Re: Information On Amyloidosis...

[Guest guest]

Yes, it does seem to occur with those who have

Still's.

The professional literature on Still's mentions it as

a complication.

--- wrote:

> Hello All,

>

> I am going to be tested for Amyloidosis. Honestly I

> had never heard of this

> condition before. My Doc. said it is common with

> Systemic JRA. I am not

> going to get to alarmed about this. After all I

> probably don't have this

> condition. I am going to have a test on Monday.

> Then I will also see a

> Specialist.

>

> My symptoms at this time is on and off protein in my

> urine. I have had this

> problem since the onset of my disease in 1979.

>

> The one thing that worries me is that my Rheum. Doc

> said there is no

> treatment for this. However I have found a few

> sites on the internet of

> people that have recovered from this.

>

> Anyway I am looking for info on this. Right now I

> don't believe I have this

> but we will see. I have been tested for a lot of

> things and I tested

> negative for a lot of things.

>

> Is this a common occurrence with my disease? Could

> there be another

> explanation for the protein?

>

> Like I said for now I am trying not to worry about

> this however any info

> would be much appreciated. Monday I will probably

> be told I don't have this

> condition. I will let you know.

>

> Thanks,

>

> Love,

>

>

> jatw@...

>

>

>

>

[Guest guest]

Yes, it does seem to occur with those who have

Still's.

The professional literature on Still's mentions it as

a complication.

--- wrote:

> Hello All,

>

> I am going to be tested for Amyloidosis. Honestly I

> had never heard of this

> condition before. My Doc. said it is common with

> Systemic JRA. I am not

> going to get to alarmed about this. After all I

> probably don't have this

> condition. I am going to have a test on Monday.

> Then I will also see a

> Specialist.

>

> My symptoms at this time is on and off protein in my

> urine. I have had this

> problem since the onset of my disease in 1979.

>

> The one thing that worries me is that my Rheum. Doc

> said there is no

> treatment for this. However I have found a few

> sites on the internet of

> people that have recovered from this.

>

> Anyway I am looking for info on this. Right now I

> don't believe I have this

> but we will see. I have been tested for a lot of

> things and I tested

> negative for a lot of things.

>

> Is this a common occurrence with my disease? Could

> there be another

> explanation for the protein?

>

> Like I said for now I am trying not to worry about

> this however any info

> would be much appreciated. Monday I will probably

> be told I don't have this

> condition. I will let you know.

>

> Thanks,

>

> Love,

>

>

> jatw@...

>

>

>

>

[Guest guest]

Yes, it does seem to occur with those who have

Still's.

The professional literature on Still's mentions it as

a complication.

--- wrote:

> Hello All,

>

> I am going to be tested for Amyloidosis. Honestly I

> had never heard of this

> condition before. My Doc. said it is common with

> Systemic JRA. I am not

> going to get to alarmed about this. After all I

> probably don't have this

> condition. I am going to have a test on Monday.

> Then I will also see a

> Specialist.

>

> My symptoms at this time is on and off protein in my

> urine. I have had this

> problem since the onset of my disease in 1979.

>

> The one thing that worries me is that my Rheum. Doc

> said there is no

> treatment for this. However I have found a few

> sites on the internet of

> people that have recovered from this.

>

> Anyway I am looking for info on this. Right now I

> don't believe I have this

> but we will see. I have been tested for a lot of

> things and I tested

> negative for a lot of things.

>

> Is this a common occurrence with my disease? Could

> there be another

> explanation for the protein?

>

> Like I said for now I am trying not to worry about

> this however any info

> would be much appreciated. Monday I will probably

> be told I don't have this

> condition. I will let you know.

>

> Thanks,

>

> Love,

>

>

> jatw@...

>

>

>

>

[Guest guest]

, yes Amyloidosis can occour with still's and it can occour with other

autoimmune diseases also, particulary FMF (Familial Mediterrean Fever) I

think colchine is one of the treatments. Amyloidosis is serious and is one

of the fatal complications of still's.

Systemic amyloidosis in a patient with adult onset Still's disease.

http://www.stillsdisease.org/new_page_36.htm

Amyloidosis: prognosis and treatment.

http://www.stillsdisease.org/new_page_37.htm

[Guest guest]

, yes Amyloidosis can occour with still's and it can occour with other

autoimmune diseases also, particulary FMF (Familial Mediterrean Fever) I

think colchine is one of the treatments. Amyloidosis is serious and is one

of the fatal complications of still's.

Systemic amyloidosis in a patient with adult onset Still's disease.

http://www.stillsdisease.org/new_page_36.htm

Amyloidosis: prognosis and treatment.

http://www.stillsdisease.org/new_page_37.htm

[Guest guest]

, yes Amyloidosis can occour with still's and it can occour with other

autoimmune diseases also, particulary FMF (Familial Mediterrean Fever) I

think colchine is one of the treatments. Amyloidosis is serious and is one

of the fatal complications of still's.

Systemic amyloidosis in a patient with adult onset Still's disease.

http://www.stillsdisease.org/new_page_36.htm

Amyloidosis: prognosis and treatment.

http://www.stillsdisease.org/new_page_37.htm

[Guest guest]

-

Hi, my name is and I also have had blurry vision. I told my

Rheumy about it and he mentioned something called uveitis. I saw an

eye doc right away and it turns out the I have glacoma. This is most

likely caused by all off the steroids I have been taking latley.

Anyway, have your eyes checked.

Chris

> Dear Kim,

>

> Thanks for the info. I admit I am worried about this but I am

trying not

> to. I have had a hard time figuring out what the symptoms are? My

Doc.

> didn't tell me too much. I do however remember that my Doc's I

had during

> my onset and for about 10 years were concerned about this problem.

I am

> trying not to think about this. I will be relieved when the test

is over.

>

> I will let you know. I am going to be tested on Mon. at 4:00PM.

Thank you

> for your thoughts and prayers. Don't worry I have been tested for

so much

> stuff lately that usually comes back negative.

>

> I have weird symptoms at times that I have no clue about. I get

numbness in

> my hands and feet. My vision has been blurry lately. My muscles

have felt

> like there burning. I have every kind of stomache symptom. I

haven't been

> able to get warm. I have severe insomnia. My body feels like it is

at war.

> The list could go on. I am just not well and I don't know really

what to

> do.

>

> How are you doing? I know you haven't been that well yourself. I

haven't

> been very active with the group. When I am like this I am just too

gloomy.

>

> Thanks so much for your email. I know so many of us are not well

and it is

> so sad. You are always in my thoughts and prayers. We all have to

some how

> persevere and beat this Dragon!

>

> Love,

>

>

> jatw@a...