Re: Etc - Die off and pink dye, social skills, Xmas

December 15, 2003

Hi all--

I have Diflucan ?'s also. We just switched from Nizoral to Diflucan

after about 7 mos. on the Nizoral.

I never saw any die-off with Nizoral or really any obvious improvements,

although his stools finally did improve after being on it about 4 mos-- but

that could've been due to diet or antivirals also or everything together.

We have been on Diflucan for 3 days now, and I am waiting patiently

for any die-off. Can someone refresh my memory as to what die-off with

antifungals looks like and how long it generally takes to kick in? I

wonder if he even has a yeast problem sometimes- is that possible?

Also, re: the pink dye. was a little " off " (hyper/ more sensory

stuff) while taking a pink antibiotic a few weeks back, so I wondered if the

color was bothering him or if it was something else. It's so hard to tell

with all these meds together, as well as foods. He was also on a

decongestant and fairly new SSRI at the time, so who knows!

If your child has a problem with the dye, is it apparent quickly, or does

it take a while to develop? And how do you find a compounding pharmacy? Do

you just have Dr. G's office call in the prescription to them like normal?

Will they ever take insurance like a " regular " pharmacy? We have Blue Cross

PPO, I wonder if they contract with any compounding pharmacies. I'd

really rather not have the pink dye at all just so I don't have to rule it

out as a potential problem every time something goes awry. I avoid it in

foods, so why give it to him in meds every day?

*totally switching topics now**

I just have to marvel( and brag!), is having a play date with my

friend's daughter (both 3)over at our house right now, and he is playing

like a 'normal' kid. They're both laughing and giggling and running around

and 's even sharing his toys. They're sitting in a little pop-up

playhouse sharing beef jerky and being silly. He hasn't stressed out or

avoided her once in the last 3 hrs. He's even talking to her. It helps that

they have the same quiet temperament, she's great therapy for ! These

1:1 playdates work out so great, too many loud kids at once, like at

preschool, make it much harder for him to interact socially. It makes me

wonder how much of what holds him back with other kids is and how much

is his very shy, laid-back personality. I was also very shy as a kid (still

am in many ways) and could never play with kids I didn't know or very loud,

fast kids. Just thinking out loud....

May all of you have a wonderful Christmas with your families, and a New

Year that is filled with progress for all of our kids. Its such a blessing

for me that can " get " Christmas now and talk about Santa bringing him

toys, and ENJOY it all instead of being stressed by the whole experience.

The difference between Christmas this year and last year brings tears to my

eyes. We all missed out on so much for so long. Blessings to everyone.

Happy Holidays! Becky

Happy Holidays!!!! Becky

Re: Diflucan - should I switch?

> Hi Jin -

>

> It is likely that your child is reacting to the dye in

> the medicine. It caused a great deal of anxiety and

> oppositional behavior in my son - although the liquid

> form had not done that. (My other son also reacted

> w/red cheeks and fussiness-again to the pill & not the

> liquid.) You should probably request a change, or

> perhaps try compounding it dye-free - much cheaper

> that way too I've heard. If you change to a totally

> different drug, then when it is time to change

> antifungals in the future, you could give it another

> try at that time compounded dye-free.

>

> I wouldn't recommend letting your child suffer through

> that much longer - after another week, you should be

> safe to say that he is not experiencing die-off but

> rather a reaction to the med or something in it.

>

> Best of luck-

>

> Responsibility for the content of this message lies strictly with

> the original author, and is not necessarily endorsed by or the

> opinion of the Research Institute.

>

December 16, 2003

In a message dated 12/15/03 7:29:28 PM Central Standard Time,

beckeric@... writes:

> If your child has a problem with the dye, is it apparent quickly, or does

> it take a while to develop?

It probably varies with each individual child but those I know who have

trouble with dyes tend to get pretty hyper fairly quickly, even to small amounts

of

dye.

> And how do you find a compounding pharmacy? Do you just have Dr. G's office

> call in the prescription to them like normal? Will they ever take insurance

> like a " regular " pharmacy? We have Blue Cross PPO, I wonder if they

> contract with any compounding pharmacies.

If you have Express Scripts as your mail-order RX company through BCBS, they

can compound many drugs for you. Dr. G's office can fax a prescription to a

compounding pharmacy or Express Scripts like they do to any pharmacy. Most

compounders aren't on insurance plans though so you'll have to file for

reimbursement.

Gaylen

December 17, 2003

and Gaylen,

Thanks so much for your replies. I think I'll call tomorrow about

compounding. Does anyone have the number to Friendly Hills pharmacy handy?

Our BC of CA PPO actually covered the Diflucan with no problems, I was

shocked. So far this insurance has been amazing, it's really saved us

financially. However, I'd be willing to pay out of pocket for a dye-free

Diflucan if its under about $100. I'd just rather eliminate the pink dye as

a possible problem.

Today has had diarrhea, 1 normal stool and 3 loose stools and a

lot of gas. His last stool was almost white in color and floated. Does

this sound like part of die-off? I suppose it could be an intestinal

illness or food reaction, but he hasn't gotten a hold of any suspect foods

(that I know of!) and he seems to feel fine otherwise. He has been more

flappy and hyper today, though. I also caught him opening and closing a

cupboard door repeatedly, which I haven't seen in a long while. Does fungal

die-off make our kiddos feel lousy, like the viral die off did for us, or

just make them act a bit wierd? Or does it just depend on the kid?

is very verbal and happy/cooperative today, just doing a lot more

sensory-seeking stuff and now the lousy poop.He also seems to be sleeping

restlessly. He's running in circles as I type, LOL

Thanks again, Becky

Re: Etc - Die off and pink dye, social skills, Xmas

> In a message dated 12/15/03 7:29:28 PM Central Standard Time,

> beckeric@... writes:

>

> > If your child has a problem with the dye, is it apparent quickly, or

does

> > it take a while to develop?

>

> It probably varies with each individual child but those I know who have

> trouble with dyes tend to get pretty hyper fairly quickly, even to small

amounts of

> dye.

>

> > And how do you find a compounding pharmacy? Do you just have Dr. G's

office

> > call in the prescription to them like normal? Will they ever take

insurance

> > like a " regular " pharmacy? We have Blue Cross PPO, I wonder if they

> > contract with any compounding pharmacies.

>

> If you have Express Scripts as your mail-order RX company through BCBS,

they

> can compound many drugs for you. Dr. G's office can fax a prescription to

a

> compounding pharmacy or Express Scripts like they do to any pharmacy.

Most

> compounders aren't on insurance plans though so you'll have to file for

> reimbursement.

> Gaylen

>

December 17, 2003