Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Carmel, We also used Transfer Factor (from 4Life) before we started with Dr Goldberg and I felt that it really helped my kids. I was reluctant to give it up b/c of the good results. When we started kutapressin, we were able to finally stop the TF. The kutapressin did the work of the Transfer factor and more. Now, a few years later, I can see dr G hesitancy with TF. I know I took it myself, as recommended -3 a day- and I felt very " hyper " . If I cut back the dose I was okay. I don't know if that was because my body just didn't need it or what. The kids never seemed to get hyper on it, but I always kept the dose low (2 a day). In retrospect, I wouldn't have done anything differently with the kids. It got us through until we were able to try some more effective prescriptions. Just our experience! I hope you get an appointment soon :-) Sharon __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 Carmel, What is transfer factor? Diane What about transfer factor? My kids (1 , 1 Pandas, 1 CFIDS) are on the waiting list for Dr. Goldberg. I have had some of the tests done, but not all. My son with has an extremely high HHV6 Titer. Since we're not on any anti-virals, and we've stopped the mega vitamin DAN protocol, I've been using transfer factor for him, and I have seen good results in behavior and general health. I have read Dr. Goldberg's posts that he didn't think it was effective, but has anyone besides me been using transfer factor, and if so, has it been useful for your kids? The science on this seems solid, but maybe I'm missing something... Thanks for any replies! Carmel Lozano __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 4, 2003 Report Share Posted September 4, 2003 When / how did you get on the waiting list? What about transfer factor? My kids (1 , 1 Pandas, 1 CFIDS) are on the waiting list for Dr. Goldberg. I have had some of the tests done, but not all. My son with has an extremely high HHV6 Titer. Since we're not on any anti-virals, and we've stopped the mega vitamin DAN protocol, I've been using transfer factor for him, and I have seen good results in behavior and general health. I have read Dr. Goldberg's posts that he didn't think it was effective, but has anyone besides me been using transfer factor, and if so, has it been useful for your kids? The science on this seems solid, but maybe I'm missing something... Thanks for any replies! Carmel Lozano __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 When we went to see Dr. G this April, was still on transfer factor. Dr G. think TF is very unsafe among other reasons because it is not pasteurized like milk. We stopped TF right after that, for half month before start protocol, he was only on Gummy bear Vitamin. That half month he was doing very well: one week on spring break vacation, the second week and half, he was taking state standard test. His teacher told me that was his best performance of the year. We were hesitating to stop TF and some other DAN vitamins and supplements. After we meet Dr. G, we went cold turkey on everything, things turn out fine for us. I was so sure without those DAN's stuff, he will not functioning. Take it out one at a time, you may be surprised how things turning out. Jin > Carmel, > > We also used Transfer Factor (from 4Life) before we started with Dr Goldberg > and I felt that it really helped my kids. I was reluctant to give it up b/c > of the good results. When we started kutapressin, we were able to finally stop > the TF. The kutapressin did the work of the Transfer factor and more. > > Now, a few years later, I can see dr G hesitancy with TF. I know I took it > myself, as recommended -3 a day- and I felt very " hyper " . If I cut back the > dose I was okay. I don't know if that was because my body just didn't need it > or what. The kids never seemed to get hyper on it, but I always kept the dose > low (2 a day). > > In retrospect, I wouldn't have done anything differently with the kids. It > got us through until we were able to try some more effective prescriptions. > > Just our experience! I hope you get an appointment soon :-) > Sharon > __________________________________ > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Can someone please tell me what does DAN stand for? Thanks, > > Carmel, > > > > We also used Transfer Factor (from 4Life) before we started with Dr > Goldberg > > and I felt that it really helped my kids. I was reluctant to give > it up b/c > > of the good results. When we started kutapressin, we were able to > finally stop > > the TF. The kutapressin did the work of the Transfer factor and > more. > > > > Now, a few years later, I can see dr G hesitancy with TF. I know I > took it > > myself, as recommended -3 a day- and I felt very " hyper " . If I cut > back the > > dose I was okay. I don't know if that was because my body just > didn't need it > > or what. The kids never seemed to get hyper on it, but I always > kept the dose > > low (2 a day). > > > > In retrospect, I wouldn't have done anything differently with the > kids. It > > got us through until we were able to try some more effective > prescriptions. > > > > Just our experience! I hope you get an appointment soon :-) > > Sharon > > __________________________________ > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Hi , DAN stands for " Defeat Autism Now " . The DAN protocol differs from the protocol because it focuses on eliminating toxins from the body, but few DAN doctors deal with the autoimmune issue, which according to the hypothesis, is the *underlying factor* in toxicity, GI issues, and other medical problems. DAN is much more widely known and promoted more within the " autism community " . I'm glad, though, that we found Dr. Goldberg and the website. Donna Re: What about transfer factor? Can someone please tell me what does DAN stand for? Thanks, //thread truncated// ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Thanks - though not familiar with the name, I am more familiar with a DAN type approach to health in general. It's actually something I've been questioning about the protocol. I can totally see how a malfunctioning immune system can be an underlying factor, but at the same time it doesn't seem to me that Dr. G takes enough time to address limiting toxins, chemical, processed foods, synthetics and free radicals, which eventually will start to wreak havoc on even the healthiest of immune systems and thereby lead to autoimmune disease. I guess my thought is this: as in the case of , it certainly appears that a dysfunctional immune system can leave an individual very suseptible to damage by " toxins. " However, would it then not be fair to say that even while addressing the immune system issues, it would also be wise to start limiting general toxins as well, just as in the DAN protocol? Does anyone here have thoughts on that? Are there people here who blend the two approaches? I had these very thoughts yesterday while familiarizing myself with the " Do's and Don't of diet " as suggested by Dr. G. He seems to have no problem with processed foods, synthetic sweeteners, etc. He does make disclaimers at times, but I guess I just thought a more strict approach may be in order at times. Sorry to have rambled so . . . but this all got me thinking even before you explained what DAN stood for! = ) This is all very interesting to me > Hi , > > DAN stands for " Defeat Autism Now " . The DAN protocol differs from the protocol because it focuses on eliminating toxins from the body, but few DAN doctors deal with the autoimmune issue, which according to the hypothesis, is the *underlying factor* in toxicity, GI issues, and other medical problems. DAN is much more widely known and promoted more within the " autism community " . I'm glad, though, that we found Dr. Goldberg and the website. > > Donna > Re: What about transfer factor? > > Can someone please tell me what does DAN stand for? > > Thanks, > > > //thread truncated// > ______________________________ > `````````````````````````````` > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 5, 2003 Report Share Posted September 5, 2003 Of course, the more " pristine " you can get the diet the better. EG, organic food is preferable to non-organic. Reduce/remove hydrogenated oils. reduce allergens in the environment. And so on. I think those things are a given with everyone here since questions about those topics come up all the time on this board. I don't think it's fair to say that Dr. G has " no problem with processed foods, synthetic sweeteners, etc. " I'm sure he'd prefer those things removed from our childrens' diets - heck, best of all would be for ALL of us to remove them from our diets. But it's also a matter of what each individual family can manage and of being pragmatic and of weighting cost vs. benefit. The diet isn't really " cookie- cutter " although it may look that way. It's more a " baseline " or starting point. You have the responsibility of making any needed additional " tweaks " (putting allergy covers on the mattress and pillows, using perfume-free dye-free laundry detergent, etc.) timary > Thanks - though not familiar with the name, I am more familiar with a > DAN type approach to health in general. > > It's actually something I've been questioning about the > protocol. I can totally see how a malfunctioning immune system can > be an underlying factor, but at the same time it doesn't seem to me > that Dr. G takes enough time to address limiting toxins, chemical, > processed foods, synthetics and free radicals, which eventually will > start to wreak havoc on even the healthiest of immune systems and > thereby lead to autoimmune disease. > > I guess my thought is this: as in the case of , it certainly > appears that a dysfunctional immune system can leave an individual > very suseptible to damage by " toxins. " However, would it then not be > fair to say that even while addressing the immune system issues, it > would also be wise to start limiting general toxins as well, just as > in the DAN protocol? Does anyone here have thoughts on that? Are > there people here who blend the two approaches? I had these very > thoughts yesterday while familiarizing myself with the " Do's and > Don't of diet " as suggested by Dr. G. He seems to have no problem > with processed foods, synthetic sweeteners, etc. He does make > disclaimers at times, but I guess I just thought a more strict > approach may be in order at times. > > Sorry to have rambled so . . . but this all got me thinking even > before you explained what DAN stood for! = ) //thread truncated// ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 6, 2003 Report Share Posted September 6, 2003 Thanks for the clarification. I am just familiarizing myself with all of this and maybe I made some quick judgments. I was just surprised to see some of the recommendations on the " Do's and Don't of Diet " I thought I would have seen more of strict/conservative stance against synthetics and processed foods, or at least a bit more warning. At the same time, I know it can get very complicated when one is also trying to avoid whole grains, sugars, etc. I think I need to change some of my thinking, besides. I am just so used to taking a " whole foods " approach (though we certainly fall short) that I assume whole grains are good for everyone. And I always prefer table sugar over synthetic sweeteners but . . . like I say, I am still learning. Either way, I wanted to thank you for the clarification. > Of course, the more " pristine " you can get the diet the better. EG, > organic food is preferable to non-organic. Reduce/remove > hydrogenated oils. reduce allergens in the environment. And so on. I > think those things are a given with everyone here since questions > about those topics come up all the time on this board. I don't think > it's fair to say that Dr. G has " no problem with processed foods, > synthetic sweeteners, etc. " I'm sure he'd prefer those things > removed from our childrens' diets - heck, best of all would be for > ALL of us to remove them from our diets. But it's also a matter of > what each individual family can manage and of being pragmatic and of > weighting cost vs. benefit. The diet isn't really " cookie- > cutter " although it may look that way. It's more a " baseline " or > starting point. You have the responsibility of making any needed > additional " tweaks " (putting allergy covers on the mattress and > pillows, using perfume-free dye-free laundry detergent, etc.) > > timary //thread truncated// ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Hi - In chats with Dr. G, he has said before that he is against such radical diet restrictions because of the undue stress it puts on the parents. Just the simple restriction of dairy is very difficult as it is. We have so many issues to be concerned with. And he finds that the children improve on the protocol just as much without the extreme restrictions. He does not feel it is fair to the kids or the parents to enforce such difficult measures when it is usually not a requirement for these kids to improve. Not that he does not encourage and believe in healthy eating and limiting these toxins as much as possible. Even children with extremely high reactivity on the food screens improve dramatically when still kept to the Do's and Don'ts of Diet plan, without removing all of the offending foods - although he does advise to remove as many that the child visibly reacts to as possible. Also, as the body improves, it's ability to cleanse itself of these toxins improves. Research shows that the immune system is capable of disabling some of the enzymes that help eliminate these toxins (like mercury, etc) and when the immune system is no longer in an over-activated state, the body's function improves and takes care of itself. We just do the best we can, and I am so grateful that I was able to go from the GFCF diet and worrying about every single thing that passed my son's lips to relaxing and just focusing on getting protein in him (hard enough!), and he is doing amazingly well. This week he has seemed more like a typical normal little boy than I have ever seen him. And my hair is even growing back from the gfcf diet. It really works. -------- > at the same time it > doesn't seem to me > that Dr. G takes enough time to address limiting > toxins, chemical, > processed foods, synthetics and free radicals, which > eventually will > start to wreak havoc on even the healthiest of > immune systems and > thereby lead to autoimmune disease. > > I guess my thought is this: as in the case of , > it certainly > appears that a dysfunctional immune system can leave > an individual > very suseptible to damage by " toxins. " However, > would it then not be > fair to say that even while addressing the immune > system issues, it > would also be wise to start limiting general toxins > as well, just as > in the DAN protocol? Does anyone here have thoughts > on that? Are > there people here who blend the two approaches? I > had these very > thoughts yesterday while familiarizing myself with > the " Do's and > Don't of diet " as suggested by Dr. G. He seems to > have no problem > with processed foods, synthetic sweeteners, etc. He > does make > disclaimers at times, but I guess I just thought a > more strict > approach may be in order at times. > > Sorry to have rambled so . . . but this all got me > thinking even > before you explained what DAN stood for! = ) //thread truncated// ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. __________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 8, 2003 Report Share Posted September 8, 2003 Thanks so much , I appreciate the time you took to reply to me. I am so glad to hear that your son is doing so well. I really agree about how overwhelming it can all be. We've only ever gone as far as removing milk from his diet (not cheese) and limiting sugars. I only wish I could be more digillent in removing more and I know the time is coming that I need to make some major adjustments. I've just been introduced to and hope to have my son tested soon . . . Thanks again for taking the time to explain - I completely understand! > Hi - > In chats with Dr. G, he has said before that he is > against such radical diet restrictions because of the > undue stress it puts on the parents. Just the simple > restriction of dairy is very difficult as it is. We > have so many issues to be concerned with. And he > finds that the children improve on the protocol just > as much without the extreme restrictions. He does not > feel it is fair to the kids or the parents to enforce > such difficult measures when it is usually not a > requirement for these kids to improve. Not that he > does not encourage and believe in healthy eating and > limiting these toxins as much as possible. Even > children with extremely high reactivity on the food > screens improve dramatically when still kept to the > Do's and Don'ts of Diet plan, without removing all of > the offending foods - although he does advise to > remove as many that the child visibly reacts to as > possible. Also, as the body improves, it's ability > to cleanse itself of these toxins improves. Research > shows that the immune system is capable of disabling > some of the enzymes that help eliminate these toxins > (like mercury, etc) and when the immune system is no > longer in an over-activated state, the body's function > improves and takes care of itself. We just do the > best we can, and I am so grateful that I was able to > go from the GFCF diet and worrying about every single > thing that passed my son's lips to relaxing and just > focusing on getting protein in him (hard enough!), and > he is doing amazingly well. This week he has seemed > more like a typical normal little boy than I have ever > seen him. And my hair is even growing back from the > gfcf diet. > > It really works. > > > -------- > > at the same time it > > doesn't seem to me > > that Dr. G takes enough time to address limiting > > toxins, chemical, > > processed foods, synthetics and free radicals, which > > eventually will > > start to wreak havoc on even the healthiest of > > immune systems and > > thereby lead to autoimmune disease. > > > > I guess my thought is this: as in the case of , > > it certainly > > appears that a dysfunctional immune system can leave > > an individual > > very suseptible to damage by " toxins. " However, > > would it then not be > > fair to say that even while addressing the immune > > system issues, it > > would also be wise to start limiting general toxins > > as well, just as > > in the DAN protocol? Does anyone here have thoughts > > on that? Are > > there people here who blend the two approaches? I > > had these very > > thoughts yesterday while familiarizing myself with > > the " Do's and > > Don't of diet " as suggested by Dr. G. He seems to > > have no problem > > with processed foods, synthetic sweeteners, etc. He > > does make > > disclaimers at times, but I guess I just thought a > > more strict > > approach may be in order at times. > > > > Sorry to have rambled so . . . but this all got me > > thinking even > > before you explained what DAN stood for! = ) > > //thread truncated// > ______________________________ `````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. __________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 I have to disagree with you on the diet thing-- My son reacts to just about everything (severely) on food screens, and Dr. G. DOES want us on a very restricted diet for now. No dairy, gluten, brown rice, whole grains of any kind, oats (including Cheerios), no berries, citrus, soy, eggs, no nuts or seeds of any kind(including nut/seed oils) red fruits, or tropical fruits including melon and coconut milk. LOL top that!! He even told me last time we saw him to stop giving him Gorilla Munch ( corn meal cereal) because s eos count went up from 3 to 5 %, even tho we haven't changed diet at all. I'm managing to stick to it most of the time. I have to say, tho--- 's poop actually looks normal most of the time now for the first time EVER, after restricting his diet like this for a couple of months. Hopefully we'll be able to add some foods *someday* (sigh) I really think he bases the diet on a case by case basis. he said 's food screen looked like one from a child who had never had any dietary restrictions-- and had been milk and citrus free for a year, plus very little gluten at the time we did Dr. G's food screen, and he was still that reactive. I dream of being only gf/cf........... Becky Re: Re: What about transfer factor? > Hi - > In chats with Dr. G, he has said before that he is > against such radical diet restrictions because of the > undue stress it puts on the parents. Just the simple > restriction of dairy is very difficult as it is. We > have so many issues to be concerned with. And he > finds that the children improve on the protocol just > as much without the extreme restrictions. He does not > feel it is fair to the kids or the parents to enforce > such difficult measures when it is usually not a > requirement for these kids to improve. Not that he > does not encourage and believe in healthy eating and > limiting these toxins as much as possible. Even > children with extremely high reactivity on the food > screens improve dramatically when still kept to the > Do's and Don'ts of Diet plan, without removing all of > the offending foods - although he does advise to > remove as many that the child visibly reacts to as > possible. Also, as the body improves, it's ability > to cleanse itself of these toxins improves. Research > shows that the immune system is capable of disabling > some of the enzymes that help eliminate these toxins > (like mercury, etc) and when the immune system is no > longer in an over-activated state, the body's function > improves and takes care of itself. We just do the > best we can, and I am so grateful that I was able to > go from the GFCF diet and worrying about every single > thing that passed my son's lips to relaxing and just > focusing on getting protein in him (hard enough!), and > he is doing amazingly well. This week he has seemed > more like a typical normal little boy than I have ever > seen him. And my hair is even growing back from the > gfcf diet. > > It really works. > ------------------ > > at the same time it > > doesn't seem to me > > that Dr. G takes enough time to address limiting > > toxins, chemical, > > processed foods, synthetics and free radicals, which > > eventually will > > start to wreak havoc on even the healthiest of > > immune systems and > > thereby lead to autoimmune disease. > > > > I guess my thought is this: as in the case of , > > it certainly > > appears that a dysfunctional immune system can leave > > an individual > > very suseptible to damage by " toxins. " However, > > would it then not be > > fair to say that even while addressing the immune > > system issues, it > > would also be wise to start limiting general toxins > > as well, just as > > in the DAN protocol? Does anyone here have thoughts > > on that? Are > > there people here who blend the two approaches? I > > had these very > > thoughts yesterday while familiarizing myself with > > the " Do's and > > Don't of diet " as suggested by Dr. G. He seems to > > have no problem > > with processed foods, synthetic sweeteners, etc. He > > does make > > disclaimers at times, but I guess I just thought a > > more strict > > approach may be in order at times. > > Sorry to have rambled so . . . but this all got me > > thinking even > > before you explained what DAN stood for! = ) //thread truncated// ______________________________ `````````````````````````````` > Responsibility for the content of this message > lies strictly with the original author, and is not > necessarily endorsed by or the opinion of the Research Institute. __________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 9, 2003 Report Share Posted September 9, 2003 Hi Becky -- just curious; what kinds of things can he eat? I know someone whose child may be dealing with the same issues. Donna Re: Re: What about transfer factor? I have to disagree with you on the diet thing-- My son reacts to just about everything (severely) on food screens, and Dr. G. DOES want us on a very restricted diet for now. No dairy, gluten, brown rice, whole grains of any kind, oats (including Cheerios), no berries, citrus, soy, eggs, no nuts or seeds of any kind(including nut/seed oils) red fruits, or tropical fruits including melon and coconut milk. LOL top that!! He even told me last time we saw him to stop giving him Gorilla Munch ( corn meal cereal) because s eos count went up from 3 to 5 %, even tho we haven't changed diet at all. I'm managing to stick to it most of the time. I have to say, tho--- 's poop actually looks normal most of the time now for the first time EVER, after restricting his diet like this for a couple of months. Hopefully we'll be able to add some foods *someday* (sigh) I really think he bases the diet on a case by case basis. he said 's food screen looked like one from a child who had never had any dietary restrictions-- and had been milk and citrus free for a year, plus very little gluten at the time we did Dr. G's food screen, and he was still that reactive. I dream of being only gf/cf........... Becky //message thread truncated// _______________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
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