Re: Coping with Stills as a spouse

[Guest guest]

What a wonderful husband to want to learn how to cope with yout wifes

illness.and the understandong to cope.

as iam the one with stills my husband has had many days like you what do i do

or i wish i could take your pain away. I have been in and out of the

hospital alot this past 9 weeks and getting ready to leave for Mayo Clinic

next thursday and he is going with me even thought we really cant afford him

to miss the days off work. hes out of vacation days.

My hubby would never sit down to this puter and join a support group or

read these post first off he has no idea how to work it. only play the games

on it LOL

but the other day i was sick again vomiting and nausea blood pressure

dropping and couldnt stand and my best friend paniced and was yelling at joe

do something. and like he said he couldnt do anything but give me my shot and

wait it out and hold my head or hand. or when i was in hospital he was in my

room all the time and finally i told him go back to work please your driving

me nuts. he works at the hospital during the day on there police department

since its part of the collage ball state.

hope i could help you james but i will write more to u later privatley

because i will ask him. but right now iam so tired iam probably not making

since or spelling anything right lol

love connie

[Guest guest]

What a wonderful husband to want to learn how to cope with yout wifes

illness.and the understandong to cope.

as iam the one with stills my husband has had many days like you what do i do

or i wish i could take your pain away. I have been in and out of the

hospital alot this past 9 weeks and getting ready to leave for Mayo Clinic

next thursday and he is going with me even thought we really cant afford him

to miss the days off work. hes out of vacation days.

My hubby would never sit down to this puter and join a support group or

read these post first off he has no idea how to work it. only play the games

on it LOL

but the other day i was sick again vomiting and nausea blood pressure

dropping and couldnt stand and my best friend paniced and was yelling at joe

do something. and like he said he couldnt do anything but give me my shot and

wait it out and hold my head or hand. or when i was in hospital he was in my

room all the time and finally i told him go back to work please your driving

me nuts. he works at the hospital during the day on there police department

since its part of the collage ball state.

hope i could help you james but i will write more to u later privatley

because i will ask him. but right now iam so tired iam probably not making

since or spelling anything right lol

love connie

[Guest guest]

Hi ! I am also a spouse. my husband Randy just was diagnosed last

spring. For me, just learning all I could about the disease has really

helped. This group has really taught me the most. Then I try to go to

all of the Doctor appt.

I am also a nurse. That was hard on Randy, he needed his wife, not the

nurse. We also have a really good Doc. He takes his time with us. Even

after hours, when Randy was in the worst flare, he spent a half hour

with me on the phone.

Please feel free to e-mail us personally. As I don't need to repeat our

story again to the group. But, I understand your position.

Please write us!

[Guest guest]

I agree with everything written below. Back rubs and

other massages help a lot too!

--- Dennis & Tricia Looker wrote:

> Hi, ...

>

> My husband says quote " hang in there..just be there

> for your wife, she

> needs you now more than ever..let her know you love

> her..often, and

> you are not alone ...there are other spouse's going

> through all of these

> same feelings. " unquote.

>

> My husband, Dennis...has his own problems. He has

> PTSD from VietNam.

> So ...between me having AOSD and him with

> PTSD..somedays at our

> home things gets real frustrating.

>

> I will add that always " communicate " with one

> another, my husband and I have

> lived with this Sills Dragon for well over 20

> years...and we could not have

> coped

> if we would have allowed the communication between

> us to close down.

>

> Your friends, Dennis & Tricia

>

> wega2@...

>

>

>

> Coping with Stills as a

> spouse

>

>

> > Hello, my name is , my wife is Caroline. I

> need advice on dealing

> with the hopeless feelings I have living with a

> spouse with Stills. I am a

> " get the job done " kind of person, and only another

> spouse of a stills

> patient would know what I am feeling or even talking

> about. Please send

> advice and suggestions. I never have, and never will

> be a " sit back and just

> watch without doing anything " kind of person, but

> with this it seems i have

> no other choice. How do I deal with the helplessness

> I feel? Thank you for

> your help,

> >

> >

> > ---------------------------------

> >

[Guest guest]

I agree with everything written below. Back rubs and

other massages help a lot too!

--- Dennis & Tricia Looker wrote:

> Hi, ...

>

> My husband says quote " hang in there..just be there

> for your wife, she

> needs you now more than ever..let her know you love

> her..often, and

> you are not alone ...there are other spouse's going

> through all of these

> same feelings. " unquote.

>

> My husband, Dennis...has his own problems. He has

> PTSD from VietNam.

> So ...between me having AOSD and him with

> PTSD..somedays at our

> home things gets real frustrating.

>

> I will add that always " communicate " with one

> another, my husband and I have

> lived with this Sills Dragon for well over 20

> years...and we could not have

> coped

> if we would have allowed the communication between

> us to close down.

>

> Your friends, Dennis & Tricia

>

> wega2@...

>

>

>

> Coping with Stills as a

> spouse

>

>

> > Hello, my name is , my wife is Caroline. I

> need advice on dealing

> with the hopeless feelings I have living with a

> spouse with Stills. I am a

> " get the job done " kind of person, and only another

> spouse of a stills

> patient would know what I am feeling or even talking

> about. Please send

> advice and suggestions. I never have, and never will

> be a " sit back and just

> watch without doing anything " kind of person, but

> with this it seems i have

> no other choice. How do I deal with the helplessness

> I feel? Thank you for

> your help,

> >

> >

> > ---------------------------------

> >

[Guest guest]

I agree with everything written below. Back rubs and

other massages help a lot too!

--- Dennis & Tricia Looker wrote:

> Hi, ...

>

> My husband says quote " hang in there..just be there

> for your wife, she

> needs you now more than ever..let her know you love

> her..often, and

> you are not alone ...there are other spouse's going

> through all of these

> same feelings. " unquote.

>

> My husband, Dennis...has his own problems. He has

> PTSD from VietNam.

> So ...between me having AOSD and him with

> PTSD..somedays at our

> home things gets real frustrating.

>

> I will add that always " communicate " with one

> another, my husband and I have

> lived with this Sills Dragon for well over 20

> years...and we could not have

> coped

> if we would have allowed the communication between

> us to close down.

>

> Your friends, Dennis & Tricia

>

> wega2@...

>

>

>

> Coping with Stills as a

> spouse

>

>

> > Hello, my name is , my wife is Caroline. I

> need advice on dealing

> with the hopeless feelings I have living with a

> spouse with Stills. I am a

> " get the job done " kind of person, and only another

> spouse of a stills

> patient would know what I am feeling or even talking

> about. Please send

> advice and suggestions. I never have, and never will

> be a " sit back and just

> watch without doing anything " kind of person, but

> with this it seems i have

> no other choice. How do I deal with the helplessness

> I feel? Thank you for

> your help,

> >

> >

> > ---------------------------------

> >