Re: Shelly- Colter and Sensory Learning

[Guest guest]

I've been thinking about Sensory Learning for quite some time now,

but am still undecided. I heard about it from a parent that said it

was the most incredible thing she had ever done for her daughter &

checked out the web site.

The science behind it really makes sense. What put me off was the

fact that all that's required to be a licensed provider is a

professional background, 6 days of training and money. My thoughts

were that it might very well be legit & good, but was that really

adequate training or were they more interested in selling

equipment. Cynical I know, and I think probably not true.

I heard from another parent that went to the Newnan OT & also

reported amazing results. OK, I was really thinking about this now.

Then I heard from one more parent that said she saw some results,

but wasn't sure if it was even from the therapy or natural

progression & questioned if it was really worth the money. One more

parent reported that she saw negative results with regression and

wished she had never had it done. (I don't know where these two

people had it done- it was from a group posting).

These definitely had me thinking twice. Since you had such great

result & kept notes, I would LOVE to take you up on the offer to

share them. I know that with every child and every therapy results

vary and can not be guaranteed (I would question anyone that said

otherwise), but it would really be great to hear from as many people

as possible.

If I did do this for my son, it would not be for a while as we are

dealing with some GI issues & new diet. I think it's very important

to get this under control ASAP. It would definitely help to here

from more people on this.

Thanks so much for your time & generosity.

In autism-georgia , " Grabe " <grabe@n...> wrote:

> Hello All-

>

> We wanted to share what was going on with Colter. Colter has been

out

> of Sensory Learning program for about 10 days. We are shocked

daily by

> the jumps he is making. We completed a Sensory Profile that showed

> major improvements with dealing with Sensory Needs- almost every

item

> was age appropriate. Compliance has gone through the roof- we

only have

> to ask him once- and now he knows his limits and is talking himself

> through situations (amazing). His spont language is shocking us

daily.

> His stimming has dropped down to about 10 minute intervals 4x a

day-

> totally self controlled (he will say " one more time movie talk "

and he

> does it one more time and he is done). He is sitting at the table-

> brushing his teeth- totally going potty by himself- washing his own

> hair- bathing himself. He is playing with neighbors and his

wonderful

> brother. He is much calmer and sleeps through the night. We are

still

> working on increasing the foods he will eat, but he is willing to

try

> more foods. He does want to sleep more then he use to 6-9 hours and

> notices lights " look mom, yellow light " . He is kissing and

hugging his

> brother- his brother is beside himself with happiness. He is

laughing- a

> genuine laugh- and his eye contact is purposeful- not blank stares!

>

> Some of you wanted to know where he was before he started sensory

> learning- well it is hard to say because his school program was

really

> bad this year. He was struggling daily- they let him watch tv for

> goodness sakes. Where was he- very non- compliant- you couldn't

test

> him for anything- he did not want to participate. He wanted to

movie

> talk 30 minutes x8 a day. His sensory needs were never

satisfied. He

> only ate chicken and pancakes. I had to totally bathe him and

help him

> with toileting. He never chose to play with us- he never wanted to

> snuggle with his brother- he wanted to spend all day everyday in

la-la

> land. He slept 4-5 hours a night. He only spoke when he needed

> something or we requested language...

>

> I was at the clinic tonight and they have a few more time slots

> available for August. I know they are getting ready to release a

huge

> advertisement and wanted to let you all know if you were thinking

about

> doing Sensory Learning done this year you might want to jump on it

> quickly. HYPERLINK " http://www.ictsonline.com " www.ictsonline.com

>

> I know there are a few more families out there that have been

through

> Sensory Learning please share your stories.

>

> I did take daily notes if anyone is interested in the full

program.

> Thanks for listening

>

> Grabe

>

>

> PS Colter loved " the elevator " everytime we are in the clinic

Colter ask

> to get on the table - " I want the elevator- I want the red light " .

> Sensory Learning has given us back hope for Colter's future!

>

> Sensory Learning is not just for people with Autism- it is helping

> people with LDs, ADHD, ADD, SI, Stroke Victims, Brain Injuries,

etc...

>

> ---

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[Guest guest]

I'm going to guess that insurance usually doesn't cover this type of

therapy does it??? Would Medicaid cover it?????

Just curious -

Karyn, Mom to dx severely autistic, APD, Hypotonia, GF/CF,

SCD 5 mths

> ,

>

> Bravo- good job- I am glad to hear the supplemental protocol is

making

> so much difference for you- Congrats- that is awesome...

>

> I know this question was brought up last night at the Seminar- how

would

> Sensory Learning help someone that is tactile- and I guess the

biggest

> question is why is she a tactile learner and is it preventing her

from

> success... However, I do not feel secure answering your question- I

> think it is best that you call the clinic and speak with AMY or

TARA

> .

>

> As for money the program cost $2550.00 and worth every penny- a

matter

> of fact I am sending my " neuro typical " child through the program

during

> spring break.

>

>

> I agree the drive would be taxing to say the least-

> I recommend if you can get enough people in your area interested

in the

> program it will force a facility to be added to your area... " Show

them

> the numbers " 115 committed families represent a years worth of

sessions.

> We did not get Sensory Learning in Newnan for no reason- we begged

and

> pleaded with Tara & Gregg and other facilities we showed them the

> numbers- and it happened. If there is anything I can do to make

this

> happen for your community please let me know... Tara & Gregg and

staff

> are very willing to hold seminars, meet with your support groups,

> etc....

>

>

> Hope this helps- call Amy or TARA

>

>

>

>

>

>

>

>

>

> RE: Re: - Colter and Sensory

Learning

>

>

>

> How much money are we talking? I started looking into it but

didn't say

> how much it is and with trips to Newnan every day sounds very

taxing

> physically and financially. My daughter has made such HUGE

strides with

> her supplemental protocol and vaccine clearings using homeopathic

> vaccines and after that we are doing chelation I wonder if it

would be

> worth it. She is looking and acting more " normal " every day.

However,

> I wonder about her being a " tactile " learner and if this program

would

> be helpful with that.

>

>

[Guest guest]

Insurance doesn't cover at this point...

Thanks

RE: Re: - Colter and Sensory

Learning

>

>

>

> How much money are we talking? I started looking into it but

didn't say

> how much it is and with trips to Newnan every day sounds very

taxing

> physically and financially. My daughter has made such HUGE

strides with

> her supplemental protocol and vaccine clearings using homeopathic

> vaccines and after that we are doing chelation I wonder if it

would be

> worth it. She is looking and acting more " normal " every day.

However,

> I wonder about her being a " tactile " learner and if this program

would

> be helpful with that.

>

>

[Guest guest]

Insurance doesn't cover at this point...

Thanks

RE: Re: - Colter and Sensory

Learning

>

>

>

> How much money are we talking? I started looking into it but

didn't say

> how much it is and with trips to Newnan every day sounds very

taxing

> physically and financially. My daughter has made such HUGE

strides with

> her supplemental protocol and vaccine clearings using homeopathic

> vaccines and after that we are doing chelation I wonder if it

would be

> worth it. She is looking and acting more " normal " every day.

However,

> I wonder about her being a " tactile " learner and if this program

would

> be helpful with that.

>

>