Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Oh I am soooo sorry. It does suck! I am so glad you posted though. You can vent to us anytime! As a parent it is heartbreaking to hear your child say no brace and run but stay strong you are doing the best thing for him. I too would get a second opinion about the wear time, the last thing you want is to deal with it getting worse. We are here for you and understand what you are feeling so keep us posted.Many Blessings,Amy J mom to Allie(3) in in first castSent from my Verizon Wireless BlackBerryDate: Wed, 30 Dec 2009 12:20:13 +0000To: <infantile_scoliosis >Subject: I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying " no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Thanks Tasha~ was the first thing I thought of when the doctor told us his numbers. I know has floated between the same numbers. I was like you ~ I never was optimistic about Luke's appointments because I never did know about the journey...I always just held my breath waiting for the numbers. Sad, to say this was the first appointment that I thought how could they tell us anything else. It has been almost 2 years with no progression. It is just very new ~ the progression and of course, my mind goes everywhere~ what if this is just the beginning of much higher numbers. I feel like I did when he first got diagnosed. I have to try and keep things in perspective...he did grow 2 inches..without the brace. It is the first time he has been without brace/cast while growing. I hope it does not take long for him to adjust back to it! Last night was brutal~ he kept asking for it to be taken off and asking us to change the straps. Tears and more tears! Although, he did sleep through the night perfectly! You are always so great about making everyone feel welcome~ cast, brace or surgery~ I appreciate it! As not many friends/friends understand the stress with the unknowns of scoliosis! So the journey continues! I may take you up on the phone call! I appreciate it! natalie > > , > I am truly feeling your pain right now. I have had so many of these feelings with 's walk through this journey. I am so sorry you are going through this. 's curve is at 14-15 degrees and his doctor has told us the same thing...if we walked in off the street he would do nothing. OK great!, BUT he has a history. I think with all of Luke's history I would also get a second opinion. If nothing else, but to make you feel better moving forward. > This is such a hard journey with our scoli kids. I was talking with a friend(who is no longer on the group)last night who's her son did not benefit from casting. We talked about how we get so comfortable with how life is going and then BAM!!!!! We get hit with something like this. It brings all the pain to the surface and everything changes in our life. It is not easy, but I have learned to be cautiously optimistic. I am not trying to be negative, but with I rarely expect good news. His spine is still growing and I have NO clue what it will do. As well as the doctors. > For some of our kids, for whatever reason, casting did not totally work for them. Wearing a brace for a long time just may be what they have to do. It SUCKS!!!! And I hate it when does not want to wear it. I could feel your frustration talking about Luke getting upset. All I know to do(and what I do with )is stress to him that he does not have to wear it during the day YET! > I am so glad you posted this . I am here for you as are so many others. We are all in different stages of treatment with our babies, but we all can relate in some way. Every mom and dad's situation is a hard one, regardless if their child is in a cast, brace and or going through surgery. Lean on us and come to vent wherever you feel the need. > And please call me if you need to talk . > ((HUGS)) > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > > > > > > > > > ________________________________ > > To: infantile_scoliosis > Sent: Wed, December 30, 2009 6:20:13 AM > Subject: I HATE SCOLIOSIS > > > Hello~ > > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~ > We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying " no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays! > > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Thanks Tasha~ was the first thing I thought of when the doctor told us his numbers. I know has floated between the same numbers. I was like you ~ I never was optimistic about Luke's appointments because I never did know about the journey...I always just held my breath waiting for the numbers. Sad, to say this was the first appointment that I thought how could they tell us anything else. It has been almost 2 years with no progression. It is just very new ~ the progression and of course, my mind goes everywhere~ what if this is just the beginning of much higher numbers. I feel like I did when he first got diagnosed. I have to try and keep things in perspective...he did grow 2 inches..without the brace. It is the first time he has been without brace/cast while growing. I hope it does not take long for him to adjust back to it! Last night was brutal~ he kept asking for it to be taken off and asking us to change the straps. Tears and more tears! Although, he did sleep through the night perfectly! You are always so great about making everyone feel welcome~ cast, brace or surgery~ I appreciate it! As not many friends/friends understand the stress with the unknowns of scoliosis! So the journey continues! I may take you up on the phone call! I appreciate it! natalie > > , > I am truly feeling your pain right now. I have had so many of these feelings with 's walk through this journey. I am so sorry you are going through this. 's curve is at 14-15 degrees and his doctor has told us the same thing...if we walked in off the street he would do nothing. OK great!, BUT he has a history. I think with all of Luke's history I would also get a second opinion. If nothing else, but to make you feel better moving forward. > This is such a hard journey with our scoli kids. I was talking with a friend(who is no longer on the group)last night who's her son did not benefit from casting. We talked about how we get so comfortable with how life is going and then BAM!!!!! We get hit with something like this. It brings all the pain to the surface and everything changes in our life. It is not easy, but I have learned to be cautiously optimistic. I am not trying to be negative, but with I rarely expect good news. His spine is still growing and I have NO clue what it will do. As well as the doctors. > For some of our kids, for whatever reason, casting did not totally work for them. Wearing a brace for a long time just may be what they have to do. It SUCKS!!!! And I hate it when does not want to wear it. I could feel your frustration talking about Luke getting upset. All I know to do(and what I do with )is stress to him that he does not have to wear it during the day YET! > I am so glad you posted this . I am here for you as are so many others. We are all in different stages of treatment with our babies, but we all can relate in some way. Every mom and dad's situation is a hard one, regardless if their child is in a cast, brace and or going through surgery. Lean on us and come to vent wherever you feel the need. > And please call me if you need to talk . > ((HUGS)) > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > > > > > > > > > ________________________________ > > To: infantile_scoliosis > Sent: Wed, December 30, 2009 6:20:13 AM > Subject: I HATE SCOLIOSIS > > > Hello~ > > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~ > We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying " no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays! > > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Thanks Tasha~ was the first thing I thought of when the doctor told us his numbers. I know has floated between the same numbers. I was like you ~ I never was optimistic about Luke's appointments because I never did know about the journey...I always just held my breath waiting for the numbers. Sad, to say this was the first appointment that I thought how could they tell us anything else. It has been almost 2 years with no progression. It is just very new ~ the progression and of course, my mind goes everywhere~ what if this is just the beginning of much higher numbers. I feel like I did when he first got diagnosed. I have to try and keep things in perspective...he did grow 2 inches..without the brace. It is the first time he has been without brace/cast while growing. I hope it does not take long for him to adjust back to it! Last night was brutal~ he kept asking for it to be taken off and asking us to change the straps. Tears and more tears! Although, he did sleep through the night perfectly! You are always so great about making everyone feel welcome~ cast, brace or surgery~ I appreciate it! As not many friends/friends understand the stress with the unknowns of scoliosis! So the journey continues! I may take you up on the phone call! I appreciate it! natalie > > , > I am truly feeling your pain right now. I have had so many of these feelings with 's walk through this journey. I am so sorry you are going through this. 's curve is at 14-15 degrees and his doctor has told us the same thing...if we walked in off the street he would do nothing. OK great!, BUT he has a history. I think with all of Luke's history I would also get a second opinion. If nothing else, but to make you feel better moving forward. > This is such a hard journey with our scoli kids. I was talking with a friend(who is no longer on the group)last night who's her son did not benefit from casting. We talked about how we get so comfortable with how life is going and then BAM!!!!! We get hit with something like this. It brings all the pain to the surface and everything changes in our life. It is not easy, but I have learned to be cautiously optimistic. I am not trying to be negative, but with I rarely expect good news. His spine is still growing and I have NO clue what it will do. As well as the doctors. > For some of our kids, for whatever reason, casting did not totally work for them. Wearing a brace for a long time just may be what they have to do. It SUCKS!!!! And I hate it when does not want to wear it. I could feel your frustration talking about Luke getting upset. All I know to do(and what I do with )is stress to him that he does not have to wear it during the day YET! > I am so glad you posted this . I am here for you as are so many others. We are all in different stages of treatment with our babies, but we all can relate in some way. Every mom and dad's situation is a hard one, regardless if their child is in a cast, brace and or going through surgery. Lean on us and come to vent wherever you feel the need. > And please call me if you need to talk . > ((HUGS)) > > Tasha > Mommy of 4 year old twin boys- and > Fort Worth, Texas > Series of 6 casts for 14 months and now in a night brace. > is treated at Texas ish Rite Hospital. > You can read 's story at.... > http://www.infantilescoliosis.org/stories.html > > > > > > > > > ________________________________ > > To: infantile_scoliosis > Sent: Wed, December 30, 2009 6:20:13 AM > Subject: I HATE SCOLIOSIS > > > Hello~ > > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~ > We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying " no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays! > > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 This is so true Tasha. We all have different paths but similar journeys. All the stages of this disease SUCK. Casting isn't working for my child and I get SO angry, but the anger turns into determination and strength. I always go to cast changes and appts without any hope b/c I don't want to be dissappointed. I am ususally prepared for bad news at this point. I HATE Infantile Scoliosis too ... and luckily you can get on this group and vent all you want. We UNDERSTAND.. Joanmom to Hayden 32nd CastTreated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Wed, December 30, 2009 7:16:04 AMSubject: Re: I HATE SCOLIOSIS ,I am truly feeling your pain right now. I have had so many of these feelings with 's walk through this journey. I am so sorry you are going through this. 's curve is at 14-15 degrees and his doctor has told us the same thing...if we walked in off the street he would do nothing. OK great!, BUT he has a history. I think with all of Luke's history I would also get a second opinion. If nothing else, but to make you feel better moving forward.This is such a hard journey with our scoli kids. I was talking with a friend(who is no longer on the group)last night who's her son did not benefit from casting. We talked about how we get so comfortable with how life is going and then BAM!!!!! We get hit with something like this. It brings all the pain to the surface and everything changes in our life. It is not easy, but I have learned to be cautiously optimistic. I am not trying to be negative, but with I rarely expect good news. His spine is still growing and I have NO clue what it will do. As well as the doctors.For some of our kids, for whatever reason, casting did not totally work for them. Wearing a brace for a long time just may be what they have to do. It SUCKS!!!! And I hate it when does not want to wear it. I could feel your frustration talking about Luke getting upset. All I know to do(and what I do with )is stress to him that he does not have to wear it during the day YET!I am so glad you posted this . I am here for you as are so many others. We are all in different stages of treatment with our babies, but we all can relate in some way. Every mom and dad's situation is a hard one, regardless if their child is in a cast, brace and or going through surgery. Lean on us and come to vent wherever you feel the need.And please call me if you need to talk .((HUGS)) TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: natalie <natsmithotyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, December 30, 2009 6:20:13 AMSubject: [infantile_scoliosi s] I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 This is so true Tasha. We all have different paths but similar journeys. All the stages of this disease SUCK. Casting isn't working for my child and I get SO angry, but the anger turns into determination and strength. I always go to cast changes and appts without any hope b/c I don't want to be dissappointed. I am ususally prepared for bad news at this point. I HATE Infantile Scoliosis too ... and luckily you can get on this group and vent all you want. We UNDERSTAND.. Joanmom to Hayden 32nd CastTreated at ish Rite Hospital Dallas, TX To: infantile_scoliosis Sent: Wed, December 30, 2009 7:16:04 AMSubject: Re: I HATE SCOLIOSIS ,I am truly feeling your pain right now. I have had so many of these feelings with 's walk through this journey. I am so sorry you are going through this. 's curve is at 14-15 degrees and his doctor has told us the same thing...if we walked in off the street he would do nothing. OK great!, BUT he has a history. I think with all of Luke's history I would also get a second opinion. If nothing else, but to make you feel better moving forward.This is such a hard journey with our scoli kids. I was talking with a friend(who is no longer on the group)last night who's her son did not benefit from casting. We talked about how we get so comfortable with how life is going and then BAM!!!!! We get hit with something like this. It brings all the pain to the surface and everything changes in our life. It is not easy, but I have learned to be cautiously optimistic. I am not trying to be negative, but with I rarely expect good news. His spine is still growing and I have NO clue what it will do. As well as the doctors.For some of our kids, for whatever reason, casting did not totally work for them. Wearing a brace for a long time just may be what they have to do. It SUCKS!!!! And I hate it when does not want to wear it. I could feel your frustration talking about Luke getting upset. All I know to do(and what I do with )is stress to him that he does not have to wear it during the day YET!I am so glad you posted this . I am here for you as are so many others. We are all in different stages of treatment with our babies, but we all can relate in some way. Every mom and dad's situation is a hard one, regardless if their child is in a cast, brace and or going through surgery. Lean on us and come to vent wherever you feel the need.And please call me if you need to talk .((HUGS)) TashaMommy of 4 year old twin boys- and Fort Worth, TexasSeries of 6 casts for 14 months and now in a night brace. is treated at Texas ish Rite Hospital.You can read 's story at....http://www.infantil escoliosis. org/stories. html From: natalie <natsmithotyahoo (DOT) com>To: infantile_scoliosis @yahoogroups. comSent: Wed, December 30, 2009 6:20:13 AMSubject: [infantile_scoliosi s] I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Thanks ! Noah's numbers are 17 out of brace but 6 in? that is great correction for a small curve in a brace! I am glad to hear it. hopefully that is all it will take! I am hoping that the brace will get Luke's curve back down. I am just worried about it being the first time for progression since we started~ I appreciate you sharing your story as I don't want anyone else to have to go through it but am happy to hear I am not alone~ it can feel that way sometimes when it seems no one else in my immediate surroundings understands the stress with scoliosis! Thanks so much! natalie > > > Oh so sorry that your little guy has to go back into a brace. You're right - Scolosis does suck! And I hate it too. We were in a similar situation last year. Noah had been braced for 1 year after casting. We were going in for a check and to start weaning. At the appt we found out that he went from 9* to 17* in only 3 months and in a brace full-time! It's so hard to expect one thing and then be thrown a curve ball! Just know that you're not alone. > > > > I so wish that every child could be casted and then braced for 6-12 months and then be done! Unfortunately it doesn't seem to go that way for everyone and sometimes the struggle is longer than we expect. > > > > Hopefully Luke will be braced and then back to his 5* (or better) in no time : ) > > > > > ~ > Noah 4 1/2 years old > 9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in brace > And Mariella 11 months old - resolved Infantile Scoliosis > > > > > > > To: infantile_scoliosis > From: natsmithot@... > Date: Wed, 30 Dec 2009 12:20:13 +0000 > Subject: I HATE SCOLIOSIS > > > > > > Hello~ > > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~ > We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying " no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays! > > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) > > > > > > _________________________________________________________________ > Hotmail: Powerful Free email with security by Microsoft. > http://clk.atdmt.com/GBL/go/171222986/direct/01/ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Well Noah measured 17* (brace-free) last Feb and 14* (brace-free in May.) We haven't had a brace-free x-ray since May, so I don't know what his "real" number is right now. He's 6* in the current brace. It sounds like they'll do a brace-free x-ray again in May. If he looks good we'll start to wean and then soon after go into a night-time only brace. At this point there's no plan to stop all brace wear. I'm hopeful that one day we'll get there though. I hope Luke gets good correction in his brace too. Keep us posted! : ) ~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis To: infantile_scoliosis From: natsmithot@...Date: Wed, 30 Dec 2009 17:23:28 +0000Subject: Re: I HATE SCOLIOSIS Thanks ! Noah's numbers are 17 out of brace but 6 in? that is great correction for a small curve in a brace! I am glad to hear it. hopefully that is all it will take! I am hoping that the brace will get Luke's curve back down. I am just worried about it being the first time for progression since we started~ I appreciate you sharing your story as I don't want anyone else to have to go through it but am happy to hear I am not alone~ it can feel that way sometimes when it seems no one else in my immediate surroundings understands the stress with scoliosis! Thanks so much! natalie>> > Oh so sorry that your little guy has to go back into a brace. You're right - Scolosis does suck! And I hate it too. We were in a similar situation last year. Noah had been braced for 1 year after casting. We were going in for a check and to start weaning. At the appt we found out that he went from 9* to 17* in only 3 months and in a brace full-time! It's so hard to expect one thing and then be thrown a curve ball! Just know that you're not alone.> > > > I so wish that every child could be casted and then braced for 6-12 months and then be done! Unfortunately it doesn't seem to go that way for everyone and sometimes the struggle is longer than we expect.> > > > Hopefully Luke will be braced and then back to his 5* (or better) in no time : ) > > > > > ~> Noah 4 1/2 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in brace> And Mariella 11 months old - resolved Infantile Scoliosis> > > > > > > To: infantile_scoliosis > Date: Wed, 30 Dec 2009 12:20:13 +0000> Subject: I HATE SCOLIOSIS> > > > > > Hello~> > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~> We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays!> > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old)> > > > > > __________________________________________________________> Hotmail: Powerful Free email with security by Microsoft.> http://clk.atdmt.com/GBL/go/171222986/direct/01/> Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 Well Noah measured 17* (brace-free) last Feb and 14* (brace-free in May.) We haven't had a brace-free x-ray since May, so I don't know what his "real" number is right now. He's 6* in the current brace. It sounds like they'll do a brace-free x-ray again in May. If he looks good we'll start to wean and then soon after go into a night-time only brace. At this point there's no plan to stop all brace wear. I'm hopeful that one day we'll get there though. I hope Luke gets good correction in his brace too. Keep us posted! : ) ~Noah 4 1/2 years old9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in braceAnd Mariella 11 months old - resolved Infantile Scoliosis To: infantile_scoliosis From: natsmithot@...Date: Wed, 30 Dec 2009 17:23:28 +0000Subject: Re: I HATE SCOLIOSIS Thanks ! Noah's numbers are 17 out of brace but 6 in? that is great correction for a small curve in a brace! I am glad to hear it. hopefully that is all it will take! I am hoping that the brace will get Luke's curve back down. I am just worried about it being the first time for progression since we started~ I appreciate you sharing your story as I don't want anyone else to have to go through it but am happy to hear I am not alone~ it can feel that way sometimes when it seems no one else in my immediate surroundings understands the stress with scoliosis! Thanks so much! natalie>> > Oh so sorry that your little guy has to go back into a brace. You're right - Scolosis does suck! And I hate it too. We were in a similar situation last year. Noah had been braced for 1 year after casting. We were going in for a check and to start weaning. At the appt we found out that he went from 9* to 17* in only 3 months and in a brace full-time! It's so hard to expect one thing and then be thrown a curve ball! Just know that you're not alone.> > > > I so wish that every child could be casted and then braced for 6-12 months and then be done! Unfortunately it doesn't seem to go that way for everyone and sometimes the struggle is longer than we expect.> > > > Hopefully Luke will be braced and then back to his 5* (or better) in no time : ) > > > > > ~> Noah 4 1/2 years old> 9 months of casting in SLC; Currently on 1 1/2 years of bracing at 6* in brace> And Mariella 11 months old - resolved Infantile Scoliosis> > > > > > > To: infantile_scoliosis > Date: Wed, 30 Dec 2009 12:20:13 +0000> Subject: I HATE SCOLIOSIS> > > > > > Hello~> > hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~> We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. > The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! > This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! > I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. > Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! > anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! > I hope everyone is enjoying the holidays!> > > Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old)> > > > > > __________________________________________________________> Hotmail: Powerful Free email with security by Microsoft.> http://clk.atdmt.com/GBL/go/171222986/direct/01/> Hotmail: Trusted email with Microsoft’s powerful SPAM protection. Sign up now. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , Im so sorry the appt didnt go well .... Its got to be hard for Luke to get used to the brace all over again and of course, even harder on you! So what does he think, just wear the brace and the curve should stay put? Good luck and let us know about the 2nd opinion. Melinda Mommy of Marlycia 11 mnths, Natalya 25 mnths Scranton, PA I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , Im so sorry the appt didnt go well .... Its got to be hard for Luke to get used to the brace all over again and of course, even harder on you! So what does he think, just wear the brace and the curve should stay put? Good luck and let us know about the 2nd opinion. Melinda Mommy of Marlycia 11 mnths, Natalya 25 mnths Scranton, PA I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 30, 2009 Report Share Posted December 30, 2009 , Im so sorry the appt didnt go well .... Its got to be hard for Luke to get used to the brace all over again and of course, even harder on you! So what does he think, just wear the brace and the curve should stay put? Good luck and let us know about the 2nd opinion. Melinda Mommy of Marlycia 11 mnths, Natalya 25 mnths Scranton, PA I HATE SCOLIOSIS Hello~hate is a word that I will not let my children use~ And I try my hardest to never feel hate towards anything~ but today I am feeling HATE towards scoliosis. I have been a member of the cast group since march 2008 but do not post much as my son's journey only included 1 cas ~ it has been predominantly brace wear. Anyway~We had Luke's check up yesterday ~ he has been brace free for 2 months~ last check in september we were told he was at 5 degrees. The doctors have always said that were not sure but that Luke could be a self resolver~ one that is taking his time since he was not resolved in his first year (which is the typical for self resolvers) but since he has never shown progression in the past almost 2 years since diagnosis. In fact, none of his paperwork or anything else ever said progressive~ just infantile scoliosis. The plan was to go for the check up and have them say ~ he looks great! NO brace ~ we will see you for a check in 6 months and then we can go to yearly checks... I had planned in my head the many phone calls I was going to make to my family letting them know the great news! This is where the HATE comes in. We have a new dr.(trained in mehta casting) since ours left in september~ he casually asked about brace wear which I told him we have been brace free since November~ he quickly replied that we should not be brace free as luke's curve was at 15 degrees. Still no RVAD. The dr. tried to assure me that if someone walked in off the streets with those numbers, he would not treat them with anything~ I was quick to let him know that we did not just walk off the streets with that number and that luke had been at 45 degrees (25 RVAD) at 6 months old. He continued with how he was not worried. I was thinking of course you are not worried...he is not your little boy! He said the curve is where (more lumbar) if Luke was leaning in the xrays that's where it would be~(implying luke may not have been standing straight)~ I was with Luke and he was standing perfectly straight! I feel like it is a new ballgame~ the progression part~ I asked about full time brace use which he replied he thought night time would be sufficient since luke has been in night time brace since July and did alright. We will be getting a second opinion in the next week or two from another dr as to brace wear time. Needless, to say as I went to put on Luke's brace last night for the first time in 2 months, he ran away saying "no brace, no brace). It was all I could do to hold back tears and talk about how important the brace is in helping his boo-boo in his back get better. He tried wrestling with his sister which he has been doing and the brace got her in her hand and she was crying! UGH!!! anyway, sorry for the rant~ just needed to vent~ This scoliosis journey SUCKS!!!!! I hope everyone is enjoying the holidays!Mom to Luke 28 months, night time brace, Philly Shriners, and mom to , 5.5 years old) Quote Link to comment Share on other sites More sharing options...
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