing / calming the immune system

We try to have a Moms' out once a month - I've been a bit

lazy lately )

Let me know if you'd like to come. We shoot for Arundel Mills

since it appears to be a central location.

doris

sville

Message: 6

Date: Mon, 15 Dec 2003 15:09:17 -0500

From: " Schultz " <jpschultz4@...>

Subject: New to

I am new to this list as well and am still exploring how to treat my son

medically.

I am wondering if anyone can point out the distinction between allergy

treatment vs treatment vs a DAN! doctor. I am thinking they are all

interrelated, but wonder how to talk to an allergist about when I am so

new at this -- in other words, I am not sure what to ask for yet. Maybe

there is a good resource I should read before I ask all these questions! I

am reading Dr. McCandlesses Book, Children with Starving Brains. Any other

suggestions?

Also, I am thinking of taking my son to Dr. Layton in Towson, MD.

Thanks in advance for any advice you may have.

S.

[Guest guest]

Janice

We started the diet very slowly replacing favorite foods with substitutes,

but we had immediate improvements with loose stool. I believe the dairy and

whole wheat reduction was the primary benefit In regard to the testing the

" 95 food allergies " was the most convincing. When the result came back they

came directly to US(as well as thee Ped and Dr G)in a very understandable

format. The cost was only $98 US and was not covered but when we compared

the results to a normal Food Allergy work-up the picture of how badly this

kid was reacting to certain food groups became much clearer. The suggested

blood test are on Dr G's site and are needed to form a baseline to help

judge improvements. My wife has not been very supportive of the Protocol and

insists on " Breaking the Rules " for Special occassions(Easter-Chocolate,

Birthday - Cake) and I see definite reversals when the diet is not followed.

We historically had bowel and sleep problems that have gone away when we

started the diet. Last night We were up at 3:00 just like prior to starting

with .

Bill

New to

Hi,

I've just recently started researching . My son was diagnosed w/

PDD in December. I'm starting to look at biomedical interventions.

He's getting OT and ST and soon will be getting behavioral

interventions.

He tends to have loose bowels. I'm first looking into the amount of

juice he drinks. I've switched to flavored water. It seems to have

helped. I'm not sure if I'm going to try the GF/CF diet or not. He's

starting to exhibit some signs of skin sensitivities and allergies

(his cheeks turn red when he eats strawberries, but they never did

before).

I'm trying to compare the logic behind some of the biomedical

interventions. DAN!, , and GF/CF seem to be the biggees. I know

a little about DAN! I understand the gluten/casein logic concerning

opiates and the brain and the gut. Dr. Goldberg doesn't seem as

concerned about eliminating wheat (i.e. gluten) from the diet. He's

more concerned with whole wheat--is this right? From an opiate

standpoint, I'm not sure I understand. Is he more concerned about

allergies/immunities? I'm just starting to read about this, so I'm

merely trying to gain an understanding. From what I've read, Dr.

Goldberg's logic makes sense.

I'm also interested in the copper/zinc relationship. My son exhibits

PICA characteristics, which relates to those levels as well.

How would you recommend I move ahead? I know there are various tests

(urine tests, blood tests, etc.), but I'm not sure which ones are

best/most comprehensive.

Any advice?

Thanks!

Janice

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