Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 There is a very extensive thread going on about B12 on the abmd (autism-biomedical-discussion) list you might want to peek in on. I haven't really been following it but have seen many many messages about it from some of the doctors and researchers on that list so imagine it would give you some good info. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 5, 2003 Report Share Posted March 5, 2003 Why does Dr G. test B 12 and folic. What role does it play in these kids. Also, what do elevated levels mean? Both levels were off the charts for our daughter. NO doctor we have found thus fas has an explation for high levels. Thanks - Drew Ann Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 7, 2003 Report Share Posted March 7, 2003 My son's levels were off the charts too. And I will try to piece together what Dr G told us about this at our initial visit. He said that he was fairly certain we were not pumping megadoses of Vit B and folic acid into our son (which of course were weren't!) so this could only be caused by his body not corectly or effectively being able to utilize the Vit B and folic acid he takes in. He said this is related to a sytem that is not functioning correctly, and I seem to remember him mentioning liver disfunction along with this. In my sons case he felt confident it was viral related, as his titers were all way high. Hope this helps. > Why does Dr G. test B 12 and folic. What role does it play in these > kids. Also, what do elevated levels mean? Both levels were off the > charts for our daughter. NO doctor we have found thus fas has an > explation for high levels. Thanks - Drew Ann Long Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Does anyone have experience with B 12 shots for children, are they painful? Also, I assume there is no liquid form of B 12, Correct. I looked in up on the Internet and just got that some people didn't think it was as effective and it was hard to get??? Jen **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 We use MB12 drops from Apex Energetics given from my DAN (natraulpath). He takes 8 drops 2x per day. No food or drink for 10 min after. - Re: [ ] Re: B 12 Does anyone have experience with B 12 shots for children, are they painful? Also, I assume there is no liquid form of B 12, Correct. I looked in up on the Internet and just got that some people didn't think it was as effective and it was hard to get??? Jen **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos. <http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000 017> aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 If you go to Dr. Neubrander.com, he reviews injection technique.... . My daughter takes it awake, before bed, no problem. YOu can also smear some over the counter lidocaine cream over the area, cover with bandaid for 30 minutes and then give the shot. We are trialing my sons (neurotypical but positive for the MTHFR defect- a worse of a defect than my daughters)with the B12 injections and they are fine with the lidocaine cream. Dr. Neubrander says that if the shot really bother a kid, perhaps the batch of shots you got are bad. Kathyh > > Does anyone have experience with B 12 shots for children, are they painful? > Also, I assume there is no liquid form of B 12, Correct. I looked in up on > the Internet and just got that some people didn't think it was as effective and > it was hard to get??? Jen > > > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 There are different types of shots and there is sublingual and there is a MB12Valtrex spray. Your best best is to have your DAN you saw in June, if that went well, address your son's specific needs so that if he needs this he gets the right thing. > > Does anyone have experience with B 12 shots for children, are they painful? > Also, I assume there is no liquid form of B 12, Correct. I looked in up on > the Internet and just got that some people didn't think it was as effective and > it was hard to get??? Jen > > > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > (http://autos.aol.com/cars-BMW-128-2008/expert-review? ncid=aolaut00050000000017 ) > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 We buy a B-12 methycobalamin topical cream from healthpro labs and it seems to have the same positive effect, as the shots, for us. There is also a nasal spray but I do not know much about that. The cream we buy is $30 for about a 6 month supply (2oz you only use 1 or 2 squirts).The website is www.healthprolabs.com This is what they have to say: " Until now costly intramuscular injections of B-12 have been the only solution to ensure absorption of methylcobalamin in the brain. Transdermal B-12 Methylcobalamin will by-pass the G.I. tract and absorb cutaneously into the skin. " I have found that I need the B12 just as much as my little guy does so I rub a little on every morning and really love the feeling of clarity & energy! Thanks Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 Yes Neubrander is the " guru " when it comes to B12 shots. For the first few months we were doing them wrong and she was peeing them right out. Took a while to get that under the skin angle right. With our daughter it's more of a control thing. She just likes to make a fuss and say no, and finally gets convinced to sit still. But on good days she just lets us no problem, we've made it into a game and I've even shown her mommy gets them too--true, i get the full B complex intra muscular for the same reasons --severe deficiency, gluten intolerance, anemia, peripheral neuropathy as a result etc. Anyway, she has been known to just sit and watch us do it, we dared her to sit still by herself without daddy holding her and we succeed sometimes,. but it really doesn't hurt, just a little prick and the B12 is not supposed to hurt under the skin like that. So it really is more of a control thing I think, definitely in her case. See if you can make it into a game, go searching for them before, let her do it to her stuffed toy afterwards with the needle covered, after a few months kids kind of know what to expect every 3 days and my daughter even reminds us =now that it is B12 night. Good luck. Elena --mom to Ziana-age almost 4 now, severely apraxic but otherwise a happy healthy child and progressing wonderfully now that appropriate speech therapy/diet/supplements have been implemented Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 11, 2008 Report Share Posted August 11, 2008 The problem with the B12 is that in these kids who need the shots it does NOT get absorbed from their food or intestinally. Certain enzymes are missing. So the shot is the only way to ensure a plentiful supply for this vital brain nutrient. Be weary if anybody tells you they've got the right liquid for to be taken orally, it just doesn't work this way when there is a clear metabolic unbalance and deficiency--which the post shots improvements should let you know. Neubrander has a detailed parental questionnaire on his website to help you keep track. For us the results have been amazing since w started doing it right. It's not for every child with apraxia, but if the metabolic profile indicates gluten intolerance. casein, soy corn, malabsorptions due to leaky gut and severe fatty acids deficiency, B12 may also be very deficient. Worth investigating and doing it all under the supervision of a good biomed. Regular doctors would just about throw you out of the office if you as much as inquire about B12 shots for a child who is according to their diagnostic criteria NOT a Celiac. -All the best, Elena From: jennyjudy@... <jennyjudy@...> Subject: Re: [ ] Re: B 12 Date: Monday, August 11, 2008, 7:55 PM Does anyone have experience with B 12 shots for children, are they painful? Also, I assume there is no liquid form of B 12, Correct. I looked in up on the Internet and just got that some people didn't think it was as effective and it was hard to get??? Jen **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. (http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000017 ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 15, 2008 Report Share Posted August 15, 2008 Jen, our son uses B 12 nasal spray, prescription from our doctor. Ann Re: [ ] Re: B 12 Does anyone have experience with B 12 shots for children, are they painful? Also, I assume there is no liquid form of B 12, Correct. I looked in up on the Internet and just got that some people didn't think it was as effective and it was hard to get??? Jen **************Looking for a car that's sporty, fun and fits in your budget? Read reviews on AOL Autos. ( http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000500000000 17 <http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000 017> ) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted August 16, 2008 Report Share Posted August 16, 2008 There is a liquid form and a powder form. I believe Kirkmans carry the powder form. We use the shots combined with b6.....EXCELLENT! We do it at night when they are sleeping. You put them in shallow at a 30 degree angle and they don't even flinch. Easy. From personal experience the shots work better. Ann and Lester wrote: > Jen, our son uses B 12 nasal spray, prescription from our doctor. > > Ann > > Re: [ ] Re: B 12 > > Does anyone have experience with B 12 shots for children, are they painful? > Also, I assume there is no liquid form of B 12, Correct. I looked in up on > the Internet and just got that some people didn't think it was as effective > and > it was hard to get??? Jen > > **************Looking for a car that's sporty, fun and fits in your budget? > Read reviews on AOL Autos. > ( > http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut000500000000 > 17 > <http://autos.aol.com/cars-BMW-128-2008/expert-review?ncid=aolaut00050000000 > 017> ) > > Quote Link to comment Share on other sites More sharing options...
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