Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Dear Marty, sorry to hear that you were up with pain. Yes, I too also experience pain usually before a weather change, but it seems that I have more pain, once the weather is here. I cannot explain it, but when I am going to " flare " and I mean, really go into a " flare " ....something weird triggers off inside of my body. For instance, I can be fine now talking to you, but an hour from now, I can get this very strange feeling that runs through my body, it sounds stupid, but almost a feeling of my " floating " outside my body and I am watching myself.....okay....no...I don't need psychiatric help....lol....it's just a weird feeling of not " being me " ....I feel very different and I know that I need to go lie down, soon after that 99.9% of the time, I start the chills, and my high fevers and the swelling really sets in and usually within 24-48 hours, I am in a full blown " flare " . As for weather, like a lot of others, my hands seem to swell in the cold, and it is really tough to keep my feet warm for some reason. Does this sound at all familiar to anyone? I experience the cold feet thing a lot and wear slippers and double socks a lot when I am home. The heat, I tend to hold a lot of water and will take water pills at times to lose some of the extra pounds. Now, I am not telling anyone to do this, this is just what I do. I get very puffy in the warm weather and a lot of my pain is usually on my left side also Marty, so you are not alone. For the last week, I have been having horrible back pain when I sleep, and it's all on my left side. I have had trouble sleeping again. I should of come down stairs and looked at my computer last night, we could of kept each other company for a while. Well, hopefully you are getting some make-up rest today Marty. Be well and talk to you soon. Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Sue #2, It's interesting to hear that your pain in on your left side. I've had Stills for nearly five years and except for the onset, my pain has consistently been on my left side. Does your doc say anything about it? Mine did one of those " hummm, interesting! " but I have no idea what that meant. Perhaps he didn't either! Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Sue #2, It's interesting to hear that your pain in on your left side. I've had Stills for nearly five years and except for the onset, my pain has consistently been on my left side. Does your doc say anything about it? Mine did one of those " hummm, interesting! " but I have no idea what that meant. Perhaps he didn't either! Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 21, 2002 Report Share Posted January 21, 2002 Sue #2, It's interesting to hear that your pain in on your left side. I've had Stills for nearly five years and except for the onset, my pain has consistently been on my left side. Does your doc say anything about it? Mine did one of those " hummm, interesting! " but I have no idea what that meant. Perhaps he didn't either! Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Hey, count me in on the L-sided pain too. Told my docs, and they just said " hmmm... " That was so comforting (joking)! I do have it bilaterally (both sides) in my knees (but then, I used to be a dancer, and I think that wore out my knees equally doing that). Jul (lilac_rose@...) Re: marty/pain in weather Sue #2, It's interesting to hear that your pain in on your left side. I've had Stills for nearly five years and except for the onset, my pain has consistently been on my left side. Does your doc say anything about it? Mine did one of those " hummm, interesting! " but I have no idea what that meant. Perhaps he didn't either! Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 Hey, count me in on the L-sided pain too. Told my docs, and they just said " hmmm... " That was so comforting (joking)! I do have it bilaterally (both sides) in my knees (but then, I used to be a dancer, and I think that wore out my knees equally doing that). Jul (lilac_rose@...) Re: marty/pain in weather Sue #2, It's interesting to hear that your pain in on your left side. I've had Stills for nearly five years and except for the onset, my pain has consistently been on my left side. Does your doc say anything about it? Mine did one of those " hummm, interesting! " but I have no idea what that meant. Perhaps he didn't either! Love, Barb Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 a the sounds of winter and the pain of swelling well if spring and summer would just get here thenwe can swell and be hot and in pain but it would be a change and that is okay by the way could you pass me some more pain kilers and so prozac to go with it as I feel like I'm going well all I can say is MAMA I NEED YOU TO ROCK ME ( never helped but it did give me company LOL Marty G. Re: marty/pain in weather Dear Marty, sorry to hear that you were up with pain. Yes, I too also experience pain usually before a weather change, but it seems that I have more pain, once the weather is here. I cannot explain it, but when I am going to " flare " and I mean, really go into a " flare " ....something weird triggers off inside of my body. For instance, I can be fine now talking to you, but an hour from now, I can get this very strange feeling that runs through my body, it sounds stupid, but almost a feeling of my " floating " outside my body and I am watching myself.....okay....no...I don't need psychiatric help....lol....it's just a weird feeling of not " being me " ....I feel very different and I know that I need to go lie down, soon after that 99.9% of the time, I start the chills, and my high fevers and the swelling really sets in and usually within 24-48 hours, I am in a full blown " flare " . As for weather, like a lot of others, my hands seem to swell in the cold, and it is really tough to keep my feet warm for some reason. Does this sound at all familiar to anyone? I experience the cold feet thing a lot and wear slippers and double socks a lot when I am home. The heat, I tend to hold a lot of water and will take water pills at times to lose some of the extra pounds. Now, I am not telling anyone to do this, this is just what I do. I get very puffy in the warm weather and a lot of my pain is usually on my left side also Marty, so you are not alone. For the last week, I have been having horrible back pain when I sleep, and it's all on my left side. I have had trouble sleeping again. I should of come down stairs and looked at my computer last night, we could of kept each other company for a while. Well, hopefully you are getting some make-up rest today Marty. Be well and talk to you soon. Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 a the sounds of winter and the pain of swelling well if spring and summer would just get here thenwe can swell and be hot and in pain but it would be a change and that is okay by the way could you pass me some more pain kilers and so prozac to go with it as I feel like I'm going well all I can say is MAMA I NEED YOU TO ROCK ME ( never helped but it did give me company LOL Marty G. Re: marty/pain in weather Dear Marty, sorry to hear that you were up with pain. Yes, I too also experience pain usually before a weather change, but it seems that I have more pain, once the weather is here. I cannot explain it, but when I am going to " flare " and I mean, really go into a " flare " ....something weird triggers off inside of my body. For instance, I can be fine now talking to you, but an hour from now, I can get this very strange feeling that runs through my body, it sounds stupid, but almost a feeling of my " floating " outside my body and I am watching myself.....okay....no...I don't need psychiatric help....lol....it's just a weird feeling of not " being me " ....I feel very different and I know that I need to go lie down, soon after that 99.9% of the time, I start the chills, and my high fevers and the swelling really sets in and usually within 24-48 hours, I am in a full blown " flare " . As for weather, like a lot of others, my hands seem to swell in the cold, and it is really tough to keep my feet warm for some reason. Does this sound at all familiar to anyone? I experience the cold feet thing a lot and wear slippers and double socks a lot when I am home. The heat, I tend to hold a lot of water and will take water pills at times to lose some of the extra pounds. Now, I am not telling anyone to do this, this is just what I do. I get very puffy in the warm weather and a lot of my pain is usually on my left side also Marty, so you are not alone. For the last week, I have been having horrible back pain when I sleep, and it's all on my left side. I have had trouble sleeping again. I should of come down stairs and looked at my computer last night, we could of kept each other company for a while. Well, hopefully you are getting some make-up rest today Marty. Be well and talk to you soon. Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 a the sounds of winter and the pain of swelling well if spring and summer would just get here thenwe can swell and be hot and in pain but it would be a change and that is okay by the way could you pass me some more pain kilers and so prozac to go with it as I feel like I'm going well all I can say is MAMA I NEED YOU TO ROCK ME ( never helped but it did give me company LOL Marty G. Re: marty/pain in weather Dear Marty, sorry to hear that you were up with pain. Yes, I too also experience pain usually before a weather change, but it seems that I have more pain, once the weather is here. I cannot explain it, but when I am going to " flare " and I mean, really go into a " flare " ....something weird triggers off inside of my body. For instance, I can be fine now talking to you, but an hour from now, I can get this very strange feeling that runs through my body, it sounds stupid, but almost a feeling of my " floating " outside my body and I am watching myself.....okay....no...I don't need psychiatric help....lol....it's just a weird feeling of not " being me " ....I feel very different and I know that I need to go lie down, soon after that 99.9% of the time, I start the chills, and my high fevers and the swelling really sets in and usually within 24-48 hours, I am in a full blown " flare " . As for weather, like a lot of others, my hands seem to swell in the cold, and it is really tough to keep my feet warm for some reason. Does this sound at all familiar to anyone? I experience the cold feet thing a lot and wear slippers and double socks a lot when I am home. The heat, I tend to hold a lot of water and will take water pills at times to lose some of the extra pounds. Now, I am not telling anyone to do this, this is just what I do. I get very puffy in the warm weather and a lot of my pain is usually on my left side also Marty, so you are not alone. For the last week, I have been having horrible back pain when I sleep, and it's all on my left side. I have had trouble sleeping again. I should of come down stairs and looked at my computer last night, we could of kept each other company for a while. Well, hopefully you are getting some make-up rest today Marty. Be well and talk to you soon. Love, sue #2 Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 22, 2002 Report Share Posted January 22, 2002 I'm so with you on the Mommy part Marty. My mom always made it better!!! I hug a pillow and have caress my forhead as she used to at times of needing that comfort. I hope you can get some relief also. Heads up to the sun. Till soon, Melt Re: marty/pain in weather > > Dear Marty, > > sorry to hear that you were up with pain. Yes, I too also experience pain usually before a weather change, but it seems that I have more pain, once the weather is here. I cannot explain it, but when I am going to " flare " and I mean, really go into a " flare " ....something weird triggers off inside of my body. For instance, I can be fine now talking to you, but an hour from now, I can get this very strange feeling that runs through my body, it sounds stupid, but almost a feeling of my " floating " outside my body and I am watching myself.....okay....no...I don't need psychiatric help....lol....it's just a weird feeling of not " being me " ....I feel very different and I know that I need to go lie down, soon after that 99.9% of the time, I start the chills, and my high fevers and the swelling really sets in and usually within 24-48 hours, I am in a full blown " flare " . As for weather, like a lot of others, my hands seem to swell in the cold, and it is really tough to keep my feet warm for some reason. Does this sound at all familiar to anyone? I experience the cold feet thing a lot and wear slippers and double socks a lot when I am home. The heat, I tend to hold a lot of water and will take water pills at times to lose some of the extra pounds. Now, I am not telling anyone to do this, this is just what I do. I get very puffy in the warm weather and a lot of my pain is usually on my left side also Marty, so you are not alone. For the last week, I have been having horrible back pain when I sleep, and it's all on my left side. I have had trouble sleeping again. I should of come down stairs and looked at my computer last night, we could of kept each other company for a while. Well, hopefully you are getting some make-up rest today Marty. Be well and talk to you soon. > Love, sue #2 > > > Quote Link to comment Share on other sites More sharing options...
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