Guest guest Posted October 30, 2001 Report Share Posted October 30, 2001 I just want to thank everyone for the support and all the information about mouth sores and MTX. The folate has taken care of it but I have received many remedies from this wonderful Still's family that I will use should the mouth sores persist at a later date. My shot today has been so much better than the one last week. I still feel a little weak but overall I feel much better than last week. Love, Kim --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 I too have had problems with mouth sores. Although my symptoms do not sound as severe as those experienced by others, I used to get sores very frequently - at least once every 3 or 4 weeks. One way that I have found to combat them is to change the toothpaste that I use. Many of the meds that we take can cause our mouth to become dry and most toothpastes contain Sodium Laurel Sulfate (a foaming agent) which really aggrivates the problem. I started using Biotene - which does not have Soduim Laurel Sulfate and the problem I had has completely been eliminated. You can find Biotene at most drugstores as well as Target, etc. It is usually in the area with other " specialty " dental products - like toothpaste for sensitive teeth, etc. It costs a bit more than most toothpastes, but is by no means expensive. In my opinion it is worth the price. You can find more info on Biotene at http://www.biotene.com/ > > I'll have to let Norm address your question about IL-2 - his posts have sure been intriguing to say the least. > As far as those mouth sores - I had an awful time with those for many years and can surely sympathize with you there. I think I finally ended up calling them " apthous ulcers. " > I tried the various pharmaceutical pastes, creams, etc. - sometimes they helped -sometimes they didn't. I didn't like the idea of always taking those corticosteriods. I almost was ready to try " Thalidomide " - not sure if that is still a possible treatment, but you might want to check into that particularily if you feel you are wasting also. There were also drugs called " rolipram " and " pentoxifylline " that had shown some promise many years ago - I'm not sure how that all ended up. Hopefully they have come up with more conclusive treatments by now. > After 20 years with aids, I feel that the mega vitamin supplement program I have taken has always been a big part of my success, along the lines of the old DAAIR protocols (see www.newyorkbuyersclub.org). Short of figuring all that out, I would recommend a top quality comprehensive multi - such as " SuperNutrition SuperBlend " available at www.houstonbuyersclub.com (also a good resource - read the " Larks Lands " pages there. > > And I would take extra vitamin C - up to 4,000 mg/day in divided doses for the ulcers (unless you are taking crixivan (yikes). > I also found that gargling with 3% hydorgen peroxide solution helped the sores heal up faster, and gargling with aloe vera juice also helped too - and soothed them. I almost recall gargling with apple cider vinegar or a baking soda solution may have helped too. These are simple things you can try at home to see if they work for you. > And I think heavy dosing with probiotics - acidophilus/bifidus (like a " Jarrow Dophilus + FOS " ) is very important. > Try and break the cycle of the sores by reducing stress - meditation, relaxation, etc. > > Try and observe if breakouts seem to occur after eating certain foods too - and take note. I always felt food allergies help trigger episodes....especially alcohol. > > Do a search for apthous ulcers - maybe they have some new better treatments out there now. > > Mine finally completely resolved when my CD4's got above 100. > > Il-2 and low T-cells > > > I have been reading the postings about Il-2 and have been intrigued. > Since my diagnosis in '91 I have had a very low T-cell count (base- > line 83 and never going higher than 148) and they don't want to go up. > I am on viread, trizivir and kaletra. I spoke to my doctor today about > Il-2 to try to rebuild my T-cells and was told that Il-2 does not work > for people with a low T-cell count. Somehow this sounds funny to me. > Is this want the research shows and if so is there anything I can do > to help my T-cells go up? I have a long history of undetectable viral > loads and that remains true but lately I have been getting cankersores > in my mouth, numerous ones at the same time, and it is happening > often. I feel as if this is because I have no effective memory cells > to fight off this kind of infection. What can I do? Supplements? > Anything? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 I too have had problems with mouth sores. Although my symptoms do not sound as severe as those experienced by others, I used to get sores very frequently - at least once every 3 or 4 weeks. One way that I have found to combat them is to change the toothpaste that I use. Many of the meds that we take can cause our mouth to become dry and most toothpastes contain Sodium Laurel Sulfate (a foaming agent) which really aggrivates the problem. I started using Biotene - which does not have Soduim Laurel Sulfate and the problem I had has completely been eliminated. You can find Biotene at most drugstores as well as Target, etc. It is usually in the area with other " specialty " dental products - like toothpaste for sensitive teeth, etc. It costs a bit more than most toothpastes, but is by no means expensive. In my opinion it is worth the price. You can find more info on Biotene at http://www.biotene.com/ > > I'll have to let Norm address your question about IL-2 - his posts have sure been intriguing to say the least. > As far as those mouth sores - I had an awful time with those for many years and can surely sympathize with you there. I think I finally ended up calling them " apthous ulcers. " > I tried the various pharmaceutical pastes, creams, etc. - sometimes they helped -sometimes they didn't. I didn't like the idea of always taking those corticosteriods. I almost was ready to try " Thalidomide " - not sure if that is still a possible treatment, but you might want to check into that particularily if you feel you are wasting also. There were also drugs called " rolipram " and " pentoxifylline " that had shown some promise many years ago - I'm not sure how that all ended up. Hopefully they have come up with more conclusive treatments by now. > After 20 years with aids, I feel that the mega vitamin supplement program I have taken has always been a big part of my success, along the lines of the old DAAIR protocols (see www.newyorkbuyersclub.org). Short of figuring all that out, I would recommend a top quality comprehensive multi - such as " SuperNutrition SuperBlend " available at www.houstonbuyersclub.com (also a good resource - read the " Larks Lands " pages there. > > And I would take extra vitamin C - up to 4,000 mg/day in divided doses for the ulcers (unless you are taking crixivan (yikes). > I also found that gargling with 3% hydorgen peroxide solution helped the sores heal up faster, and gargling with aloe vera juice also helped too - and soothed them. I almost recall gargling with apple cider vinegar or a baking soda solution may have helped too. These are simple things you can try at home to see if they work for you. > And I think heavy dosing with probiotics - acidophilus/bifidus (like a " Jarrow Dophilus + FOS " ) is very important. > Try and break the cycle of the sores by reducing stress - meditation, relaxation, etc. > > Try and observe if breakouts seem to occur after eating certain foods too - and take note. I always felt food allergies help trigger episodes....especially alcohol. > > Do a search for apthous ulcers - maybe they have some new better treatments out there now. > > Mine finally completely resolved when my CD4's got above 100. > > Il-2 and low T-cells > > > I have been reading the postings about Il-2 and have been intrigued. > Since my diagnosis in '91 I have had a very low T-cell count (base- > line 83 and never going higher than 148) and they don't want to go up. > I am on viread, trizivir and kaletra. I spoke to my doctor today about > Il-2 to try to rebuild my T-cells and was told that Il-2 does not work > for people with a low T-cell count. Somehow this sounds funny to me. > Is this want the research shows and if so is there anything I can do > to help my T-cells go up? I have a long history of undetectable viral > loads and that remains true but lately I have been getting cankersores > in my mouth, numerous ones at the same time, and it is happening > often. I feel as if this is because I have no effective memory cells > to fight off this kind of infection. What can I do? Supplements? > Anything? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 21, 2006 Report Share Posted July 21, 2006 I too have had problems with mouth sores. Although my symptoms do not sound as severe as those experienced by others, I used to get sores very frequently - at least once every 3 or 4 weeks. One way that I have found to combat them is to change the toothpaste that I use. Many of the meds that we take can cause our mouth to become dry and most toothpastes contain Sodium Laurel Sulfate (a foaming agent) which really aggrivates the problem. I started using Biotene - which does not have Soduim Laurel Sulfate and the problem I had has completely been eliminated. You can find Biotene at most drugstores as well as Target, etc. It is usually in the area with other " specialty " dental products - like toothpaste for sensitive teeth, etc. It costs a bit more than most toothpastes, but is by no means expensive. In my opinion it is worth the price. You can find more info on Biotene at http://www.biotene.com/ > > I'll have to let Norm address your question about IL-2 - his posts have sure been intriguing to say the least. > As far as those mouth sores - I had an awful time with those for many years and can surely sympathize with you there. I think I finally ended up calling them " apthous ulcers. " > I tried the various pharmaceutical pastes, creams, etc. - sometimes they helped -sometimes they didn't. I didn't like the idea of always taking those corticosteriods. I almost was ready to try " Thalidomide " - not sure if that is still a possible treatment, but you might want to check into that particularily if you feel you are wasting also. There were also drugs called " rolipram " and " pentoxifylline " that had shown some promise many years ago - I'm not sure how that all ended up. Hopefully they have come up with more conclusive treatments by now. > After 20 years with aids, I feel that the mega vitamin supplement program I have taken has always been a big part of my success, along the lines of the old DAAIR protocols (see www.newyorkbuyersclub.org). Short of figuring all that out, I would recommend a top quality comprehensive multi - such as " SuperNutrition SuperBlend " available at www.houstonbuyersclub.com (also a good resource - read the " Larks Lands " pages there. > > And I would take extra vitamin C - up to 4,000 mg/day in divided doses for the ulcers (unless you are taking crixivan (yikes). > I also found that gargling with 3% hydorgen peroxide solution helped the sores heal up faster, and gargling with aloe vera juice also helped too - and soothed them. I almost recall gargling with apple cider vinegar or a baking soda solution may have helped too. These are simple things you can try at home to see if they work for you. > And I think heavy dosing with probiotics - acidophilus/bifidus (like a " Jarrow Dophilus + FOS " ) is very important. > Try and break the cycle of the sores by reducing stress - meditation, relaxation, etc. > > Try and observe if breakouts seem to occur after eating certain foods too - and take note. I always felt food allergies help trigger episodes....especially alcohol. > > Do a search for apthous ulcers - maybe they have some new better treatments out there now. > > Mine finally completely resolved when my CD4's got above 100. > > Il-2 and low T-cells > > > I have been reading the postings about Il-2 and have been intrigued. > Since my diagnosis in '91 I have had a very low T-cell count (base- > line 83 and never going higher than 148) and they don't want to go up. > I am on viread, trizivir and kaletra. I spoke to my doctor today about > Il-2 to try to rebuild my T-cells and was told that Il-2 does not work > for people with a low T-cell count. Somehow this sounds funny to me. > Is this want the research shows and if so is there anything I can do > to help my T-cells go up? I have a long history of undetectable viral > loads and that remains true but lately I have been getting cankersores > in my mouth, numerous ones at the same time, and it is happening > often. I feel as if this is because I have no effective memory cells > to fight off this kind of infection. What can I do? Supplements? > Anything? > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 I have been plagued with painful canker sores aka apthous ulcers / mouth sores for years. About 12 years ago they had gotten very bad....extremely painful and constantly reoccurring. I had tried every remedy and nothing helped significantly until my doctor finally prescribed Decadron Elixir (Dexamethasone Elixir). This is an oral solution of a steroid. It was a miracle (and I don't use that word often). Now, at the first sign of a mouth sore I use the Decadron (swish and spit out...do not ingest) and within a day the sore almost always disappears. On rare occasion if the sore actually does fully erupt using this medicine I can get rid of it in 2 or 3 days and with **substantially** less pain that these sores normally bring. I came in on this discussion recently so I'm not sure if this was already suggested. If so, sorry for being repetetive. If not, I hope it helps. Sid from Los Angeles Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 23, 2006 Report Share Posted July 23, 2006 I have been plagued with painful canker sores aka apthous ulcers / mouth sores for years. About 12 years ago they had gotten very bad....extremely painful and constantly reoccurring. I had tried every remedy and nothing helped significantly until my doctor finally prescribed Decadron Elixir (Dexamethasone Elixir). This is an oral solution of a steroid. It was a miracle (and I don't use that word often). Now, at the first sign of a mouth sore I use the Decadron (swish and spit out...do not ingest) and within a day the sore almost always disappears. On rare occasion if the sore actually does fully erupt using this medicine I can get rid of it in 2 or 3 days and with **substantially** less pain that these sores normally bring. I came in on this discussion recently so I'm not sure if this was already suggested. If so, sorry for being repetetive. If not, I hope it helps. Sid from Los Angeles Quote Link to comment Share on other sites More sharing options...
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