Antivirals

[Guest guest]

Hi all,

Does anyone know how long Dr. G recommends staying on antivirals?

's viral titers were all neg. except the coxsackie, which is high.

Since he had this virus in the summer one would expect his titer to be high.

Doesn't this mean that his immune system is functioning properly, or am I

way off base here?

He also shows high MMR titers but Valtrex isn't indicated for treatment of

measles or rubella.

Sorry guys, but the whole viral piece has me confused !!

Is Dr.G treating for unknown viruses that we can't test for? If so, than it

makes sense to stay on the meds..

I have one more question about Paxil, we started it 10 days ago. 1/4 of a 10

mg. tab per day. is 4 1/2 yrs. old and 33 lbs.

Today we increased to 1/2 tab and from what I understand we should alternate

between 1/4 and 1/2 tab. then go to a 1/2 tab daily. How long should we

alternate the Paxil ?

Thank you in advance for your help,

Anagnostakos

[Guest guest]

Hi ,

From what I've heard, Dr. Goldberg cuts back on antivirals when he

sees that a patient's immune system appears to be healthy (per blood

tests and behavior). He does so gradually, instructing parents to

look for behavioral changes that suggest regression.

The antivirals he uses are only effective against viruses in the

herpes family. They do not destroy coxsackie viruses. That said,

there are three things to consider: (1) a high viral titer can be an

important immune system marker in a general sense, but from what I

understand there is not always a direct correlation between the

titer and the virus. In other words, a high HHV6 titer can be

indicative of a viral problem other than HHV6; (2) it is my

understanding that an antiviral can help a child with a stressed

immune system (but no active herpes infection) by ensuring that the

child's distressed immune system will not have to fight the many

herpes viruses out there; and (3) I think that Dr. Goldberg's

archives (currently " down " ) contain posts where he has said there

are likely many, many herpes viruses out there that are presently

undentified.

--- In , " HARRY ANAGNOSTAKOS " <lsa5885@m...>

wrote:

> Hi all,

> Does anyone know how long Dr. G recommends staying on

antivirals?

> 's viral titers were all neg. except the coxsackie, which

is high.

> Since he had this virus in the summer one would expect his

titer to be high.

> Doesn't this mean that his immune system is functioning

properly, or am I way off base here?

> He also shows high MMR titers but Valtrex isn't indicated for

treatment of measles or rubella.

> Sorry guys, but the whole viral piece has me confused !!

> Is Dr.G treating for unknown viruses that we can't test for? If

so, than it makes sense to stay on the meds..

> I have one more question about Paxil, we started it 10 days

ago. 1/4 of a 10 mg. tab per day. is 4 1/2 yrs. old and 33 lbs.

> Today we increased to 1/2 tab and from what I understand we

should alternate between 1/4 and 1/2 tab. then go to a 1/2 tab

daily. How long should we alternate the Paxil ?

> Thank you in advance for your help,

> Anagnostakos

[Guest guest]

With antivirals we had some moderate crankiness/clinginess for less than

a week. Then almost immediate improvement in energy, he became very

" naughty " (like 2 yr olds are) and his motor planning for speech improved,

as evidenced by rapid improvement in verbal skills that has continued over

the last 10 mos. When I look back at how rapidly his speech has come in, it

amazes me (and his SLPs).

Becky

Re: test results

>

>

> That's what I was told about her Candida being negative. That since

> she had thrush as an infant it is impossible for her not to have any

> antibodies in her system. So either the test was wrong or she has a

> fungal infection and her body is not doing anything to fight it.

> Can you tell me about die off. I was told that since her HHV-6 is

> high, the first thing will be anti-virals. I've read in post about

> die off with anti-fungals, but I don't know if I saw it relating to

> anti-virals. Is there a difference in reaction. What were some of

> the things all of you saw? And is there anyone who saw immediate

> progress?

>

>

>

> > <<<< What now - are these tests set in

> > stone? (I can't afford to cross-test with another lab). Has anyone

> > started an the antiviral /paxil path without a batch of test

> results

> > screaming out ? <<<

> >

> >

> > Hi Anne-Marie --

> >

> > Yes, yes, yes. My son's tests for viral issues were in the normal

> range and viral treatment (with subsequent testing -- and

> improvement in my son) has borne out that he does indeed have a

> viral issue. Remember, these are antibody tests. Some children

> with ' immune systems are so compromised that they are not

> producing enough antibodies to show up on a test! There are parents

> on this list whose children had *perfectely normal* tests

> results in every area, but as their immune systems improved, the

> testing started to reflect where the abnormalities existed.

> Individual tests results are not as important as the entire clinical

> picture.

> >

> > Hope that helps.

> > Donna

> >

> >

[Guest guest]

Becky, what medication is your son on and what is the dosage? How much

does he weigh? Kristy

On Tuesday, December 9, 2003, at 08:48 PM, & Becky wrote:

> With antivirals we had some moderate crankiness/clinginess for less

> than

> a week. Then almost immediate improvement in energy, he became very

> " naughty " (like 2 yr olds are) and his motor planning for speech

> improved,

> as evidenced by rapid improvement in verbal skills that has continued

> over

> the last 10 mos. When I look back at how rapidly his speech has come

> in, it

> amazes me (and his SLPs).

>

> Becky

Re: test results

>> That's what I was told about her Candida being negative. That since

>> she had thrush as an infant it is impossible for her not to have any

>> antibodies in her system. So either the test was wrong or she has a

>> fungal infection and her body is not doing anything to fight it.

>> Can you tell me about die off. I was told that since her HHV-6 is

>> high, the first thing will be anti-virals. I've read in post about

>> die off with anti-fungals, but I don't know if I saw it relating to

>> anti-virals. Is there a difference in reaction. What were some of

>> the things all of you saw? And is there anyone who saw immediate

>> progress?

>>

>>

>>

>>> <<<< What now - are these tests set in

>>> stone? (I can't afford to cross-test with another lab). Has anyone

>>> started an the antiviral /paxil path without a batch of test

>> results

>>> screaming out ? <<<

>>>

>>>

>>> Hi Anne-Marie --

>>>

>>> Yes, yes, yes. My son's tests for viral issues were in the normal

>> range and viral treatment (with subsequent testing -- and

>> improvement in my son) has borne out that he does indeed have a

>> viral issue. Remember, these are antibody tests. Some children

>> with ' immune systems are so compromised that they are not

>> producing enough antibodies to show up on a test! There are parents

>> on this list whose children had *perfectely normal* tests

>> results in every area, but as their immune systems improved, the

>> testing started to reflect where the abnormalities existed.

>> Individual tests results are not as important as the entire clinical

>> picture.

>>>

>>> Hope that helps.

>>> Donna

==========

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

[Guest guest]

Kristy,

Famvir 125 mg twice a day, he is 3.4 and weighs ~33 lbs.

Becky

Re: antivirals

> Becky, what medication is your son on and what is the dosage? How much

> does he weigh? Kristy

> On Tuesday, December 9, 2003, at 08:48 PM, & Becky wrote:

> > With antivirals we had some moderate crankiness/clinginess for less

> > than

> > a week. Then almost immediate improvement in energy, he became very

> > " naughty " (like 2 yr olds are) and his motor planning for speech

> > improved,

> > as evidenced by rapid improvement in verbal skills that has continued

> > over

> > the last 10 mos. When I look back at how rapidly his speech has come

> > in, it

> > amazes me (and his SLPs).

> > Becky

==== message thread truncated ===

********************************************

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

**************************************

[Guest guest]

Do any of you know if our kids will need to be on antivirals and antifungals for

life? What is the timeline or protocal for this.

Also, what exactly is the effect of the antiviral for our kids and why do their

titers go up and down?

Over time on antivirals should the child get better and be able to reduce and

eventually stop the antivirals?

I am so confused - I also would like to know the same things about the

antifungals.

Thanks,

[Guest guest]

Hi I sent the message below and received no responses. Did you get it?

Thanks,

<torres_e@...> wrote:

From:

Date: Sat, 17 Jul 2004 23:22:25 -0700 (PDT)

Subject: Fwd: Antivirals

Do any of you know if our kids will need to be on antivirals and anti-fungals

for life? What is the time-line or protocol for this.

Also, what exactly is the effect of the antiviral for our kids and why do their

titers go up and down?

Over time on antivirals should the child get better and be able to reduce and

eventually stop the antivirals?

I am so confused - I also would like to know the same things about the

anti-fungals.

Thanks,

[Guest guest]

Did the sensitivity to light and sound sensitivity start since on anti

viral . If not check out irlen lenses makers a hugh difference to

light sensitivity. Auditory integration therapy helped big time with

sound sensuitivy our son constantly had hands over ears for certain

sounds. We still deal with viral issue but light and sound sensitivity

really decreased with other treatments. Irlen website gives you

checklist worth looking into

On 8/7/10, chocolatiluv <chocolatiluv@...> wrote:

> We are on our 3rd antiviral Famvir then acyclovir now starting on valtrex

> tomorrow.

> My grandson has had terrible time with eye sincitivity

> to light. Dr. Goldberb says this is due to viruses.

> He doesn`t want to go outside(swim) one of his favorite things to do. Will

> turn off his TV constantly covering his eyes. He also has major auditory

> problems constantly covering his ears.

> Has anyone have this with their child? What antiviral worked for your child?

> We were hoping & praying the acyclovir would be the one to work. He is also

> on immunivor(no breaks).

> Dr. says to target diet. The only thing to rid is Vans waffles & take out

> pizza. We are constantly watching his diet.

> Searching appreciate any replies.

> Thanks

> Carole

>

>

--

Cotter

5 Pollerton Manor

Carlow

059 9134964

087 2637921

[Guest guest]

> >

> > We are on our 3rd antiviral Famvir then acyclovir now starting on valtrex

tomorrow.

> > My grandson has had terrible time with eye sincitivity

> > to light. Dr. Goldberb says this is due to viruses.

> > He doesn`t want to go outside(swim) one of his favorite things to do. Will

turn off his TV constantly covering his eyes. He also has major auditory

problems constantly covering his ears.

> > Has anyone have this with their child? What antiviral worked for your child?

> > We were hoping & praying the acyclovir would be the one to work. He is also

on immunivor(no breaks).

> > Dr. says to target diet. The only thing to rid is Vans waffles & take out

pizza. We are constantly watching his diet.

> > Searching appreciate any replies.

> > Thanks

> > Carole

> >

>