RE:Trauma before onset anyone?

[Guest guest]

Patty

Onset followed a severe case of Mono at age 26. Just never got better.

Stay healthy

[Guest guest]

Patty

Onset followed a severe case of Mono at age 26. Just never got better.

Stay healthy

[Guest guest]

Came through okay, Sue

[Guest guest]

Came through okay, Sue

[Guest guest]

Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

[Guest guest]

Sue,

I don't know why but when I check the site our posts are not there, just as well

since they are more personal. I have pictures of myself all those years ago

when I was on 60mg Prednisone a day. Full moon face etc. Now years later I

think my weight is just a symptom of better health. I never used to weigh over

127lbs at 5'9 " now though I weigh 225 (ouch) I hate that more, almost. It's so

hard not to judge ourselves by our physical looks be they weight, deformity,

scars or whatever. Someday I will figure out how to get my history posted, I

wrote it last week and the pictures seem to be my biggest problem. I read that

Jen is really busy right now, so I'm not shure if I sent them correctly or not.

When I see the pict. on the Juevenile site, they look so much as I used to with

the wrists, moon face, etc. Well so nice chatting, Melt

[Guest guest]

Sue,

I don't know why but when I check the site our posts are not there, just as well

since they are more personal. I have pictures of myself all those years ago

when I was on 60mg Prednisone a day. Full moon face etc. Now years later I

think my weight is just a symptom of better health. I never used to weigh over

127lbs at 5'9 " now though I weigh 225 (ouch) I hate that more, almost. It's so

hard not to judge ourselves by our physical looks be they weight, deformity,

scars or whatever. Someday I will figure out how to get my history posted, I

wrote it last week and the pictures seem to be my biggest problem. I read that

Jen is really busy right now, so I'm not shure if I sent them correctly or not.

When I see the pict. on the Juevenile site, they look so much as I used to with

the wrists, moon face, etc. Well so nice chatting, Melt

[Guest guest]

As a matter of fact Randy did. He had an old knee injury from years

ago. But came home late one night tripped in the hall, re-injuring that

same knee. Couldn't stand up for twenty minutes. That is when the Stills

disease started. He also had severe exema as a child. The ruemy thinks

he may have had Stills for a long time. But the bad stuff started to

happen post fall.

Steph

[Guest guest]

Hi~

Yes, for some time before the acute onset of my stills, I was in a very

troubled marriage. I also was extremely ill from some sort of flu-like illness

for weeks AND as the stills developed and got worse and worse (although my GP

had no idea what was wrong) I was in a very very stressful work environment.

I've always felt that some stress was involved in the onset, but who knows?

It's interesting, Patty, that you write about not looking so great, I can look

back at pictures taken before I became sick and my face looks so stressed and

fatigued~ much worse than usual!!

..com wrote: Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Hi~

Yes, for some time before the acute onset of my stills, I was in a very

troubled marriage. I also was extremely ill from some sort of flu-like illness

for weeks AND as the stills developed and got worse and worse (although my GP

had no idea what was wrong) I was in a very very stressful work environment.

I've always felt that some stress was involved in the onset, but who knows?

It's interesting, Patty, that you write about not looking so great, I can look

back at pictures taken before I became sick and my face looks so stressed and

fatigued~ much worse than usual!!

..com wrote: Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Hi~

Yes, for some time before the acute onset of my stills, I was in a very

troubled marriage. I also was extremely ill from some sort of flu-like illness

for weeks AND as the stills developed and got worse and worse (although my GP

had no idea what was wrong) I was in a very very stressful work environment.

I've always felt that some stress was involved in the onset, but who knows?

It's interesting, Patty, that you write about not looking so great, I can look

back at pictures taken before I became sick and my face looks so stressed and

fatigued~ much worse than usual!!

..com wrote: Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

same here went to go move to new home got super dehydrated ended up in the ER

for the day then started having problems 6 months later

Marry G.

Re: RE:Trauma before onset anyone?

As a matter of fact Randy did. He had an old knee injury from years

ago. But came home late one night tripped in the hall, re-injuring that

same knee. Couldn't stand up for twenty minutes. That is when the Stills

disease started. He also had severe exema as a child. The ruemy thinks

he may have had Stills for a long time. But the bad stuff started to

happen post fall.

Steph

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

yup!!! getting your messages that are sent to the group!!

" A. Matera " wrote: Is anyone on getting my messages

again? boy, this is confusing, so this is another test......by tonight, you will

be " sick " of me asking this question...........

Sue #2

[Guest guest]

Thank you Steph, I've never had exzema but am alergic to the sun with rashes

since childhood also. I appriciate your reply, good eve, till soon, Patty

[Guest guest]

Thank you Marty, I remember I used to move about every 6 mo. (renter and back

and forth with parents) my doctors almost cried cauze it would cauz me so much

more problems. Till soon, Melt

[Guest guest]

YES.............I AM GETTING MY MESSAGES AGAIN!!!! thanks everyone!!!!

Patty to answer your question........YES...........my doctor just asked me the

same thing...........In my case...........I think it was physically for me. I

had a complete hysterectomy at the age of 30......during the surgery, the doctor

stabbed my bladder......it was repaired, but two weeks later, the whole bladder

completely tore in half!!! I had three surgery's in five days and 12 surgery's

in that same year to reconstruct the bladder again. During the stay in the

hospital, my left kidney started to fail.....my body went through too much shock

at once..it was horrible. I was hospitalized for a month. On the emotional

side, obviously this horrible......... but before the hysto...........I was left

pregnant with my second child also..........alone for a year and alone through

the birth...........I gained six pounds my whole pregnancy and delivered five

weeks early...........I was VERY sick and had clamsia

(spelling?)...................I believe that the emotional stress of my divorce

during my pregnancy and the hysterectomy was too much toll on my body.

Everyone around me told me how awful I looked. I was anorexic.........weighing

in at 98 pounds...........since all of this Patty, I have never been healthy

again.........putting the divorce aside.........I took the proper measures for

myself and healed wonderfully and went to support groups for my emotional

well-being.........it was very comforting and I now teach a support class for

people facing divorce, so I have tried to heal one part of me that faced severe

trauma in my life and that began with my emotional well-being first and I am

glad that I made this choice first, but on the health side............I have

gone down hill since my surgery.........just my two cents

worth........................I definitely think this is an important factor in

my disease now and somehow believe that it was triggered from this.

Love, Sue #2

[Guest guest]

Glad someone can spell! Embarrassing for a nurse! But your question was

great! Really makes one think, aye?

Randy seems to be in some sort of a remission with the plaquinel, but

now gets migraines. No more 104 fevers, screaming for Clyde and picking

at the air. (Hallucinating)

I work in a locked down psych unit and come home to the very same! OY!

Steph

You to me. are the ambassador of good will. A welcome addition!

[Guest guest]

Glad someone can spell! Embarrassing for a nurse! But your question was

great! Really makes one think, aye?

Randy seems to be in some sort of a remission with the plaquinel, but

now gets migraines. No more 104 fevers, screaming for Clyde and picking

at the air. (Hallucinating)

I work in a locked down psych unit and come home to the very same! OY!

Steph

You to me. are the ambassador of good will. A welcome addition!

[Guest guest]

Patty,

you are very welcome for the response, and I have had the same problem with

weight too................I have put on a lot of weight from prednisone

especially. When I go into severe " flares " I usually lose about 10 or 11

pounds, but then gain it right back after I re-start prednisone and other drugs

again. I weigh about 135 now and I have always been about 115. There is a huge

difference in my body in the last two years, so much of a change that it is very

hard to accept at times and I have a problem with it, but my doctor seems to be

listening to me. I am sorry to hear about your very emotional times too Patty.

Although I hate to hear about people with these problems as well, because I know

what all the " stress " does to our bodies, it is comforting on the other side

too, because I feel when we discuss things with each other, that everyone

teaches each other something with this disease and I often wonder if all the

physical trauma and emotional damage as well really had something to do with

this disease. Be well Patty.

Love, Sue #2

[Guest guest]

Patty,

Good question! With me it was stress of an emotional and physical nature.

During the pregnancy of my first child back in 1992 I was having bad gut pains.

They would come and go. No doctor could ever tell me what was wrong. It happened

again in my second pregnancy. And then again in my third, only it did not stop

until after I started having really bad ones in July of 1999. I met a great

doctor who of course took one look at me and said that it was my Gallbladder. I

was in surgery the next morning. There is the physical stress. That was July 19.

After I started to get better from the surgery the bills started coming in. So

for the first time in over two years I went back to work. My first day was

August 5, 1999. I had only been to work for two weeks, and I might add loving

every minute of it, that my babysitter started whining. So there was the

emotional stress, here I was trying to help out with the bills, pawning off my

three young kids, and feeling guilty every second for leaving them. On August 25

I woke up with what I thought was the flu. It just got worse from there, you all

know how it goes. I was in the hospital, seeing every doctor that would see me,

getting gallons of blood work done. Then on October 12 I was diagnosed with

Adult Onset Still's Disease. So yes I believe that my onset was brought on my

stress of all kinds. I might have gotten it later in life but at that time it

was just the right kind of stress and body weakness that got me. I also believe

that God was trying to tell me in a quiet way that I was still needed in the

home but I was not listening to him so BAM the dragon. Take care all,

RE:Trauma before onset anyone?

Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Patty,

Good question! With me it was stress of an emotional and physical nature.

During the pregnancy of my first child back in 1992 I was having bad gut pains.

They would come and go. No doctor could ever tell me what was wrong. It happened

again in my second pregnancy. And then again in my third, only it did not stop

until after I started having really bad ones in July of 1999. I met a great

doctor who of course took one look at me and said that it was my Gallbladder. I

was in surgery the next morning. There is the physical stress. That was July 19.

After I started to get better from the surgery the bills started coming in. So

for the first time in over two years I went back to work. My first day was

August 5, 1999. I had only been to work for two weeks, and I might add loving

every minute of it, that my babysitter started whining. So there was the

emotional stress, here I was trying to help out with the bills, pawning off my

three young kids, and feeling guilty every second for leaving them. On August 25

I woke up with what I thought was the flu. It just got worse from there, you all

know how it goes. I was in the hospital, seeing every doctor that would see me,

getting gallons of blood work done. Then on October 12 I was diagnosed with

Adult Onset Still's Disease. So yes I believe that my onset was brought on my

stress of all kinds. I might have gotten it later in life but at that time it

was just the right kind of stress and body weakness that got me. I also believe

that God was trying to tell me in a quiet way that I was still needed in the

home but I was not listening to him so BAM the dragon. Take care all,

RE:Trauma before onset anyone?

Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Patty,

Good question! With me it was stress of an emotional and physical nature.

During the pregnancy of my first child back in 1992 I was having bad gut pains.

They would come and go. No doctor could ever tell me what was wrong. It happened

again in my second pregnancy. And then again in my third, only it did not stop

until after I started having really bad ones in July of 1999. I met a great

doctor who of course took one look at me and said that it was my Gallbladder. I

was in surgery the next morning. There is the physical stress. That was July 19.

After I started to get better from the surgery the bills started coming in. So

for the first time in over two years I went back to work. My first day was

August 5, 1999. I had only been to work for two weeks, and I might add loving

every minute of it, that my babysitter started whining. So there was the

emotional stress, here I was trying to help out with the bills, pawning off my

three young kids, and feeling guilty every second for leaving them. On August 25

I woke up with what I thought was the flu. It just got worse from there, you all

know how it goes. I was in the hospital, seeing every doctor that would see me,

getting gallons of blood work done. Then on October 12 I was diagnosed with

Adult Onset Still's Disease. So yes I believe that my onset was brought on my

stress of all kinds. I might have gotten it later in life but at that time it

was just the right kind of stress and body weakness that got me. I also believe

that God was trying to tell me in a quiet way that I was still needed in the

home but I was not listening to him so BAM the dragon. Take care all,

RE:Trauma before onset anyone?

Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt

Visit the Still's Disease Message Board

http://disc.server.com/Indices/148599.html

[Guest guest]

Is anyone on getting my messages again? boy, this is confusing, so this is

another test......by tonight, you will be " sick " of me asking this

question...........

Sue #2

[Guest guest]

Is anyone on getting my messages again? boy, this is confusing, so this is

another test......by tonight, you will be " sick " of me asking this

question...........

Sue #2

[Guest guest]

Hi , yes I do believe that something traumatic brings the onset to a

head. Ma was believed to have pneumonia, which was ok until they gave her

Penicillin. Deathly allergic too! Then when she got really sick after

antibiotics they gave them to her again. She started hallucinating and she

wasn't even in this world. She was totally dependant on us and we were at the

most 13 or 14(my oldest sister). I think I was 12 or 13 at the time. Very scary.

But we all think it was penicillin, even the nurse from here went to the city to

tell ma that she couldn't believe she was still alive after the 2 penicillin

episodes. But thankfully she is still here with us.

Take Care

Sheri

RE:Trauma before onset anyone?

Hi everyone, Patty here, my question for this evening is: Did anyone

have trauma of emotional or physical nature before the onset of thier

illness? I am interested because I have read that there seems to be

some connection there. I had a VERY stressful year or two before I

got sick. It was also after having my daughter that friends and

family said I did not look well and that was a good year before any

symptoms of Still's. Thank you for your input. Till soon, Melt