Re: how many of you??

[Guest guest]

Hi Tricia, I know ma feels like she has everything under control - but there is

not a day goes by without her being achy. She never gets sick though. We will

have a cold keep running through the house back and forth and she will never get

it. She kisses the kids and lets them eat with her when she is sick and we are

so careful not to let them share. We always get it but never her. When she does

gets sick it's usually very bad but hardly ever. I wonder if its something to do

with having stills? Very weird anyway.

Take Care

Don't know if this was what you were searching for.

Sheri

" how many of you?? " "

Good day to all Stilligans out there!

I have a question...How many of you..feel that you have the disease

under control, " yet " just don't feel well most of the time???

Although I have had several " good " days since taking the MTX last October,

(before that I felt sick almost *all* the time..day in and day out for way too

many years!) Most days I feel just not well. Do any of you feel this way???

Here are some of the ways I will feel..and sometimes it's just for a few

minutes.

Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary, zombie,

pain in one place or another...etc.

I don't want it to sound like I'm on the " Pity Pot, because I know many of you

have

it much worse...But, I have been wondering about this for some time, and now I

am

asking.

Also...I can wake up in the morning, and feel like it is surely going to be my

last day on

earth, and then ...just like that!! Feeling like a new person! Is this the

way it works with

this dragon??? Or am I still the " odd one out?? "

Appreciating all of your comments ahead of time!!!

Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

30th!!!!!! Can't

hardly wait!! My hubby and I are going North for a few days, and have

arranged to meet

Tom on the way. Tom...if you read this...I am *really* looking forward to

meeting you!!!!!

Your Stills friend, Tricia

[Guest guest]

Hi Tricia, I know ma feels like she has everything under control - but there is

not a day goes by without her being achy. She never gets sick though. We will

have a cold keep running through the house back and forth and she will never get

it. She kisses the kids and lets them eat with her when she is sick and we are

so careful not to let them share. We always get it but never her. When she does

gets sick it's usually very bad but hardly ever. I wonder if its something to do

with having stills? Very weird anyway.

Take Care

Don't know if this was what you were searching for.

Sheri

" how many of you?? " "

Good day to all Stilligans out there!

I have a question...How many of you..feel that you have the disease

under control, " yet " just don't feel well most of the time???

Although I have had several " good " days since taking the MTX last October,

(before that I felt sick almost *all* the time..day in and day out for way too

many years!) Most days I feel just not well. Do any of you feel this way???

Here are some of the ways I will feel..and sometimes it's just for a few

minutes.

Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary, zombie,

pain in one place or another...etc.

I don't want it to sound like I'm on the " Pity Pot, because I know many of you

have

it much worse...But, I have been wondering about this for some time, and now I

am

asking.

Also...I can wake up in the morning, and feel like it is surely going to be my

last day on

earth, and then ...just like that!! Feeling like a new person! Is this the

way it works with

this dragon??? Or am I still the " odd one out?? "

Appreciating all of your comments ahead of time!!!

Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

30th!!!!!! Can't

hardly wait!! My hubby and I are going North for a few days, and have

arranged to meet

Tom on the way. Tom...if you read this...I am *really* looking forward to

meeting you!!!!!

Your Stills friend, Tricia

[Guest guest]

Hi Tricia, I know ma feels like she has everything under control - but there is

not a day goes by without her being achy. She never gets sick though. We will

have a cold keep running through the house back and forth and she will never get

it. She kisses the kids and lets them eat with her when she is sick and we are

so careful not to let them share. We always get it but never her. When she does

gets sick it's usually very bad but hardly ever. I wonder if its something to do

with having stills? Very weird anyway.

Take Care

Don't know if this was what you were searching for.

Sheri

" how many of you?? " "

Good day to all Stilligans out there!

I have a question...How many of you..feel that you have the disease

under control, " yet " just don't feel well most of the time???

Although I have had several " good " days since taking the MTX last October,

(before that I felt sick almost *all* the time..day in and day out for way too

many years!) Most days I feel just not well. Do any of you feel this way???

Here are some of the ways I will feel..and sometimes it's just for a few

minutes.

Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary, zombie,

pain in one place or another...etc.

I don't want it to sound like I'm on the " Pity Pot, because I know many of you

have

it much worse...But, I have been wondering about this for some time, and now I

am

asking.

Also...I can wake up in the morning, and feel like it is surely going to be my

last day on

earth, and then ...just like that!! Feeling like a new person! Is this the

way it works with

this dragon??? Or am I still the " odd one out?? "

Appreciating all of your comments ahead of time!!!

Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

30th!!!!!! Can't

hardly wait!! My hubby and I are going North for a few days, and have

arranged to meet

Tom on the way. Tom...if you read this...I am *really* looking forward to

meeting you!!!!!

Your Stills friend, Tricia

[Guest guest]

Tricia,

To begin with, I think we should all agree that each

of has pain. Yes, our pain is " unique " to each of us

and it varies in degree. You should not have to

apologize for your pain. Your pain and situation may

not be as bad as some. It's still no less painful for

you, right? I am not trying to give you a hard time. I

care and I don't want you to feel as if you have to

apologize for being ill. In general this is something

we all have to work on. We spend so much time

apologizing to our friends and family for something we

have no control over. We certainly have enough guilt

in our lives, so here within this group, we are free

to feel whatever it is we feel. That's the one thing I

love about this group, no one judges anyone.

I thought over your question and you know what it has

been like for me lately. I have had some tell me that

they don't feel as if my disease is under " control " . I

have spent many hours asking the very same question of

myself, as you have. Though my pain and episodes are

much better than they used to be before Enbrel, when I

go down I go down hard. Though my pain is overall much

better, I am still on MS Contin (narcotic) daily and

fast acting morphine for break thruogh pain. I have

had to take my break through meds everyday. My

symptoms include; joint pain, swelling, achyness,

stifness, chills, etc. So, I guess I need the answer

to your question also. What is control? Is there a

medical deffinition?

Thanks,

Bridget

__________________________________________________

[Guest guest]

Bridget,

For *twenty plus years* I experienced *severe* pain...mostly at night..

sometimes ending up in ER.

I know that I don't have the pain level most of you do at this time. Thanks

to joint replacements, and finally proper meds. I have " come a long way

baby, " so to speak. It has been a very long, difficult road to travel, but,

I

didn't kill myself like I thought of many times..and my husband never did

take me out back and shoot me like I begged him to do ..at least once a

week.

Perhaps I posed the question in a way difficult to undertnd. After reading

it

over...I don't quite understand my own question!~ LOL!!

I am very fortunate in that I am still living...the dragon almost took me

out several

times. he got me so far down that dark, hot, painful, not real..yet more

real than

anything place so many times that everyone that knows me, is surprised I am

still

alive. I would not let the dragon win!! And niether will you!!!

The Stills disease for myself is " under control. " I am soooo sensitive to

meds. that

perhaps my " sickly " feeling is from the very meds that keep the dragon " in

chains. "

By under control..I mean..no fevers, no continual strong pain meds.

(Oxyxontin,

Morphine..etc....which make me sick anyway) I am very blessed that I am

where

I am with this disease, but still have so many unanswered questions.

Bridget, I am very proud of you for doing what you are! You haven't had the

disease

very long (it seems long doesn't it??!!) and I feel you will accomplish your

dreams

with your schooling, and also get settled into a remission with meds. in the

near future.

Your Stills friend, Tricia

wega2@...

p.s Just trying to get some action on this site. Either everyone has gone on

vacation,

is feeling really great (yeeeeeaaaa!) or just doesn't care anymore..or is

too sick..(hope

that isn't it!!)

Re: " how many of you?? " "

> Tricia,

>

> To begin with, I think we should all agree that each

> of has pain. Yes, our pain is " unique " to each of us

> and it varies in degree. You should not have to

> apologize for your pain. Your pain and situation may

> not be as bad as some. It's still no less painful for

> you, right? I am not trying to give you a hard time. I

> care and I don't want you to feel as if you have to

> apologize for being ill. In general this is something

> we all have to work on. We spend so much time

> apologizing to our friends and family for something we

> have no control over. We certainly have enough guilt

> in our lives, so here within this group, we are free

> to feel whatever it is we feel. That's the one thing I

> love about this group, no one judges anyone.

>

> I thought over your question and you know what it has

> been like for me lately. I have had some tell me that

> they don't feel as if my disease is under " control " . I

> have spent many hours asking the very same question of

> myself, as you have. Though my pain and episodes are

> much better than they used to be before Enbrel, when I

> go down I go down hard. Though my pain is overall much

> better, I am still on MS Contin (narcotic) daily and

> fast acting morphine for break thruogh pain. I have

> had to take my break through meds everyday. My

> symptoms include; joint pain, swelling, achyness,

> stifness, chills, etc. So, I guess I need the answer

> to your question also. What is control? Is there a

> medical deffinition?

>

> Thanks,

> Bridget

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Bridget,

For *twenty plus years* I experienced *severe* pain...mostly at night..

sometimes ending up in ER.

I know that I don't have the pain level most of you do at this time. Thanks

to joint replacements, and finally proper meds. I have " come a long way

baby, " so to speak. It has been a very long, difficult road to travel, but,

I

didn't kill myself like I thought of many times..and my husband never did

take me out back and shoot me like I begged him to do ..at least once a

week.

Perhaps I posed the question in a way difficult to undertnd. After reading

it

over...I don't quite understand my own question!~ LOL!!

I am very fortunate in that I am still living...the dragon almost took me

out several

times. he got me so far down that dark, hot, painful, not real..yet more

real than

anything place so many times that everyone that knows me, is surprised I am

still

alive. I would not let the dragon win!! And niether will you!!!

The Stills disease for myself is " under control. " I am soooo sensitive to

meds. that

perhaps my " sickly " feeling is from the very meds that keep the dragon " in

chains. "

By under control..I mean..no fevers, no continual strong pain meds.

(Oxyxontin,

Morphine..etc....which make me sick anyway) I am very blessed that I am

where

I am with this disease, but still have so many unanswered questions.

Bridget, I am very proud of you for doing what you are! You haven't had the

disease

very long (it seems long doesn't it??!!) and I feel you will accomplish your

dreams

with your schooling, and also get settled into a remission with meds. in the

near future.

Your Stills friend, Tricia

wega2@...

p.s Just trying to get some action on this site. Either everyone has gone on

vacation,

is feeling really great (yeeeeeaaaa!) or just doesn't care anymore..or is

too sick..(hope

that isn't it!!)

Re: " how many of you?? " "

> Tricia,

>

> To begin with, I think we should all agree that each

> of has pain. Yes, our pain is " unique " to each of us

> and it varies in degree. You should not have to

> apologize for your pain. Your pain and situation may

> not be as bad as some. It's still no less painful for

> you, right? I am not trying to give you a hard time. I

> care and I don't want you to feel as if you have to

> apologize for being ill. In general this is something

> we all have to work on. We spend so much time

> apologizing to our friends and family for something we

> have no control over. We certainly have enough guilt

> in our lives, so here within this group, we are free

> to feel whatever it is we feel. That's the one thing I

> love about this group, no one judges anyone.

>

> I thought over your question and you know what it has

> been like for me lately. I have had some tell me that

> they don't feel as if my disease is under " control " . I

> have spent many hours asking the very same question of

> myself, as you have. Though my pain and episodes are

> much better than they used to be before Enbrel, when I

> go down I go down hard. Though my pain is overall much

> better, I am still on MS Contin (narcotic) daily and

> fast acting morphine for break thruogh pain. I have

> had to take my break through meds everyday. My

> symptoms include; joint pain, swelling, achyness,

> stifness, chills, etc. So, I guess I need the answer

> to your question also. What is control? Is there a

> medical deffinition?

>

> Thanks,

> Bridget

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

Bridget,

For *twenty plus years* I experienced *severe* pain...mostly at night..

sometimes ending up in ER.

I know that I don't have the pain level most of you do at this time. Thanks

to joint replacements, and finally proper meds. I have " come a long way

baby, " so to speak. It has been a very long, difficult road to travel, but,

I

didn't kill myself like I thought of many times..and my husband never did

take me out back and shoot me like I begged him to do ..at least once a

week.

Perhaps I posed the question in a way difficult to undertnd. After reading

it

over...I don't quite understand my own question!~ LOL!!

I am very fortunate in that I am still living...the dragon almost took me

out several

times. he got me so far down that dark, hot, painful, not real..yet more

real than

anything place so many times that everyone that knows me, is surprised I am

still

alive. I would not let the dragon win!! And niether will you!!!

The Stills disease for myself is " under control. " I am soooo sensitive to

meds. that

perhaps my " sickly " feeling is from the very meds that keep the dragon " in

chains. "

By under control..I mean..no fevers, no continual strong pain meds.

(Oxyxontin,

Morphine..etc....which make me sick anyway) I am very blessed that I am

where

I am with this disease, but still have so many unanswered questions.

Bridget, I am very proud of you for doing what you are! You haven't had the

disease

very long (it seems long doesn't it??!!) and I feel you will accomplish your

dreams

with your schooling, and also get settled into a remission with meds. in the

near future.

Your Stills friend, Tricia

wega2@...

p.s Just trying to get some action on this site. Either everyone has gone on

vacation,

is feeling really great (yeeeeeaaaa!) or just doesn't care anymore..or is

too sick..(hope

that isn't it!!)

Re: " how many of you?? " "

> Tricia,

>

> To begin with, I think we should all agree that each

> of has pain. Yes, our pain is " unique " to each of us

> and it varies in degree. You should not have to

> apologize for your pain. Your pain and situation may

> not be as bad as some. It's still no less painful for

> you, right? I am not trying to give you a hard time. I

> care and I don't want you to feel as if you have to

> apologize for being ill. In general this is something

> we all have to work on. We spend so much time

> apologizing to our friends and family for something we

> have no control over. We certainly have enough guilt

> in our lives, so here within this group, we are free

> to feel whatever it is we feel. That's the one thing I

> love about this group, no one judges anyone.

>

> I thought over your question and you know what it has

> been like for me lately. I have had some tell me that

> they don't feel as if my disease is under " control " . I

> have spent many hours asking the very same question of

> myself, as you have. Though my pain and episodes are

> much better than they used to be before Enbrel, when I

> go down I go down hard. Though my pain is overall much

> better, I am still on MS Contin (narcotic) daily and

> fast acting morphine for break thruogh pain. I have

> had to take my break through meds everyday. My

> symptoms include; joint pain, swelling, achyness,

> stifness, chills, etc. So, I guess I need the answer

> to your question also. What is control? Is there a

> medical deffinition?

>

> Thanks,

> Bridget

>

>

>

>

>

>

>

>

>

>

>

> __________________________________________________

>

[Guest guest]

OH MY GOODNESS, Tricia, Patty here; You have put out here exactly

what has been growing on my mind for weeks now!!!

I have had Still's for so long and consider it in a remissive state,

and yet, at times I feel horrible and can't figure the reason. For

every day there is a new possible answer and yet, None.

Lately I have NO energy, dizzyness, other symptoms but do not

actually get anything. I know it makes me feel like just a

complainer, even when I try not to verbalize, there are these

feelings inside. I don't know why, after all these years, I believed

that if I wasn't in a severely active state, then I would feel good.

It is a dissappointment to me and the child inside of me, that always

hopes.

I too realize that so many have been severely ill lately, knowing

this does not diminish my pain, however; it does help keep things in

some perspective, and for that I am grateful. I also thank you,

Tricia for speaking, because I know there are many that can relate.

I don't remember the general malaise, maybe because I feel better in

other ways than I used to. But lately it seems to be all connected

to increased activity.

I totaly agree with the suggestion of doing when we can and not

hating ourselves if we can't. As I shared with someone; " Proceed

with CAUTION!!. " Till soon, Melt

> I don't want it to sound like I'm on the " Pity Pot, because I know

many of you have

> asking.

>> it much worse...But, I have been wondering about this for some

time, and now I am-- In Stillsdisease@y..., " Dennis & Tricia Looker "

<wega2@e...> wrote:

> Good day to all Stilligans out there!

>

> I have a question...How many of you..feel that you have the disease

> under control, " yet " just don't feel well most of the time???

>

> Although I have had several " good " days since taking the MTX last

October,

> (before that I felt sick almost *all* the time..day in and day out

for way too

> many years!) Most days I feel just not well. Do any of you feel

this way???

>

> Here are some of the ways I will feel..and sometimes it's just for

a few minutes.

> Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary,

zombie,

> pain in one place or another...etc.

>

> Also...I can wake up in the morning, and feel like it is surely

going to be my last day on

> earth, and then ...just like that!! Feeling like a new person! Is

this the way it works with

> this dragon??? Or am I still the " odd one out?? "

>

> Appreciating all of your comments ahead of time!!!

>

> Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday

the 30th!!!!!! Can't

> hardly wait!! My hubby and I are going North for a few days, and

have arranged to meet

> Tom on the way. Tom...if you read this...I am *really* looking

forward to meeting you!!!!!

>

> Your Stills friend, Tricia

>

>

>

[Guest guest]

Sheri, that is a good point. A medically induced remission sums it up.

Right after I wrote the group, Randy walks into the house complaining

about how this medicine is eating his stomach up. So now what? I will

bet the rheumy will put him on another medication. For every medication

side effect, I see the docs giving more and more medications to counter

act them. I am biased though. I work in hospital. Huff and sigh!

Trisha sure did bring up a good question!

Love, Steph

[Guest guest]

Sheri, that is a good point. A medically induced remission sums it up.

Right after I wrote the group, Randy walks into the house complaining

about how this medicine is eating his stomach up. So now what? I will

bet the rheumy will put him on another medication. For every medication

side effect, I see the docs giving more and more medications to counter

act them. I am biased though. I work in hospital. Huff and sigh!

Trisha sure did bring up a good question!

Love, Steph

[Guest guest]

Sheri, that is a good point. A medically induced remission sums it up.

Right after I wrote the group, Randy walks into the house complaining

about how this medicine is eating his stomach up. So now what? I will

bet the rheumy will put him on another medication. For every medication

side effect, I see the docs giving more and more medications to counter

act them. I am biased though. I work in hospital. Huff and sigh!

Trisha sure did bring up a good question!

Love, Steph

[Guest guest]

Hi Jen, Patty here;

Just a quick note to say I have taken out the old kitchen stool for

the first time in several years. It helps a lot!! Maybe you should

get one too? Good luck, till soon, Melt

> Hi Tricia! This is exactly how I feel. I haven't had a major

flare for over a year but feel tired all the time now. Making dinner

is a huge chore and one I start dreading at about 2:00 each day . . .

it's not that I don't feel well, it's just that it takes so much

energy and I don't have the energy at that time of day. I find this

especially true on the days that I work. I've been wondering if the

fatigue is due to Still's or the medication to control it. I find it

extremely frustrating because if I feel that if I'm not flaring I

should be feeling well - I get very upset with myself. I am trying

to eat well, exercise, etc. all those things that are supposed to

help but I just find then that I'm more tired?? The really strange

thing is I can't sleep though (or at least not nearly as well as pre-

Stills) and I've only stopped taking sleeping pills a few weeks ago.

I too have all the symptoms that you listed, except VERY rarely the

headache. Thanks for asking this question, it's nice to know that

I'm not alone. Jen P.

> Also, hi to everyone - I haven't posted in a long time. You are

all in my thoughts!

> " how many of you?? " "

>

>

> Good day to all Stilligans out there!

>

> I have a question...How many of you..feel that you have the

disease

> under control, " yet " just don't feel well most of the time???

>

> Although I have had several " good " days since taking the MTX last

October,

> (before that I felt sick almost *all* the time..day in and day

out for way too

> many years!) Most days I feel just not well. Do any of you feel

this way???

>

> Here are some of the ways I will feel..and sometimes it's just

for a few minutes.

> Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated,

weary, zombie,

> pain in one place or another...etc.

>

> I don't want it to sound like I'm on the " Pity Pot, because I

know many of you have

> it much worse...But, I have been wondering about this for some

time, and now I am

> asking.

>

> Also...I can wake up in the morning, and feel like it is surely

going to be my last day on

> earth, and then ...just like that!! Feeling like a new person!

Is this the way it works with

> this dragon??? Or am I still the " odd one out?? "

>

> Appreciating all of your comments ahead of time!!!

>

> Oh...by the way..guess what??? I get to meet Tom Kufahl on

Friday the 30th!!!!!! Can't

> hardly wait!! My hubby and I are going North for a few days, and

have arranged to meet

> Tom on the way. Tom...if you read this...I am *really* looking

forward to meeting you!!!!!

>

> Your Stills friend, Tricia

>

>

>

[Guest guest]

Hi Jen, Patty here;

Just a quick note to say I have taken out the old kitchen stool for

the first time in several years. It helps a lot!! Maybe you should

get one too? Good luck, till soon, Melt

> Hi Tricia! This is exactly how I feel. I haven't had a major

flare for over a year but feel tired all the time now. Making dinner

is a huge chore and one I start dreading at about 2:00 each day . . .

it's not that I don't feel well, it's just that it takes so much

energy and I don't have the energy at that time of day. I find this

especially true on the days that I work. I've been wondering if the

fatigue is due to Still's or the medication to control it. I find it

extremely frustrating because if I feel that if I'm not flaring I

should be feeling well - I get very upset with myself. I am trying

to eat well, exercise, etc. all those things that are supposed to

help but I just find then that I'm more tired?? The really strange

thing is I can't sleep though (or at least not nearly as well as pre-

Stills) and I've only stopped taking sleeping pills a few weeks ago.

I too have all the symptoms that you listed, except VERY rarely the

headache. Thanks for asking this question, it's nice to know that

I'm not alone. Jen P.

> Also, hi to everyone - I haven't posted in a long time. You are

all in my thoughts!

> " how many of you?? " "

>

>

> Good day to all Stilligans out there!

>

> I have a question...How many of you..feel that you have the

disease

> under control, " yet " just don't feel well most of the time???

>

> Although I have had several " good " days since taking the MTX last

October,

> (before that I felt sick almost *all* the time..day in and day

out for way too

> many years!) Most days I feel just not well. Do any of you feel

this way???

>

> Here are some of the ways I will feel..and sometimes it's just

for a few minutes.

> Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated,

weary, zombie,

> pain in one place or another...etc.

>

> I don't want it to sound like I'm on the " Pity Pot, because I

know many of you have

> it much worse...But, I have been wondering about this for some

time, and now I am

> asking.

>

> Also...I can wake up in the morning, and feel like it is surely

going to be my last day on

> earth, and then ...just like that!! Feeling like a new person!

Is this the way it works with

> this dragon??? Or am I still the " odd one out?? "

>

> Appreciating all of your comments ahead of time!!!

>

> Oh...by the way..guess what??? I get to meet Tom Kufahl on

Friday the 30th!!!!!! Can't

> hardly wait!! My hubby and I are going North for a few days, and

have arranged to meet

> Tom on the way. Tom...if you read this...I am *really* looking

forward to meeting you!!!!!

>

> Your Stills friend, Tricia

>

>

>

[Guest guest]

Hi Jen, Patty here;

Just a quick note to say I have taken out the old kitchen stool for

the first time in several years. It helps a lot!! Maybe you should

get one too? Good luck, till soon, Melt

> Hi Tricia! This is exactly how I feel. I haven't had a major

flare for over a year but feel tired all the time now. Making dinner

is a huge chore and one I start dreading at about 2:00 each day . . .

it's not that I don't feel well, it's just that it takes so much

energy and I don't have the energy at that time of day. I find this

especially true on the days that I work. I've been wondering if the

fatigue is due to Still's or the medication to control it. I find it

extremely frustrating because if I feel that if I'm not flaring I

should be feeling well - I get very upset with myself. I am trying

to eat well, exercise, etc. all those things that are supposed to

help but I just find then that I'm more tired?? The really strange

thing is I can't sleep though (or at least not nearly as well as pre-

Stills) and I've only stopped taking sleeping pills a few weeks ago.

I too have all the symptoms that you listed, except VERY rarely the

headache. Thanks for asking this question, it's nice to know that

I'm not alone. Jen P.

> Also, hi to everyone - I haven't posted in a long time. You are

all in my thoughts!

> " how many of you?? " "

>

>

> Good day to all Stilligans out there!

>

> I have a question...How many of you..feel that you have the

disease

> under control, " yet " just don't feel well most of the time???

>

> Although I have had several " good " days since taking the MTX last

October,

> (before that I felt sick almost *all* the time..day in and day

out for way too

> many years!) Most days I feel just not well. Do any of you feel

this way???

>

> Here are some of the ways I will feel..and sometimes it's just

for a few minutes.

> Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated,

weary, zombie,

> pain in one place or another...etc.

>

> I don't want it to sound like I'm on the " Pity Pot, because I

know many of you have

> it much worse...But, I have been wondering about this for some

time, and now I am

> asking.

>

> Also...I can wake up in the morning, and feel like it is surely

going to be my last day on

> earth, and then ...just like that!! Feeling like a new person!

Is this the way it works with

> this dragon??? Or am I still the " odd one out?? "

>

> Appreciating all of your comments ahead of time!!!

>

> Oh...by the way..guess what??? I get to meet Tom Kufahl on

Friday the 30th!!!!!! Can't

> hardly wait!! My hubby and I are going North for a few days, and

have arranged to meet

> Tom on the way. Tom...if you read this...I am *really* looking

forward to meeting you!!!!!

>

> Your Stills friend, Tricia

>

>

>

[Guest guest]

Graham (and everyone else)--

I wholeheartedly agree with almost everything you have been saying. I have

been in remission for more than a decade, but have always told people who

asked that remission does not mean " back to the way things were " -- at least

not for me. I have never been able to regain the energy that I once had.

The one thing I wanted to mention to Graham was I was recently taken off of

Vioxx (my rheumy wanted me on naproxen in stead -- I have no stomach issues)

and just the removal of Vioxx from my drug roster made a huge difference in

my energy level. I have no idea why, but Vioxx made me very, VERY sleepy. I

was originally on 25mg, which I took at night so I didn't really notice it.

But then my GP upped it to 50mg, and I wouldn't start to feel AWAKE until the

following evening. When I stopped the Vioxx, that went away... Weird but

true!

For any of you who aren't currently on medication (other than pain related

like NSAIDS), but are fatigued, I encourage you to see your Dr. I fought

seeing the dr for a long time over fatigue issues -- I didn't want to be

viewed as a whiner. But when it got to the point that I couldn't carry on

normal daily life (making dinner, making love, making anything but the

absolute minimum of daily life) I went to the doc. I was honest, I told him,

" I don't know what you are going to do for me. Maybe you can't do anything.

But at the very least, I will know that *I* tried to do something about it. "

I went from only Vioxx to plaq, naproxen, and zantac... and I think the plaq

is helping me. I know I have more energy now than I did -- and that is

nothing but good news.

Take care all -- love you

Kate

[Guest guest]

Graham (and everyone else)--

I wholeheartedly agree with almost everything you have been saying. I have

been in remission for more than a decade, but have always told people who

asked that remission does not mean " back to the way things were " -- at least

not for me. I have never been able to regain the energy that I once had.

The one thing I wanted to mention to Graham was I was recently taken off of

Vioxx (my rheumy wanted me on naproxen in stead -- I have no stomach issues)

and just the removal of Vioxx from my drug roster made a huge difference in

my energy level. I have no idea why, but Vioxx made me very, VERY sleepy. I

was originally on 25mg, which I took at night so I didn't really notice it.

But then my GP upped it to 50mg, and I wouldn't start to feel AWAKE until the

following evening. When I stopped the Vioxx, that went away... Weird but

true!

For any of you who aren't currently on medication (other than pain related

like NSAIDS), but are fatigued, I encourage you to see your Dr. I fought

seeing the dr for a long time over fatigue issues -- I didn't want to be

viewed as a whiner. But when it got to the point that I couldn't carry on

normal daily life (making dinner, making love, making anything but the

absolute minimum of daily life) I went to the doc. I was honest, I told him,

" I don't know what you are going to do for me. Maybe you can't do anything.

But at the very least, I will know that *I* tried to do something about it. "

I went from only Vioxx to plaq, naproxen, and zantac... and I think the plaq

is helping me. I know I have more energy now than I did -- and that is

nothing but good news.

Take care all -- love you

Kate

[Guest guest]

Graham (and everyone else)--

I wholeheartedly agree with almost everything you have been saying. I have

been in remission for more than a decade, but have always told people who

asked that remission does not mean " back to the way things were " -- at least

not for me. I have never been able to regain the energy that I once had.

The one thing I wanted to mention to Graham was I was recently taken off of

Vioxx (my rheumy wanted me on naproxen in stead -- I have no stomach issues)

and just the removal of Vioxx from my drug roster made a huge difference in

my energy level. I have no idea why, but Vioxx made me very, VERY sleepy. I

was originally on 25mg, which I took at night so I didn't really notice it.

But then my GP upped it to 50mg, and I wouldn't start to feel AWAKE until the

following evening. When I stopped the Vioxx, that went away... Weird but

true!

For any of you who aren't currently on medication (other than pain related

like NSAIDS), but are fatigued, I encourage you to see your Dr. I fought

seeing the dr for a long time over fatigue issues -- I didn't want to be

viewed as a whiner. But when it got to the point that I couldn't carry on

normal daily life (making dinner, making love, making anything but the

absolute minimum of daily life) I went to the doc. I was honest, I told him,

" I don't know what you are going to do for me. Maybe you can't do anything.

But at the very least, I will know that *I* tried to do something about it. "

I went from only Vioxx to plaq, naproxen, and zantac... and I think the plaq

is helping me. I know I have more energy now than I did -- and that is

nothing but good news.

Take care all -- love you

Kate

[Guest guest]

Graham...thank you so much!

You have actually described how I feel better than I was able to!!!

Everything you said (except I can't nap!) is so the same!!

Appreciate your comments so much!

Your friend, tricia

Re: " how many of you?? " "

> Hi Tricia,

>

> I know exactly what you mean. I think I might now be in remission

> (although I don't dare say it out loud yet!) as I no longer get the high

> temps etc. Most of my joints have returned to their normal state

(fingers,

> wrists, elbows, shoulders, neck, back, feet) although I'm left with damage

> to both hips and knees necessitating replacement of one or more of them.

My

> blood work for the first time in 3 years has returned to normal levels,

> e.g. ESR which has never fallen below 40 and often been over 140 (which is

> where they stop counting!) is now down at 4 - so I consider the disease to

> be under control.

>

> Yet every morning (or afternoon) I wake up I feel like I've been run over

> by a truck. Waking up and getting out of bed is a HUGE effort, but once

> I'm up and moving I feel OK - I start every day feeling that I can't

> possibly do anything! Like you, I'm not looking for pity - I'm a positive

> " can do " type person, but this is the struggle I have every day. Once I'm

> up I feel tired all the time, everything is an effort and meals are a real

> trial as I'm never sure how food is going to be received! I have the

> strange feeling of feeling sick and hungry at the same time for most of

the

> day - I guess this is a combination of side effects from the Plaquenil,

> steroids, and Vioxx.

>

> Planning anything is a futile exercise as I never know how I'm going to

> feel from one hour to the next - I can be feeling incredibly up one minute

> and then sick as hell the next. I get the symptoms you describe - nausea,

> headaches, dizziness, clouded thoughts, hot, cold, sweaty (but no fevers),

> weary, zombie like (good description), all over background ache,

>

> Yet when it comes to the evening, despite feeling fatigued, I'm not in the

> least bit tired - I have on quite a few occasions not bothered even going

> to bed for 2 or 3 days. I have noticed that I often get very tired after

> eating and cannot resist having a 10 min nap after which I feel fine

again.

>

> I'm fortunate enough to have an understanding employer that has allowed me

> to work from home and my colleagues are now use to receiving emails from

me

> at strange times during the day and night!

>

> Like you, I find it reassuring to know that others have the same symptoms

> as I, as I was beginning to think that I'd just become lazy - I've never

> been a lazy person and find it very frustrating that my body won't do what

> I tell it!

>

> best wishes,

>

> Graham.

>

>

>

> At 17:00 24/11/2001, you wrote:

> >Good day to all Stilligans out there!

> >

> >I have a question...How many of you..feel that you have the disease

> >under control, " yet " just don't feel well most of the time???

> >

> >Although I have had several " good " days since taking the MTX last

October,

> >(before that I felt sick almost *all* the time..day in and day out for

way too

> >many years!) Most days I feel just not well. Do any of you feel this

way???

> >

> >Here are some of the ways I will feel..and sometimes it's just for a few

> >minutes.

> >Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary,

zombie,

> >pain in one place or another...etc.

> >

> >I don't want it to sound like I'm on the " Pity Pot, because I know many

of

> >you have

> >it much worse...But, I have been wondering about this for some time, and

> >now I am

> >asking.

> >

> >Also...I can wake up in the morning, and feel like it is surely going to

> >be my last day on

> >earth, and then ...just like that!! Feeling like a new person! Is this

> >the way it works with

> >this dragon??? Or am I still the " odd one out?? "

> >

> >Appreciating all of your comments ahead of time!!!

> >

> >Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

> >30th!!!!!! Can't

> >hardly wait!! My hubby and I are going North for a few days, and have

> >arranged to meet

> >Tom on the way. Tom...if you read this...I am *really* looking forward to

> >meeting you!!!!!

> >

> >Your Stills friend, Tricia

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Graham...thank you so much!

You have actually described how I feel better than I was able to!!!

Everything you said (except I can't nap!) is so the same!!

Appreciate your comments so much!

Your friend, tricia

Re: " how many of you?? " "

> Hi Tricia,

>

> I know exactly what you mean. I think I might now be in remission

> (although I don't dare say it out loud yet!) as I no longer get the high

> temps etc. Most of my joints have returned to their normal state

(fingers,

> wrists, elbows, shoulders, neck, back, feet) although I'm left with damage

> to both hips and knees necessitating replacement of one or more of them.

My

> blood work for the first time in 3 years has returned to normal levels,

> e.g. ESR which has never fallen below 40 and often been over 140 (which is

> where they stop counting!) is now down at 4 - so I consider the disease to

> be under control.

>

> Yet every morning (or afternoon) I wake up I feel like I've been run over

> by a truck. Waking up and getting out of bed is a HUGE effort, but once

> I'm up and moving I feel OK - I start every day feeling that I can't

> possibly do anything! Like you, I'm not looking for pity - I'm a positive

> " can do " type person, but this is the struggle I have every day. Once I'm

> up I feel tired all the time, everything is an effort and meals are a real

> trial as I'm never sure how food is going to be received! I have the

> strange feeling of feeling sick and hungry at the same time for most of

the

> day - I guess this is a combination of side effects from the Plaquenil,

> steroids, and Vioxx.

>

> Planning anything is a futile exercise as I never know how I'm going to

> feel from one hour to the next - I can be feeling incredibly up one minute

> and then sick as hell the next. I get the symptoms you describe - nausea,

> headaches, dizziness, clouded thoughts, hot, cold, sweaty (but no fevers),

> weary, zombie like (good description), all over background ache,

>

> Yet when it comes to the evening, despite feeling fatigued, I'm not in the

> least bit tired - I have on quite a few occasions not bothered even going

> to bed for 2 or 3 days. I have noticed that I often get very tired after

> eating and cannot resist having a 10 min nap after which I feel fine

again.

>

> I'm fortunate enough to have an understanding employer that has allowed me

> to work from home and my colleagues are now use to receiving emails from

me

> at strange times during the day and night!

>

> Like you, I find it reassuring to know that others have the same symptoms

> as I, as I was beginning to think that I'd just become lazy - I've never

> been a lazy person and find it very frustrating that my body won't do what

> I tell it!

>

> best wishes,

>

> Graham.

>

>

>

> At 17:00 24/11/2001, you wrote:

> >Good day to all Stilligans out there!

> >

> >I have a question...How many of you..feel that you have the disease

> >under control, " yet " just don't feel well most of the time???

> >

> >Although I have had several " good " days since taking the MTX last

October,

> >(before that I felt sick almost *all* the time..day in and day out for

way too

> >many years!) Most days I feel just not well. Do any of you feel this

way???

> >

> >Here are some of the ways I will feel..and sometimes it's just for a few

> >minutes.

> >Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary,

zombie,

> >pain in one place or another...etc.

> >

> >I don't want it to sound like I'm on the " Pity Pot, because I know many

of

> >you have

> >it much worse...But, I have been wondering about this for some time, and

> >now I am

> >asking.

> >

> >Also...I can wake up in the morning, and feel like it is surely going to

> >be my last day on

> >earth, and then ...just like that!! Feeling like a new person! Is this

> >the way it works with

> >this dragon??? Or am I still the " odd one out?? "

> >

> >Appreciating all of your comments ahead of time!!!

> >

> >Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

> >30th!!!!!! Can't

> >hardly wait!! My hubby and I are going North for a few days, and have

> >arranged to meet

> >Tom on the way. Tom...if you read this...I am *really* looking forward to

> >meeting you!!!!!

> >

> >Your Stills friend, Tricia

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

Graham...thank you so much!

You have actually described how I feel better than I was able to!!!

Everything you said (except I can't nap!) is so the same!!

Appreciate your comments so much!

Your friend, tricia

Re: " how many of you?? " "

> Hi Tricia,

>

> I know exactly what you mean. I think I might now be in remission

> (although I don't dare say it out loud yet!) as I no longer get the high

> temps etc. Most of my joints have returned to their normal state

(fingers,

> wrists, elbows, shoulders, neck, back, feet) although I'm left with damage

> to both hips and knees necessitating replacement of one or more of them.

My

> blood work for the first time in 3 years has returned to normal levels,

> e.g. ESR which has never fallen below 40 and often been over 140 (which is

> where they stop counting!) is now down at 4 - so I consider the disease to

> be under control.

>

> Yet every morning (or afternoon) I wake up I feel like I've been run over

> by a truck. Waking up and getting out of bed is a HUGE effort, but once

> I'm up and moving I feel OK - I start every day feeling that I can't

> possibly do anything! Like you, I'm not looking for pity - I'm a positive

> " can do " type person, but this is the struggle I have every day. Once I'm

> up I feel tired all the time, everything is an effort and meals are a real

> trial as I'm never sure how food is going to be received! I have the

> strange feeling of feeling sick and hungry at the same time for most of

the

> day - I guess this is a combination of side effects from the Plaquenil,

> steroids, and Vioxx.

>

> Planning anything is a futile exercise as I never know how I'm going to

> feel from one hour to the next - I can be feeling incredibly up one minute

> and then sick as hell the next. I get the symptoms you describe - nausea,

> headaches, dizziness, clouded thoughts, hot, cold, sweaty (but no fevers),

> weary, zombie like (good description), all over background ache,

>

> Yet when it comes to the evening, despite feeling fatigued, I'm not in the

> least bit tired - I have on quite a few occasions not bothered even going

> to bed for 2 or 3 days. I have noticed that I often get very tired after

> eating and cannot resist having a 10 min nap after which I feel fine

again.

>

> I'm fortunate enough to have an understanding employer that has allowed me

> to work from home and my colleagues are now use to receiving emails from

me

> at strange times during the day and night!

>

> Like you, I find it reassuring to know that others have the same symptoms

> as I, as I was beginning to think that I'd just become lazy - I've never

> been a lazy person and find it very frustrating that my body won't do what

> I tell it!

>

> best wishes,

>

> Graham.

>

>

>

> At 17:00 24/11/2001, you wrote:

> >Good day to all Stilligans out there!

> >

> >I have a question...How many of you..feel that you have the disease

> >under control, " yet " just don't feel well most of the time???

> >

> >Although I have had several " good " days since taking the MTX last

October,

> >(before that I felt sick almost *all* the time..day in and day out for

way too

> >many years!) Most days I feel just not well. Do any of you feel this

way???

> >

> >Here are some of the ways I will feel..and sometimes it's just for a few

> >minutes.

> >Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary,

zombie,

> >pain in one place or another...etc.

> >

> >I don't want it to sound like I'm on the " Pity Pot, because I know many

of

> >you have

> >it much worse...But, I have been wondering about this for some time, and

> >now I am

> >asking.

> >

> >Also...I can wake up in the morning, and feel like it is surely going to

> >be my last day on

> >earth, and then ...just like that!! Feeling like a new person! Is this

> >the way it works with

> >this dragon??? Or am I still the " odd one out?? "

> >

> >Appreciating all of your comments ahead of time!!!

> >

> >Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the

> >30th!!!!!! Can't

> >hardly wait!! My hubby and I are going North for a few days, and have

> >arranged to meet

> >Tom on the way. Tom...if you read this...I am *really* looking forward to

> >meeting you!!!!!

> >

> >Your Stills friend, Tricia

>

>

>

> Visit the Still's Disease Message Board

> http://disc.server.com/Indices/148599.html

>

>

[Guest guest]

In a message dated 11/25/01 7:00:30 PM Eastern Standard Time,

ardhachandra@... writes:

> I know ma feels like she has everything under control - but there is not a

> day goes by without her being achy. She never gets sick though. We will

> have a cold keep running through the house back and forth and she will

> never get it. She kisses the kids and lets them eat with her when she is

> sick and we are so careful not to let them share. We always get it but

> never her

Hi gang,

I've noticed this about myself too most recently. Ed, both of my sons and

one of my sons, girlfriend got sick with some type of cold/flu like thing. I

didn't catch it either. That was a first for me because I used to catch

everything.

Now when I do get sick, I get sick and no one gets it from me. Then we know

it is the SD or one of my other maladies. I wish the pain in my joints

would go away. Even when they aren't swollen, they still hurt like you know

what and fatigue seems to always be there regardless.

For example, I will reserve all of my energy so I can attend a dog show. I

make it through the dog show and then afterwards, I collapse for several

days. My biggest dilemma these days are my blasted legs. I sure fall a lot.

I fell at the last dog show with my two Bichons and hit the ground with my

knees. Sure did manage to wrench my back, my knees immediately swelled and

I'm still dealing with it. I'm a lot better and thank God my dogs didn't get

hurt. On my way down, I was holding on to them for dear life. Oh and I

proud to tell you all that Baker has his first championed son! I'm so proud.

That's one champion and 5 more to go to become a top producer and 11 more to

get in the American Manchester Terrier Club Hall of Fame. He will be 3 years

old next month. I do believe he will make it. LOL, I'm a proud grand ma.

Well, that's it on this end. I'm hanging in there.

Much love,

Terry

[Guest guest]

In a message dated 11/25/01 7:00:30 PM Eastern Standard Time,

ardhachandra@... writes:

> I know ma feels like she has everything under control - but there is not a

> day goes by without her being achy. She never gets sick though. We will

> have a cold keep running through the house back and forth and she will

> never get it. She kisses the kids and lets them eat with her when she is

> sick and we are so careful not to let them share. We always get it but

> never her

Hi gang,

I've noticed this about myself too most recently. Ed, both of my sons and

one of my sons, girlfriend got sick with some type of cold/flu like thing. I

didn't catch it either. That was a first for me because I used to catch

everything.

Now when I do get sick, I get sick and no one gets it from me. Then we know

it is the SD or one of my other maladies. I wish the pain in my joints

would go away. Even when they aren't swollen, they still hurt like you know

what and fatigue seems to always be there regardless.

For example, I will reserve all of my energy so I can attend a dog show. I

make it through the dog show and then afterwards, I collapse for several

days. My biggest dilemma these days are my blasted legs. I sure fall a lot.

I fell at the last dog show with my two Bichons and hit the ground with my

knees. Sure did manage to wrench my back, my knees immediately swelled and

I'm still dealing with it. I'm a lot better and thank God my dogs didn't get

hurt. On my way down, I was holding on to them for dear life. Oh and I

proud to tell you all that Baker has his first championed son! I'm so proud.

That's one champion and 5 more to go to become a top producer and 11 more to

get in the American Manchester Terrier Club Hall of Fame. He will be 3 years

old next month. I do believe he will make it. LOL, I'm a proud grand ma.

Well, that's it on this end. I'm hanging in there.

Much love,

Terry

[Guest guest]

In a message dated 11/25/01 7:00:30 PM Eastern Standard Time,

ardhachandra@... writes:

> I know ma feels like she has everything under control - but there is not a

> day goes by without her being achy. She never gets sick though. We will

> have a cold keep running through the house back and forth and she will

> never get it. She kisses the kids and lets them eat with her when she is

> sick and we are so careful not to let them share. We always get it but

> never her

Hi gang,

I've noticed this about myself too most recently. Ed, both of my sons and

one of my sons, girlfriend got sick with some type of cold/flu like thing. I

didn't catch it either. That was a first for me because I used to catch

everything.

Now when I do get sick, I get sick and no one gets it from me. Then we know

it is the SD or one of my other maladies. I wish the pain in my joints

would go away. Even when they aren't swollen, they still hurt like you know

what and fatigue seems to always be there regardless.

For example, I will reserve all of my energy so I can attend a dog show. I

make it through the dog show and then afterwards, I collapse for several

days. My biggest dilemma these days are my blasted legs. I sure fall a lot.

I fell at the last dog show with my two Bichons and hit the ground with my

knees. Sure did manage to wrench my back, my knees immediately swelled and

I'm still dealing with it. I'm a lot better and thank God my dogs didn't get

hurt. On my way down, I was holding on to them for dear life. Oh and I

proud to tell you all that Baker has his first championed son! I'm so proud.

That's one champion and 5 more to go to become a top producer and 11 more to

get in the American Manchester Terrier Club Hall of Fame. He will be 3 years

old next month. I do believe he will make it. LOL, I'm a proud grand ma.

Well, that's it on this end. I'm hanging in there.

Much love,

Terry

[Guest guest]

Hi there! I was gone for a couple of days and you probably got answers to your

question, but I have to throw my 2 cents in. Although I am doing pretty well

with the stills, especially in comparison to others on this board, I almost

never feel " good " ~ like a normal person, like I used to so long ago. I

excercise and do most everything that I need to do; I really shouldn't complain

but I'm always tired, etc. etc. It is difficult for others to understand

because they can't see it. I don't want to sound like a hypochondriac! So...as

many others do, I try not to talk about it. It feels good to get that off my

chest!!

Dennis & Tricia Looker wrote: Good day to all Stilligans

out there!

I have a question...How many of you..feel that you have the disease

under control, " yet " just don't feel well most of the time???

Although I have had several " good " days since taking the MTX last October,

(before that I felt sick almost *all* the time..day in and day out for way too

many years!) Most days I feel just not well. Do any of you feel this way???

Here are some of the ways I will feel..and sometimes it's just for a few

minutes.

Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary, zombie,

pain in one place or another...etc.

I don't want it to sound like I'm on the " Pity Pot, because I know many of you

have

it much worse...But, I have been wondering about this for some time, and now I

am

asking.

Also...I can wake up in the morning, and feel like it is surely going to be my

last day on

earth, and then ...just like that!! Feeling like a new person! Is this the way

it works with

this dragon??? Or am I still the " odd one out?? "

Appreciating all of your comments ahead of time!!!

Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the 30th!!!!!!

Can't

hardly wait!! My hubby and I are going North for a few days, and have arranged

to meet

Tom on the way. Tom...if you read this...I am *really* looking forward to

meeting you!!!!!

Your Stills friend, Tricia

[Guest guest]

Hi there! I was gone for a couple of days and you probably got answers to your

question, but I have to throw my 2 cents in. Although I am doing pretty well

with the stills, especially in comparison to others on this board, I almost

never feel " good " ~ like a normal person, like I used to so long ago. I

excercise and do most everything that I need to do; I really shouldn't complain

but I'm always tired, etc. etc. It is difficult for others to understand

because they can't see it. I don't want to sound like a hypochondriac! So...as

many others do, I try not to talk about it. It feels good to get that off my

chest!!

Dennis & Tricia Looker wrote: Good day to all Stilligans

out there!

I have a question...How many of you..feel that you have the disease

under control, " yet " just don't feel well most of the time???

Although I have had several " good " days since taking the MTX last October,

(before that I felt sick almost *all* the time..day in and day out for way too

many years!) Most days I feel just not well. Do any of you feel this way???

Here are some of the ways I will feel..and sometimes it's just for a few

minutes.

Headachey, dizzy, weak, sweaty, cold, stuffed up, nauseated, weary, zombie,

pain in one place or another...etc.

I don't want it to sound like I'm on the " Pity Pot, because I know many of you

have

it much worse...But, I have been wondering about this for some time, and now I

am

asking.

Also...I can wake up in the morning, and feel like it is surely going to be my

last day on

earth, and then ...just like that!! Feeling like a new person! Is this the way

it works with

this dragon??? Or am I still the " odd one out?? "

Appreciating all of your comments ahead of time!!!

Oh...by the way..guess what??? I get to meet Tom Kufahl on Friday the 30th!!!!!!

Can't

hardly wait!! My hubby and I are going North for a few days, and have arranged

to meet

Tom on the way. Tom...if you read this...I am *really* looking forward to

meeting you!!!!!

Your Stills friend, Tricia