Newbie: daughter's lab results show epstein-barr and cocksackie virus

[Guest guest]

Hi,

I'm new to this board (although we have been on the GFCFKids board

for several months now).

We just got some new labs back on my 28 mo. old daughter Hannah (high

functioning autism or Asperger's), and they showed she has elevated

antibodies to epstein-barr virus and cocksackie B3 & B5. SHe also

has some signs of autoimmune issues--elevated IgE, borderline low Ig!

(IgG normal), elevated CD4 T Cell lymphocites and " equivocable "

immunity to chicken pox, depsite having been vaccinated for it.

IT seems to me these results are consistent with theories about

viral/autoimmune causes to autism. See e.g.

www.jorsm.com/~binstock/chronic1.htm " Atypical Chronic-Infections nad

Other Immune Atypicalities in Autism Spectrum Children: Preliminary

Data Suggesting a New Diagnostic Subgroup " by Binstock.

However, my pediatrician, while she agreed to read the article I gave

her, is not yet convinced there is any relevance to our findings. I

would love to be pointed toward other, more scientific articles I can

give her.

More importantly, I need advice on treatment protocol. I may be able

toconvince my pediatrician to prescribe some treatments if I can make

a good case for it. I have heard about Dr. GOldberg's anti-viral

therapies, but don;t knwo which would work best for ebv.

Acyclovir? Valtrex?

What are the risks and side effects?

What about IVIG and Transfer Factor? (That I know our insurance

won't pay for!).

Why does Dr. GOldberg prescribe SSRIs as part of his protocol?

Aren't these very risky in such young children?

Any reason to use antibiotics as well? I see people are often using

these in combinatin with Valtrex, but don't quite udnerstand why.

WIll the anti-virals work in isolation, or is it necessary to use the

SSRI's, antibiotics or other meds as well?

WE live in Washington state. I called Dr. GOldber's office in CA,

but he is not taking new patients right now. Our DAN doctor is only

so knowledgable when it comes to . I need help educating my

doctors!

My daughter's biggest behavoir issues these days are OCD behaviors,

and they are becoming a BIG problem. Her speech is doing gret

(except for pronoun reversal), and she is making progress in eye

contact and social skills.

I'd really appreciate any advice you can share! THanks!

Hannah 4/30/01