Guest guest Posted November 25, 2001 Report Share Posted November 25, 2001 hi every one its been a while . karen i was wondering if hannah didnt have to have the gastroscopy would she have had to have had a general to have the bard put in . I am asking this because isaac is having a bard put in in three weeks with nothing and this has been a bit upsetting to me he has been hurt so much they don't even know if the bard will stop the leaking I am glad everything went well for her and most of all with very little leakage that seems like a dream to me leanne mum to isaac australia Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 ----- Original Message ----- > karen i was wondering if hannah didnt have >to have the gastroscopy would she have had to have had a general to have the >bard put in . I am asking this because isaac is having a bard put in in >three weeks with nothing and this has been a bit upsetting to me he has >been hurt so much they don't even know if the bard will stop the leaking Hi Leanne, Sorry to hear of your recent computer problems. Had been wondering where you were. About the GA for the button, I would have requested one anyway for Hannah, due to the respiratory complications involved with her when she is in pain. Also, our gastro specialist only inserts/removes Bard buttons under GA, or so I am told, and he had no hesitation in doing that, I think in spite of the gastroscopy. He used gas to knock her out and then a very mild GA with virtually no residual effect. She woke very quickly, had no nausea, and was very alert as soon as she woke. She did cry for a while, but it was not a pain cry. Since leaving the hospital she has been as happy as ever, even 3 days later. The talk in the emergancy room earlier in the week when I took Hannah for the broken button, was that it could be done there and then in a few minutes, but I was going to stand my ground and refuse that until I'd seen our own specialist. They were saying how quick it is and that a sedative would be used, but my concerns were (a) would they discuss the sedative choice with me, so that I could be sure it contained no carbohydrate?(would possibly cause seizures as she is on the ketogentic diet which has extremely low carbs) ( they were talking about using clonazepam, saying how suitable that would be as she already uses it (but my mind went into a tizz at the mere mention of it as that is what they overdosed her on last admission and we lost seizure control immediately after that) © I was unsure how Hannah would react if insufficient sedative was used (hyperextension, breath holding, seizures are all likely at the slightest pain) In the end it all happened the way I hoped. I wonder if you explained your concern, and perhaps stood your ground, would your doctor reconsider? Surely they will used a sedative at least, and if they refused that, then perhaps you could give him something yourself. I am only going by what others have said, that in similar circumstances they have given paracetamol or even stronger before leaving home or as they arrive. Beats using nothing at all. Having the stoma already there will make it much quicker and easier, and hopefully not so sore or messy. Boy Leanne, I do hope this is the end of Isaac's button troubles. Love and hugs to you and him, and do let us know what happens. I'll be thinking of you. (Hannah's mum, Melbourne) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 ----- Original Message ----- > karen i was wondering if hannah didnt have >to have the gastroscopy would she have had to have had a general to have the >bard put in . I am asking this because isaac is having a bard put in in >three weeks with nothing and this has been a bit upsetting to me he has >been hurt so much they don't even know if the bard will stop the leaking Hi Leanne, Sorry to hear of your recent computer problems. Had been wondering where you were. About the GA for the button, I would have requested one anyway for Hannah, due to the respiratory complications involved with her when she is in pain. Also, our gastro specialist only inserts/removes Bard buttons under GA, or so I am told, and he had no hesitation in doing that, I think in spite of the gastroscopy. He used gas to knock her out and then a very mild GA with virtually no residual effect. She woke very quickly, had no nausea, and was very alert as soon as she woke. She did cry for a while, but it was not a pain cry. Since leaving the hospital she has been as happy as ever, even 3 days later. The talk in the emergancy room earlier in the week when I took Hannah for the broken button, was that it could be done there and then in a few minutes, but I was going to stand my ground and refuse that until I'd seen our own specialist. They were saying how quick it is and that a sedative would be used, but my concerns were (a) would they discuss the sedative choice with me, so that I could be sure it contained no carbohydrate?(would possibly cause seizures as she is on the ketogentic diet which has extremely low carbs) ( they were talking about using clonazepam, saying how suitable that would be as she already uses it (but my mind went into a tizz at the mere mention of it as that is what they overdosed her on last admission and we lost seizure control immediately after that) © I was unsure how Hannah would react if insufficient sedative was used (hyperextension, breath holding, seizures are all likely at the slightest pain) In the end it all happened the way I hoped. I wonder if you explained your concern, and perhaps stood your ground, would your doctor reconsider? Surely they will used a sedative at least, and if they refused that, then perhaps you could give him something yourself. I am only going by what others have said, that in similar circumstances they have given paracetamol or even stronger before leaving home or as they arrive. Beats using nothing at all. Having the stoma already there will make it much quicker and easier, and hopefully not so sore or messy. Boy Leanne, I do hope this is the end of Isaac's button troubles. Love and hugs to you and him, and do let us know what happens. I'll be thinking of you. (Hannah's mum, Melbourne) Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 26, 2001 Report Share Posted November 26, 2001 ----- Original Message ----- > karen i was wondering if hannah didnt have >to have the gastroscopy would she have had to have had a general to have the >bard put in . I am asking this because isaac is having a bard put in in >three weeks with nothing and this has been a bit upsetting to me he has >been hurt so much they don't even know if the bard will stop the leaking Hi Leanne, Sorry to hear of your recent computer problems. Had been wondering where you were. About the GA for the button, I would have requested one anyway for Hannah, due to the respiratory complications involved with her when she is in pain. Also, our gastro specialist only inserts/removes Bard buttons under GA, or so I am told, and he had no hesitation in doing that, I think in spite of the gastroscopy. He used gas to knock her out and then a very mild GA with virtually no residual effect. She woke very quickly, had no nausea, and was very alert as soon as she woke. She did cry for a while, but it was not a pain cry. Since leaving the hospital she has been as happy as ever, even 3 days later. The talk in the emergancy room earlier in the week when I took Hannah for the broken button, was that it could be done there and then in a few minutes, but I was going to stand my ground and refuse that until I'd seen our own specialist. They were saying how quick it is and that a sedative would be used, but my concerns were (a) would they discuss the sedative choice with me, so that I could be sure it contained no carbohydrate?(would possibly cause seizures as she is on the ketogentic diet which has extremely low carbs) ( they were talking about using clonazepam, saying how suitable that would be as she already uses it (but my mind went into a tizz at the mere mention of it as that is what they overdosed her on last admission and we lost seizure control immediately after that) © I was unsure how Hannah would react if insufficient sedative was used (hyperextension, breath holding, seizures are all likely at the slightest pain) In the end it all happened the way I hoped. I wonder if you explained your concern, and perhaps stood your ground, would your doctor reconsider? Surely they will used a sedative at least, and if they refused that, then perhaps you could give him something yourself. I am only going by what others have said, that in similar circumstances they have given paracetamol or even stronger before leaving home or as they arrive. Beats using nothing at all. Having the stoma already there will make it much quicker and easier, and hopefully not so sore or messy. Boy Leanne, I do hope this is the end of Isaac's button troubles. Love and hugs to you and him, and do let us know what happens. I'll be thinking of you. (Hannah's mum, Melbourne) Quote Link to comment Share on other sites More sharing options...
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