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Hi all,

We got the results of all the labwork back (except the Meridian

Valley allergy screen) in preparation for our first appointment with

Dr. Goldberg next week. My son's Pediatrician said EVERYTHING looks

completely normal. He is curious about what Dr. Goldberg is going to

say. In fact, he made a comment along the lines of " it will be great

if he can work a miracle " which I guess means there is nothing for

Dr. G to work off of.

It seems like some of you have mentioned a similar beginning. Can

anyone who was in the same boat please comment? I guess I'm getting

nervous as we approach the visit.

thanks!

Timary

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Hi Timary,

Sometimes they don't have alot of markers in the beginning. My older son

had similar labs. Considering he had really bad psoriasis at the time (

it's thought to be an autoimmune disease), you'd think there would be a

bunch of markers showing up.

He had obvious improvements from the antivirals and antifungals, so there's

no question they were an issue. Besides helping pull him out of the CFS

fog, his skin also responded to treatment. This was something that our

regular doc and the skin specialist we went to hadn't been able to do.

Part of the problem is that we don't have the ability to check what

cytokines, chemokines, etc. they're expressing. Now that all the research

is cytokines, cytokines, cytokines,.......one of these days that's what the

labs will be geared towards.

I'll try to post some viral things I've been collecting. There's some

pretty interesting research on how viruses and other pathogens are able to

outsmart and alter our immune systems. I've posted alot of research

abstracts on cytokine abnormalities and neurological disorders. Many with

viral connections, and some without.

Cheryl

----Original Message Follows----

From: " timaryp " <timaryp@...>

Reply-

Subject: first visit

Date: Thu, 05 Jun 2003 22:23:46 -0000

Hi all,

We got the results of all the labwork back (except the Meridian

Valley allergy screen) in preparation for our first appointment with

Dr. Goldberg next week. My son's Pediatrician said EVERYTHING looks

completely normal. He is curious about what Dr. Goldberg is going to

say. In fact, he made a comment along the lines of " it will be great

if he can work a miracle " which I guess means there is nothing for

Dr. G to work off of.

It seems like some of you have mentioned a similar beginning. Can

anyone who was in the same boat please comment? I guess I'm getting

nervous as we approach the visit.

thanks!

Timary

Responsibility for the content of this message lies strictly with

the original author, and is not necessarily endorsed by or the

opinion of the Research Institute.

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That was the first time he'd checked HHV6 since December on her. We have seen

obvious improvements on antivirals, antifungals, and the right SSRI. :-) We

still have a ways to go, but are pleased with what we're seeing. She's now

asking us to pray for specific people in her life. That would have been an

impossibility six months ago. Yesterday she popped out with the phrase, Use

your imagination. She couldn't have pronounced imagination much less used a

three word phrase months ago. Last night she wrote her name. She's still

having some hand weakness, but nowhere near as much. I'll pray for ya'll on

your visit, Timary. Take care. Shona

>

> Wrom: MSFDULHPQQWOYIYZUNNYCGPKYLEJGD

> Date: 2003/06/06 Fri AM 06:39:22 EDT

>

> Subject: Re: first visit

>

>

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  • 5 years later...
Guest guest

It's kind of hard to say for sure, not all specialists do things the

same way. Some take measurements, ours did not. He just asked a bunch

of questions (medical history) and examined my son and then offered

his recommendation. I would suggest for your own benefit, to make a

list of questions you would like to ask, it's very easy to forget

everything once you're in there. I thought we had a list of examples

posted to our Files section, but I can't seem to find it now. Anyway,

it helps to have a cheat sheet with you in case you forget to ask

something.

Please let us know how it goes.

Jake-22m (tort resolved/rt plagio/DOCBand #2 8 weeks)

Jordan-4

>

> Hi all!

> Thanks so much for all the info I have received from everyone so

far.

> We have our first visit with the plastic surgeon this Friday. We

have

> been referred to UAB (Birmingham, AL). What can I expect from this

> first visit?

> Thanks,

>

>

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