RE: ongoing antibodies testing for hashimoto's

[Guest guest]

i have never been to manzanero. that's someone else.

--- Jan wrote:

> The alternative docs generally do a better job of

> dealing with auto-immune disorders than do the

> conventional ones. And endos tend to be very

> conventional. In their thinking, there is no

> treatment for antibodies, so why test them.

>

> This is one of the many reasons that we do not have

> many endos on our list. And I generally do not

> recommend that anyone who is not a thyroid cancer

> patient see an endo.

>

> Cortisol treatment is crucial to dealing with

> antibodies. There are only a handful of docs in the

> state who will test and treat cortisol levels. I

> think you made an enormous mistake in not continuing

> to work with Manzanero. Your chiro gave you a bum

> steer.

>

>

> Slack wrote:

> how important is ongoing testing of antibodies

> levels

> for hashimoto's? my thought is that if my

> antibodies

> levels keep rising, i am getting sicker, and my

> thyroid is being progressively destroyed. however,

> if

> my antibodies levels lower with treatment, then that

> is some kind of improvement.

>

> is that the right line of thinking? for some

> reason,

> i think that it's very important that my antibodies

> levels be tested, but my endo doesnt seem to. who's

> right?

>

>

> rachel.

> __________________________________________________

>

[Guest guest]

Cortisol treatment is crucial to dealing with antibodies. Jan -- what if a patient doesn't do well on cortisol? Can they eventually get those pesky antibodies down with just Armour?

Slack wrote:

how important is ongoing testing of antibodies levelsfor hashimoto's? my thought is that if my antibodieslevels keep rising, i am getting sicker, and mythyroid is being progressively destroyed. however, ifmy antibodies levels lower with treatment, then thatis some kind of improvement.is that the right line of thinking? for some reason,i think that it's very important that my antibodieslevels be tested, but my endo doesnt seem to. who'sright?rachel.

__________________________________________________

[Guest guest]

Yes, for awhile I was able to tolerate 7.5mg a day. Anymore than that and my esophagus/stomach really let me know about it! My stomach seems to do a lot better on 5mg a day. I'm also having trouble with iron, so I'm looking forward to my October doctor's appointment to get this all straightened out. I did not test low on the blood cortisol test, but the saliva test results were all low. What is a corticosteroid? Is that like Prednisone or Delta?

Thank you.

-----Original Message-----From: Jan Sent: Thursday, September 30, 2004 2:49 PMTo: Texas_Thyroid_Groups Subject: RE: ongoing antibodies testing for hashimoto's

If you are low on cortisol, there is probably some form of corticosteroid you can take. Some folks do well on Moducare, a plant sterol. There may be some other things you can take.

Are you unable to tolerate any hydrocortisone at all? " A. Weller" wrote:

Cortisol treatment is crucial to dealing with antibodies. Jan -- what if a patient doesn't do well on cortisol? Can they eventually get those pesky antibodies down with just Armour?

Slack wrote:

how important is ongoing testing of antibodies levelsfor hashimoto's? my thought is that if my antibodieslevels keep rising, i am getting sicker, and mythyroid is being progressively destroyed. however, ifmy antibodies levels lower with treatment, then thatis some kind of improvement.is that the right line of thinking? for some reason,i think that it's very important that my antibodieslevels be tested, but my endo doesnt seem to. who'sright?rachel.

__________________________________________________

[Guest guest]

can someone explain to me though what the benefits are

of continued monitoring of antibody levels? is my

line of thinking right that less is better? why?

what are the treatments for antibodies? how do they

work?

rachel.

--- Jan wrote:

> The alternative docs generally do a better job of

> dealing with auto-immune disorders than do the

> conventional ones. And endos tend to be very

> conventional. In their thinking, there is no

> treatment for antibodies, so why test them.

>

> This is one of the many reasons that we do not have

> many endos on our list. And I generally do not

> recommend that anyone who is not a thyroid cancer

> patient see an endo.

>

> Cortisol treatment is crucial to dealing with

> antibodies. There are only a handful of docs in the

> state who will test and treat cortisol levels. I

> think you made an enormous mistake in not continuing

> to work with Manzanero. Your chiro gave you a bum

> steer.

>

>

> Slack wrote:

> how important is ongoing testing of antibodies

> levels

> for hashimoto's? my thought is that if my

> antibodies

> levels keep rising, i am getting sicker, and my

> thyroid is being progressively destroyed. however,

> if

> my antibodies levels lower with treatment, then that

> is some kind of improvement.

>

> is that the right line of thinking? for some

> reason,

> i think that it's very important that my antibodies

> levels be tested, but my endo doesnt seem to. who's

> right?

>

>

> rachel.

> __________________________________________________

>

[Guest guest]

can someone explain to me though what the benefits are

of continued monitoring of antibody levels? is my

line of thinking right that less is better? why?

what are the treatments for antibodies? how do they

work?

rachel.

--- Jan wrote:

> The alternative docs generally do a better job of

> dealing with auto-immune disorders than do the

> conventional ones. And endos tend to be very

> conventional. In their thinking, there is no

> treatment for antibodies, so why test them.

>

> This is one of the many reasons that we do not have

> many endos on our list. And I generally do not

> recommend that anyone who is not a thyroid cancer

> patient see an endo.

>

> Cortisol treatment is crucial to dealing with

> antibodies. There are only a handful of docs in the

> state who will test and treat cortisol levels. I

> think you made an enormous mistake in not continuing

> to work with Manzanero. Your chiro gave you a bum

> steer.

>

>

> Slack wrote:

> how important is ongoing testing of antibodies

> levels

> for hashimoto's? my thought is that if my

> antibodies

> levels keep rising, i am getting sicker, and my

> thyroid is being progressively destroyed. however,

> if

> my antibodies levels lower with treatment, then that

> is some kind of improvement.

>

> is that the right line of thinking? for some

> reason,

> i think that it's very important that my antibodies

> levels be tested, but my endo doesnt seem to. who's

> right?

>

>

> rachel.

> __________________________________________________

>

[Guest guest]

Most endos DON'T think that much should be tested. Take the one $ynthroid a

day and all is well, as long as the labs line up. I will never go to

another endo on this sbjct again.

ongoing antibodies testing for hashimoto's

> how important is ongoing testing of antibodies levels

> for hashimoto's? my thought is that if my antibodies

> levels keep rising, i am getting sicker, and my

> thyroid is being progressively destroyed. however, if

> my antibodies levels lower with treatment, then that

> is some kind of improvement.

>

> is that the right line of thinking? for some reason,

> i think that it's very important that my antibodies

> levels be tested, but my endo doesnt seem to. who's

> right?

>

>

> rachel.

[Guest guest]

I think periodic testing of antibodies is a great idea. I don't know how expensive it is, but I would like to know if my antibody activity is going down with treatment. I think antibody activity makes a person feel worse, from all the posts I've read. Even if those puppies are slightly elevated, people seem to feel awful. I'm one of those like who is in the 1,000-2,000 field. I would definitely want to know if that was going down.

-----Original Message-----From: Slack Sent: Friday, October 01, 2004 10:59 AMTo: Texas_Thyroid_Groups Subject: Re: ongoing antibodies testing for hashimoto'sok, but regardless of what endos do or think should itbe tested? why should it be tested? please help.r.--- wrote:> Most endos DON'T think that much should be tested. > Take the one $ynthroid a> day and all is well, as long as the labs line up. I> will never go to> another endo on this sbjct again.> > > > ongoing antibodies> testing for hashimoto's> > > > how important is ongoing testing of antibodies> levels> > for hashimoto's? my thought is that if my> antibodies> > levels keep rising, i am getting sicker, and my> > thyroid is being progressively destroyed. > however, if> > my antibodies levels lower with treatment, then> that> > is some kind of improvement.> >> > is that the right line of thinking? for some> reason,> > i think that it's very important that my> antibodies> > levels be tested, but my endo doesnt seem to. > who's> > right?> >> >> > rachel.> > > __________________________________

[Guest guest]

I think periodic testing of antibodies is a great idea. I don't know how expensive it is, but I would like to know if my antibody activity is going down with treatment. I think antibody activity makes a person feel worse, from all the posts I've read. Even if those puppies are slightly elevated, people seem to feel awful. I'm one of those like who is in the 1,000-2,000 field. I would definitely want to know if that was going down.

-----Original Message-----From: Slack Sent: Friday, October 01, 2004 10:59 AMTo: Texas_Thyroid_Groups Subject: Re: ongoing antibodies testing for hashimoto'sok, but regardless of what endos do or think should itbe tested? why should it be tested? please help.r.--- wrote:> Most endos DON'T think that much should be tested. > Take the one $ynthroid a> day and all is well, as long as the labs line up. I> will never go to> another endo on this sbjct again.> > > > ongoing antibodies> testing for hashimoto's> > > > how important is ongoing testing of antibodies> levels> > for hashimoto's? my thought is that if my> antibodies> > levels keep rising, i am getting sicker, and my> > thyroid is being progressively destroyed. > however, if> > my antibodies levels lower with treatment, then> that> > is some kind of improvement.> >> > is that the right line of thinking? for some> reason,> > i think that it's very important that my> antibodies> > levels be tested, but my endo doesnt seem to. > who's> > right?> >> >> > rachel.> > > __________________________________

[Guest guest]

So that you won't be in a state of confusion as to what is going on? So

that your doctor can honestly say that you need your labs taken every 3

months or so, not once every 6 months, because you may switch from hyper to

hypo to normal and back again, so you will want to know how to adjust

medication from moment to moment. Hashimoto's Disease causes this

confusion. It has to be watched very closely, until it can be verified that

your thyroid is very very dead, and that's very unlikely. So that you'll

know, when you feel pain and inflammation in your throat, from time to time,

you'll know what it is. Nodules can form more easily, and lupus is more

likely in someone with Hashi's. The diet also has to be adjusted, as the

general consensus is that Hashi's people should not consume much iodine

because the antibodies may go after the thyroid even more so. I wouldn't

say that testing the antibodies again and again would be a good idea, unless

you just want to prove that they are going down or are coming up. After my

TSH being suppressed and my thyroid hormones have been up for awhile, I'm

going to get the antibodies tested again, to see if that really does make

mine go down. We don't really know where all those antibodies do work at in

the body, as science just simply hasn't identified so many chemical

reactions yet. Also, you'd want to know if they were there because other

autoimmune diseases can be likely, if there is one already. I'm not saying

be all paranoid, but to be aware of these.

Re: ongoing antibodies testing for

hashimoto's

>

> ok, but regardless of what endos do or think should it

> be tested? why should it be tested? please help.