Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 In a message dated 4/30/01 9:41:35 PM Central Daylight Time, berniew1@... writes: << My son had trouble with the SSRIs. they have a lot of adverse effects and didn't help much if any. He did better on 5-HTP. But he took other supplements as well. Bernie >> Bernie, can you elaborate on the trouble your son had? Also, what is your feeling about amitryptyline in addition to the Celexa? This is what my son is now on. Thanks, Carol Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2001 Report Share Posted May 1, 2001 We tried it with chelation. I checked with several sources and it is suppose to be a safe combination. However, our holistic doc preferred we try 5HTP first, but we did not. I was not satisfied with Zoloft, although I am never sure to what behaviors should be attributed. We switched to Celexa which is newer and preferred for children. Every child is different and if Zoloft doesn't work for you, try others. Carol G ^^^^^^^^^^^^^^^^ My son had trouble with the SSRIs. they have a lot of adverse effects and didn't help much if any. He did better on 5-HTP. But he took other supplements as well. Bernie Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 18, 2003 Report Share Posted May 18, 2003 My read on posts on SSRIs seems to show 1 must up dosage as a child grows; correct? msherrett. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 7, 2004 Report Share Posted January 7, 2004 How often does Dr. G. switch SSRI's? We were on Paxil with (I thought) good results. He switched us to Celexa to " see if it would get better results " . It has helped more with focus where Paxil helped more with social anxiety. Will we have to continue switching around, changing doses until we find these elusive " better results " ? The first two weeks of starting each SSRI was difficult, I don't want to keep going through that indefinitely. Also, if Dr. G. uses the SSRIs at a very low dose just to jump start blood flow in the brain, why is he always wanting to increase the dose to the " right level " ?? SSRIs are the only part of the protocol I have my doubts about. My son seems to improve initially, after the adjustment period, but then the benefits seem to wear off quickly. We've never had any major problems, such as sleeplessness, but I wonder about the long-term effects. Has anyone refused SSRIs on the protocol? Becky Re: help needed for sleepless on zolft and rash on buttocks > > > > my son was put on a trial of zolof over the winter school break. my son > is 6 > > 1/2 yrs old, autistic, apraxic, sensory, etc., etc. was on paxil (in > > addition to lamisil, tenex and famvir). that combination was working very > well. > > since the trial of zolof (50mg) 1 tab 1xday, i have noticed my son will > wake up > > around 4am. he has also begun licking everything (again!). those are the > only > > two negatives. i told dr g this on the update form and i was told to > > continue zolof until next appt (1-13-04). no blisters though. we'll see > what the > > good dr says at our appt. > > > > vicki in los angeles > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 8, 2004 Report Share Posted January 8, 2004 Becky, At the our last phone consult I asked him if we can go without SSRI, he almost laughed it off. My impression is, that it is not a option. we have exactly oppsite reaction to SSRI as you. He usually does not do well on a Celexa at beginning, after about a month or two on that dosage, he will do well, it happened at 1/4 of Celexa, and 1/2 of Celexa. But I felt that he may do well anyhow without Celexa. We did not see improvement from SSRI. We saw improvement from using SSRI, Paxil was not working at all for us. So I feel we may not really need it. But Dr. G basicly said " NO " . Zoloft does not seems pull him back from started if he can manage get enough sleep. The off told us to decrease to 50mg today, so I will see how it goes. Thanks for the suggestion about egg, is very allergic to egg, and also a big egg eater. I will look into it. Jin > > How often does Dr. G. switch SSRI's? We were on Paxil with (I thought) > good results. He switched us to Celexa to " see if it would get better > results " . It has helped more with focus where Paxil helped more with social > anxiety. Will we have to continue switching around, changing doses until > we find these elusive " better results " ? > The first two weeks of starting each SSRI was difficult, I don't want to > keep going through that indefinitely. Also, if Dr. G. uses the SSRIs at a > very low dose just to jump start blood flow in the brain, why is he always > wanting to increase the dose to the " right level " ?? > > SSRIs are the only part of the protocol I have my doubts about. My son > seems to improve initially, after the adjustment period, but then the > benefits seem to wear off quickly. We've never had any major problems, such > as sleeplessness, but I wonder about the long-term effects. Has anyone > refused SSRIs on the protocol? > > Becky ===message thread truncated-=== ```````````````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author(s), and is not necessarily endorsed by or the opinion of the Research Institute. `````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted January 17, 2004 Report Share Posted January 17, 2004 We try to not try any new foods or let him go off his diet the first few weeks of a new med or dosage change as much as possible so it's not as difficult to distinguish. Sometimes that is do-able and other times not. In general though, I'd think anything that lasted more than a few days after starting a new med or upping a dose would be more likely to have been caused by the med rather than diet assuming the child is eating what he typically eats. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 Please tell us what have you tried already and if he is on other meds? " K. Fischer " <elfischer@...> wrote: Kristy: Which ones did you try? SSRIs Hi, I am looking for experiences related to using SSRIs with kids with ASD. My son is 4. We started him on a very low dose SSRI a few months ago. We liked what we saw in terms of engagement, eye contact, language, but it made him aggressive and hyper. Then we tried another, but it made him alternately spacey and hyper, and compulsive! We started him on a 3rd this morning, and I'm scared about what it might do to him. Each time we've tried it has been a very low dose, and slowly worked up. Please share your experiences and advice - good and bad. Are they necessary? For those who have had success, did you hit it right off the bat? Have some of you tried them, and decided they are not worth while? Thank you, Kristy Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 My boys (15 and 13), have been on all of the ssri's that dr. g uses, at least once. i have not seen improvements with any of them, and a few have had some negatives. even tho there are not improvements, dr. g says that the neurospects do show improvements, so they stay on them. i really don't like using them, to tell the truth. so far, i think i like prozac the best for both of my boys. it is also the most reasonable of them all. (we have to pay for them out of pocket.) --- Kristy Nardini <krnardini@...> wrote: > , > > First Celexa, then Zoloft, now Paxil. Today (first > day on Paxil), so far, is > not much better. > > He is also on Famvir and Nizoral, and (chelated) > iron. > > He was recently on Biaxin and Cipradex (antibiotic > ear drops) for an upper > respiratory and ear infection. During that time, I > doubled his usual > probiotic. > > Kristy > > SSRIs > > Hi, > > I am looking for experiences related to using > SSRIs with kids with ASD. > My > son is 4. We started him on a very low dose SSRI a > few months ago. We > liked > what we saw in terms of engagement, eye contact, > language, but it made > him > aggressive and hyper. Then we tried another, but > it made him alternately > spacey and hyper, and compulsive! We started him > on a 3rd this morning, > and > I'm scared about what it might do to him. Each > time we've tried it has > been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good > and bad. Are they > necessary? > For those who have had success, did you hit it > right off the bat? Have > some > of you tried them, and decided they are not worth > while? > > Thank you, > > Kristy > > [Non-text portions of this message have been > removed] > > > [Non-text portions of this message have been > removed] > > > > > > > [Non-text portions of this message have been > removed] > > Barb Katsaros barbkatsaros@... __________________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 17, 2006 Report Share Posted July 17, 2006 1. what SSRIs were tried? 2. Please clarify 'low dose'. Dr G starts off with grains (we used a razor and piece of glass for 's 1st SSRI. Looked a bit odd ...) 3. What piece of medical documentation is being used to determine dose and type? Is there a scan or visual observations only? 4. Length of time on each SSRI ? usual time for an SSRI to settle in is 7-14 days. Was a decrease attempted before changing to another SSRI ? 5. my research has shown that 75% of all meds have some form of lactose (from milk) in them. THe SSRIs are no different. I think paxil or celexa was the only SSRI that did NOT contain any lactose. 6. There is a test available that can determine if your child carries a liver (gene? chromosome?) that determines the 'uptake' of the med or how the med is metabolized. Some people metabolize drugs quicker than others. Do a search on old files - I've posted this news item relating to this test. 7. How is your child sleeping? this is always an indicator for us. 8. What is the purpose of the SSRI ? if you search old files, you'll see a variety of files relating to SSRIs. They help to regulate everything from blood flow to immune operation. doris land > > Hi, > > I am looking for experiences related to using SSRIs with kids with ASD. My > son is 4. We started him on a very low dose SSRI a few months ago. We liked > what we saw in terms of engagement, eye contact, language, but it made him > aggressive and hyper. Then we tried another, but it made him alternately > spacey and hyper, and compulsive! We started him on a 3rd this morning, and > I'm scared about what it might do to him. Each time we've tried it has been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good and bad. Are they necessary? > For those who have had success, did you hit it right off the bat? Have some > of you tried them, and decided they are not worth while? > > Thank you, > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted July 18, 2006 Report Share Posted July 18, 2006 Our first SSRI was Paxil. OK at first, but as we increased the dose he got very spacey...he would lay on an office chair in our den stare up at the ceiling and spin...not good. Then we switched to Celexa...we saw more language, more awreness, and it resolved many motor planning issues.....he could never pedal a bike, and one day he just got on and took off. We increased the dose nad he got real spacey (like the Paxil), and had difficulty urinaing, so we switched. Third times a charm....he has been on Prozac for 2 years with all good results. We have increased the dose 3 times this summer, because we see good things each time. As I described to Dr G, it is like taking a dimmer switch and making a slight turn to the right...just brighter all the way around. More expressive language, better eye contact, more energy or hyper, sometimes I can't tell. He is having difficulty falling asleep, but it does not get dark at our house until 9:45, so its hard to tell. This is something I will have to monitor. My son always has a urinating change with dosage change....more pee pee accidents but he usually adjusts. HTH > > Hi, > > I am looking for experiences related to using SSRIs with kids with ASD. My > son is 4. We started him on a very low dose SSRI a few months ago. We liked > what we saw in terms of engagement, eye contact, language, but it made him > aggressive and hyper. Then we tried another, but it made him alternately > spacey and hyper, and compulsive! We started him on a 3rd this morning, and > I'm scared about what it might do to him. Each time we've tried it has been > a very low dose, and slowly worked up. > > Please share your experiences and advice - good and bad. Are they necessary? > For those who have had success, did you hit it right off the bat? Have some > of you tried them, and decided they are not worth while? > > Thank you, > > Kristy > > > Quote Link to comment Share on other sites More sharing options...
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