Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 : I don't know about getting sick from the vaccine, but the office where you got it is surely a likely suspect. I always feel like I've dodged a bullet when we've been to the peds and doesn't pick up something new. And she has never touched a toy there, we don't even wait in the waiting room. I'm thinking of you and the kids and hoping for a quick recovery -- (mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 & CD19) - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 : I don't know about getting sick from the vaccine, but the office where you got it is surely a likely suspect. I always feel like I've dodged a bullet when we've been to the peds and doesn't pick up something new. And she has never touched a toy there, we don't even wait in the waiting room. I'm thinking of you and the kids and hoping for a quick recovery -- (mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 & CD19) - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 20, 2001 Report Share Posted April 20, 2001 : I don't know about getting sick from the vaccine, but the office where you got it is surely a likely suspect. I always feel like I've dodged a bullet when we've been to the peds and doesn't pick up something new. And she has never touched a toy there, we don't even wait in the waiting room. I'm thinking of you and the kids and hoping for a quick recovery -- (mom to , age 2, antibody def, IgA def, partial T-cell def (CD3 & CD19) - not on IGIV yet) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 Autumn, I'm sorry to hear that is having such a hard time. Glad to hear that Mark is feeling a little better.You & your family continue to be in our thoughts & prayers. Wade sends his best wishes to & Mark. Hopefully someday we can get them together again. Wade asks about them often. Keep your strong faith & " this too shall pass " .Please let me know if there is anything that I can do. Beth At 10:04 AM 5/5/01 -0400, you wrote: >Hi ~I thought for sure that you were at the hospital delivering that >little guy. Keep us posted and I will keep positive thoughts that he will >arrive soon. Thanks for your very supportive email. I will let you know >how we make out with all of this. is really looking bad and it sounds >like he has a lot of " junk " in his chest now. Will update as I can. > >HI ~Thanks for the kind email, I agree with what you had to say totally >and sometimes we just have to place such decisions in the hands of those we >trust who are taking care of our children. I have a strong reputation with >all our docs in that, I don't always dive right into what they say is >medically necessary (take IVIG for example, I really researched that when >they said Mark had to be on it), I like to get as many answers as I can...I >have earned a lot of respect from them and vice versa. It works well, and >yet there are times that the answers are right there and we need to act on >it right away. Let me tell you a story, in 1991 I had a life-threatening >tubal pregnancy. The tube had ruptured and I had to have emergency surgery >and a blood transfusion, I came very close to losing my life. In 1992 I was >pregnant again, and the docs were watching me very closely. They did an >ultrasound and could not find the baby in the uterus. They repeated this >again, twice and still not sign of a pregnancy in the uterus. I was having >terrible R sided pain and a back ache with bleeding and they thought for >sure that I had another tubal pregnancy. I told them that I did not " feel " >the same way I did with the tubal and to PLEASE hold off on anything. The >OB/GYN said that he really thought that I had a tubal pregnancy and drew on >my belly as to how they would go in and remove the pregnancy. I refused and >he made me sign a paper stating that I was going against medical advice. It >turned out, that I had a kidney stone and the so-called " tubal pregnancy " >that they thought I had is now a 8 year old boy named . Since that >time, I am more cautious and don't always take everything that doctors have >to say to the bank, imagine not having around due to a " suspect " tubal >pregnancy. > I will keep you posted. Sorry you are having so many problems with AOL, >that is why we got rid of it. > >Have a good weekend everyone. > >Autumn (Mom to Mark Cd5-Cd19 PID and ) > > >This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 5, 2001 Report Share Posted May 5, 2001 Autumn, I'm sorry to hear that is having such a hard time. Glad to hear that Mark is feeling a little better.You & your family continue to be in our thoughts & prayers. Wade sends his best wishes to & Mark. Hopefully someday we can get them together again. Wade asks about them often. Keep your strong faith & " this too shall pass " .Please let me know if there is anything that I can do. Beth At 10:04 AM 5/5/01 -0400, you wrote: >Hi ~I thought for sure that you were at the hospital delivering that >little guy. Keep us posted and I will keep positive thoughts that he will >arrive soon. Thanks for your very supportive email. I will let you know >how we make out with all of this. is really looking bad and it sounds >like he has a lot of " junk " in his chest now. Will update as I can. > >HI ~Thanks for the kind email, I agree with what you had to say totally >and sometimes we just have to place such decisions in the hands of those we >trust who are taking care of our children. I have a strong reputation with >all our docs in that, I don't always dive right into what they say is >medically necessary (take IVIG for example, I really researched that when >they said Mark had to be on it), I like to get as many answers as I can...I >have earned a lot of respect from them and vice versa. It works well, and >yet there are times that the answers are right there and we need to act on >it right away. Let me tell you a story, in 1991 I had a life-threatening >tubal pregnancy. The tube had ruptured and I had to have emergency surgery >and a blood transfusion, I came very close to losing my life. In 1992 I was >pregnant again, and the docs were watching me very closely. They did an >ultrasound and could not find the baby in the uterus. They repeated this >again, twice and still not sign of a pregnancy in the uterus. I was having >terrible R sided pain and a back ache with bleeding and they thought for >sure that I had another tubal pregnancy. I told them that I did not " feel " >the same way I did with the tubal and to PLEASE hold off on anything. The >OB/GYN said that he really thought that I had a tubal pregnancy and drew on >my belly as to how they would go in and remove the pregnancy. I refused and >he made me sign a paper stating that I was going against medical advice. It >turned out, that I had a kidney stone and the so-called " tubal pregnancy " >that they thought I had is now a 8 year old boy named . Since that >time, I am more cautious and don't always take everything that doctors have >to say to the bank, imagine not having around due to a " suspect " tubal >pregnancy. > I will keep you posted. Sorry you are having so many problems with AOL, >that is why we got rid of it. > >Have a good weekend everyone. > >Autumn (Mom to Mark Cd5-Cd19 PID and ) > > >This forum is open to parents and caregivers of children diagnosed with a Primary Immune Deficiency. Opinions or medical advice stated here are the sole responsibility of the poster and should not be taken as professional advice. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 In a message dated 3/24/2003 11:07:39 AM Pacific Standard Time, billanddee@... writes: > Our boys names are and for anyone who wants to add them to thier > prayer list. Hi Deanna! I will add prayers for Byran and to the ones I am saying for and all of our troops. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 In a message dated 3/24/2003 11:07:39 AM Pacific Standard Time, billanddee@... writes: > Our boys names are and for anyone who wants to add them to thier > prayer list. Hi Deanna! I will add prayers for Byran and to the ones I am saying for and all of our troops. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 25, 2003 Report Share Posted March 25, 2003 In a message dated 3/24/2003 11:07:39 AM Pacific Standard Time, billanddee@... writes: > Our boys names are and for anyone who wants to add them to thier > prayer list. Hi Deanna! I will add prayers for Byran and to the ones I am saying for and all of our troops. Hugs and blessings, Ann Quote Link to comment Share on other sites More sharing options...
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