Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Allie is not in a brace YET but I love the idea! Amy J mom to Allie(3) in 2nd cast down to 14* in cast from 54*Sent from my Verizon Wireless BlackBerryDate: Wed, 17 Feb 2010 08:17:05 -0800 (PST)To: <infantile_scoliosis >Subject: Brace kids Hi everyone.....I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now thisis where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenotgmailThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Allie is not in a brace YET but I love the idea! Amy J mom to Allie(3) in 2nd cast down to 14* in cast from 54*Sent from my Verizon Wireless BlackBerryDate: Wed, 17 Feb 2010 08:17:05 -0800 (PST)To: <infantile_scoliosis >Subject: Brace kids Hi everyone.....I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now thisis where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenotgmailThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Allie is not in a brace YET but I love the idea! Amy J mom to Allie(3) in 2nd cast down to 14* in cast from 54*Sent from my Verizon Wireless BlackBerryDate: Wed, 17 Feb 2010 08:17:05 -0800 (PST)To: <infantile_scoliosis >Subject: Brace kids Hi everyone.....I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now thisis where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenotgmailThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.....I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, " And I can go without my brace too! " I told him no he would still have to wear it. With a serious, defeated look on his face he says, " Mommy when will they let me keep it off? " I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.....I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, " And I can go without my brace too! " I told him no he would still have to wear it. With a serious, defeated look on his face he says, " Mommy when will they let me keep it off? " I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.....I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, " And I can go without my brace too! " I told him no he would still have to wear it. With a serious, defeated look on his face he says, " Mommy when will they let me keep it off? " I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........'s Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: To: infantile_scoliosis Sent: Wed, February 17, 2010 12:40:48 PMSubject: Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ ... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: To: infantile_scoliosis Sent: Wed, February 17, 2010 12:40:48 PMSubject: Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ ... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thanks !!!! I appreciate you sharing your sweet girl's picture. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Sullivan To: infantile_scoliosis Sent: Wed, February 17, 2010 1:38:18 PMSubject: Re: Brace kids Tasha, I'll send you a pic of tomorrow. (mother to - 20 months old - in 1st brace fr SLC) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 11:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thanks !!!! I appreciate you sharing your sweet girl's picture. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: Sullivan To: infantile_scoliosis Sent: Wed, February 17, 2010 1:38:18 PMSubject: Re: Brace kids Tasha, I'll send you a pic of tomorrow. (mother to - 20 months old - in 1st brace fr SLC) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 11:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 IF the brace is showing that is great, but if not I will take them. I just want to see other kids with similar conditions.Thanks Connie! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "tovi39@..." To: infantile_scoliosis Sent: Wed, February 17, 2010 2:11:32 PMSubject: Re: Re: Brace kids Tasha, do you want photos of kids with their brace showing or is it okay that the brace is under the shirt and not visible? Connie [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ ... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 IF the brace is showing that is great, but if not I will take them. I just want to see other kids with similar conditions.Thanks Connie! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "tovi39@..." To: infantile_scoliosis Sent: Wed, February 17, 2010 2:11:32 PMSubject: Re: Re: Brace kids Tasha, do you want photos of kids with their brace showing or is it okay that the brace is under the shirt and not visible? Connie [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ ... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 IF the brace is showing that is great, but if not I will take them. I just want to see other kids with similar conditions.Thanks Connie! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "tovi39@..." To: infantile_scoliosis Sent: Wed, February 17, 2010 2:11:32 PMSubject: Re: Re: Brace kids Tasha, do you want photos of kids with their brace showing or is it okay that the brace is under the shirt and not visible? Connie [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. > > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ ... > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Cole is doing fantastic!  Today he was asking for a new cast and was trying to put his old cast on over the current one!4 months ago he was 9 degrees away from moving into a brace.  We haven't had x-rays since then, but he just had a major growth spurt.  I am optimistic that either his cast or the next one will be his last. I have a feeling that this one we are getting wed. will be the last one but I do not want to get my hopes up, especially until we get our numbers tuesday.  So probably 2 - 4 more months.  I really hope that we get to do it before the end of summer so we can do the sprinkler and pool for the first time.  JennMommy to Cole, 2 years old, 5th cast Wed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Cole is doing fantastic!  Today he was asking for a new cast and was trying to put his old cast on over the current one!4 months ago he was 9 degrees away from moving into a brace.  We haven't had x-rays since then, but he just had a major growth spurt.  I am optimistic that either his cast or the next one will be his last. I have a feeling that this one we are getting wed. will be the last one but I do not want to get my hopes up, especially until we get our numbers tuesday.  So probably 2 - 4 more months.  I really hope that we get to do it before the end of summer so we can do the sprinkler and pool for the first time.  JennMommy to Cole, 2 years old, 5th cast Wed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Cole is doing fantastic!  Today he was asking for a new cast and was trying to put his old cast on over the current one!4 months ago he was 9 degrees away from moving into a brace.  We haven't had x-rays since then, but he just had a major growth spurt.  I am optimistic that either his cast or the next one will be his last. I have a feeling that this one we are getting wed. will be the last one but I do not want to get my hopes up, especially until we get our numbers tuesday.  So probably 2 - 4 more months.  I really hope that we get to do it before the end of summer so we can do the sprinkler and pool for the first time.  JennMommy to Cole, 2 years old, 5th cast Wed. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Feel free . Anything to help kids get through this journey.BTW I would love pictures of Olivia.I'll take a picture to show everyone once I get it done. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: "heather@..." To: infantile_scoliosis Sent: Wed, February 17, 2010 2:24:57 PMSubject: Re: Brace kids Got tons of brace pics! Will send soon. If you want, we might just consider putting your project on site as a link....Its up to you. Excellent idea! HRH > Hi everyone.... .I hope you all are well and staying warm. > Most of you know is in a brace at night only now. From time to time > we have some issues with him wearing it. Nothing major yet, but enough > questions are ask to break my heart. Yesterday morning I was taking his > brace off and we were discussing when the boys would sleep WITHOUT a > pull-up at night(BTW does this ever happen?). quickly said, "And I > can go without my brace too!" I told him no he would still have to wear > it. With a serious, defeated look on his face he says, "Mommy when will > they let me keep it off?" I sank to the floor. It hit me so > hard.......just like it always does. > BUT quickly in a very upbeat voice I told him not yet and went on telling > him about other kids that wear a brace. > Now this is where the BRACE KIDS come into the story. I had an idea to > make a book with pictures of other children in a brace. > IF you are willing to share a picture of your child in their brace I would > love to have it. I plan to print them out and go have the pages laminated > and make a book........ 's Brace Friends > If you decide to send me a picture please send to this address > tasha.fontenot@ gmail.com > Thanks for any help! > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantil escoliosis. org/stories. html > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi Tasha, My heart breaks with you! I would be happy to send you a photo of in his brace. This is a weird question, but do you want him with brace and undies only or will pants work? My worry is that our doctor will want to go back into a cast. He will be 4 March 3rd. He just simply could not handle that (I don't think dad could either.) is the third child (our other kids are 10 and 8) so he thinks he is at least 8! Do you want it in an email or do you want me to send you a hard copy? Hang in there. I know how difficult this all is. Hugs Jill Subject: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 11:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi Tasha, My heart breaks with you! I would be happy to send you a photo of in his brace. This is a weird question, but do you want him with brace and undies only or will pants work? My worry is that our doctor will want to go back into a cast. He will be 4 March 3rd. He just simply could not handle that (I don't think dad could either.) is the third child (our other kids are 10 and 8) so he thinks he is at least 8! Do you want it in an email or do you want me to send you a hard copy? Hang in there. I know how difficult this all is. Hugs Jill Subject: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 11:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Hi Jill,I would love a picture of . You can send whatever you want. It doesn't matter to me. With pants will be great!Just send through email if you have it.I am fearful of having to go back into a brace full time. It was devastate him! BUT we will do whatever we have to do. Not that it will be easy, but this too will pass. There is reason for all this......I know that for certain!!!Thanks for your support. You hang in there too. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: jill wienke To: infantile_scoliosis Sent: Wed, February 17, 2010 3:55:53 PMSubject: Re: Brace kids Hi Tasha, My heart breaks with you! I would be happy to send you a photo of in his brace. This is a weird question, but do you want him with brace and undies only or will pants work? My worry is that our doctor will want to go back into a cast. He will be 4 March 3rd. He just simply could not handle that (I don't think dad could either.) is the third child (our other kids are 10 and 8) so he thinks he is at least 8! Do you want it in an email or do you want me to send you a hard copy? Hang in there. I know how difficult this all is. Hugs Jill From: Tasha Fontenot <ryanswalkyahoo (DOT) com>Subject: [infantile_scoliosi s] Brace kidsTo: infantile_scoliosis @yahoogroups. comDate: Wednesday, February 17, 2010, 11:17 AM Hi everyone.... .I hope you all are well and staying warm.Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace FriendsIf you decide to send me a picture please send to this addresstasha.fontenot@ gmail.comThanks for any help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) To: infantile_scoliosis Sent: Wed, February 17, 2010 11:39:50 AMSubject: Re: Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 17, 2010 Report Share Posted February 17, 2010 Thanks Heidi. He has his moments with the brace, but they typically do not last long. I know with age they will get harder.Hopefully this will help him when he does not want to wear it. TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantilescoliosis.org/stories.htmlFrom: NIck Guthe To: infantile_scoliosis Sent: Wed, February 17, 2010 4:58:16 PMSubject: Re: Re: Brace kids Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa Subject: Re: Re: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa Subject: Re: Re: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted February 18, 2010 Report Share Posted February 18, 2010 tasha, i agree with heidi. what a great way to let him know he is not alone on his journey. your an awesome mom! melissa Subject: Re: Re: Brace kidsTo: infantile_scoliosis Date: Wednesday, February 17, 2010, 4:58 PM Tasha, Just wanted to chime in that I LOVE this idea!!! Bex will some day be in a brace, probably for a long time, and it's an inspired way to help not fell alone. So loving of you as a Mommy!! Heidi, Bexon's Mama, (2.5 years old, in 5th cast from Salt Lake City Shriners, currently down from 61 degrees to 23) From: Tasha Fontenot <ryanswalkyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 11:39:50 AMSubject: Re: [infantile_scoliosi s] Re: Brace kids Hi ,Thanks so much.......my cell is .We have just the opposite problem. went straight into a brace after 14 months of casting. We had NO problems at all. And even had times he did not want to take it off.All this started probably in the last year. He will be 5 in April so he is fully aware of what is going on and can voice to me his concerns.You are doing the right thing for your daughter. Just keep reassuring her like you are.This book is not a real book I am making. Just pages I am laminating and probably will staple together. Wish I had the resources to do a real one.I am hoping and praying this little homemade book will help .Thanks for your help! TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: <dubsgirl13yahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, February 17, 2010 12:40:48 PMSubject: [infantile_scoliosi s] Re: Brace kids My daughter is in a brace and we have had many struggles with it as well. She is only 2 so it's more of a battle getting it on and keeping it on, I don't think she is old enough to feel self concious about it yet but I am dreading the day when she notices the stares that we get and starts to feel bad about herself. All I can do is reassure her that this brace doesn't make her any differant than anyone else...just a little more special. I think starting a book is a great idea. I often see books at the library for kids who are self concious about their body's but I've never seen a book just for kids that show's pictures of other kids with back braces or other medical things that most other kids don't understand. I don't have a picture that I can e-mail you but I can send you a text message with a picture that you can download to your computer. If you would like me to do that let me know your cell phone number (if you have one), I would be happy to help! If not then I can probably figure out how to get it on my computer and then send it to you. >> Hi everyone.... .I hope you all are well and staying warm.> Most of you know is in a brace at night only now. From time to time we have some issues with him wearing it. Nothing major yet, but enough questions are ask to break my heart. Yesterday morning I was taking his brace off and we were discussing when the boys would sleep WITHOUT a pull-up at night(BTW does this ever happen?). quickly said, "And I can go without my brace too!" I told him no he would still have to wear it. With a serious, defeated look on his face he says, "Mommy when will they let me keep it off?" I sank to the floor. It hit me so hard.......just like it always does.> BUT quickly in a very upbeat voice I told him not yet and went on telling him about other kids that wear a brace.> Now this is where the BRACE KIDS come into the story. I had an idea to make a book with pictures of other children in a brace.> IF you are willing to share a picture of your child in their brace I would love to have it. I plan to print them out and go have the pages laminated and make a book........ 's Brace Friends> If you decide to send me a picture please send to this address> tasha.fontenot@ ...> Thanks for any help!> > Tasha> Mommy of 4 year old twin boys- and > Fort Worth, Texas> Series of 6 casts for 14 months and now in a night brace.> is treated at Texas ish Rite Hospital.> You can read 's story at....> http://www.infantil escoliosis. org/stories. html> Quote Link to comment Share on other sites More sharing options...
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