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Olivia is 12 yrs old and weighs only 54 lbs.  She is definitely of

slender phenotype and will never be overweight.  I’ve been trying to bulk her

up since birth, with no luck.   I guess it just comes with the scoli….In her

case, anyway.

HRH

From:

infantile_scoliosis

[mailto:infantile_scoliosis ] On Behalf Of NIck Guthe

Sent: Saturday, January 23, 2010 12:59 PM

To: infantile_scoliosis

Subject: Re: Re: Need Advice

Our two and a half year old is also very skinny! He is under

25 pounds, I'd say about 23 without the 3 pound cast, but in the 75th

percentile for height. In our case, he is very healthy, just a skinny type. Hope

that helps.

Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt

Lake City Shriners, currently down from 61 degrees to 23)

From: SofIsaMomma

To: infantile_scoliosis

Sent: Fri, January 22, 2010 7:53:08 PM

Subject: Re: Need Advice

My 3 yr old just got her 8th cast off and is in

a TLSO brace. She started with 77 degrees and was down to 24 but back to 50 by

the time this brace was put on. She is also a tiny thing...24 lbs. My 13 month

old and her weigh exactly the same. She does get a high calorie Pediasure a day

for extra calories but once that cast came off OMG my baby is skinny! So we are

trying to put some meat on her, one way or another...I am short at 5'2 but

hubby is 6'2 so who knows if it's genetics or scoliosis/casting. ..I don't know

what I would do...Probably keep casting. If my daughter's curve doesn't hold

with the brace I am suggesting another round of casting...

>

> Hello all, my 3 year old daughter is in her 6th cast and she unfortunately

she did not get any correction in her last 2 casts. She started with a 62

degree curve and is down to 24. My husband is feeling frustrated and wants to

stop the casting. I say we should keep going. The other concern is that my

daughter only weighs about 25 pounds, so we are concerned. Can anyone give me

some advice? Thanks

>

> 's mom

>

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That’s interesting about the low birth weight.

was always on the 50 percentile for weight, but at his first cast change, they

weighed him without the cast and he dropped down to between 10-25th

percentile. He gained less than a pound in 2 ½ months (from 6 ½ months old to 9

months old when he should be gaining more than that). Is there a correlation

between infantile scoliosis and poor weight gain?

Amy (mommy to , in 2nd cast from Rochester)

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I totally agree with you .. Joanmom to Hayden 343 degrees down from 62Cast number 3Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, January 28, 2010 2:30:22 PMSubject: RE: Re: low weight

I was told that a child with scoli must work twice as hard to accomplish basic day to day activities, so they burn more energy/calories…. My daughter is considered to be of slender phenotype and I was told that she will never be overweight…..I have tried everything. From high calorie meals, to supplements, to giving her an eating disorder if I didn’t chill out! Olivia stayed at 24 lbs from age 2 – almost 4 yrs old. Now, she is 12 yrs old and only weighs 54 lbs.

Point is, I think our weight issue is from the scoli.

HRH

From: infantile_scoliosis @yahoogroups. com [mailto:infantile_ scoliosis@ yahoogroups. com] On Behalf Of Amy FleishmanSent: Tuesday, January 26, 2010 6:11 PMTo: infantile_scoliosis @yahoogroups. comSubject: [infantile_scoliosi s] Re: low weight

That’s interesting about the low birth weight. was always on the 50 percentile for weight, but at his first cast change, they weighed him without the cast and he dropped down to between 10-25th percentile. He gained less than a pound in 2 ½ months (from 6 ½ months old to 9 months old when he should be gaining more than that). Is there a correlation between infantile scoliosis and poor weight gain?

Amy (mommy to , in 2nd cast from Rochester)

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