2nd Opinion......Where should we go??

[Guest guest]

Question for the loop. I'm sure this has been asked at one point,

but we're new to the group so I apologize.

Our 12 week old daughter, Carson has PMG on part of the left

hemisphere. She is on 4 meds now (Phenobarbital, Topamax, Zonegran,

& Clonapin). She is being weened of Topamax and has already been

taken off of Tegretol. Nothing seems to do the trick.

Our neurologist would like for us to get a 3rd opinion. He first

referred us to a neuro in Atlanta to talk about the possibility of

surgery or VNS. He was dissapointed with the response we received.

Now he would like to refer us to Boston, MA (we are in Georgia).

Does anyone have any ideas of a good doctor to go see? If we have to

fly somewhere, I want it to be worth our while.

Any ideas???