Guest guest Posted October 19, 2002 Report Share Posted October 19, 2002 Mike & - we also had some pretty disappointing results with Topamax. Her Neuro was in the process of increasing it, when things went haywire. Her seizures increased in number & severity, & the other day she had 3 big tonic ones, followed by 3 long naps. When she wasn't sleeping, she was laying down on the floor. I wasn't aware that Topamax can cause sleepiness !!! It also caused a big decrease in appetite. The few foods that she would almost always eat, she wouldn't touch. She's getting taller, so she's become VERY thin. She's 4 1/2, & some 6X's are too big around the waist on her !!! We just picked up 4 cases of chocolate Pediasure yesterday. She loves the stuff, & at least I know that she's getting some nutrition everyday. I've even begun putting the Keppra & Zonegran into the Pediasure, to try to get her to drink it down. The alternate Neuro started her on the Zonegran ( 100 mgs. at night ), after the fiasco with the seizures & sleeping spells. He took her off the Topamax immediately, & replaced it with the Zonegran. Soooo, now she's taking 1500 mgs. of Keppra a day, & 100 mgs. of Zonegran a day. Her appetite is already getting a little better. I just hope that it continues to increase. I think that she has problems with chewing, it makes her very tired & it's hard work. So, she prefers to eat stuff that she doesn't HAVE to chew. Yesterday, she cried when we were passing Mcs, so we went in there. We bought her a cheeseburger happy meal. She took a few bites of the burger, & dunked a few fries in the cheese sauce. I think she eats more like a 2 year old, then a 4 year old. She WILL eat most of an instant pudding cup ( chocolate, of course ) , & she can put away a bowl of icecream, easily !!! She's still having tonic seizures & absence spells everyday, but not as many. I'm hoping that once she adjusts to the Zonegran, the seizures will decrease. I think I've gone on long enough. Thanks so much for sharing that info on Carver. It seems that both of us are in the introductory stage of Zonegran. I just hope that it works for both of our Angels... Give him {{{ LOTS OF HUGS & KISSES }}} for us... Take care & be well... & her little munchkin, Crystal Aquielle - 4 years old - BPP - Grade 3... Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.