Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 In a message dated 11/9/02 8:59:54 AM Central Standard Time, GKRBH@... writes: > I will be staying on here for some time I imagine, as there are too many > people with whom I want to stay in touch, and too many things happening in > your lives that I want to keep up with. I have grown to love your children > across the miles and want to keep up with their progress. > I'm so glad your going to stay , there would really be a void in my heart not to hear from you. It's amazing how close I feel to many people on this list, I never thought something like that would be possible. <hugs> Still thinking of you everyday, you get some rest. , Toni & Cody Colton Knoxville, Tennessee USA <A HREF= " http://www.banjosetupspecialist.com/ " >BanjoSetupSpecialist</A> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 Dear friends I just want to send a huge thank you to all of you who have supported us, not only recently when Hannah died, but in all the time I have been a member here. I have never known a bunch of parents like you all, sharing such love, empathy, advice and concern, and looking out for each other the way you do. I am blessed for being a part of this, and so pleased that I have made so many friends. Since Hannah's death 11 days ago, I have felt more happy than sad, more joy than distress, and more smiles than tears. There are some very low moments of course, but there is an overriding peace with which we have each been blessed. It is well with us that Hannah has gone to heaven. Gavan was amazed at how many messages I have printed (to keep) in the last few days, and is just beginning to realise the extensive network of support that I have been able to tap into. He was asking me from what countries you all come, and I was only able to name a few. It would be so nice to be able to tell him, as he has a real sense that Hannah, along with many other children, has brought the world together. Could some of you let me know where you are from? We know that there are some from the USA, the UK, NZ, and Sweden, but my memory lets me down at that point. I will be staying on here for some time I imagine, as there are too many people with whom I want to stay in touch, and too many things happening in your lives that I want to keep up with. I have grown to love your children across the miles and want to keep up with their progress. hugs Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 , I am so glad you have decided to stay for awhile. I have always gotten great incouragement from all you have to say. I am glad you are at peace and have been able to find joy in Hannahs passing. I only hope that if I am in that position I too will do so well. and Kennedy(3yrs.,pmg) > >Reply-To: polymicrogyria >To: " PMG List " <polymicrogyria > >Subject: from (Hannah's mum) >Date: Sun, 10 Nov 2002 02:01:58 +1100 > >Dear friends > >I just want to send a huge thank you to all of you who have supported us, >not only recently when Hannah died, but in all the time I have been a >member here. I have never known a bunch of parents like you all, sharing >such love, empathy, advice and concern, and looking out for each other the >way you do. I am blessed for being a part of this, and so pleased that I >have made so many friends. > >Since Hannah's death 11 days ago, I have felt more happy than sad, more joy >than distress, and more smiles than tears. There are some very low moments >of course, but there is an overriding peace with which we have each been >blessed. It is well with us that Hannah has gone to heaven. > >Gavan was amazed at how many messages I have printed (to keep) in the last >few days, and is just beginning to realise the extensive network of support >that I have been able to tap into. He was asking me from what countries you >all come, and I was only able to name a few. It would be so nice to be able >to tell him, as he has a real sense that Hannah, along with many other >children, has brought the world together. Could some of you let me know >where you are from? We know that there are some from the USA, the UK, NZ, >and Sweden, but my memory lets me down at that point. > >I will be staying on here for some time I imagine, as there are too many >people with whom I want to stay in touch, and too many things happening in >your lives that I want to keep up with. I have grown to love your children >across the miles and want to keep up with their progress. > >hugs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 , I am so glad you have decided to stay for awhile. I have always gotten great incouragement from all you have to say. I am glad you are at peace and have been able to find joy in Hannahs passing. I only hope that if I am in that position I too will do so well. and Kennedy(3yrs.,pmg) > >Reply-To: polymicrogyria >To: " PMG List " <polymicrogyria > >Subject: from (Hannah's mum) >Date: Sun, 10 Nov 2002 02:01:58 +1100 > >Dear friends > >I just want to send a huge thank you to all of you who have supported us, >not only recently when Hannah died, but in all the time I have been a >member here. I have never known a bunch of parents like you all, sharing >such love, empathy, advice and concern, and looking out for each other the >way you do. I am blessed for being a part of this, and so pleased that I >have made so many friends. > >Since Hannah's death 11 days ago, I have felt more happy than sad, more joy >than distress, and more smiles than tears. There are some very low moments >of course, but there is an overriding peace with which we have each been >blessed. It is well with us that Hannah has gone to heaven. > >Gavan was amazed at how many messages I have printed (to keep) in the last >few days, and is just beginning to realise the extensive network of support >that I have been able to tap into. He was asking me from what countries you >all come, and I was only able to name a few. It would be so nice to be able >to tell him, as he has a real sense that Hannah, along with many other >children, has brought the world together. Could some of you let me know >where you are from? We know that there are some from the USA, the UK, NZ, >and Sweden, but my memory lets me down at that point. > >I will be staying on here for some time I imagine, as there are too many >people with whom I want to stay in touch, and too many things happening in >your lives that I want to keep up with. I have grown to love your children >across the miles and want to keep up with their progress. > >hugs > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 9, 2002 Report Share Posted November 9, 2002 Dear , We have never written to each other. I'm new to the group. My heart goes out to you and your loss.My son is 2 and has PMG and each day l feel very blessed God picked me to be his mom. I have never talked to you but you are in my thoughts and prayers. Marilyn On Sun, 10 Nov 2002 02:01:58 +1100 " GAVAN J. CANAVAN " wrote: > Dear friends > > I just want to send a huge thank you to all of > you who have supported us, not only recently > when Hannah died, but in all the time I have > been a member here. I have never known a bunch > of parents like you all, sharing such love, > empathy, advice and concern, and looking out > for each other the way you do. I am blessed for > being a part of this, and so pleased that I > have made so many friends. > > Since Hannah's death 11 days ago, I have felt > more happy than sad, more joy than distress, > and more smiles than tears. There are some very > low moments of course, but there is an > overriding peace with which we have each been > blessed. It is well with us that Hannah has > gone to heaven. > > Gavan was amazed at how many messages I have > printed (to keep) in the last few days, and is > just beginning to realise the extensive network > of support that I have been able to tap into. > He was asking me from what countries you all > come, and I was only able to name a few. It > would be so nice to be able to tell him, as he > has a real sense that Hannah, along with many > other children, has brought the world together. > Could some of you let me know where you are > from? We know that there are some from the USA, > the UK, NZ, and Sweden, but my memory lets me > down at that point. > > I will be staying on here for some time I > imagine, as there are too many people with whom > I want to stay in touch, and too many things > happening in your lives that I want to keep up > with. I have grown to love your children across > the miles and want to keep up with their > progress. > > hugs > > > > > > [Non-text portions of this message have been > removed] > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Hi, I live in germany near Munich, but I am from the netherlands. I lived my whole life somewere in Europe and we are now planning to move near Cologne in Germany because we hope to find a school there that will take our son Timon ( 5.5 years PMG). I want him to go to a normal school together with his little brother ( who is actually the big one now!) and later on with my little daughter. I feel that Timon can only get support from " normal " kids and prepare him for his future. Well that from were I am form. You to have a nice weekend, well sunday, Bianca rstrindle wrote: > > > Gavan was amazed at how many messages I have printed (to keep) in > the last few days, and is just beginning to realise the extensive > network of support that I have been able to tap into. He was asking > me from what countries you all come, and I was only able to name a > few. It would be so nice to be able to tell him, as he has a real > sense that Hannah, along with many other children, has brought the > world together. Could some of you let me know where you are from? We > know that there are some from the USA, the UK, NZ, and Sweden, but my > memory lets me down at that point. > > , > We live in Settle WA, USA. > > Wouldn't it be interesting to have a virtual map of the world that > showed where all our loopmates are from. It truly is one of the > blessings of the technology age to be able to meet and learn from > people all over the world. I remember one time on a G-tube list I > belonged to that a mom in South Africa was struggling with the > feeding tube coming disconnected from the PEG tube. I got my husband > to download an image of the paper-clip gizmo that he had invented to > solve this problem, as we were stuggling with 's PEG too. She > later told me that the clinic where her son was treated now makes > these paperclip connectors for other clients. My husband found it > very touching, and entertaining, that his " invention " is now in > production, in South Africa, of all places. > > HAve a blessed weekend-- > , mom of boys > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Hi , My name is (Daire's Mum), we live in Ireland. I found this site after much searching for information from the Medical Profession and from the internet. I have also found a lot of support from you all, as my son Daire is only a few weeks from diagnosis, he's now nearly 5 months old, so we are still trying to get a handle on what it will mean for us all. I haven't been able to check my mail for a while and so I was very sad on reading your mail. I would like to take this opportunity to say, how sad I was to hear that Hannah is no longer with you. I feel our Children are indeed Special, they are sent to teach us, patience kindness and most of all how to Love, as they give their Love unconditionally. I know that Daire in his short time on earth has changed our lives for the better. Re: from (Hannah's mum) > Gavan was amazed at how many messages I have printed (to keep) in the last few days, and is just beginning to realise the extensive network of support that I have been able to tap into. He was asking me from what countries you all come, and I was only able to name a few. It would be so nice to be able to tell him, as he has a real sense that Hannah, along with many other children, has brought the world together. Could some of you let me know where you are from? We know that there are some from the USA, the UK, NZ, and Sweden, but my memory lets me down at that point. , We live in Settle WA, USA. Wouldn't it be interesting to have a virtual map of the world that showed where all our loopmates are from. It truly is one of the blessings of the technology age to be able to meet and learn from people all over the world. I remember one time on a G-tube list I belonged to that a mom in South Africa was struggling with the feeding tube coming disconnected from the PEG tube. I got my husband to download an image of the paper-clip gizmo that he had invented to solve this problem, as we were stuggling with 's PEG too. She later told me that the clinic where her son was treated now makes these paperclip connectors for other clients. My husband found it very touching, and entertaining, that his " invention " is now in production, in South Africa, of all places. HAve a blessed weekend-- , mom of boys Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 10, 2002 Report Share Posted November 10, 2002 Hi , My name is (Daire's Mum), we live in Ireland. I found this site after much searching for information from the Medical Profession and from the internet. I have also found a lot of support from you all, as my son Daire is only a few weeks from diagnosis, he's now nearly 5 months old, so we are still trying to get a handle on what it will mean for us all. I haven't been able to check my mail for a while and so I was very sad on reading your mail. I would like to take this opportunity to say, how sad I was to hear that Hannah is no longer with you. I feel our Children are indeed Special, they are sent to teach us, patience kindness and most of all how to Love, as they give their Love unconditionally. I know that Daire in his short time on earth has changed our lives for the better. Re: from (Hannah's mum) > Gavan was amazed at how many messages I have printed (to keep) in the last few days, and is just beginning to realise the extensive network of support that I have been able to tap into. He was asking me from what countries you all come, and I was only able to name a few. It would be so nice to be able to tell him, as he has a real sense that Hannah, along with many other children, has brought the world together. Could some of you let me know where you are from? We know that there are some from the USA, the UK, NZ, and Sweden, but my memory lets me down at that point. , We live in Settle WA, USA. Wouldn't it be interesting to have a virtual map of the world that showed where all our loopmates are from. It truly is one of the blessings of the technology age to be able to meet and learn from people all over the world. I remember one time on a G-tube list I belonged to that a mom in South Africa was struggling with the feeding tube coming disconnected from the PEG tube. I got my husband to download an image of the paper-clip gizmo that he had invented to solve this problem, as we were stuggling with 's PEG too. She later told me that the clinic where her son was treated now makes these paperclip connectors for other clients. My husband found it very touching, and entertaining, that his " invention " is now in production, in South Africa, of all places. HAve a blessed weekend-- , mom of boys Quote Link to comment Share on other sites More sharing options...
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