Re: First TX shot--Thought I was going to die (figuratively)

[Guest guest]

-Dear Jackie,

I'm going tomorrow for a biopsy, last one was nearly four years ago

and for some reason they didn't report the results by numbers but

stated " moderate to sever activity " and " minimal fibrosis " and at

about the same time my viral load was 5,000,000. I started TX in

April 2003 and stayed on it for a year. I figure I got this as a

result of a serious car wreck about 24 years ago.

I had been reading Dr. Cecil's material on his website and at the

end of treatment I suggested to my gastro dr. that he continue the

treatment a few months longer, as my viral load had run back up at

six months and also because I was tolerating the meds well. But he

said " No, upon what basis would I do that? " He was a total believer

in the " cookie cutter " approach. I should have found a different

doc (or just kept ordering the meds) and treated longer.

So your doctor was the famous Dr. Cecil? Maybe I need to go see

him. Lately I have been feeling pretty rough (for the first time,

really) and I am really worried that this could be the hep acting

up. Guess I should have done something a year ago after I failed my

6 month viral load (and at 15,000,000) but then you read about all

these new meds in the pipeline and hope some of them will work.

Have you ever heard of anyone having their viral load run up high

AFTER treatment?

Was your TX sucessful? Hope so.

-- In Hepatitis_C_Central , Jackie on

<redjaxjm@y...> wrote:

>

> well Willian and Rose,, Im so sorry,, I was/am geno 1a too and I

spoke with Dr. Cecil and he advised becasue I was stage 3-4 with

early cirrhosis that I should do at least 48 weeks AFTER I tested

undetectible.. so I was shooting for 60 weeks, but only made 54,,

ended up in the hospital needing 2 units of packed red cells as my

hemoglobin dropped to 7.0, RBCS and WBCS were both down to 1.0...

made me really mad cuz I got this exactly 27 years ago TODAY when I

had my first child and I hemmorrhaged and had to have 4 units of

blood after delivery...

> so happy birthday to my son and to my liver,, sigh,,

>

> br54930701 <wreeves126@e...> wrote:

> --hi, Same thing happened to me. 48 weeks with

pegasys/ribavirin.

> No virus at 3 months, 212,000 at 6 months then at the end no

virus.

> But 6 months later 15,000,000; off the scale I guess. I'm type 1-

A

> and get another biopsy Wednesday, first in over three years. Got

my

> fingers crossed.

>

> - In Hepatitis_C_Central , perky rose

<agann_01@y...>

> wrote:

> >

> > Yes it is a hard time;;;and sleeping it off is the best way to

> deal with it. I went thru the entire 48 weeks of peg-interferon

and

> ribavarin. The virus was undetectable at 12 weeks. A month after I

> finished,theapy, however, the virus relapsed (with a vengeance) -

> quite devastating. So now, I am sitting back, not even knowing

what

> step to take next . Has anyone else relapsed? Do you get back into

> therapy? IT is quite depressing.... But luck to those of you

still

> in therapy - hope you are successful

> >

> > janet <doc_jade@y...> wrote:Oh Gav,

> > Sorry you had such a bad time the first shot. Let me give you a

> little secret. On the day of shot, I literally wear myself out. Do

> all those little things that I know that will make me sleepy. Then

I

> take my shot, and sleep off the side effects. And honey it does

get

> better as the treatment goes. I am Genotype 1a and yes I have to

do

> the whole 48 weeks. I have 7 more shots come monday, then I will

be

> done. As of now I am still undetectable. So there is a positive

side

> of treatment. Reaching that undetectable!!!

> > Be sure and let us know how you are doing honey. And remember we

> are here for you.

> > Love

> > Janet

> >

> > Z King <gavriella_rachel@y...> wrote:

> > Well, I took my first Ribavirin and Pegintron 2b shot

> > Friday night. I have genotype 1a with a 220,000 viral

> > load. Hopefully this stuff will wipe it out.

> >

> > I know the first weeks of treatment are the supposed

> > to be the worst, but I didn't expect to get what I

> > did. Within 4 hours after taking the shot: headache

> > kicked in, then nausea and SEVERE stomach pain, then I

> > spent the whole night vomiting and major diarrhea.

> > Haven't barely slept since Thursday night. Saturday

> > all day, I had a headache that felt like someone shot

> > my brains out; Tylenol isn't helping (and I know too

> > much Tylenol is bad for the liver). So I'm foregoing

> > that. Today, Sunday, it is a bit better. I'm able to

> > hold down some protein shake and a bit of cheese. I'm

> > drinking as much water as my body can hold to ease the

> > symptoms. Been drinking water around the clock since

> > Friday. Even keep bottles of the stuff by my bed.

> >

> > I'm still a bit headachey and dizzy today, but I can

> > deal with it. All I can say is WHOA--Friday night was

> > the night from hell. Hope this gets easier. At least

> > my two dogs have been trying to give me comfort. They

> > seem to know when I don't feel good and will snuggle

> > with me in bed and bring me their toys.

> >

> > I had to cancel my date Saturday with a guy I've been

> > dating the past few months. When I told him why (the

> > fallout from the treatment) and about the HepC, he

> > freaked. I told him I didn't want to have this kind of

> > serious conversation over the phone. I wanted to tell

> > him in person. He's in total shock and is worried I

> > gave it to him. That I can understand when people

> > don't know much about the virus. He asked if I ever

> > planned on telling him; I told him definitely--he has

> > the right to know if the relationship gets serious.

> > And I wanted to make sure I had all my information,

> > doctor lined up, and treatment plan in the works. He

> > said he would call me today, so I'm waiting for that.

> >

> > And I am prepared if he never calls again, too. It is

> > the chance I have to take. But I don't want him to

> > hang around out of pity or feels he's obligated. I

> > know there are some people who have had the virus for

> > years, got married, had kids, and no one ever

> > contacted it. I'm trying to remain positive about

> > that. He is a very special person to me, so I'll have

> > to wait and see.

> >

> > Sorry to be such a downer--it's been the ultimate

> > crummy weekend. I look forward going into work

> > tomorrow, so I can keep busy and take my mind off of

> > this...even if it is for a little bit.

> >

> > Gav

> >

> >

> >

> >

> >

> > __________________________________

> > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > http://mail.yahoo.com

> >

> >

> > I am a rock, I am island...and a rock feels no pain, and a

island

> never cries...- Simon

> >

> >

> > It's a pleasure having you join in our conversations. We hope

you

> have found the support you need with us.

> >

> > If you are using email for your posts, for easy access to our

> group, just click the link--

> http://groups.yahoo.com/group/Hepatitis_C_Central/

> >

> > Happy Posting

> >

> >

> >

> >

[Guest guest]

Jackie,

My next door neighbor (and close friend) is a very good dentist. I

of course I told him about my Hep C and he is very knowledgeable

about the problem and says that his office takes every precaution

and that he is not a bit worried. I have noticed that he and his

staff and very big on the masks and gloves. He says that he is more

worried about HIV and apparently he gets some numbers from the state

health department about HCV and HIV here in this county (I am in

Florida) and says that you would be suprised at how high the

percentage of infected people here is. He says don't worry a bit,

that he and his staff are safe. I just got my notice for my six

months teeth cleaning. Of course if a dentist was careless he sure

would be at risk. I bet he gets a periodic blood test for this

stuff. I will ask him.

It wouldn't surprise me that a much bigger danger are barber shops.

> Ric,

>

> These risks ARE ongoing. I have to battle doctor offices and

dental offices

> all the time about taking HCV virus seriously. They want to think

its passed

> by sexual transmission, and we aren't having sex there. Or that

its *only*

> transfusion. And the current blood supply is safe. <maybe>

>

> I agree that getting tested is important. I'd like to know that my

doctor,

> my dentist, and their staff persons are tested, too.

>

> Sal

>

> Re: First TX shot--Thought I was

going to die

> (figuratively)

>

>

>

> you know, I would be more interested in telling people

> the current risks of catching HCV. Some of those you

> mention are still current. In telling people to get

> tested, it would be helpful to mention those past

> risks. Yes,they are still here, but most businesses

> and medical practices are up to date. Speculating

> about how we got this disease is the least important

> part. Getting people tested is.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> It's a pleasure having you join in our conversations. We hope you

have found

> the support you need with us.

>

> If you are using email for your posts, for easy access to our

group, just

> click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

>

[Guest guest]

Jackie,

My next door neighbor (and close friend) is a very good dentist. I

of course I told him about my Hep C and he is very knowledgeable

about the problem and says that his office takes every precaution

and that he is not a bit worried. I have noticed that he and his

staff and very big on the masks and gloves. He says that he is more

worried about HIV and apparently he gets some numbers from the state

health department about HCV and HIV here in this county (I am in

Florida) and says that you would be suprised at how high the

percentage of infected people here is. He says don't worry a bit,

that he and his staff are safe. I just got my notice for my six

months teeth cleaning. Of course if a dentist was careless he sure

would be at risk. I bet he gets a periodic blood test for this

stuff. I will ask him.

It wouldn't surprise me that a much bigger danger are barber shops.

> Ric,

>

> These risks ARE ongoing. I have to battle doctor offices and

dental offices

> all the time about taking HCV virus seriously. They want to think

its passed

> by sexual transmission, and we aren't having sex there. Or that

its *only*

> transfusion. And the current blood supply is safe. <maybe>

>

> I agree that getting tested is important. I'd like to know that my

doctor,

> my dentist, and their staff persons are tested, too.

>

> Sal

>

> Re: First TX shot--Thought I was

going to die

> (figuratively)

>

>

>

> you know, I would be more interested in telling people

> the current risks of catching HCV. Some of those you

> mention are still current. In telling people to get

> tested, it would be helpful to mention those past

> risks. Yes,they are still here, but most businesses

> and medical practices are up to date. Speculating

> about how we got this disease is the least important

> part. Getting people tested is.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> It's a pleasure having you join in our conversations. We hope you

have found

> the support you need with us.

>

> If you are using email for your posts, for easy access to our

group, just

> click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

>

[Guest guest]

Jackie,

My next door neighbor (and close friend) is a very good dentist. I

of course I told him about my Hep C and he is very knowledgeable

about the problem and says that his office takes every precaution

and that he is not a bit worried. I have noticed that he and his

staff and very big on the masks and gloves. He says that he is more

worried about HIV and apparently he gets some numbers from the state

health department about HCV and HIV here in this county (I am in

Florida) and says that you would be suprised at how high the

percentage of infected people here is. He says don't worry a bit,

that he and his staff are safe. I just got my notice for my six

months teeth cleaning. Of course if a dentist was careless he sure

would be at risk. I bet he gets a periodic blood test for this

stuff. I will ask him.

It wouldn't surprise me that a much bigger danger are barber shops.

> Ric,

>

> These risks ARE ongoing. I have to battle doctor offices and

dental offices

> all the time about taking HCV virus seriously. They want to think

its passed

> by sexual transmission, and we aren't having sex there. Or that

its *only*

> transfusion. And the current blood supply is safe. <maybe>

>

> I agree that getting tested is important. I'd like to know that my

doctor,

> my dentist, and their staff persons are tested, too.

>

> Sal

>

> Re: First TX shot--Thought I was

going to die

> (figuratively)

>

>

>

> you know, I would be more interested in telling people

> the current risks of catching HCV. Some of those you

> mention are still current. In telling people to get

> tested, it would be helpful to mention those past

> risks. Yes,they are still here, but most businesses

> and medical practices are up to date. Speculating

> about how we got this disease is the least important

> part. Getting people tested is.

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> It's a pleasure having you join in our conversations. We hope you

have found

> the support you need with us.

>

> If you are using email for your posts, for easy access to our

group, just

> click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

>

[Guest guest]

hiey ty fro the reply- i dont know what I will be doing- found a new Dr for another opinion- I feel like the old Dr (when the viruse reappeared) kicked me to the curb. And yes, mine cme back at 5 ooooooo which was high. frustrating huh?

br54930701 wrote:

--hi, Same thing happened to me. 48 weeks with pegasys/ribavirin. No virus at 3 months, 212,000 at 6 months then at the end no virus. But 6 months later 15,000,000; off the scale I guess. I'm type 1-A and get another biopsy Wednesday, first in over three years. Got my fingers crossed.- In Hepatitis_C_Central , perky rose <agann_01@y...> wrote:>> Yes it is a hard time;;;and sleeping it off is the best way to deal with it. I went thru the entire 48 weeks of peg-interferon and ribavarin. The virus was undetectable at 12 weeks. A month after I finished,theapy, however, the virus relapsed (with a vengeance) - quite devastating. So now, I am sitting back, not even knowing what step to take next . Has anyone else relapsed? Do you get back into therapy? IT is quite

depressing.... But luck to those of you still in therapy - hope you are successful > > janet <doc_jade@y...> wrote:Oh Gav,> Sorry you had such a bad time the first shot. Let me give you a little secret. On the day of shot, I literally wear myself out. Do all those little things that I know that will make me sleepy. Then I take my shot, and sleep off the side effects. And honey it does get better as the treatment goes. I am Genotype 1a and yes I have to do the whole 48 weeks. I have 7 more shots come monday, then I will be done. As of now I am still undetectable. So there is a positive side of treatment. Reaching that undetectable!!!> Be sure and let us know how you are doing honey. And remember we are here for you.> Love> Janet> > Z King <gavriella_rachel@y...> wrote:> Well, I took my first Ribavirin and Pegintron 2b shot> Friday night. I have genotype 1a

with a 220,000 viral> load. Hopefully this stuff will wipe it out.> > I know the first weeks of treatment are the supposed> to be the worst, but I didn't expect to get what I> did. Within 4 hours after taking the shot: headache> kicked in, then nausea and SEVERE stomach pain, then I> spent the whole night vomiting and major diarrhea.> Haven't barely slept since Thursday night. Saturday> all day, I had a headache that felt like someone shot> my brains out; Tylenol isn't helping (and I know too> much Tylenol is bad for the liver). So I'm foregoing> that. Today, Sunday, it is a bit better. I'm able to> hold down some protein shake and a bit of cheese. I'm> drinking as much water as my body can hold to ease the> symptoms. Been drinking water around the clock since> Friday. Even keep bottles of the stuff by my bed.> > I'm still a bit headachey and dizzy today, but

I can> deal with it. All I can say is WHOA--Friday night was> the night from hell. Hope this gets easier. At least> my two dogs have been trying to give me comfort. They> seem to know when I don't feel good and will snuggle> with me in bed and bring me their toys.> > I had to cancel my date Saturday with a guy I've been> dating the past few months. When I told him why (the> fallout from the treatment) and about the HepC, he> freaked. I told him I didn't want to have this kind of> serious conversation over the phone. I wanted to tell> him in person. He's in total shock and is worried I> gave it to him. That I can understand when people> don't know much about the virus. He asked if I ever> planned on telling him; I told him definitely--he has> the right to know if the relationship gets serious.> And I wanted to make sure I had all my information,> doctor lined

up, and treatment plan in the works. He> said he would call me today, so I'm waiting for that.> > And I am prepared if he never calls again, too. It is> the chance I have to take. But I don't want him to> hang around out of pity or feels he's obligated. I> know there are some people who have had the virus for> years, got married, had kids, and no one ever> contacted it. I'm trying to remain positive about> that. He is a very special person to me, so I'll have> to wait and see.> > Sorry to be such a downer--it's been the ultimate> crummy weekend. I look forward going into work> tomorrow, so I can keep busy and take my mind off of> this...even if it is for a little bit.> > Gav> > > > > >

__________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com> > > I am a rock, I am island...and a rock feels no pain, and a island never cries...- Simon> > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/> > Happy Posting > > > >

[Guest guest]

hiey ty fro the reply- i dont know what I will be doing- found a new Dr for another opinion- I feel like the old Dr (when the viruse reappeared) kicked me to the curb. And yes, mine cme back at 5 ooooooo which was high. frustrating huh?

br54930701 wrote:

--hi, Same thing happened to me. 48 weeks with pegasys/ribavirin. No virus at 3 months, 212,000 at 6 months then at the end no virus. But 6 months later 15,000,000; off the scale I guess. I'm type 1-A and get another biopsy Wednesday, first in over three years. Got my fingers crossed.- In Hepatitis_C_Central , perky rose <agann_01@y...> wrote:>> Yes it is a hard time;;;and sleeping it off is the best way to deal with it. I went thru the entire 48 weeks of peg-interferon and ribavarin. The virus was undetectable at 12 weeks. A month after I finished,theapy, however, the virus relapsed (with a vengeance) - quite devastating. So now, I am sitting back, not even knowing what step to take next . Has anyone else relapsed? Do you get back into therapy? IT is quite

depressing.... But luck to those of you still in therapy - hope you are successful > > janet <doc_jade@y...> wrote:Oh Gav,> Sorry you had such a bad time the first shot. Let me give you a little secret. On the day of shot, I literally wear myself out. Do all those little things that I know that will make me sleepy. Then I take my shot, and sleep off the side effects. And honey it does get better as the treatment goes. I am Genotype 1a and yes I have to do the whole 48 weeks. I have 7 more shots come monday, then I will be done. As of now I am still undetectable. So there is a positive side of treatment. Reaching that undetectable!!!> Be sure and let us know how you are doing honey. And remember we are here for you.> Love> Janet> > Z King <gavriella_rachel@y...> wrote:> Well, I took my first Ribavirin and Pegintron 2b shot> Friday night. I have genotype 1a

with a 220,000 viral> load. Hopefully this stuff will wipe it out.> > I know the first weeks of treatment are the supposed> to be the worst, but I didn't expect to get what I> did. Within 4 hours after taking the shot: headache> kicked in, then nausea and SEVERE stomach pain, then I> spent the whole night vomiting and major diarrhea.> Haven't barely slept since Thursday night. Saturday> all day, I had a headache that felt like someone shot> my brains out; Tylenol isn't helping (and I know too> much Tylenol is bad for the liver). So I'm foregoing> that. Today, Sunday, it is a bit better. I'm able to> hold down some protein shake and a bit of cheese. I'm> drinking as much water as my body can hold to ease the> symptoms. Been drinking water around the clock since> Friday. Even keep bottles of the stuff by my bed.> > I'm still a bit headachey and dizzy today, but

I can> deal with it. All I can say is WHOA--Friday night was> the night from hell. Hope this gets easier. At least> my two dogs have been trying to give me comfort. They> seem to know when I don't feel good and will snuggle> with me in bed and bring me their toys.> > I had to cancel my date Saturday with a guy I've been> dating the past few months. When I told him why (the> fallout from the treatment) and about the HepC, he> freaked. I told him I didn't want to have this kind of> serious conversation over the phone. I wanted to tell> him in person. He's in total shock and is worried I> gave it to him. That I can understand when people> don't know much about the virus. He asked if I ever> planned on telling him; I told him definitely--he has> the right to know if the relationship gets serious.> And I wanted to make sure I had all my information,> doctor lined

up, and treatment plan in the works. He> said he would call me today, so I'm waiting for that.> > And I am prepared if he never calls again, too. It is> the chance I have to take. But I don't want him to> hang around out of pity or feels he's obligated. I> know there are some people who have had the virus for> years, got married, had kids, and no one ever> contacted it. I'm trying to remain positive about> that. He is a very special person to me, so I'll have> to wait and see.> > Sorry to be such a downer--it's been the ultimate> crummy weekend. I look forward going into work> tomorrow, so I can keep busy and take my mind off of> this...even if it is for a little bit.> > Gav> > > > > >

__________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com> > > I am a rock, I am island...and a rock feels no pain, and a island never cries...- Simon> > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/> > Happy Posting > > > >

[Guest guest]

oh jacki - thats a sad one. Im sorry - your child didnt get hep C did he? YEs, they told me to wait 6 months before doing anything, then prob 5 years til they find a cure. Screw that- I dont have uch fibrosis so Im goin got just go for any treatment I can find. And, my name is Ann, somehow my game screen name appeared on that first e-mail. ha!

thanks AnnJackie on wrote:

well Willian and Rose,, Im so sorry,, I was/am geno 1a too and I spoke with Dr. Cecil and he advised becasue I was stage 3-4 with early cirrhosis that I should do at least 48 weeks AFTER I tested undetectible.. so I was shooting for 60 weeks, but only made 54,, ended up in the hospital needing 2 units of packed red cells as my hemoglobin dropped to 7.0, RBCS and WBCS were both down to 1.0... made me really mad cuz I got this exactly 27 years ago TODAY when I had my first child and I hemmorrhaged and had to have 4 units of blood after delivery...

so happy birthday to my son and to my liver,, sigh,, br54930701 wrote:

--hi, Same thing happened to me. 48 weeks with pegasys/ribavirin. No virus at 3 months, 212,000 at 6 months then at the end no virus. But 6 months later 15,000,000; off the scale I guess. I'm type 1-A and get another biopsy Wednesday, first in over three years. Got my fingers crossed.- In Hepatitis_C_Central , perky rose <agann_01@y...> wrote:>> Yes it is a hard time;;;and sleeping it off is the best way to deal with it. I went thru the entire 48 weeks of peg-interferon and ribavarin. The virus was undetectable at 12 weeks. A month after I finished,theapy, however, the virus relapsed (with a vengeance) - quite devastating. So now, I am sitting back, not even knowing what step to take next . Has anyone else relapsed? Do you get back into therapy? IT is quite

depressing.... But luck to those of you still in therapy - hope you are successful > > janet <doc_jade@y...> wrote:Oh Gav,> Sorry you had such a bad time the first shot. Let me give you a little secret. On the day of shot, I literally wear myself out. Do all those little things that I know that will make me sleepy. Then I take my shot, and sleep off the side effects. And honey it does get better as the treatment goes. I am Genotype 1a and yes I have to do the whole 48 weeks. I have 7 more shots come monday, then I will be done. As of now I am still undetectable. So there is a positive side of treatment. Reaching that undetectable!!!> Be sure and let us know how you are doing honey. And remember we are here for you.> Love> Janet> > Z King <gavriella_rachel@y...> wrote:> Well, I took my first Ribavirin and Pegintron 2b shot> Friday night. I have genotype 1a

with a 220,000 viral> load. Hopefully this stuff will wipe it out.> > I know the first weeks of treatment are the supposed> to be the worst, but I didn't expect to get what I> did. Within 4 hours after taking the shot: headache> kicked in, then nausea and SEVERE stomach pain, then I> spent the whole night vomiting and major diarrhea.> Haven't barely slept since Thursday night. Saturday> all day, I had a headache that felt like someone shot> my brains out; Tylenol isn't helping (and I know too> much Tylenol is bad for the liver). So I'm foregoing> that. Today, Sunday, it is a bit better. I'm able to> hold down some protein shake and a bit of cheese. I'm> drinking as much water as my body can hold to ease the> symptoms. Been drinking water around the clock since> Friday. Even keep bottles of the stuff by my bed.> > I'm still a bit headachey and dizzy today, but

I can> deal with it. All I can say is WHOA--Friday night was> the night from hell. Hope this gets easier. At least> my two dogs have been trying to give me comfort. They> seem to know when I don't feel good and will snuggle> with me in bed and bring me their toys.> > I had to cancel my date Saturday with a guy I've been> dating the past few months. When I told him why (the> fallout from the treatment) and about the HepC, he> freaked. I told him I didn't want to have this kind of> serious conversation over the phone. I wanted to tell> him in person. He's in total shock and is worried I> gave it to him. That I can understand when people> don't know much about the virus. He asked if I ever> planned on telling him; I told him definitely--he has> the right to know if the relationship gets serious.> And I wanted to make sure I had all my information,> doctor lined

up, and treatment plan in the works. He> said he would call me today, so I'm waiting for that.> > And I am prepared if he never calls again, too. It is> the chance I have to take. But I don't want him to> hang around out of pity or feels he's obligated. I> know there are some people who have had the virus for> years, got married, had kids, and no one ever> contacted it. I'm trying to remain positive about> that. He is a very special person to me, so I'll have> to wait and see.> > Sorry to be such a downer--it's been the ultimate> crummy weekend. I look forward going into work> tomorrow, so I can keep busy and take my mind off of> this...even if it is for a little bit.> > Gav> > > > > >

__________________________________ > Yahoo! Mail - PC Magazine Editors' Choice 2005 > http://mail.yahoo.com> > > I am a rock, I am island...and a rock feels no pain, and a island never cries...- Simon> > > It's a pleasure having you join in our conversations. We hope you have found the support you need with us. > > If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/> > Happy Posting > > > >

[Guest guest]

Sally,

I really hadn't given cross contamination (one dental patient to

another) much thought but I will ask my neighbor about that too. I

bet he is up too speed there also, this guy is just an incredible

dentist and all around good guy and very bright too. He was

definately more concerned about HIV but it could be because there

may be more of it here. I will ask him.

> > Ric,

> >

> > These risks ARE ongoing. I have to battle doctor offices and

> dental offices

> > all the time about taking HCV virus seriously. They want to think

> its passed

> > by sexual transmission, and we aren't having sex there. Or that

> its *only*

> > transfusion. And the current blood supply is safe. <maybe>

> >

> > I agree that getting tested is important. I'd like to know that

my

> doctor,

> > my dentist, and their staff persons are tested, too.

> >

> > Sal

> >

> > Re: First TX shot--Thought I was

> going to die

> > (figuratively)

> >

> >

> >

> > you know, I would be more interested in telling people

> > the current risks of catching HCV. Some of those you

> > mention are still current. In telling people to get

> > tested, it would be helpful to mention those past

> > risks. Yes,they are still here, but most businesses

> > and medical practices are up to date. Speculating

> > about how we got this disease is the least important

> > part. Getting people tested is.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > It's a pleasure having you join in our conversations. We hope you

> have found

> > the support you need with us.

> >

> > If you are using email for your posts, for easy access to our

> group, just

> > click the link--

http://groups.yahoo.com/group/Hepatitis_C_Central/

> >

> > Happy Posting

> >

[Guest guest]

Sally,

I really hadn't given cross contamination (one dental patient to

another) much thought but I will ask my neighbor about that too. I

bet he is up too speed there also, this guy is just an incredible

dentist and all around good guy and very bright too. He was

definately more concerned about HIV but it could be because there

may be more of it here. I will ask him.

> > Ric,

> >

> > These risks ARE ongoing. I have to battle doctor offices and

> dental offices

> > all the time about taking HCV virus seriously. They want to think

> its passed

> > by sexual transmission, and we aren't having sex there. Or that

> its *only*

> > transfusion. And the current blood supply is safe. <maybe>

> >

> > I agree that getting tested is important. I'd like to know that

my

> doctor,

> > my dentist, and their staff persons are tested, too.

> >

> > Sal

> >

> > Re: First TX shot--Thought I was

> going to die

> > (figuratively)

> >

> >

> >

> > you know, I would be more interested in telling people

> > the current risks of catching HCV. Some of those you

> > mention are still current. In telling people to get

> > tested, it would be helpful to mention those past

> > risks. Yes,they are still here, but most businesses

> > and medical practices are up to date. Speculating

> > about how we got this disease is the least important

> > part. Getting people tested is.

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> >

> > It's a pleasure having you join in our conversations. We hope you

> have found

> > the support you need with us.

> >

> > If you are using email for your posts, for easy access to our

> group, just

> > click the link--

http://groups.yahoo.com/group/Hepatitis_C_Central/

> >

> > Happy Posting

> >

[Guest guest]

Judi,

My feelings exactly. The gastro doc who treated me was up in Georgia

and was in a clinc with three other gastro docs, all treating Hep C.

It was like a boiler room, rush you in, rush you out and very little

personalized attention. Big waiting room full of folks like me.

One thing is that I think that lots of these doctors are just so

afraid of lawsuits or any kind of problems. I suppose there is a

certain protocol to follow when using these drugs so that the pharma

company would back them up if there was a problem. But if they stray

from that maybe they are afraid the pharma company won't support them

if there is some problem. Blunt is good. <grin>

>

> -

>

> I am sick to death of all these damn DR's that I see a holistic DR

now

> and I just get very upset with regular DRS. I don't know why they

> don't tell you things that you should know. I think most of the

> hepatologists out there look at us like guinna pigs - we have this

> disease that they want to find a cure for and all they care about is

> the $$$, prestige, and that's about it.

>

> Judi (sorry to be so blunt)

>

[Guest guest]

That sounds like a great plan and I hope it all works out just as you planned and that you reach SVR!!!

Dr. Cecil will be able to help you and your doc devise a plan that fits YOU and not just a cookie cutter recipe for treatment. He is a great doc and he will help you if you can get in to see him.

Well Im not convinced that your liver disease has progressed THAT fast, so lets just wait until after your biopsy and take it from there..

Get lots of rest before and stay hydrated,, and we will all be here waiting to hear the results,

God Bless you hon

jackiebr54930701 wrote:

Jackie, Thanks so much for your kind reply for you have given me hope....and the beginnings of a plan. I will go see Dr. Cecil, I'm in Florida but I could fly up there four times a year easy enough. I have a local doc who would probably be agreeable to working with Dr. Cecil. If not I will just keep looking till I find one. As I responded to Pegasys before I suppose that would be the best way to go. Or maybe I could try Peg-intron or Infergen. I guess it is just a crap shoot, huh? But anyway I need to try, heck I am an older guy (55) but I have two young kids (9 and 13) that I would like to get raised first. I just hope I haven't waited too long. In the last week or two I have been feeling rough and until lately I have never had any more than minor Hep C

symptoms. But I see that Dr. Cecil says he treats stage 4 with sucess sometimes. My biopsy is tomorrow and by the end of the week I should have the results. I should have gotten on to this a year ago when I got the super high 6 months post TX viral load results. Does Dr. Cecil encourage the induction therapy where you get the higher dosage in the beginning?Anyway, thanks for the hope and the idea. I probably won't post again till I come back from the biopsy tomorrow night.> > > Well, I took my first Ribavirin and Pegintron 2b shot> > > Friday night. I have genotype 1a with a 220,000 viral> > > load. Hopefully this stuff will wipe it out.> > > > > > I know the first weeks of treatment are the supposed> > > to be the worst, but I didn't expect to get what I> > > did. Within 4 hours after taking the shot: headache> > > kicked in, then nausea and SEVERE stomach pain, then I> > > spent the whole night vomiting and major diarrhea.> > > Haven't barely slept since Thursday night. Saturday> > > all day, I had a headache that felt like

someone shot> > > my brains out; Tylenol isn't helping (and I know too> > > much Tylenol is bad for the liver). So I'm foregoing> > > that. Today, Sunday, it is a bit better. I'm able to> > > hold down some protein shake and a bit of cheese. I'm> > > drinking as much water as my body can hold to ease the> > > symptoms. Been drinking water around the clock since> > > Friday. Even keep bottles of the stuff by my bed.> > > > > > I'm still a bit headachey and dizzy today, but I can> > > deal with it. All I can say is WHOA--Friday night was> > > the night from hell. Hope this gets easier. At least> > > my two dogs have been trying to give me comfort. They> > > seem to know when I don't feel good and will snuggle> > > with me in bed and bring me their toys.> > > > > > I had to cancel

my date Saturday with a guy I've been> > > dating the past few months. When I told him why (the> > > fallout from the treatment) and about the HepC, he> > > freaked. I told him I didn't want to have this kind of> > > serious conversation over the phone. I wanted to tell> > > him in person. He's in total shock and is worried I> > > gave it to him. That I can understand when people> > > don't know much about the virus. He asked if I ever> > > planned on telling him; I told him definitely--he has> > > the right to know if the relationship gets serious.> > > And I wanted to make sure I had all my information,> > > doctor lined up, and treatment plan in the works. He> > > said he would call me today, so I'm waiting for that.> > > > > > And I am prepared if he never calls again, too. It is> > >

the chance I have to take. But I don't want him to> > > hang around out of pity or feels he's obligated. I> > > know there are some people who have had the virus for> > > years, got married, had kids, and no one ever> > > contacted it. I'm trying to remain positive about> > > that. He is a very special person to me, so I'll have> > > to wait and see.> > > > > > Sorry to be such a downer--it's been the ultimate> > > crummy weekend. I look forward going into work> > > tomorrow, so I can keep busy and take my mind off of> > > this...even if it is for a little bit.> > > > > > Gav> > > > > > > > > > > > > > > > > >

__________________________________ > > > Yahoo! Mail - PC Magazine Editors' Choice 2005 > > > http://mail.yahoo.com> > > > > > > > > I am a rock, I am island...and a rock feels no pain, and a > island > > never cries...- Simon> > > > > > > > > It's a pleasure having you join in our conversations. We hope > you > > have found the support you need with us. > > > > > > If you are using email for your posts, for easy access to our > > group, just click the link-- > > http://groups.yahoo.com/group/Hepatitis_C_Central/> > > > > > Happy Posting > > > > > > > > > > > >

[Guest guest]

That sounds like a great plan and I hope it all works out just as you planned and that you reach SVR!!!

Dr. Cecil will be able to help you and your doc devise a plan that fits YOU and not just a cookie cutter recipe for treatment. He is a great doc and he will help you if you can get in to see him.

Well Im not convinced that your liver disease has progressed THAT fast, so lets just wait until after your biopsy and take it from there..

Get lots of rest before and stay hydrated,, and we will all be here waiting to hear the results,

God Bless you hon

jackiebr54930701 wrote:

Jackie, Thanks so much for your kind reply for you have given me hope....and the beginnings of a plan. I will go see Dr. Cecil, I'm in Florida but I could fly up there four times a year easy enough. I have a local doc who would probably be agreeable to working with Dr. Cecil. If not I will just keep looking till I find one. As I responded to Pegasys before I suppose that would be the best way to go. Or maybe I could try Peg-intron or Infergen. I guess it is just a crap shoot, huh? But anyway I need to try, heck I am an older guy (55) but I have two young kids (9 and 13) that I would like to get raised first. I just hope I haven't waited too long. In the last week or two I have been feeling rough and until lately I have never had any more than minor Hep C

symptoms. But I see that Dr. Cecil says he treats stage 4 with sucess sometimes. My biopsy is tomorrow and by the end of the week I should have the results. I should have gotten on to this a year ago when I got the super high 6 months post TX viral load results. Does Dr. Cecil encourage the induction therapy where you get the higher dosage in the beginning?Anyway, thanks for the hope and the idea. I probably won't post again till I come back from the biopsy tomorrow night.> > > Well, I took my first Ribavirin and Pegintron 2b shot> > > Friday night. I have genotype 1a with a 220,000 viral> > > load. Hopefully this stuff will wipe it out.> > > > > > I know the first weeks of treatment are the supposed> > > to be the worst, but I didn't expect to get what I> > > did. Within 4 hours after taking the shot: headache> > > kicked in, then nausea and SEVERE stomach pain, then I> > > spent the whole night vomiting and major diarrhea.> > > Haven't barely slept since Thursday night. Saturday> > > all day, I had a headache that felt like

someone shot> > > my brains out; Tylenol isn't helping (and I know too> > > much Tylenol is bad for the liver). So I'm foregoing> > > that. Today, Sunday, it is a bit better. I'm able to> > > hold down some protein shake and a bit of cheese. I'm> > > drinking as much water as my body can hold to ease the> > > symptoms. Been drinking water around the clock since> > > Friday. Even keep bottles of the stuff by my bed.> > > > > > I'm still a bit headachey and dizzy today, but I can> > > deal with it. All I can say is WHOA--Friday night was> > > the night from hell. Hope this gets easier. At least> > > my two dogs have been trying to give me comfort. They> > > seem to know when I don't feel good and will snuggle> > > with me in bed and bring me their toys.> > > > > > I had to cancel

my date Saturday with a guy I've been> > > dating the past few months. When I told him why (the> > > fallout from the treatment) and about the HepC, he> > > freaked. I told him I didn't want to have this kind of> > > serious conversation over the phone. I wanted to tell> > > him in person. He's in total shock and is worried I> > > gave it to him. That I can understand when people> > > don't know much about the virus. He asked if I ever> > > planned on telling him; I told him definitely--he has> > > the right to know if the relationship gets serious.> > > And I wanted to make sure I had all my information,> > > doctor lined up, and treatment plan in the works. He> > > said he would call me today, so I'm waiting for that.> > > > > > And I am prepared if he never calls again, too. It is> > >

the chance I have to take. But I don't want him to> > > hang around out of pity or feels he's obligated. I> > > know there are some people who have had the virus for> > > years, got married, had kids, and no one ever> > > contacted it. I'm trying to remain positive about> > > that. He is a very special person to me, so I'll have> > > to wait and see.> > > > > > Sorry to be such a downer--it's been the ultimate> > > crummy weekend. I look forward going into work> > > tomorrow, so I can keep busy and take my mind off of> > > this...even if it is for a little bit.> > > > > > Gav> > > > > > > > > > > > > > > > > >

__________________________________ > > > Yahoo! Mail - PC Magazine Editors' Choice 2005 > > > http://mail.yahoo.com> > > > > > > > > I am a rock, I am island...and a rock feels no pain, and a > island > > never cries...- Simon> > > > > > > > > It's a pleasure having you join in our conversations. We hope > you > > have found the support you need with us. > > > > > > If you are using email for your posts, for easy access to our > > group, just click the link-- > > http://groups.yahoo.com/group/Hepatitis_C_Central/> > > > > > Happy Posting > > > > > > > > > > > >

[Guest guest]

Jackie,

There is one fairly serious problem I will have with retreatment but

I think I can work it out, maybe. About six months before I started

TX back in 2003 I fell off a high ladder and broke my hip. Problems

seem to come in bunches sometimes, don't they?

Anyway, emergency surgery got the hip back together with screws (no

hip replacement) and after three months the bone had healed and I

was walking again practically good as new. A few months later I

started the TX and at first there was no problem, but after a while

my hip was really giving me problems, along with every other long

forgotten skelatal problem. You know very well how much joint pain

the Pegasys can cause. But this hip was really bad, almost to the

point where I could barely walk.

Recently I went to doc who does hip replacements and X-rays show

some degradation of the fereral head of the hip joint, but he thinks

it could last for many years like it is. I walk fine, maybe an hour

a day. Bu8t if I get back on the TX I bet that hip will really cause

problems.

I have a friend who finished Pegasys TX over a year ago and he is

virus free. But he really had pain problems. Years ago he nearly

died in a truck accident and he has several verterbra fused together

and was on a morphine patch for back pain even before the TX. I

think he gets his pain meds from the Veterans Administration.

But these doctors don't want to give a thing for pain anymore. If I

get back on TX I may need to find a doc to prescribe something like

my friend took. BTW, he somehow checked back and is pretty sure he

got the HCV from the blood he was given after the truck wreck 15

years ago.

> > > > Well, I took my first Ribavirin and Pegintron 2b shot

> > > > Friday night. I have genotype 1a with a 220,000 viral

> > > > load. Hopefully this stuff will wipe it out.

> > > >

> > > > I know the first weeks of treatment are the supposed

> > > > to be the worst, but I didn't expect to get what I

> > > > did. Within 4 hours after taking the shot: headache

> > > > kicked in, then nausea and SEVERE stomach pain, then I

> > > > spent the whole night vomiting and major diarrhea.

> > > > Haven't barely slept since Thursday night. Saturday

> > > > all day, I had a headache that felt like someone shot

> > > > my brains out; Tylenol isn't helping (and I know too

> > > > much Tylenol is bad for the liver). So I'm foregoing

> > > > that. Today, Sunday, it is a bit better. I'm able to

> > > > hold down some protein shake and a bit of cheese. I'm

> > > > drinking as much water as my body can hold to ease the

> > > > symptoms. Been drinking water around the clock since

> > > > Friday. Even keep bottles of the stuff by my bed.

> > > >

> > > > I'm still a bit headachey and dizzy today, but I can

> > > > deal with it. All I can say is WHOA--Friday night was

> > > > the night from hell. Hope this gets easier. At least

> > > > my two dogs have been trying to give me comfort. They

> > > > seem to know when I don't feel good and will snuggle

> > > > with me in bed and bring me their toys.

> > > >

> > > > I had to cancel my date Saturday with a guy I've been

> > > > dating the past few months. When I told him why (the

> > > > fallout from the treatment) and about the HepC, he

> > > > freaked. I told him I didn't want to have this kind of

> > > > serious conversation over the phone. I wanted to tell

> > > > him in person. He's in total shock and is worried I

> > > > gave it to him. That I can understand when people

> > > > don't know much about the virus. He asked if I ever

> > > > planned on telling him; I told him definitely--he has

> > > > the right to know if the relationship gets serious.

> > > > And I wanted to make sure I had all my information,

> > > > doctor lined up, and treatment plan in the works. He

> > > > said he would call me today, so I'm waiting for that.

> > > >

> > > > And I am prepared if he never calls again, too. It is

> > > > the chance I have to take. But I don't want him to

> > > > hang around out of pity or feels he's obligated. I

> > > > know there are some people who have had the virus for

> > > > years, got married, had kids, and no one ever

> > > > contacted it. I'm trying to remain positive about

> > > > that. He is a very special person to me, so I'll have

> > > > to wait and see.

> > > >

> > > > Sorry to be such a downer--it's been the ultimate

> > > > crummy weekend. I look forward going into work

> > > > tomorrow, so I can keep busy and take my mind off of

> > > > this...even if it is for a little bit.

> > > >

> > > > Gav

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > __________________________________

> > > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > > http://mail.yahoo.com

> > > >

> > > >

> > > > I am a rock, I am island...and a rock feels no pain, and a

> > island

> > > never cries...- Simon

> > > >

> > > >

> > > > It's a pleasure having you join in our conversations. We

hope

> > you

> > > have found the support you need with us.

> > > >

> > > > If you are using email for your posts, for easy access to

our

> > > group, just click the link--

> > > http://groups.yahoo.com/group/Hepatitis_C_Central/

> > > >

> > > > Happy Posting

> > > >

> > > >

> > > >

> > > >

[Guest guest]

Jackie,

There is one fairly serious problem I will have with retreatment but

I think I can work it out, maybe. About six months before I started

TX back in 2003 I fell off a high ladder and broke my hip. Problems

seem to come in bunches sometimes, don't they?

Anyway, emergency surgery got the hip back together with screws (no

hip replacement) and after three months the bone had healed and I

was walking again practically good as new. A few months later I

started the TX and at first there was no problem, but after a while

my hip was really giving me problems, along with every other long

forgotten skelatal problem. You know very well how much joint pain

the Pegasys can cause. But this hip was really bad, almost to the

point where I could barely walk.

Recently I went to doc who does hip replacements and X-rays show

some degradation of the fereral head of the hip joint, but he thinks

it could last for many years like it is. I walk fine, maybe an hour

a day. Bu8t if I get back on the TX I bet that hip will really cause

problems.

I have a friend who finished Pegasys TX over a year ago and he is

virus free. But he really had pain problems. Years ago he nearly

died in a truck accident and he has several verterbra fused together

and was on a morphine patch for back pain even before the TX. I

think he gets his pain meds from the Veterans Administration.

But these doctors don't want to give a thing for pain anymore. If I

get back on TX I may need to find a doc to prescribe something like

my friend took. BTW, he somehow checked back and is pretty sure he

got the HCV from the blood he was given after the truck wreck 15

years ago.

> > > > Well, I took my first Ribavirin and Pegintron 2b shot

> > > > Friday night. I have genotype 1a with a 220,000 viral

> > > > load. Hopefully this stuff will wipe it out.

> > > >

> > > > I know the first weeks of treatment are the supposed

> > > > to be the worst, but I didn't expect to get what I

> > > > did. Within 4 hours after taking the shot: headache

> > > > kicked in, then nausea and SEVERE stomach pain, then I

> > > > spent the whole night vomiting and major diarrhea.

> > > > Haven't barely slept since Thursday night. Saturday

> > > > all day, I had a headache that felt like someone shot

> > > > my brains out; Tylenol isn't helping (and I know too

> > > > much Tylenol is bad for the liver). So I'm foregoing

> > > > that. Today, Sunday, it is a bit better. I'm able to

> > > > hold down some protein shake and a bit of cheese. I'm

> > > > drinking as much water as my body can hold to ease the

> > > > symptoms. Been drinking water around the clock since

> > > > Friday. Even keep bottles of the stuff by my bed.

> > > >

> > > > I'm still a bit headachey and dizzy today, but I can

> > > > deal with it. All I can say is WHOA--Friday night was

> > > > the night from hell. Hope this gets easier. At least

> > > > my two dogs have been trying to give me comfort. They

> > > > seem to know when I don't feel good and will snuggle

> > > > with me in bed and bring me their toys.

> > > >

> > > > I had to cancel my date Saturday with a guy I've been

> > > > dating the past few months. When I told him why (the

> > > > fallout from the treatment) and about the HepC, he

> > > > freaked. I told him I didn't want to have this kind of

> > > > serious conversation over the phone. I wanted to tell

> > > > him in person. He's in total shock and is worried I

> > > > gave it to him. That I can understand when people

> > > > don't know much about the virus. He asked if I ever

> > > > planned on telling him; I told him definitely--he has

> > > > the right to know if the relationship gets serious.

> > > > And I wanted to make sure I had all my information,

> > > > doctor lined up, and treatment plan in the works. He

> > > > said he would call me today, so I'm waiting for that.

> > > >

> > > > And I am prepared if he never calls again, too. It is

> > > > the chance I have to take. But I don't want him to

> > > > hang around out of pity or feels he's obligated. I

> > > > know there are some people who have had the virus for

> > > > years, got married, had kids, and no one ever

> > > > contacted it. I'm trying to remain positive about

> > > > that. He is a very special person to me, so I'll have

> > > > to wait and see.

> > > >

> > > > Sorry to be such a downer--it's been the ultimate

> > > > crummy weekend. I look forward going into work

> > > > tomorrow, so I can keep busy and take my mind off of

> > > > this...even if it is for a little bit.

> > > >

> > > > Gav

> > > >

> > > >

> > > >

> > > >

> > > >

> > > > __________________________________

> > > > Yahoo! Mail - PC Magazine Editors' Choice 2005

> > > > http://mail.yahoo.com

> > > >

> > > >

> > > > I am a rock, I am island...and a rock feels no pain, and a

> > island

> > > never cries...- Simon

> > > >

> > > >

> > > > It's a pleasure having you join in our conversations. We

hope

> > you

> > > have found the support you need with us.

> > > >

> > > > If you are using email for your posts, for easy access to

our

> > > group, just click the link--

> > > http://groups.yahoo.com/group/Hepatitis_C_Central/

> > > >

> > > > Happy Posting

> > > >

> > > >

> > > >

> > > >