liv update

[Guest guest]

,

Thanks for the update. Glad to hear that Liv is doing well...Praying that the nerve pain goes away quickly.

Hope you get home by Thanksgiving.

Love to the both of you,

Connie

Liv update

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.

Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.

Hope all is well with our littles.

Love,

HRH

[Guest guest]

,

Thanks for the update. Glad to hear that Liv is doing well...Praying that the nerve pain goes away quickly.

Hope you get home by Thanksgiving.

Love to the both of you,

Connie

Liv update

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.

Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.

Hope all is well with our littles.

Love,

HRH

[Guest guest]

,

SO glad to hear Liv is doing so great!! I hope you are home by Thanksgiving! keep us posted!

Subject: Liv updateTo: infantile_scoliosis Date: Saturday, November 21, 2009, 12:46 AM

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

SO glad to hear Liv is doing so great!! I hope you are home by Thanksgiving! keep us posted!

Subject: Liv updateTo: infantile_scoliosis Date: Saturday, November 21, 2009, 12:46 AM

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

SO glad to hear Liv is doing so great!! I hope you are home by Thanksgiving! keep us posted!

Subject: Liv updateTo: infantile_scoliosis Date: Saturday, November 21, 2009, 12:46 AM

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

I hope you get to take your girl home sooner rather than later. It must be so exhausting to be there for 2 months! You both deserve to rest at home. Love to you!!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Fri, November 20, 2009 10:46:41 PMSubject: Liv update

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

I hope you get to take your girl home sooner rather than later. It must be so exhausting to be there for 2 months! You both deserve to rest at home. Love to you!!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Fri, November 20, 2009 10:46:41 PMSubject: Liv update

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

I hope you get to take your girl home sooner rather than later. It must be so exhausting to be there for 2 months! You both deserve to rest at home. Love to you!!! Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Fri, November 20, 2009 10:46:41 PMSubject: Liv update

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

,

So glad to hear that you are both doing better. Can't wait till you guys get

to come home. Give me a call when you get a chance so we can catch up.

Love you guys,

Rochelle

>

> Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat

up for over 6 hrs yesterday, so we are ready for travel. She is also walking

pretty good. I want to try and avoid travel on Weds or Fri. for obvious

reasons. Cant wait to be home!!!!! Im packing today. You should see the

amount of stuff we have accumulated here in 2 months!

> Our friends Bernadette, her daughter Bridgette, and new friend came from

Australia last week, which was perfect timing for both Liv and I. Have spent

quality time with them and hate to see them go. Oh, also ran into &

Eliana! Both doing well and told her I'de tell the group (us old timers)

" Hello, " from them.

> I'll post when flights are confirmed.

> Please cross your fingers for us on getting flights outta here!

> Love,

> Heath

>

[Guest guest]

,

So glad to hear that you are both doing better. Can't wait till you guys get

to come home. Give me a call when you get a chance so we can catch up.

Love you guys,

Rochelle

>

> Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat

up for over 6 hrs yesterday, so we are ready for travel. She is also walking

pretty good. I want to try and avoid travel on Weds or Fri. for obvious

reasons. Cant wait to be home!!!!! Im packing today. You should see the

amount of stuff we have accumulated here in 2 months!

> Our friends Bernadette, her daughter Bridgette, and new friend came from

Australia last week, which was perfect timing for both Liv and I. Have spent

quality time with them and hate to see them go. Oh, also ran into &

Eliana! Both doing well and told her I'de tell the group (us old timers)

" Hello, " from them.

> I'll post when flights are confirmed.

> Please cross your fingers for us on getting flights outta here!

> Love,

> Heath

>

[Guest guest]

so glad you get to go HOME!!! Wonderful news. How great that you got to hang out with Bert and Bridget! Still praying for you both! Love ya!

shellie

Subject: Liv updateTo: infantile_scoliosis Date: Sunday, November 22, 2009, 9:23 AM

Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant wait to be home!!!!! Im packing today. You should see the amount of stuff we have accumulated here in 2 months!Our friends Bernadette, her daughter Bridgette, and new friend came from Australia last week, which was perfect timing for both Liv and I. Have spent quality time with them and hate to see them go. Oh, also ran into & Eliana! Both doing well and told her I'de tell the group (us old timers) "Hello," from them. I'll post when flights are confirmed. Please cross your fingers for us on getting flights outta here!Love,Heath

[Guest guest]

so glad you get to go HOME!!! Wonderful news. How great that you got to hang out with Bert and Bridget! Still praying for you both! Love ya!

shellie

Subject: Liv updateTo: infantile_scoliosis Date: Sunday, November 22, 2009, 9:23 AM

Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant wait to be home!!!!! Im packing today. You should see the amount of stuff we have accumulated here in 2 months!Our friends Bernadette, her daughter Bridgette, and new friend came from Australia last week, which was perfect timing for both Liv and I. Have spent quality time with them and hate to see them go. Oh, also ran into & Eliana! Both doing well and told her I'de tell the group (us old timers) "Hello," from them. I'll post when flights are confirmed. Please cross your fingers for us on getting flights outta here!Love,Heath

[Guest guest]

Oh how wonderful! Just in time some Turkey. I will say a prayer for safe travels HOME!Amy JSent from my Verizon Wireless BlackBerryFrom: heather@...Date: Sun, 22 Nov 2009 15:23:10 +0000To: <infantile_scoliosis >Subject: Liv update Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant wait to be home!!!!! Im packing today. You should see the amount of stuff we have accumulated here in 2 months!Our friends Bernadette, her daughter Bridgette, and new friend came from Australia last week, which was perfect timing for both Liv and I. Have spent quality time with them and hate to see them go. Oh, also ran into & Eliana! Both doing well and told her I'de tell the group (us old timers) " Hello, " from them. I'll post when flights are confirmed. Please cross your fingers for us on getting flights outta here!Love,Heath

[Guest guest]

Oh how wonderful! Just in time some Turkey. I will say a prayer for safe travels HOME!Amy JSent from my Verizon Wireless BlackBerryFrom: heather@...Date: Sun, 22 Nov 2009 15:23:10 +0000To: <infantile_scoliosis >Subject: Liv update Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant wait to be home!!!!! Im packing today. You should see the amount of stuff we have accumulated here in 2 months!Our friends Bernadette, her daughter Bridgette, and new friend came from Australia last week, which was perfect timing for both Liv and I. Have spent quality time with them and hate to see them go. Oh, also ran into & Eliana! Both doing well and told her I'de tell the group (us old timers) " Hello, " from them. I'll post when flights are confirmed. Please cross your fingers for us on getting flights outta here!Love,Heath

[Guest guest]

Oh how wonderful! Just in time some Turkey. I will say a prayer for safe travels HOME!Amy JSent from my Verizon Wireless BlackBerryFrom: heather@...Date: Sun, 22 Nov 2009 15:23:10 +0000To: <infantile_scoliosis >Subject: Liv update Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant wait to be home!!!!! Im packing today. You should see the amount of stuff we have accumulated here in 2 months!Our friends Bernadette, her daughter Bridgette, and new friend came from Australia last week, which was perfect timing for both Liv and I. Have spent quality time with them and hate to see them go. Oh, also ran into & Eliana! Both doing well and told her I'de tell the group (us old timers) " Hello, " from them. I'll post when flights are confirmed. Please cross your fingers for us on getting flights outta here!Love,Heath

[Guest guest]

Thats Great you get to go home. Its been a long time. it will be nice to sit and

relax for a bit.

>

> Heath,

>

> So glad you got to see friends and have a little fun! Fingers crossed you and

Liv get to go HOME on Tues., YAY!

>  Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners,

currently down from 61 degrees to 21)

>

>

>

>

> ________________________________

>

> To: infantile_scoliosis

> Sent: Sun, November 22, 2009 7:23:10 AM

> Subject: Liv update

>

>  

> Fingers crossed we leave on Tuesday!!!! Flights pending, of course. She sat up

for over 6 hrs yesterday, so we are ready for travel. She is also walking pretty

good. I want to try and avoid travel on Weds or Fri. for obvious reasons. Cant

wait to be home!!!!! Im packing today. You should see the amount of stuff we

have accumulated here in 2 months!

> Our friends Bernadette, her daughter Bridgette, and new friend came from

Australia last week, which was perfect timing for both Liv and I. Have spent

quality time with them and hate to see them go. Oh, also ran into &

Eliana! Both doing well and told her I'de tell the group (us old timers)

" Hello, " from them.

> I'll post when flights are confirmed.

> Please cross your fingers for us on getting flights outta here!

> Love,

> Heath

>

[Guest guest]

Congrats! That's great news and I will be praying that you do get home soon..... You two are so amazing~!- Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Liv updateTo: infantile_scoliosis Date: Saturday, November 21, 2009, 6:46 AM

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

Congrats! That's great news and I will be praying that you do get home soon..... You two are so amazing~!- Noelle's mommy, 3 years oldRochester NYCasted 8 times for 1 1/2 years and in first brace!reflux, mild plagiocephaly, mild torticollos, hypotonia, ligament laxity, suspected Ehler's Danlos III

Subject: Liv updateTo: infantile_scoliosis Date: Saturday, November 21, 2009, 6:46 AM

I think we may be heading home next week! Liv is walking and doing well, besides nerve pain. Not sure when I posted the last update (last week was a blur), and am super tired, right now.......But, all is well.Hope and pray she continues in this direction and will let you know when discharge papers have been signed. Cross your fingers that we are out of here next week. Its been 2 months and its time to go home.Hope all is well with our littles.Love,HRH

[Guest guest]

So happy you are home and settling back in. Now enjoy the Holiday season with that strong girl of yours.

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 2, 2009 9:53:54 AMSubject: liv update

I hope you all had a great Thanksgiving. We sure did! We took a short drive to my Aunts house. Ate like crazy and thats all I remember. Woke up on the couch at 6 pm....It was soooo nice.Liv and I are back home and acclimating back into real life. It all seems so unreal. We are both super tired and trying to get back on some kind of schedule.. She is doing great. Not on main meds, unless she requests and only small dose of neurontin for the nerve pain. Finally, finished unpacking yesterday. We're taking it slow for a few more days. Hope all is well with everyone. Call me if you need to.Love,HRH

[Guest guest]

So happy you are home and settling back in. Now enjoy the Holiday season with that strong girl of yours.

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 2, 2009 9:53:54 AMSubject: liv update

I hope you all had a great Thanksgiving. We sure did! We took a short drive to my Aunts house. Ate like crazy and thats all I remember. Woke up on the couch at 6 pm....It was soooo nice.Liv and I are back home and acclimating back into real life. It all seems so unreal. We are both super tired and trying to get back on some kind of schedule.. She is doing great. Not on main meds, unless she requests and only small dose of neurontin for the nerve pain. Finally, finished unpacking yesterday. We're taking it slow for a few more days. Hope all is well with everyone. Call me if you need to.Love,HRH

[Guest guest]

So happy you are home and settling back in. Now enjoy the Holiday season with that strong girl of yours.

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Wed, December 2, 2009 9:53:54 AMSubject: liv update

I hope you all had a great Thanksgiving. We sure did! We took a short drive to my Aunts house. Ate like crazy and thats all I remember. Woke up on the couch at 6 pm....It was soooo nice.Liv and I are back home and acclimating back into real life. It all seems so unreal. We are both super tired and trying to get back on some kind of schedule.. She is doing great. Not on main meds, unless she requests and only small dose of neurontin for the nerve pain. Finally, finished unpacking yesterday. We're taking it slow for a few more days. Hope all is well with everyone. Call me if you need to.Love,HRH

[Guest guest]

Oh my gosh - I'm so incredibly HAPPY to hear that this whole thing is over and

you are at home, stuffed with food, sleep and some relaxation!! !! !! Hope

you had a great Thanksgiving - I hope Liv liked the book - I wanted to keep it.

It reminds me of how small we are in this big universe.

Much love, , & Tino

>

>

>

> Subject: liv update

> To: infantile_scoliosis

> Date: Wednesday, December 2, 2009, 3:53 PM

>

>

> Â

>

>

>

> I hope you all had a great Thanksgiving. We sure did! We took a short drive to

my Aunts house. Ate like crazy and thats all I remember. Woke up on the couch at

6 pm....It was soooo nice.

> Liv and I are back home and acclimating back into real life. It all seems so

unreal. We are both super tired and trying to get back on some kind of schedule.

She is doing great. Not on main meds, unless she requests and only small dose of

neurontin for the nerve pain.

> Finally, finished unpacking yesterday. We're taking it slow for a few more

days.

> Hope all is well with everyone. Call me if you need to.

> Love,

> HRH

>

>

[Guest guest]

Oh my gosh - I'm so incredibly HAPPY to hear that this whole thing is over and

you are at home, stuffed with food, sleep and some relaxation!! !! !! Hope

you had a great Thanksgiving - I hope Liv liked the book - I wanted to keep it.

It reminds me of how small we are in this big universe.

Much love, , & Tino

>

>

>

> Subject: liv update

> To: infantile_scoliosis

> Date: Wednesday, December 2, 2009, 3:53 PM

>

>

> Â

>

>

>

> I hope you all had a great Thanksgiving. We sure did! We took a short drive to

my Aunts house. Ate like crazy and thats all I remember. Woke up on the couch at

6 pm....It was soooo nice.

> Liv and I are back home and acclimating back into real life. It all seems so

unreal. We are both super tired and trying to get back on some kind of schedule.

She is doing great. Not on main meds, unless she requests and only small dose of

neurontin for the nerve pain.

> Finally, finished unpacking yesterday. We're taking it slow for a few more

days.

> Hope all is well with everyone. Call me if you need to.

> Love,

> HRH

>

>

[Guest guest]

Back to school! Whoo hoo!! We are finally acclimating back to non

hospital life. Gosh, my world became so small in that lovely

hospital....Anyway, my girl is back in school and doing well. We go back

to SLC on the 20th to make sure she's holding.

I am anxious to hit 2010 hard with Early Treatment. We are planning ETP's

in WI and hopefully MI, as well....As soon as dates are secure, this group

will be first to know.

Miss you all and hope all is well.

Sincerely,

HRH

[Guest guest]

Good luck liv we'll be praying for you guysSent from my iPod

 

Well, we are headed to SLC tomorrow for Livs follow up

appt.  I’ll post the good news when we get back on Thurs.

I wont have access to a computer, but can be reached by

phone.

Wish my girl luck!

Love.

HRH