Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Barb, We do both Kutapressin and IMGG. I give both of them myself. If your son is cooperative with shots, he'll be fine. The IMGG is much more viscous (like corn syrup) than the Kutapressin (which is no thicker than water). Because we give the shot to him in the butt while he is awake (we give Kutapressin at night while he sleeps), we used ELA-Max cream - a topical anesthetic that contains lidocaine. I've heard that IMGG stings, but Garrett didn't seem to be bothered beyond the initial injection. Our pharmacy (Longs) could not get the IMGG (called BayGam). It is available to pharmacies that carry Kutapressin (e.g., Friendly Hills in Whittier). We got ours at our local hospital pharmacy. It must be kept cold, but some pharmacies will ship it on ice. > We just had our phone consult with Dr. G. and he would > like to start imgg injections as well as kutapressin, > on our oldest. He had an igg of 12. Do any of you > who do the kutapressin injections also do the imgg > ones? Or do you go to the pediatrician's office for > them? Are they harder to administer? My son is very > cooperative with injections, so I think he will stay > still. Barb ps: Is it hard to get the imgg? > > ===== > Barb Katsaros > barbkatsaros@y... __________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Thanks. I think I will be able to give it to him. I will check with our local Walgreen's as they do carry kutapressin, when it is available. Barb ps: To anyone that is wondering how long kutapressin is good past the expiration date: Dr. G says we can feel safe using it 60-90 days after the expiration date. --- gurwitzfamily <Gurwitz@...> wrote: > Barb, > We do both Kutapressin and IMGG. I give both of > them myself. If > your son is cooperative with shots, he'll be fine. > The IMGG is much > more viscous (like corn syrup) than the Kutapressin > (which is no > thicker than water). > Because we give the shot to him in the butt while he > is awake (we > give Kutapressin at night while he sleeps), we used > ELA-Max cream - > a topical anesthetic that contains lidocaine. > I've heard that IMGG stings, but Garrett didn't seem > to be bothered > beyond the initial injection. > Our pharmacy (Longs) could not get the IMGG (called > BayGam). It is > available to pharmacies that carry Kutapressin > (e.g., Friendly Hills > in Whittier). We got ours at our local hospital > pharmacy. It must > be kept cold, but some pharmacies will ship it on > ice. > > //thread truncated// ______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 We get our IMGG shipped from Friendly Hills on Ice to Singapore by UPS - after 2.5 days its still cool! Dennis the Pharmacist there says it can survive over 1 week at 86 degrees F so there is a bit of latitude, but keep refrigerated. I have our local Dr give it (I do Kutapressin myself) because of the viscosity, larger needle used, and it being a blood product I feel that bit safer - also it means we regularly see our local Dr to observe and discuss progress before our consults with Dr G. I use EMLA cream 1-1.5 hours before - it really does help and our boy doesn't hardly flinch. good luck Re: IMGG Barb, We do both Kutapressin and IMGG. I give both of them myself. If your son is cooperative with shots, he'll be fine. The IMGG is much more viscous (like corn syrup) than the Kutapressin (which is no thicker than water). Because we give the shot to him in the butt while he is awake (we give Kutapressin at night while he sleeps), we used ELA-Max cream - a topical anesthetic that contains lidocaine. I've heard that IMGG stings, but Garrett didn't seem to be bothered beyond the initial injection. Our pharmacy (Longs) could not get the IMGG (called BayGam). It is available to pharmacies that carry Kutapressin (e.g., Friendly Hills in Whittier). We got ours at our local hospital pharmacy. It must be kept cold, but some pharmacies will ship it on ice. > We just had our phone consult with Dr. G. and he would > like to start imgg injections as well as kutapressin, > on our oldest. He had an igg of 12. Do any of you > who do the kutapressin injections also do the imgg > ones? Or do you go to the pediatrician's office for > them? Are they harder to administer? My son is very > cooperative with injections, so I think he will stay > still. Barb ps: Is it hard to get the imgg? > > ===== > Barb Katsaros > barbkatsaros@y... __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Barb, I just wanted to let you know that Ela-Max (numbing cream with lidocaine that mentioned) is available over the counter in our Kokomo, Indiana K-Mart. It's $10 or so for a little bitty tube, but it seems to work as well as Emla for labs. Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 20, 2003 Report Share Posted September 20, 2003 Can anyone share their experiences using imgg, positive or negative and how long did it took to see changes? Can anyone recommend a good home schooling curriculum on cd for third or fourth grade. Your comments would be greatly appreciated. Thanks in advance. Diane. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2003 Report Share Posted September 24, 2003 I had a phone consult with Dr. G last week and he reassured me that IMGG is safe and poses no risk. He wanted me to post it to everyone concerned with its safety upon giving it to our kids. Re: IMGG > Any pharmacy should be able to order it under the name > of Baygem. My pharmacy called Dr. G for the order for > the imgg and the needles, and I administer the shots. > Barb --- fareastphillips <fareastphillips@...> wrote: > > I phone my doctors' office today to see if I can get > > IMGG shots there > > and they said " they didn't have them " . I don't > > really understand if > > they means they never administer them or just that > > they have to order > > them. Does anyone know of a location in Houston, TX > > where I could > > get these? > > , Mom to 3.9 __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 31, 2003 Report Share Posted December 31, 2003 Hi all... Dr. Goldberg has asked us to start our son on IMGG. Our pediatrician has been GREAT about working with us in connection with Dr. G, but this IMGG issue is a difficult one for him. He is concerned about possible transmission of viruses, etc. from the IMGG (and frankly I'm a little squeamish myself). I need some information to give him regarding the safety of IMGG relative to IVIG, etc. I know that I have seen something on the subject, but for the life of me I can't think where. Meanwhile our pediatrician has tried to call Dr. Goldberg but was only able to leave his name and has not been called back.... yet Does anyone know where I can find pertinent information? In order for the pediatrician to be comfortable with it , it would need to be from a very reliable source. Take care... Caroline Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 13, 2004 Report Share Posted April 13, 2004 My understanding is that it is an immune booster ..and helps the antiviral work better...first choice would be kutapressin ..second choice IMMG...Candi Re: IMGG What condition does Dr. G use IMGG for? Is it for low NK cells? timary > Hello ... > We are starting the IMMG shots soon ...any thoughts from anyone would be great ....like the improvements you have seen ....do you do the shots yourself? ..how much are yet ? .................................thanks again .......................Candi > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 15, 2004 Report Share Posted April 15, 2004 RMWILSON....would you mind sharing your experiences with IMMG...I believe you guys use it...do you use the cream before the shot? I hear the shot is a painful one ...I think I'm going to let the nurse do it at the doctor's office...Do you do it in the bottom or leg? ...THANKS ...I also like reading your emails ....thanks candi and Steel too.... Re: IMGG What condition does Dr. G use IMGG for? Is it for low NK cells? timary Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. -------------------------------------------------------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 17, 2004 Report Share Posted April 17, 2004 Hi Candi, sorry for the late reply, we have been on holidays over Easter in Manly, a wonderful beachside suburb of Sydney. Even though it is Autumn there now, the whether was superb, and the kids loved swimming in the surf. (We actually met Dr G at a conference in Manly - so it has another importance!) We have been using ImGG for about 2 years now, and believe it has been a great help. We started in Jan 2002, just after having a Neurospect and a visit to Dr G in Ca. We went back 11 months later and Dr G and other professionals we see there noticed the biggest change in our son that year compared to the previous 2. We are due to return in July so lets see.. When he was 5, he wouldn't go near the surf...now we have to hold him back from the big dumpers!! We use Emla cream before the shot... it does hurt... put on a good dollop with a bandaid about 1 1/2 hrs before hand on the upper outer quadrant of the butt. I get our local Dr to do the shot - I'm then not the " bad guy " and also, because the needle is big 1 1/2 inch 23g and needs to go deep in the muscle, we feel safer that the Dr do it. (I did do Kutapressin myself before we ran out). Also, it means our Dr here gets to see our son every three weeks, we can discuss progress, the protocol, the last Dr G consult, bloodwork etc. We had a shot only Friday, and was totally compliant. When asked, he straddled across me, chest to chest with his arms around my back - the Dr can simply whip down his pants lift the bandaid where the cream is, dab the site and go in very quickly - it also means the nurse in the clinic can help to hold legs or arms if he is disturbed - this used to be the case but now hardly a squirm or whimper. We give big praise for being brave and a nice reward after it is over - at the moment is collecting small toys from the " Thunderbirds " (British) sci-fi puppet series that we all saw as kids. (The DVD.s are great). hope it goes well for you, regards, Fw: Re: IMGG RMWILSON....would you mind sharing your experiences with IMMG...I believe you guys use it...do you use the cream before the shot? I hear the shot is a painful one ...I think I'm going to let the nurse do it at the doctor's office...Do you do it in the bottom or leg? ...THANKS ...I also like reading your emails ...thanks candi and Steel too.... ----- Original Message ----- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 24, 2004 Report Share Posted April 24, 2004 What is IMGG and Kutapressin exactly? It is a injection of ? What is it suppose to help with, my son is 3 yrs. 2mos. and has Autism/PDD and is non-verbal. Im sure this has been discussed before so I am sorry, but I am fairly new here and still have alot of questions. There sure are alot of different names and initials to try and remember . Quote Link to comment Share on other sites More sharing options...
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