Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Congrats, Cara! I would be frustrated, too, but keep in mind he'd surely be getting worse out of the casts. Hoping for great results on your next trip, zero in cast is awsome!!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) To: infantile_scoliosis Sent: Tue, November 3, 2009 5:37:51 PMSubject: Fourth cast is on... Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 Congrats, Cara! I would be frustrated, too, but keep in mind he'd surely be getting worse out of the casts. Hoping for great results on your next trip, zero in cast is awsome!!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) To: infantile_scoliosis Sent: Tue, November 3, 2009 5:37:51 PMSubject: Fourth cast is on... Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I'm sorry that is so frustrating. Maybe his rotation is getting better or his standing x-rays and getting better. Our doctor told us that it is very normal to have casts where there is no improvement. Jenn Mommy to Cole, 22 months, 3rd cast from Rochester, 18 degrees out of cast down from 47, chiari malformation > > Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery! > I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!! > For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days! > Well...I am exhausted so I am off to bed! > > Cara > Mom to Max > Chicago Shriners > In cast #4, 0 degrees > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I'm sorry that is so frustrating. Maybe his rotation is getting better or his standing x-rays and getting better. Our doctor told us that it is very normal to have casts where there is no improvement. Jenn Mommy to Cole, 22 months, 3rd cast from Rochester, 18 degrees out of cast down from 47, chiari malformation > > Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery! > I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!! > For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days! > Well...I am exhausted so I am off to bed! > > Cara > Mom to Max > Chicago Shriners > In cast #4, 0 degrees > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 4, 2009 Report Share Posted November 4, 2009 I'm sorry that is so frustrating. Maybe his rotation is getting better or his standing x-rays and getting better. Our doctor told us that it is very normal to have casts where there is no improvement. Jenn Mommy to Cole, 22 months, 3rd cast from Rochester, 18 degrees out of cast down from 47, chiari malformation > > Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery! > I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!! > For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days! > Well...I am exhausted so I am off to bed! > > Cara > Mom to Max > Chicago Shriners > In cast #4, 0 degrees > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Cara, Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Cara, Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, I totally know how you feel. I had several panic attacks before my son got his 1st cast. I know its easier to think of it happening to another child and the appt makes it all so real. But you will get thru it i promise! I know that doesnt help much but you really will. And it will become life as normal. Maybe a new "normal" but normal. Take a deep breath. It will all be as it should. You are doing the next right thing for your child and you are a great mom! From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, I totally know how you feel. I had several panic attacks before my son got his 1st cast. I know its easier to think of it happening to another child and the appt makes it all so real. But you will get thru it i promise! I know that doesnt help much but you really will. And it will become life as normal. Maybe a new "normal" but normal. Take a deep breath. It will all be as it should. You are doing the next right thing for your child and you are a great mom! From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 It is very overwhelming and scary at first. But life will go back to "normal" and you will just get used to the idea that your child has to wear this lifesaving cast. It's an adjustment but the kids bounce back pretty quickly. It is so wonderful to have these parents on this group and they all do understand what you are going through. You are not alone. Good luck Friday and keep us posted. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Wed, November 4, 2009 7:34:35 PMSubject: Re: Fourth cast is on... Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 It is very overwhelming and scary at first. But life will go back to "normal" and you will just get used to the idea that your child has to wear this lifesaving cast. It's an adjustment but the kids bounce back pretty quickly. It is so wonderful to have these parents on this group and they all do understand what you are going through. You are not alone. Good luck Friday and keep us posted. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Wed, November 4, 2009 7:34:35 PMSubject: Re: Fourth cast is on... Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 It is very overwhelming and scary at first. But life will go back to "normal" and you will just get used to the idea that your child has to wear this lifesaving cast. It's an adjustment but the kids bounce back pretty quickly. It is so wonderful to have these parents on this group and they all do understand what you are going through. You are not alone. Good luck Friday and keep us posted. Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Wed, November 4, 2009 7:34:35 PMSubject: Re: Fourth cast is on... Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, Its took me almost a year to be able to even say Infantile Scoliosis without tears in my eyes or my voice cracking, but believe me like said it will get to be "normal" after a while! Speaking as someone who's had panic attacks since she was 17 you will learn to cope with them, I promise! With her first cast Nora and I had to stay for 3 nights so that they could monitor her prior to the casting and my husband didn't get there until the night before. I was a total wreck when he got there and had never been happier to see a person in my lifetime! Since then it doesn't bother me as much, just concentrate on and you will be okay! PROMISE!!! From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, Its took me almost a year to be able to even say Infantile Scoliosis without tears in my eyes or my voice cracking, but believe me like said it will get to be "normal" after a while! Speaking as someone who's had panic attacks since she was 17 you will learn to cope with them, I promise! With her first cast Nora and I had to stay for 3 nights so that they could monitor her prior to the casting and my husband didn't get there until the night before. I was a total wreck when he got there and had never been happier to see a person in my lifetime! Since then it doesn't bother me as much, just concentrate on and you will be okay! PROMISE!!! From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, Its took me almost a year to be able to even say Infantile Scoliosis without tears in my eyes or my voice cracking, but believe me like said it will get to be "normal" after a while! Speaking as someone who's had panic attacks since she was 17 you will learn to cope with them, I promise! With her first cast Nora and I had to stay for 3 nights so that they could monitor her prior to the casting and my husband didn't get there until the night before. I was a total wreck when he got there and had never been happier to see a person in my lifetime! Since then it doesn't bother me as much, just concentrate on and you will be okay! PROMISE!!! From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, It is so consuming, this is huge life stuff. What is bigger than your child having a serious health problem? You are doing the very best thing for your child, and the waiting and getting to that first appointment is (sometimes) the hardest part. It's like a mountain you must climb, with a a huge build-up, and then being there is surreal (it was for me) and coming home-- it's all such an emotional journey. I can promise it is very do-able, and life does just become pretty normal, after time. You love your child even more. Just one little step at a time, you can do it! Breathe. There are great gifts that can come with all of this, too, we wouldn't have chosen it- but it has truly enriched our lives. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21) To: infantile_scoliosis Sent: Wed, November 4, 2009 5:34:35 PMSubject: Re: Fourth cast is on... Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: [infantile_scoliosi s] Fourth cast is on...To: infantile_scoliosis @yahoogroups. comDate: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie- You are a great mom as well! Thanks for the kind words. You will do great on Friday and you just need to keep telling yourself you are doing the best thing for your child. Getting a treatment plan is daunting because you have to admit that something has to be done! It is so hard, but you will do fantastic! I told Amy today that we all need to get the kids together and make a monthly thing of it! Also, just think if you get casted sometime next week you will be on the same schedule as me, amy and chrissy and we can all be casted on the same day! Keep your head up and know we are always here to help you out! Cara > > > >From: Cara <alexmaxmomatt (DOT) net> > >Subject: [infantile_scoliosi s] Fourth cast is on... > >To: infantile_scoliosis @yahoogroups. com > >Date: Wednesday, November 4, 2009, 1:37 AM > > > > > >Â > >Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery! > >I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!! > >For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days! > >Well...I am exhausted so I am off to bed! > > > >Cara > >Mom to Max > >Chicago Shriners > >In cast #4, 0 degrees > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie- You are a great mom as well! Thanks for the kind words. You will do great on Friday and you just need to keep telling yourself you are doing the best thing for your child. Getting a treatment plan is daunting because you have to admit that something has to be done! It is so hard, but you will do fantastic! I told Amy today that we all need to get the kids together and make a monthly thing of it! Also, just think if you get casted sometime next week you will be on the same schedule as me, amy and chrissy and we can all be casted on the same day! Keep your head up and know we are always here to help you out! Cara > > > >From: Cara <alexmaxmomatt (DOT) net> > >Subject: [infantile_scoliosi s] Fourth cast is on... > >To: infantile_scoliosis @yahoogroups. com > >Date: Wednesday, November 4, 2009, 1:37 AM > > > > > >Â > >Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery! > >I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!! > >For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days! > >Well...I am exhausted so I am off to bed! > > > >Cara > >Mom to Max > >Chicago Shriners > >In cast #4, 0 degrees > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, I will write more later but want to tell you I get it and was at our consult today only to be told they can ( and will) tomorrow! It is such a journey, but we will all grow... I truly believe!Hang in there. Wish we weren't missing each other by one day!ChrissyMom to ( 20 mo)1st cast tomorrow Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, I will write more later but want to tell you I get it and was at our consult today only to be told they can ( and will) tomorrow! It is such a journey, but we will all grow... I truly believe!Hang in there. Wish we weren't missing each other by one day!ChrissyMom to ( 20 mo)1st cast tomorrow Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 5, 2009 Report Share Posted November 5, 2009 Catie, I will write more later but want to tell you I get it and was at our consult today only to be told they can ( and will) tomorrow! It is such a journey, but we will all grow... I truly believe!Hang in there. Wish we weren't missing each other by one day!ChrissyMom to ( 20 mo)1st cast tomorrow Attempt number two to post! I have happy fingers tonight apparently. I am so glad to hear you ,Amy, Max and Makenna were able to spend some time together. I hated to hear that Max was having pain on the way home. He is in the best hands with such a wonderful mom! We will be praying for he and Makenna in the days to come. Today I started having panic attacks about our appointment on Friday. I know that this is a consultation and this is exactly where we have been dreaming we were, but I think it makes it all the more real. Up until this Friday 's curve was a curve with a diagnosis and a wait and watch because it could self correct. I know that once he is seen at Shriners I can no longer talk about his condition as if it were happening to another child. I guess this is just finally hitting me that it is really happening. I know that sounds so stupid. I don't think other people who haven't been through this can understand how all consuming this is for the moms. I applaud all of you who have been through it and shared your wisdom. It is so helpful to have a place to go that understands and doesn't get tired of listening! We are off to pack! Catie, 's mom (Chicago Bound Tomorrow!) From: Cara <alexmaxmomatt (DOT) net>Subject: Fourth cast is on...To: infantile_scoliosis Date: Wednesday, November 4, 2009, 1:37 AM Well...we are home from Chicago with cast #4 on Max! I was very discouraged with his numbers, he was still at 24 out of the cast and I wish I would have asked why the number was not going down when he has been at 0 the last three casts? I am trying to tell myself that it will happen, just give it time. I think I am so upset because I honestly did not feel much of a curve and thought for sure he would not be casted today, I was floored when I was told of his numbers after surgery!I will have to say the highlight of my day today was meeting little Makenna, Amy and her husband! They are so great and I am sure they will do fantastic! I love that we live close so we can get the kids together to play. I think we should get , and Catie in on this as well!!For the last 1 1/2 of our trip Max cried. He would cry out that something hurt and it was not just a cry of tiredness. Needless to say we will keep a close eye on this for the next couple of days!Well...I am exhausted so I am off to bed!CaraMom to MaxChicago ShrinersIn cast #4, 0 degrees Quote Link to comment Share on other sites More sharing options...
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