RE: Darlene

[Guest guest]

Darlene,

Please don't be ashamed of your feelings and fears. There are a number of

people in this group who have children with milder cases of PMG (me

included, so I understand how you feel), but we all have issues and

difficulties to deal with, so please, yes, be inspired by the people in this

group, but don't ever feel that your difficulties are any less important.

This is a great place to find answers to many of your questions, so please

don't feel that your worries not worth asking about.

As far as children with PMG that do not have difficulties, I know that there

have been adults who have found out they had PMG only after an MRI for some

reason, who had no idea they had it. It can range from so mild that there

are virtually no problems to very severe. I am glad to hear that Kieren is

at the mild end, and hope she continues to progress wonderfully. We are

also inspired by hearing about the kids who are doing well, so please keep

us informed.

Best wishes to you,

Christie, mom to Sam (11 years old, PMG)

prayers

I am new to the group and though I am not familiar with all of

your children, my heart goes out to all of you. The trials that each

of you struggle through in everyday life make me feel ashamed of my

own fears and what I feel my own burdens to be. My daughter is 7

months old and has been diagnosed with polymicrogyria and heterotopia

and which I have been struggling to find answers as to what to think

and to expect and to feel about it all. When I read about each of

your letters, I feel that I must consider myself fortunate that at

this stage, Kieren appears to be almost a normal little preemie. But

each day I find myself seeing little things that I wonder if they are

signs of this condition. I am praying for all of you and hope that

you find peace. Your strength is inspiring and i hope that hsould the

time come , I will be able to endure as strongly as I can see each of

you are. The hardest thing to face in all of this is that, I have yet

to hear of another child that has this condition and does not at some

point encounter major difficulties. For me, it is a difficult thing

to face...yet nothing compared to each of you.You will all be in our

thoughts and prayers.

Darlene - mother of Kieren pmg & heterotopia