liv update

[Guest guest]

So so sorry. I will continue to pray for your precious little girl.~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 9 months old currently waiting and watching at 11*

To: infantile_scoliosis From: heather@...Date: Mon, 19 Oct 2009 15:15:24 +0000Subject: Liv update

Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. I prefer she knows nothing of this, until I feel its the right time for her emotionally/mentally.....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.Please continue to pray for my daughter (and me). I am very shaken by this and must stay focused, strong, and healthy in order to continue advocating for her.I still believe in miracles and will travel wherever need to be.Love you all and hope everyone is doing awsome.Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.HRH

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[Guest guest]

So so sorry. I will continue to pray for your precious little girl.~Noah 4 years old9 months of casting in SLC; Currently on 1 1/2 years of bracingAnd Mariella 9 months old currently waiting and watching at 11*

To: infantile_scoliosis From: heather@...Date: Mon, 19 Oct 2009 15:15:24 +0000Subject: Liv update

Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. I prefer she knows nothing of this, until I feel its the right time for her emotionally/mentally.....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.Please continue to pray for my daughter (and me). I am very shaken by this and must stay focused, strong, and healthy in order to continue advocating for her.I still believe in miracles and will travel wherever need to be.Love you all and hope everyone is doing awsome.Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.HRH

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[Guest guest]

I don't even know what to say . I am completely shocked. Much love to you and Liv and of course we will keep her in our prayers. Thinking of you daily.

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Mon, October 19, 2009 11:15:24 AMSubject: Liv update

Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. I prefer she knows nothing of this, until I feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.Please continue to pray for my daughter (and me). I am very shaken by

this and must stay focused, strong, and healthy in order to continue advocating for her.I still believe in miracles and will travel wherever need to be.Love you all and hope everyone is doing awsome.Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.HRH

[Guest guest]

I don't even know what to say . I am completely shocked. Much love to you and Liv and of course we will keep her in our prayers. Thinking of you daily.

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Mon, October 19, 2009 11:15:24 AMSubject: Liv update

Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. I prefer she knows nothing of this, until I feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.Please continue to pray for my daughter (and me). I am very shaken by

this and must stay focused, strong, and healthy in order to continue advocating for her.I still believe in miracles and will travel wherever need to be.Love you all and hope everyone is doing awsome.Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.HRH

[Guest guest]

I don't even know what to say . I am completely shocked. Much love to you and Liv and of course we will keep her in our prayers. Thinking of you daily.

Noelle (12-2-01)

Ian (8-15-04)

To: infantile_scoliosis Sent: Mon, October 19, 2009 11:15:24 AMSubject: Liv update

Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. I prefer she knows nothing of this, until I feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.Please continue to pray for my daughter (and me). I am very shaken by

this and must stay focused, strong, and healthy in order to continue advocating for her.I still believe in miracles and will travel wherever need to be.Love you all and hope everyone is doing awsome.Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.HRH

[Guest guest]

I'm so sorry. Our thoughts are with you and Liv. Please let us know if we can

do anything.

Jenn

Mommy to Cole, 21 months, 3rd cast from Rochester, 18 degrees down from 47,

chiari malformation

>

> Horrible news. We looked at her most recent films on fri. afternoon and her

spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr.

old......We will hang around here for a few more weeks, until we figure out the

best plan (?????). No need to do growth rods, as they would not help. Cant do

nothing, as it would increase her kyphosis and decrease lung capacity on convex

side. Her doc and I will do nothing in haste and will place calls and consult

with surgeons/docs around the world.

> I prefer she knows nothing of this, until I feel its the right time for her

emotionally/mentally.....So, if you communicate with her by e-mail/Facebook, I

ask that this info is NOT relayed to her in any way. This is something only a

mother/doc can discuss with Olivia. As far as she knows, everything is going

great and I will not worry her unnecessarily, until we have a plan.

> Please continue to pray for my daughter (and me). I am very shaken by this

and must stay focused, strong, and healthy in order to continue advocating for

her.

> I still believe in miracles and will travel wherever need to be.

> Love you all and hope everyone is doing awsome.

> Cant read posts as I am now on a major research quest for my girl.

Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it

takes.

> HRH

>

[Guest guest]

I'm so sorry. Our thoughts are with you and Liv. Please let us know if we can

do anything.

Jenn

Mommy to Cole, 21 months, 3rd cast from Rochester, 18 degrees down from 47,

chiari malformation

>

> Horrible news. We looked at her most recent films on fri. afternoon and her

spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr.

old......We will hang around here for a few more weeks, until we figure out the

best plan (?????). No need to do growth rods, as they would not help. Cant do

nothing, as it would increase her kyphosis and decrease lung capacity on convex

side. Her doc and I will do nothing in haste and will place calls and consult

with surgeons/docs around the world.

> I prefer she knows nothing of this, until I feel its the right time for her

emotionally/mentally.....So, if you communicate with her by e-mail/Facebook, I

ask that this info is NOT relayed to her in any way. This is something only a

mother/doc can discuss with Olivia. As far as she knows, everything is going

great and I will not worry her unnecessarily, until we have a plan.

> Please continue to pray for my daughter (and me). I am very shaken by this

and must stay focused, strong, and healthy in order to continue advocating for

her.

> I still believe in miracles and will travel wherever need to be.

> Love you all and hope everyone is doing awsome.

> Cant read posts as I am now on a major research quest for my girl.

Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it

takes.

> HRH

>

[Guest guest]

I'm so sorry. Our thoughts are with you and Liv. Please let us know if we can

do anything.

Jenn

Mommy to Cole, 21 months, 3rd cast from Rochester, 18 degrees down from 47,

chiari malformation

>

> Horrible news. We looked at her most recent films on fri. afternoon and her

spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr.

old......We will hang around here for a few more weeks, until we figure out the

best plan (?????). No need to do growth rods, as they would not help. Cant do

nothing, as it would increase her kyphosis and decrease lung capacity on convex

side. Her doc and I will do nothing in haste and will place calls and consult

with surgeons/docs around the world.

> I prefer she knows nothing of this, until I feel its the right time for her

emotionally/mentally.....So, if you communicate with her by e-mail/Facebook, I

ask that this info is NOT relayed to her in any way. This is something only a

mother/doc can discuss with Olivia. As far as she knows, everything is going

great and I will not worry her unnecessarily, until we have a plan.

> Please continue to pray for my daughter (and me). I am very shaken by this

and must stay focused, strong, and healthy in order to continue advocating for

her.

> I still believe in miracles and will travel wherever need to be.

> Love you all and hope everyone is doing awsome.

> Cant read posts as I am now on a major research quest for my girl.

Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it

takes.

> HRH

>

[Guest guest]

,

I am so sorry!! I don't know if this helps any, but my sons doctor at The Hospital for Sick Children in Toronto is a world renown researcher in Orthopaedic studies specializing in scoliosis. He has written over 150 peer-reviewed publications in medical journals all over the world. He has won a multitude of awards and has several publications out. I don't know if he could be any help to you but maybe its worth a try. I am told he is the best and is also a leader in research so maybe???? If you want to google him, his name is Dr. at The Hospital for Sick Children in Toronto. You can get his biography and all his information there. Hope this helps some and could possibly be a new avenue to try.

Lynn

Subject: Re: Liv updateTo: infantile_scoliosis Received: Tuesday, October 20, 2009, 4:12 AM

Oh , my heart is breaking for you! Please know that you both will continue to be in my prayers.Tina (Mom to Sam and Sophia)>> Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. > I prefer she knows nothing of this, until I

feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.> Please continue to pray for my daughter (and me). I am very shaken by this and must stay focused, strong, and healthy in order to continue advocating for her.> I still believe in miracles and will travel wherever need to be.> Love you all and hope everyone is doing awsome.> Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.> HRH>

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

,

I am so sorry!! I don't know if this helps any, but my sons doctor at The Hospital for Sick Children in Toronto is a world renown researcher in Orthopaedic studies specializing in scoliosis. He has written over 150 peer-reviewed publications in medical journals all over the world. He has won a multitude of awards and has several publications out. I don't know if he could be any help to you but maybe its worth a try. I am told he is the best and is also a leader in research so maybe???? If you want to google him, his name is Dr. at The Hospital for Sick Children in Toronto. You can get his biography and all his information there. Hope this helps some and could possibly be a new avenue to try.

Lynn

Subject: Re: Liv updateTo: infantile_scoliosis Received: Tuesday, October 20, 2009, 4:12 AM

Oh , my heart is breaking for you! Please know that you both will continue to be in my prayers.Tina (Mom to Sam and Sophia)>> Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. > I prefer she knows nothing of this, until I

feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.> Please continue to pray for my daughter (and me). I am very shaken by this and must stay focused, strong, and healthy in order to continue advocating for her.> I still believe in miracles and will travel wherever need to be.> Love you all and hope everyone is doing awsome.> Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.> HRH>

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

,

I am so sorry!! I don't know if this helps any, but my sons doctor at The Hospital for Sick Children in Toronto is a world renown researcher in Orthopaedic studies specializing in scoliosis. He has written over 150 peer-reviewed publications in medical journals all over the world. He has won a multitude of awards and has several publications out. I don't know if he could be any help to you but maybe its worth a try. I am told he is the best and is also a leader in research so maybe???? If you want to google him, his name is Dr. at The Hospital for Sick Children in Toronto. You can get his biography and all his information there. Hope this helps some and could possibly be a new avenue to try.

Lynn

Subject: Re: Liv updateTo: infantile_scoliosis Received: Tuesday, October 20, 2009, 4:12 AM

Oh , my heart is breaking for you! Please know that you both will continue to be in my prayers.Tina (Mom to Sam and Sophia)>> Horrible news. We looked at her most recent films on fri. afternoon and her spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr. old......We will hang around here for a few more weeks, until we figure out the best plan (?????). No need to do growth rods, as they would not help. Cant do nothing, as it would increase her kyphosis and decrease lung capacity on convex side. Her doc and I will do nothing in haste and will place calls and consult with surgeons/docs around the world. > I prefer she knows nothing of this, until I

feel its the right time for her emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I ask that this info is NOT relayed to her in any way. This is something only a mother/doc can discuss with Olivia. As far as she knows, everything is going great and I will not worry her unnecessarily, until we have a plan.> Please continue to pray for my daughter (and me). I am very shaken by this and must stay focused, strong, and healthy in order to continue advocating for her.> I still believe in miracles and will travel wherever need to be.> Love you all and hope everyone is doing awsome.> Cant read posts as I am now on a major research quest for my girl. Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it takes.> HRH>

The new Internet Explorer® 8 - Faster, safer, easier. Optimized for Yahoo! Get it Now for Free!

[Guest guest]

,

I am so sorry to hear this news. My thoughts and prayers will continue to be

with you!

Much love,

and Matson

>

> All I can say is I am sorry you and your beautiful daughter have to endure all

of this. I am praying everyday that you and your doctors find an answer for her

as soon as possible. Thank you for the update. We are here for you.

>

> Love,

>

>  Joan

> mom to Hayden 2 1/2

> 33 degrees

> 1st cast down from 62 degrees

> Treated at ish Rite Hospital

> Dallas, TX

>

>

>

>

> ________________________________

>

> To: infantile_scoliosis

> Sent: Mon, October 19, 2009 10:15:24 AM

> Subject: Liv update

>

>  

> Horrible news. We looked at her most recent films on fri. afternoon and her

spine appears to be 80/90 percent fused. She has the chest cavity of a 4/5 yr.

old......We will hang around here for a few more weeks, until we figure out the

best plan (?????). No need to do growth rods, as they would not help. Cant do

nothing, as it would increase her kyphosis and decrease lung capacity on convex

side. Her doc and I will do nothing in haste and will place calls and consult

with surgeons/docs around the world.

> I prefer she knows nothing of this, until I feel its the right time for her

emotionally/ mentally. ....So, if you communicate with her by e-mail/Facebook, I

ask that this info is NOT relayed to her in any way. This is something only a

mother/doc can discuss with Olivia. As far as she knows, everything is going

great and I will not worry her unnecessarily, until we have a plan.

> Please continue to pray for my daughter (and me). I am very shaken by this and

must stay focused, strong, and healthy in order to continue advocating for her.

> I still believe in miracles and will travel wherever need to be.

> Love you all and hope everyone is doing awsome.

> Cant read posts as I am now on a major research quest for my girl..

Vertebral/rib growth with stem cells in Indonesia or India?????? Whatever it

takes.

> HRH

>

[Guest guest]

So glad she is doing great and able to participate in the spelling bee. GOOD LUCK TO LIV!! And let us know how she does. Still praying everyday!!

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, October 22, 2009 9:40:03 AMSubject: Liv update

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

So glad she is doing great and able to participate in the spelling bee. GOOD LUCK TO LIV!! And let us know how she does. Still praying everyday!!

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, October 22, 2009 9:40:03 AMSubject: Liv update

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

So glad she is doing great and able to participate in the spelling bee. GOOD LUCK TO LIV!! And let us know how she does. Still praying everyday!!

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

To: infantile_scoliosis Sent: Thu, October 22, 2009 9:40:03 AMSubject: Liv update

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

GO LIV!!! I am praying every day, too, think about you guys all the time. Please let me know if you need anything!!!Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

Subject: Re: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 7:53 AM

So glad she is doing great and able to participate in the spelling bee. GOOD LUCK TO LIV!! And let us know how she does. Still praying everyday!!

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>To: infantile_scoliosis @yahoogroups. comSent: Thu, October 22, 2009 9:40:03 AMSubject: [infantile_scoliosi s] Liv update

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

GO LIV!!! I am praying every day, too, think about you guys all the time. Please let me know if you need anything!!!Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

Subject: Re: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 7:53 AM

So glad she is doing great and able to participate in the spelling bee. GOOD LUCK TO LIV!! And let us know how she does. Still praying everyday!!

Joanmom to Hayden 2 1/233 degrees1st cast down from 62 degrees Treated at ish Rite Hospital Dallas, TX

From: "heather@infantiles coliosis. org" <heather@infantilesc oliosis.org>To: infantile_scoliosis @yahoogroups. comSent: Thu, October 22, 2009 9:40:03 AMSubject: [infantile_scoliosi s] Liv update

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

and Olivia,

Glad to hear you are exploring all of your options. Best of luck to Liv on the spelling bee...she will do great!!! Cant wait to see pics!

Subject: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 9:40 AM

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

and Olivia,

Glad to hear you are exploring all of your options. Best of luck to Liv on the spelling bee...she will do great!!! Cant wait to see pics!

Subject: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 9:40 AM

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

and Olivia,

Glad to hear you are exploring all of your options. Best of luck to Liv on the spelling bee...she will do great!!! Cant wait to see pics!

Subject: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 9:40 AM

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.Love,HRHFYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

So Glad Olivia is doing well! What a strong little girl! We'll continue to pray for her! And good luck with that spelling bee! Sounds cute and fun! She's strong, she's smart, and I saw pics: she's beautiful! You got a special little girl! :)ShaunaSubject: Liv updateTo: infantile_scoliosis Date: Thursday, October 22, 2009, 9:40 AM

She is doing great and will be up to 23 lbs of traction by today. She is also participating in the staff spelling bee at noon, so please wish her luck! She can spell words that I cant even pronounce or spell....Ill try and post photos of my darling later this afternoon. Honestly, I am more busy here than in Colorado. Livs doc and I will be consulting with surgeons from all over the planet, before we make a move..Thanks for the referral Lynn! Our docs know eachother well, since our doc is from Toronto. Ill let you know what happens and will also take any other referrals.

Love,

HRH

FYI- just added quite a few new members to the group, so please continue your great guidance...Ill try ad catch up this weekend, because my Auntie is coming out, tomorrow.

[Guest guest]

The profound beauty of a Mother's love. Godspeed to the doctors. You are both beyond inspiration.

None of us would be here without you, I just want the (precious- hello!) new people to know that Olivia is the very reason our children have the opportunity for Mehta's Early Treatment Method.

We are all so lucky to have our lives touched by this brilliant, beautiful Mother and daughter- and their whole family. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Wed, November 4, 2009 10:47:14 PMSubject: Liv update

Olivia has not received any correction from the halo and she has been in traction for over a month. This is proof that her spine is fused. Not the news we had hoped for, but thats life.... We have fought the good fight since diagnosis at 5 months and will continue to do the best for her. She will be 12 yrs old on Christmas Eve, so we've done good if we look at the whole picture. Its been a rough road and now perhaps after this next surgery, we can recover and rest a bit. She will have rods placed and once the doc is in, he'll fuse the rest. This will be the the biggest procedure she has ever had. I am still processing all of this and am still in shock....We have 2 choices. Do nothing and hope that her next growth spurt(s) wont increase the deformity. Or, place rods and fuse, in an attempt to keep the correction we have been able to achieve over the last decade. Remember, she had 100 degree thoracic curve at age 2. She is now 12 and in the high

60's/low 70's. If we do nothing, we may loose irretrievable ground and Im not comfortable with that. We must hold ground here for lung space...She' ll transfer from the piano, to a wind instrument of her choice, once we get home and has recovered. There is a surgery cancellation next weds, and we're taking it. My mom and brother are coming in next week, so there will always be someone by her side. My mom and I will do day and night, my bro will do midnight to 5 a.m. So grateful to have family help her (and I) get through this.The doc and I will let here know whats up on Monday. No need to stress her out for a whole week before the biggest procedure she will ever go through. Her cousins are coming out this weekend, so she will have some fun prior to this next round of pain.Please continue to pray and send us your strength, as we will need it for this next one.I know she'll do good. She is sooo strong and I know we are in the right place

with the best doc possible for her. This is our 2nd home and we are lucky that everyone knows her (us) so well...She will be taken care of by a team of people that truly have become like family over the last 10 years.Home by her birthday and Christmas. Wow!Love you all. So glad to see more families finding ISOP & CAST. So blessed to be a part of the Early Treatment movement for progressive infantile scoliosis,Goodnight,HRH

[Guest guest]

The profound beauty of a Mother's love. Godspeed to the doctors. You are both beyond inspiration.

None of us would be here without you, I just want the (precious- hello!) new people to know that Olivia is the very reason our children have the opportunity for Mehta's Early Treatment Method.

We are all so lucky to have our lives touched by this brilliant, beautiful Mother and daughter- and their whole family. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Wed, November 4, 2009 10:47:14 PMSubject: Liv update

Olivia has not received any correction from the halo and she has been in traction for over a month. This is proof that her spine is fused. Not the news we had hoped for, but thats life.... We have fought the good fight since diagnosis at 5 months and will continue to do the best for her. She will be 12 yrs old on Christmas Eve, so we've done good if we look at the whole picture. Its been a rough road and now perhaps after this next surgery, we can recover and rest a bit. She will have rods placed and once the doc is in, he'll fuse the rest. This will be the the biggest procedure she has ever had. I am still processing all of this and am still in shock....We have 2 choices. Do nothing and hope that her next growth spurt(s) wont increase the deformity. Or, place rods and fuse, in an attempt to keep the correction we have been able to achieve over the last decade. Remember, she had 100 degree thoracic curve at age 2. She is now 12 and in the high

60's/low 70's. If we do nothing, we may loose irretrievable ground and Im not comfortable with that. We must hold ground here for lung space...She' ll transfer from the piano, to a wind instrument of her choice, once we get home and has recovered. There is a surgery cancellation next weds, and we're taking it. My mom and brother are coming in next week, so there will always be someone by her side. My mom and I will do day and night, my bro will do midnight to 5 a.m. So grateful to have family help her (and I) get through this.The doc and I will let here know whats up on Monday. No need to stress her out for a whole week before the biggest procedure she will ever go through. Her cousins are coming out this weekend, so she will have some fun prior to this next round of pain.Please continue to pray and send us your strength, as we will need it for this next one.I know she'll do good. She is sooo strong and I know we are in the right place

with the best doc possible for her. This is our 2nd home and we are lucky that everyone knows her (us) so well...She will be taken care of by a team of people that truly have become like family over the last 10 years.Home by her birthday and Christmas. Wow!Love you all. So glad to see more families finding ISOP & CAST. So blessed to be a part of the Early Treatment movement for progressive infantile scoliosis,Goodnight,HRH

[Guest guest]

The profound beauty of a Mother's love. Godspeed to the doctors. You are both beyond inspiration.

None of us would be here without you, I just want the (precious- hello!) new people to know that Olivia is the very reason our children have the opportunity for Mehta's Early Treatment Method.

We are all so lucky to have our lives touched by this brilliant, beautiful Mother and daughter- and their whole family. Heidi, Bexon's Mama, (2 years old, in 4th cast from Salt Lake City Shriners, currently down from 61 degrees to 21)

To: infantile_scoliosis Sent: Wed, November 4, 2009 10:47:14 PMSubject: Liv update

Olivia has not received any correction from the halo and she has been in traction for over a month. This is proof that her spine is fused. Not the news we had hoped for, but thats life.... We have fought the good fight since diagnosis at 5 months and will continue to do the best for her. She will be 12 yrs old on Christmas Eve, so we've done good if we look at the whole picture. Its been a rough road and now perhaps after this next surgery, we can recover and rest a bit. She will have rods placed and once the doc is in, he'll fuse the rest. This will be the the biggest procedure she has ever had. I am still processing all of this and am still in shock....We have 2 choices. Do nothing and hope that her next growth spurt(s) wont increase the deformity. Or, place rods and fuse, in an attempt to keep the correction we have been able to achieve over the last decade. Remember, she had 100 degree thoracic curve at age 2. She is now 12 and in the high

60's/low 70's. If we do nothing, we may loose irretrievable ground and Im not comfortable with that. We must hold ground here for lung space...She' ll transfer from the piano, to a wind instrument of her choice, once we get home and has recovered. There is a surgery cancellation next weds, and we're taking it. My mom and brother are coming in next week, so there will always be someone by her side. My mom and I will do day and night, my bro will do midnight to 5 a.m. So grateful to have family help her (and I) get through this.The doc and I will let here know whats up on Monday. No need to stress her out for a whole week before the biggest procedure she will ever go through. Her cousins are coming out this weekend, so she will have some fun prior to this next round of pain.Please continue to pray and send us your strength, as we will need it for this next one.I know she'll do good. She is sooo strong and I know we are in the right place

with the best doc possible for her. This is our 2nd home and we are lucky that everyone knows her (us) so well...She will be taken care of by a team of people that truly have become like family over the last 10 years.Home by her birthday and Christmas. Wow!Love you all. So glad to see more families finding ISOP & CAST. So blessed to be a part of the Early Treatment movement for progressive infantile scoliosis,Goodnight,HRH

[Guest guest]

,

I know this is not where you thought you would be at this point but I must say your attitude and is amazing...Liv is lucky to have you and I know all will be fine. Home by her Birthday!

SOOOOOOOO many prayers and love and healing energy coming to you and Liv.

Connie

Liv update

Olivia has not received any correction from the halo and she has been in traction for over a month. This is proof that her spine is fused. Not the news we had hoped for, but thats life.... We have fought the good fight since diagnosis at 5 months and will continue to do the best for her. She will be 12 yrs old on Christmas Eve, so we've done good if we look at the whole picture. Its been a rough road and now perhaps after this next surgery, we can recover and rest a bit. She will have rods placed and once the doc is in, he'll fuse the rest. This will be the the biggest procedure she has ever had. I am still processing all of this and am still in shock....We have 2 choices. Do nothing and hope that her next growth spurt(s) wont increase the deformity. Or, place rods and fuse, in an attempt to keep the correction we have been able to achieve over the last decade. Remember, she had 100 degree thoracic curve at age 2. She is now 12 and in the high 60's/low 70's. If we do nothing, we may loose irretrievable ground and Im not comfortable with that. We must hold ground here for lung space...She'll transfer from the piano, to a wind instrument of her choice, once we get home and has recovered. There is a surgery cancellation next weds, and we're taking it.

My mom and brother are coming in next week, so there will always be someone by her side. My mom and I will do day and night, my bro will do midnight to 5 a.m. So grateful to have family help her (and I) get through this.

The doc and I will let here know whats up on Monday. No need to stress her out for a whole week before the biggest procedure she will ever go through. Her cousins are coming out this weekend, so she will have some fun prior to this next round of pain.

Please continue to pray and send us your strength, as we will need it for this next one.

I know she'll do good. She is sooo strong and I know we are in the right place with the best doc possible for her. This is our 2nd home and we are lucky that everyone knows her (us) so well...She will be taken care of by a team of people that truly have become like family over the last 10 years.

Home by her birthday and Christmas. Wow!

Love you all. So glad to see more families finding ISOP & CAST. So blessed to be a part of the Early Treatment movement for progressive infantile scoliosis,

Goodnight,

HRH