Guest guest Posted August 2, 2001 Report Share Posted August 2, 2001 Dear Mark, My name is Penne. I am sorry I was not able to send you a card in time because I just saw your story today. I am 11 years old and also going into 6th grade. I live in Chico, C.A.( Look at the bottom to see what I have.) I am very sorry about what you are going through. I have had rough times like you. So I kinda know how you are feeling. You must be very brave and courageous to be able to handle your illness so well. What do you do when you hurt? How do you handle the pain? I know having to get shots so frequently can really make you mad. I go into get I. Vs every three weeks. I drive 5 hours to get 5 hour I.V.s. I know how frustrating it can be. You must be very strong mentally and physically. You go three times more then me and can get very discouraged. If you've made it this far you have to be a very brave boy. Please e-mail me. My address is littlegymboy@.... I would love to talk to you Sincerely, Penne. le 11, Selective Antibody Def., IVIG for 4 years, every 3 weeks. Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG le 11, Selective Antibody Def., IVIG for 4 years, every 3 weeks. Syringomyelia 6 surgeries in two years before being diagnosed: 4 sinus, tonsil and adenoids removed, septic hip since IVIG 0 surgery needed! Trailing off IVIG 6/28/01 Quote Link to comment Share on other sites More sharing options...
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