Re: Introducing my daughter

[Guest guest]

Hi ,

I'm actually from Ottawa, Canada. My son was diagnosed at 7 months (March 2009). He is now 16 months and in his second cast (to be changed this Friday).

I got the same response from my doctor the first time. He had experience doing it, but said "we don't do that here, that's more common in Europe". I told him about the success that casting was having and he started doing research. Long story short, we are doing serial casting fallowing Mehta method and he is getting good correction IN CAST. We still don't know what he is out of cast, as the doctor doesn't want to use too much radiation so soon (makes some sense, although I want to know!).

There is a member of this board whose son is being casted at Sick Kids. Hopefully you can get in contact too.

I'm so glad you finally found somebody who can do this for you. The ideal age is between 1 and 2, but many kids have had success after 3, and many don't have it even before two. So it depends on your child.

There are many people in this board with more experience, but we've gone through two casts already. So if you have more questions, feel free to ask and if you want to email me privately, please do.

Good luck and welcome!!

To: infantile_scoliosis Sent: Wed, December 16, 2009 12:14:22 PMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

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[Guest guest]

Hi ,

I'm actually from Ottawa, Canada. My son was diagnosed at 7 months (March 2009). He is now 16 months and in his second cast (to be changed this Friday).

I got the same response from my doctor the first time. He had experience doing it, but said "we don't do that here, that's more common in Europe". I told him about the success that casting was having and he started doing research. Long story short, we are doing serial casting fallowing Mehta method and he is getting good correction IN CAST. We still don't know what he is out of cast, as the doctor doesn't want to use too much radiation so soon (makes some sense, although I want to know!).

There is a member of this board whose son is being casted at Sick Kids. Hopefully you can get in contact too.

I'm so glad you finally found somebody who can do this for you. The ideal age is between 1 and 2, but many kids have had success after 3, and many don't have it even before two. So it depends on your child.

There are many people in this board with more experience, but we've gone through two casts already. So if you have more questions, feel free to ask and if you want to email me privately, please do.

Good luck and welcome!!

To: infantile_scoliosis Sent: Wed, December 16, 2009 12:14:22 PMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

Hi ,

I'm actually from Ottawa, Canada. My son was diagnosed at 7 months (March 2009). He is now 16 months and in his second cast (to be changed this Friday).

I got the same response from my doctor the first time. He had experience doing it, but said "we don't do that here, that's more common in Europe". I told him about the success that casting was having and he started doing research. Long story short, we are doing serial casting fallowing Mehta method and he is getting good correction IN CAST. We still don't know what he is out of cast, as the doctor doesn't want to use too much radiation so soon (makes some sense, although I want to know!).

There is a member of this board whose son is being casted at Sick Kids. Hopefully you can get in contact too.

I'm so glad you finally found somebody who can do this for you. The ideal age is between 1 and 2, but many kids have had success after 3, and many don't have it even before two. So it depends on your child.

There are many people in this board with more experience, but we've gone through two casts already. So if you have more questions, feel free to ask and if you want to email me privately, please do.

Good luck and welcome!!

To: infantile_scoliosis Sent: Wed, December 16, 2009 12:14:22 PMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

Make your browsing faster, safer, and easier with the new Internet Explorer® 8. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

Hi and welcome to Cast. I know there are some people on here from Canada that can help you out some. Partricia is going to a good Dr there and getting good results, so talk to her. But we are here to answer any questions you may have. The ideal age for Mehta casting is under 2, but you can still get results after. My son is in cast number 2 and he is 3 years old. They adjust very very quickly and much better than you think they will. It's just everyday life for them and they can do everything they did before the cast. They just cant bathe or play in sand. But the parents on here have great tips for bathing and hairwashing etc. Please ask any questions. You are a great advocate for your child and you did the right thing by questioning. It's ok to question the dr's. Joanmom to Hayden 32nd CastTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 16, 2009 11:14:22 AMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

Hi and welcome to Cast. I know there are some people on here from Canada that can help you out some. Partricia is going to a good Dr there and getting good results, so talk to her. But we are here to answer any questions you may have. The ideal age for Mehta casting is under 2, but you can still get results after. My son is in cast number 2 and he is 3 years old. They adjust very very quickly and much better than you think they will. It's just everyday life for them and they can do everything they did before the cast. They just cant bathe or play in sand. But the parents on here have great tips for bathing and hairwashing etc. Please ask any questions. You are a great advocate for your child and you did the right thing by questioning. It's ok to question the dr's. Joanmom to Hayden 32nd CastTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 16, 2009 11:14:22 AMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

Hi and welcome to Cast. I know there are some people on here from Canada that can help you out some. Partricia is going to a good Dr there and getting good results, so talk to her. But we are here to answer any questions you may have. The ideal age for Mehta casting is under 2, but you can still get results after. My son is in cast number 2 and he is 3 years old. They adjust very very quickly and much better than you think they will. It's just everyday life for them and they can do everything they did before the cast. They just cant bathe or play in sand. But the parents on here have great tips for bathing and hairwashing etc. Please ask any questions. You are a great advocate for your child and you did the right thing by questioning. It's ok to question the dr's. Joanmom to Hayden 32nd CastTreated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 16, 2009 11:14:22 AMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

,

I am going to fwd something Heidi wrote as to what to expect the 1st cast day and beyond. Its a great resource tool. Heidi, i hope you dont mind

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

,

I am going to fwd something Heidi wrote as to what to expect the 1st cast day and beyond. Its a great resource tool. Heidi, i hope you dont mind

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

,

I am going to fwd something Heidi wrote as to what to expect the 1st cast day and beyond. Its a great resource tool. Heidi, i hope you dont mind

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

I just joined the group as well, we get our first cast next Tuesday, best of luck to you. and JimmyMommy and daddy to Tryston, 4, Drue, 13 monthsDrue's first cast Dec. 22St. Louis Children's Hospital

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

I just joined the group as well, we get our first cast next Tuesday, best of luck to you. and JimmyMommy and daddy to Tryston, 4, Drue, 13 monthsDrue's first cast Dec. 22St. Louis Children's Hospital

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

I just joined the group as well, we get our first cast next Tuesday, best of luck to you. and JimmyMommy and daddy to Tryston, 4, Drue, 13 monthsDrue's first cast Dec. 22St. Louis Children's Hospital

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 11:14 AM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

Congratulations on getting your daughter into a casting program. What

degree is your daughter at? The adjustment is different for every

child. My son, Cole has always slept well in his cast. He took about

2 weeks to completely adjust but was 80% there after a few days.

He does go to daycare. He was in a center prior to casting and I did

not feel that they 100% alleviated my concerns about him playing

outside and not playing in puddles or going in the sandbox. I do feel

like they could have handled everything else just fine. I also could

have worked with them more and I think it would have been fine. We

were able to find a neighbor with a home daycare who was able to take

him and we have had no problems at all. She has been fantastic. I

would ask to see what other types of special needs they have

accommodated, even food allergies, and see how accommodating they have

been, maybe talk to those parents to see how they feel about the

accommodations. Our provider has a son with a peanut allergy and is

very very responsive to what I need to or not to happen with Cole.

I would also start to open the dialogue with them now about what

limitations your foresee such as no water and no sand and ask them

what solutions they have for your concerns. That way you have time to

work with them on finding solutions you are happy with before hand. I

would also plan on coming in and doing a cast care demo with any staff

that will be working with your daughter. Show them how to pick her up

correctly, and change diapers and any other support you want them to

know.

Good luck,

Jenn

Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

[Guest guest]

Congratulations on getting your daughter into a casting program. What

degree is your daughter at? The adjustment is different for every

child. My son, Cole has always slept well in his cast. He took about

2 weeks to completely adjust but was 80% there after a few days.

He does go to daycare. He was in a center prior to casting and I did

not feel that they 100% alleviated my concerns about him playing

outside and not playing in puddles or going in the sandbox. I do feel

like they could have handled everything else just fine. I also could

have worked with them more and I think it would have been fine. We

were able to find a neighbor with a home daycare who was able to take

him and we have had no problems at all. She has been fantastic. I

would ask to see what other types of special needs they have

accommodated, even food allergies, and see how accommodating they have

been, maybe talk to those parents to see how they feel about the

accommodations. Our provider has a son with a peanut allergy and is

very very responsive to what I need to or not to happen with Cole.

I would also start to open the dialogue with them now about what

limitations your foresee such as no water and no sand and ask them

what solutions they have for your concerns. That way you have time to

work with them on finding solutions you are happy with before hand. I

would also plan on coming in and doing a cast care demo with any staff

that will be working with your daughter. Show them how to pick her up

correctly, and change diapers and any other support you want them to

know.

Good luck,

Jenn

Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

[Guest guest]

Congratulations on getting your daughter into a casting program. What

degree is your daughter at? The adjustment is different for every

child. My son, Cole has always slept well in his cast. He took about

2 weeks to completely adjust but was 80% there after a few days.

He does go to daycare. He was in a center prior to casting and I did

not feel that they 100% alleviated my concerns about him playing

outside and not playing in puddles or going in the sandbox. I do feel

like they could have handled everything else just fine. I also could

have worked with them more and I think it would have been fine. We

were able to find a neighbor with a home daycare who was able to take

him and we have had no problems at all. She has been fantastic. I

would ask to see what other types of special needs they have

accommodated, even food allergies, and see how accommodating they have

been, maybe talk to those parents to see how they feel about the

accommodations. Our provider has a son with a peanut allergy and is

very very responsive to what I need to or not to happen with Cole.

I would also start to open the dialogue with them now about what

limitations your foresee such as no water and no sand and ask them

what solutions they have for your concerns. That way you have time to

work with them on finding solutions you are happy with before hand. I

would also plan on coming in and doing a cast care demo with any staff

that will be working with your daughter. Show them how to pick her up

correctly, and change diapers and any other support you want them to

know.

Good luck,

Jenn

Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

[Guest guest]

Hi Jenn, Thanks for the input. I didn't realize that sand was out. Where do

you learn all about this? Also, a cast care demo? I have no idea how to take

care of a cast. I was curious though if there are any special procedures to

pick up a casted child. Any tips would be great. My daughters curve is in the

40's lying down but in the 70's standing up. Did I mention how nervous I am?

My daughter loves to jump on the bed and dive onto our couch from the bay

window, climb climbers and go down slides. Will she still be able to do this

stuff?

>

> Congratulations on getting your daughter into a casting program. What

> degree is your daughter at? The adjustment is different for every

> child. My son, Cole has always slept well in his cast. He took about

> 2 weeks to completely adjust but was 80% there after a few days.

>

> He does go to daycare. He was in a center prior to casting and I did

> not feel that they 100% alleviated my concerns about him playing

> outside and not playing in puddles or going in the sandbox. I do feel

> like they could have handled everything else just fine. I also could

> have worked with them more and I think it would have been fine. We

> were able to find a neighbor with a home daycare who was able to take

> him and we have had no problems at all. She has been fantastic. I

> would ask to see what other types of special needs they have

> accommodated, even food allergies, and see how accommodating they have

> been, maybe talk to those parents to see how they feel about the

> accommodations. Our provider has a son with a peanut allergy and is

> very very responsive to what I need to or not to happen with Cole.

>

> I would also start to open the dialogue with them now about what

> limitations your foresee such as no water and no sand and ask them

> what solutions they have for your concerns. That way you have time to

> work with them on finding solutions you are happy with before hand. I

> would also plan on coming in and doing a cast care demo with any staff

> that will be working with your daughter. Show them how to pick her up

> correctly, and change diapers and any other support you want them to

> know.

>

> Good luck,

> Jenn

> Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

>

[Guest guest]

Hi Jenn, Thanks for the input. I didn't realize that sand was out. Where do

you learn all about this? Also, a cast care demo? I have no idea how to take

care of a cast. I was curious though if there are any special procedures to

pick up a casted child. Any tips would be great. My daughters curve is in the

40's lying down but in the 70's standing up. Did I mention how nervous I am?

My daughter loves to jump on the bed and dive onto our couch from the bay

window, climb climbers and go down slides. Will she still be able to do this

stuff?

>

> Congratulations on getting your daughter into a casting program. What

> degree is your daughter at? The adjustment is different for every

> child. My son, Cole has always slept well in his cast. He took about

> 2 weeks to completely adjust but was 80% there after a few days.

>

> He does go to daycare. He was in a center prior to casting and I did

> not feel that they 100% alleviated my concerns about him playing

> outside and not playing in puddles or going in the sandbox. I do feel

> like they could have handled everything else just fine. I also could

> have worked with them more and I think it would have been fine. We

> were able to find a neighbor with a home daycare who was able to take

> him and we have had no problems at all. She has been fantastic. I

> would ask to see what other types of special needs they have

> accommodated, even food allergies, and see how accommodating they have

> been, maybe talk to those parents to see how they feel about the

> accommodations. Our provider has a son with a peanut allergy and is

> very very responsive to what I need to or not to happen with Cole.

>

> I would also start to open the dialogue with them now about what

> limitations your foresee such as no water and no sand and ask them

> what solutions they have for your concerns. That way you have time to

> work with them on finding solutions you are happy with before hand. I

> would also plan on coming in and doing a cast care demo with any staff

> that will be working with your daughter. Show them how to pick her up

> correctly, and change diapers and any other support you want them to

> know.

>

> Good luck,

> Jenn

> Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

>

[Guest guest]

Hi Jenn, Thanks for the input. I didn't realize that sand was out. Where do

you learn all about this? Also, a cast care demo? I have no idea how to take

care of a cast. I was curious though if there are any special procedures to

pick up a casted child. Any tips would be great. My daughters curve is in the

40's lying down but in the 70's standing up. Did I mention how nervous I am?

My daughter loves to jump on the bed and dive onto our couch from the bay

window, climb climbers and go down slides. Will she still be able to do this

stuff?

>

> Congratulations on getting your daughter into a casting program. What

> degree is your daughter at? The adjustment is different for every

> child. My son, Cole has always slept well in his cast. He took about

> 2 weeks to completely adjust but was 80% there after a few days.

>

> He does go to daycare. He was in a center prior to casting and I did

> not feel that they 100% alleviated my concerns about him playing

> outside and not playing in puddles or going in the sandbox. I do feel

> like they could have handled everything else just fine. I also could

> have worked with them more and I think it would have been fine. We

> were able to find a neighbor with a home daycare who was able to take

> him and we have had no problems at all. She has been fantastic. I

> would ask to see what other types of special needs they have

> accommodated, even food allergies, and see how accommodating they have

> been, maybe talk to those parents to see how they feel about the

> accommodations. Our provider has a son with a peanut allergy and is

> very very responsive to what I need to or not to happen with Cole.

>

> I would also start to open the dialogue with them now about what

> limitations your foresee such as no water and no sand and ask them

> what solutions they have for your concerns. That way you have time to

> work with them on finding solutions you are happy with before hand. I

> would also plan on coming in and doing a cast care demo with any staff

> that will be working with your daughter. Show them how to pick her up

> correctly, and change diapers and any other support you want them to

> know.

>

> Good luck,

> Jenn

> Mommy to cole, 23 months, 3rd cast from rochester, chiari malformation

>

[Guest guest]

You daughter is about the same age as my son I think who will be 2 in

January. His curve was about the same when we started. She is older

and every kid is different but we have gotten great results so you

have every reason to be really hopeful.

Our doctor told us that sand can get down into the cast and rub and

cause sores in the cast. He suggested that we avoid it. As far as

care demonstration, I would make show them how you diaper her, how you

dress her, how you do potty training if she is there, that she should

not be being picked up by the cast itself. There is lots of info here

about how to diaper everyone does it different. We use easy ups and

tuck it as far under the cast as possible. I think everyone does

clothes a bit different. We put his pants over the cast and hold them

up with suspenders. He scoop Cole up under his butt or under his

arms.

Cole can do everything other than water, sand and summersaults that

other kids his age do. He jumps, climbs, slides, swings etc. He

absolutely keeps up with his peers.

Please email me directly or call (I know its is long distance) if you

need anything at all.

Jenn

Mommy to Cole, 23 months, 3rd cast from Rochester

[Guest guest]

You daughter is about the same age as my son I think who will be 2 in

January. His curve was about the same when we started. She is older

and every kid is different but we have gotten great results so you

have every reason to be really hopeful.

Our doctor told us that sand can get down into the cast and rub and

cause sores in the cast. He suggested that we avoid it. As far as

care demonstration, I would make show them how you diaper her, how you

dress her, how you do potty training if she is there, that she should

not be being picked up by the cast itself. There is lots of info here

about how to diaper everyone does it different. We use easy ups and

tuck it as far under the cast as possible. I think everyone does

clothes a bit different. We put his pants over the cast and hold them

up with suspenders. He scoop Cole up under his butt or under his

arms.

Cole can do everything other than water, sand and summersaults that

other kids his age do. He jumps, climbs, slides, swings etc. He

absolutely keeps up with his peers.

Please email me directly or call (I know its is long distance) if you

need anything at all.

Jenn

Mommy to Cole, 23 months, 3rd cast from Rochester

[Guest guest]

You daughter is about the same age as my son I think who will be 2 in

January. His curve was about the same when we started. She is older

and every kid is different but we have gotten great results so you

have every reason to be really hopeful.

Our doctor told us that sand can get down into the cast and rub and

cause sores in the cast. He suggested that we avoid it. As far as

care demonstration, I would make show them how you diaper her, how you

dress her, how you do potty training if she is there, that she should

not be being picked up by the cast itself. There is lots of info here

about how to diaper everyone does it different. We use easy ups and

tuck it as far under the cast as possible. I think everyone does

clothes a bit different. We put his pants over the cast and hold them

up with suspenders. He scoop Cole up under his butt or under his

arms.

Cole can do everything other than water, sand and summersaults that

other kids his age do. He jumps, climbs, slides, swings etc. He

absolutely keeps up with his peers.

Please email me directly or call (I know its is long distance) if you

need anything at all.

Jenn

Mommy to Cole, 23 months, 3rd cast from Rochester

[Guest guest]

, don't worry about getting in a cast after age 2. Nora received her first cast at 2yrs and 6 months and that was Oct. 8th 2008. Within a year after 6 casts, she was given a break over summer, she is now 35 degrees out of cast down from almost 70 dgrees when we started. She is actually getting another break now up until her 7th cast on Jan 27th,2010! Some hospitals allow breaks and some don't, I guess it just depends on your dr. Don't worry about her adjusting, she'll be back getting into things she's not supposed to faster than you'd like, I promise!! She'll take it better than you will like Nora handled it better than I ever could have. Best wishes and keep us posted and remember no question you ask will be considered strange or dumb, so ask away even if it doesn't relate to scoliosis!

Also remember you're not alone and we get how you feel regardless if anyone might or not!!

Tonya

Asheboro,nc

mother of Nora,3

35 degrees out of cast

7th cast Jan 27th

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 12:14 PM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

, don't worry about getting in a cast after age 2. Nora received her first cast at 2yrs and 6 months and that was Oct. 8th 2008. Within a year after 6 casts, she was given a break over summer, she is now 35 degrees out of cast down from almost 70 dgrees when we started. She is actually getting another break now up until her 7th cast on Jan 27th,2010! Some hospitals allow breaks and some don't, I guess it just depends on your dr. Don't worry about her adjusting, she'll be back getting into things she's not supposed to faster than you'd like, I promise!! She'll take it better than you will like Nora handled it better than I ever could have. Best wishes and keep us posted and remember no question you ask will be considered strange or dumb, so ask away even if it doesn't relate to scoliosis!

Also remember you're not alone and we get how you feel regardless if anyone might or not!!

Tonya

Asheboro,nc

mother of Nora,3

35 degrees out of cast

7th cast Jan 27th

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 12:14 PM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

, don't worry about getting in a cast after age 2. Nora received her first cast at 2yrs and 6 months and that was Oct. 8th 2008. Within a year after 6 casts, she was given a break over summer, she is now 35 degrees out of cast down from almost 70 dgrees when we started. She is actually getting another break now up until her 7th cast on Jan 27th,2010! Some hospitals allow breaks and some don't, I guess it just depends on your dr. Don't worry about her adjusting, she'll be back getting into things she's not supposed to faster than you'd like, I promise!! She'll take it better than you will like Nora handled it better than I ever could have. Best wishes and keep us posted and remember no question you ask will be considered strange or dumb, so ask away even if it doesn't relate to scoliosis!

Also remember you're not alone and we get how you feel regardless if anyone might or not!!

Tonya

Asheboro,nc

mother of Nora,3

35 degrees out of cast

7th cast Jan 27th

Subject: Introducing my daughterTo: infantile_scoliosis Date: Wednesday, December 16, 2009, 12:14 PM

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing another internet

search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?Looking forward to hearing from

you:)

[Guest guest]

I didn't see your name but welcome to CAST. I know you've had a long road already with the scoliosis and not being able to get your daughter the care that you wanted but it's not too late. Yes, the docs like to see them before age 2 and under 50 degrees but all hope is not lost. My daughter got her 1st cast at 22 1/2 months and was 64 degrees and we are down to 38 degrees (out of cast) after only 2 casts. The doc doesn't know if she will ever be completely corrected since it was caught late and her curve was severe but he said we will give it our best shot and as long as we get correction, we will keep casting. The longer you can hold off (if surgery is needed), the better. My daughter isn't in daycare so I can't help you there but I don't see why it would

be an issue. Every child is different in how they respond to casting but I will tell you how it was for us. Yes, she is a little irritable when she first wakes up but after an hour or two, that fades away and for us, she is pretty much back to herself. We didn't have any problems with her in the cast but she did wear a brace first which may have helped her to adjust quicker. She was a little top heavy until she got used to it but I thought it would keep her from doing things but it hasn't at all.. She plays just the same as she did before casting. Like I said, it's different for everybody but usually the ones that have it harder are the people that have kids that weren't walking yet. As for sleeping, Isabella, for some reason, would not go in her crib after she was casted so we just did away with the crib and she has slept fine. If she's uncomfortable, she doesn't show it. Good luck with the casting

and if there's anything I can help you with, just let me know. Patty, mom of Isabella, 2 years old, in 3rd cast (Rochester) & mom to & EvanTo: infantile_scoliosis Sent: Wed, December 16, 2009 12:14:22 PMSubject: Introducing my daughter

Hi, I have just joined the group and wanted to share my story. My daughter was diagnosed with scoliosis at age 6 months. I was refered to an orthopedic doctor and started researching the internet. I came across lots of info on casting and asked her doctor about it. She said "we don't do that in Canada" and let's "wait and see". It will probably fix itself. I "waited and saw" her curve grow and they decided to put her in a brace at 18 months. I hated the brace and learned that bracing will either do nothing or hold the curve. I also learned that if a curve wanted to progress it would even inside of a brace. I also learned that braces are not the best option for rotated curves. I felt like I had no other option. I asked again about casting and again, they said, it's not done in Canada and they couldn't imagine casting someone that young (I was at McMaster children's hospital in Hamilton). I was so upset about the brace and was doing

another internet search and came across of site that had a list of doctors that do infant serial casting for scoliosis. I was scrolling though to see if there was a hospital close by in the states and near the bottom I saw "Sick Kids Toronto". I couldn't believe it. I am 30 minutes from that hospital. I called every day for 2 weeks and begged! They got me in right away (1 week after my daughter's 2nd birthday) and they are going to cast her in early January. I am so glad that I had the intuition to keep pushing but so sad that I didn't do it earlier. I wish that we had this appointment a year ago. I am sooooooooo nervous and would love some support. Please tell me that it's not too late. Also, does anyone have a child with a cast that goes to daycare? How is that? What should I expect when she wakes up with the cast. How long will it take her to adjust? Will she be comfortable while sleeping?

Looking forward to hearing from you:)