Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26Subject: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26Subject: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26Subject: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks Shauna!All I plan to do is print out the pictures I receive on my computer and take them to Staples and have them laminated. Once I have that I will somehow put them together like a book. Very easy and homemade. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Shauna Rorabeck To: infantile_scoliosis Sent: Wed, February 17, 2010 7:38:30 PMSubject: Re: Brace kids Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26--- On Wed, 2/17/10, Tasha Fontenot <ryanswalkyahoo (DOT) com> wrote:From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks Shauna!All I plan to do is print out the pictures I receive on my computer and take them to Staples and have them laminated. Once I have that I will somehow put them together like a book. Very easy and homemade. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Shauna Rorabeck To: infantile_scoliosis Sent: Wed, February 17, 2010 7:38:30 PMSubject: Re: Brace kids Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26--- On Wed, 2/17/10, Tasha Fontenot <ryanswalkyahoo (DOT) com> wrote:From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks Shauna!All I plan to do is print out the pictures I receive on my computer and take them to Staples and have them laminated. Once I have that I will somehow put them together like a book. Very easy and homemade. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Shauna Rorabeck To: infantile_scoliosis Sent: Wed, February 17, 2010 7:38:30 PMSubject: Re: Brace kids Great Idea Tasha. I will take some pics and send them over tomorrow. If possible, I would LOVE a copy of this book or the pics so I can do the same for Hadley. I think this would help her so much as well to know she is not alone and there are so many other kids out there with this cool brace too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26--- On Wed, 2/17/10, Tasha Fontenot <ryanswalkyahoo (DOT) com> wrote:From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Staples will bind them for you with a spiral binding for about $2. Â They also have all sorts of other bindings as well. Â JennMommy to Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Staples will bind them for you with a spiral binding for about $2. Â They also have all sorts of other bindings as well. Â JennMommy to Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Staples will bind them for you with a spiral binding for about $2. Â They also have all sorts of other bindings as well. Â JennMommy to Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 THANKS Jenn.....that is great! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Leggett To: infantile_scoliosis ; Tasha Fontenot Sent: Wed, February 17, 2010 8:59:03 PMSubject: Re: Brace kids Staples will bind them for you with a spiral binding for about $2. They also have all sorts of other bindings as well. JennMommy to Cole Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks ! Just trying to make it a little easier for him. I am hoping once he sees other kids with similar issues it will make him feel better. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: To: infantile_scoliosis Sent: Wed, February 17, 2010 6:04:59 PMSubject: Re: Re: Brace kids tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks ! Just trying to make it a little easier for him. I am hoping once he sees other kids with similar issues it will make him feel better. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: To: infantile_scoliosis Sent: Wed, February 17, 2010 6:04:59 PMSubject: Re: Re: Brace kids tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Thanks ! Just trying to make it a little easier for him. I am hoping once he sees other kids with similar issues it will make him feel better. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: To: infantile_scoliosis Sent: Wed, February 17, 2010 6:04:59 PMSubject: Re: Re: Brace kids tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa From: NIck Guthe <nickgutheyahoo (DOT) com>Subject: Re: [infantile_scoliosi s] Re: Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Perfect idea! Would you be able to send out the pics as you get them or once your done? I think Hadley would love this too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Perfect idea! Would you be able to send out the pics as you get them or once your done? I think Hadley would love this too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 Perfect idea! Would you be able to send out the pics as you get them or once your done? I think Hadley would love this too!ShaunaMother of Hadley(2 1/2 years). Hadley started with a 74 degree curve and 8 casts later is down to 12 degrees and is now in her first brace. *With God, all things are possible* Mathew 19:26From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 19, 2010 Report Share Posted February 19, 2010 Thanks . I would love a picture of Noah!I think will love this. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Hannah To: infantile_scoliosis Sent: Thu, February 18, 2010 9:55:18 PMSubject: Re: Brace kids Hey Tasha, Sorry, it's been a busy week. I have pics of Noah in all 4 of his braces. I'll email them to you tomorrow. Great Idea...I love it!! When Noah was in is casts, I use to show him pics on the group of the other kids. I think it helped. Much love, Noah 4yrs 7mo, 9 casts 4 braces, 80 degrees to 16 degrees in brace, SLC Shriners From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 9:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 20, 2010 Report Share Posted February 20, 2010 Tasha, do you want the brace showing in the picture? Jill From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I'll send one of Noelle too after I take it! LOL Would love some in return.... I think Noelle would get a kick out of it as she has never seen a kid in brace or cast other than herself. - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I'll send one of Noelle too after I take it! LOL Would love some in return.... I think Noelle would get a kick out of it as she has never seen a kid in brace or cast other than herself. - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 I'll send one of Noelle too after I take it! LOL Would love some in return.... I think Noelle would get a kick out of it as she has never seen a kid in brace or cast other than herself. - Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 10:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Hang in there Tasha... they will get there! Hopefully, they won't do what one of my brothers did... wet the bed until he was 7. Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Sat, February 20, 2010 2:10:50 PMSubject: Re: Brace kids Thanks Patty.The boys will be FIVE in April. Isn't it time?! I have a pretty good water-proof mattress pad, but want to get something else to go under that before I go to underwear at night. I guess all I can do is try. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. htmlFrom: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Sat, February 20, 2010 12:57:42 PMSubject: Re: [infantile_scoliosi s] Brace kids Tasha,That's an awesome idea for him to see that there are other kids out there like him. I know Isabella is in for a long journey and I'm not looking forward to the days when she starts voicing her opinion about her cast. As for the pull-ups, they all progress at their own time. My boys stopped wearing them by 4 but would have an accident once in a while. I always have a mattress protector on for accidents (or puke). Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanFrom: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:17:05 AMSubject: [infantile_scoliosi s] Brace kids Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Hang in there Tasha... they will get there! Hopefully, they won't do what one of my brothers did... wet the bed until he was 7. Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Sat, February 20, 2010 2:10:50 PMSubject: Re: Brace kids Thanks Patty.The boys will be FIVE in April. Isn't it time?! I have a pretty good water-proof mattress pad, but want to get something else to go under that before I go to underwear at night. I guess all I can do is try. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. htmlFrom: Patty Bowen <bowenpattyyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Sat, February 20, 2010 12:57:42 PMSubject: Re: [infantile_scoliosi s] Brace kids Tasha,That's an awesome idea for him to see that there are other kids out there like him. I know Isabella is in for a long journey and I'm not looking forward to the days when she starts voicing her opinion about her cast. As for the pull-ups, they all progress at their own time. My boys stopped wearing them by 4 but would have an accident once in a while. I always have a mattress protector on for accidents (or puke). Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & EvanFrom: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:17:05 AMSubject: [infantile_scoliosi s] Brace kids Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 What a great idea Tasha, I will find one of Matson in his brace and send it today. And Matson is 4 and still in pull-ups at night (Lily too although she is only 3). Tyler finally was able to stop wearing pull ups at 6, he is a super hard sleeper and just doesn't wake up! I didn't mind, I'd rather do that then change the bed everyday, but some people thought it was too long. As with everything else, every child is different, I am not going to push Matson and Lily, but I hope they are able to go without before 6. I am right there with ya!! Take care! Mom to: Tyler (7) Matson (4) diagnosed at 9 mos, casting/bracing 3 years, now awaiting Dual Growing Rod surgery March 24 with new MAGEC magnetic device for lengthenings Lily (3) > > Hang in there Tasha... they will get there! Hopefully, they won't do what one of my brothers did... wet the bed until he was 7. > Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan > > > > > ________________________________ > > To: infantile_scoliosis > Sent: Sat, February 20, 2010 2:10:50 PM > Subject: Re: Brace kids > > > Thanks Patty. > The boys will be FIVE in April. Isn't it time?! I have a pretty good water-proof mattress pad, but want to get something else to go under that before I go to underwear at night. I guess all I can do is try. > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > > > > > > > > > ________________________________ > From: Patty Bowen <bowenpattyyahoo (DOT) com> > To: infantile_scoliosis @yahoogroups. com > Sent: Sat, February 20, 2010 12:57:42 PM > Subject: Re: [infantile_scoliosi s] Brace kids > > > Tasha, > > That's an awesome idea for him to see that there are other kids out there like him. I know Isabella is in for a long journey and I'm not looking forward to the days when she starts voicing her opinion about her cast. As for the pull-ups, they all progress at their own time. My boys stopped wearing them by 4 but would have an accident once in a while. I always have a mattress protector on for accidents (or puke). > Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan > > > > > ________________________________ > From: Tasha Fontenot <ryanswalkyahoo (DOT) com> > To: infantile_scoliosis @yahoogroups. com > Sent: Wed, February 17, 2010 11:17:05 AM > Subject: [infantile_scoliosi s] Brace kids > > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, " And I can go without my brace too! " I told him no he would still have to wear it. With a serious, defeated look on his face he says, " Mommy when will they let me keep it off? " I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ gmail.com > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 22, 2010 Report Share Posted February 22, 2010 Thanks !! I would love a picture of Matson. Good to know I am not the only one who has kids in pull-ups. Many of my friends' children are younger than the boys and wearing undies at night. I feel the same way you do........washing sheets everyday would get old real fast.How are things going? Update me when you have time. I miss lots I am sure since I am not on FB anymore. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Fournier To: infantile_scoliosis Sent: Mon, February 22, 2010 10:18:21 AMSubject: Re: Brace kids What a great idea Tasha, I will find one of Matson in his brace and send it today. And Matson is 4 and still in pull-ups at night (Lily too although she is only 3). Tyler finally was able to stop wearing pull ups at 6, he is a super hard sleeper and just doesn't wake up! I didn't mind, I'd rather do that then change the bed everyday, but some people thought it was too long. As with everything else, every child is different, I am not going to push Matson and Lily, but I hope they are able to go without before 6. I am right there with ya!! Take care! Mom to: Tyler (7) Matson (4) diagnosed at 9 mos, casting/bracing 3 years, now awaiting Dual Growing Rod surgery March 24 with new MAGEC magnetic device for lengthenings Lily (3) > > Hang in there Tasha... they will get there! Hopefully, they won't do what one of my brothers did... wet the bed until he was 7. > Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan > > > > > ____________ _________ _________ __ > From: Tasha Fontenot <ryanswalk@. ..> > To: infantile_scoliosis @yahoogroups. com > Sent: Sat, February 20, 2010 2:10:50 PM > Subject: Re: [infantile_scoliosi s] Brace kids > > > Thanks Patty. > The boys will be FIVE in April. Isn't it time?! I have a pretty good water-proof mattress pad, but want to get something else to go under that before I go to underwear at night. I guess all I can do is try. > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > > > > > > > > > ____________ _________ _________ __ > From: Patty Bowen <bowenpatty@ yahoo. com> > To: infantile_scoliosis @yahoogroups. com > Sent: Sat, February 20, 2010 12:57:42 PM > Subject: Re: [infantile_scoliosi s] Brace kids > > > Tasha, > > That's an awesome idea for him to see that there are other kids out there like him. I know Isabella is in for a long journey and I'm not looking forward to the days when she starts voicing her opinion about her cast. As for the pull-ups, they all progress at their own time. My boys stopped wearing them by 4 but would have an accident once in a while. I always have a mattress protector on for accidents (or puke). > Patty, mom of Isabella, 2 years old, in 4th cast (Rochester) & mom to & Evan > > > > > ____________ _________ _________ __ > From: Tasha Fontenot <ryanswalkyahoo (DOT) com> > To: infantile_scoliosis @yahoogroups. com > Sent: Wed, February 17, 2010 11:17:05 AM > Subject: [infantile_scoliosi s] Brace kids > > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ gmail.com > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
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