Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 We've had that problem, although not recently. nizoral was the worst. My chid would not stop moving at night. The diflucan has been fine. Everytime we changed or increased an SSRI, she couldn't sleep and with zoloft she was bouncing off the walls. she seems to have stabilized on paxil now. We can even slightly increase the dosage without sleeplessness. I know the feeling though. If your child won't sleep, no one gets any sleep! Sleep disturbance > My child has been on the protocal since Oct. Over the last 4 > months her sleep patterns have become so bad that we are desperate. > It seems that she never gets in to deep restorative sleep. She has > trouble going to sleep and wakes at 1 or 2 am and stays up until 5 > am. We are all exhausted and she is miserable. These sleep issues > are definately worse since starting the protocal. We just started > Paxil today. Will this help or hinder? We've been on Valtrex, > famvir (current) , nizoral and lamisil (current) and now Paxil. > Anyone have experience with this? Thanks, Terri > > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 In a message dated 4/3/03 10:55:27 AM Central Standard Time, mumakedi@... writes: << The SSRI's made it even worse (he was getting 2-4 hours in 24) until we reached the correct dosage (in our case it was 5-6 mg prozac) and then suddenly our kid started falling asleep easily, sleeping through the night, waking refreshed and with improved function >> How long did it take to get to the correct dosage? (I'm preparing myself for the start of SSRIs but I'm not sure I'm ready for months of a regressed kiddo) Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 interesting Margaret wrote: > Our son's OT recommended a weighted blanket for 20 minutes at bedtime... > > Re: Sleep disturbance > > > Paxil seems to have helped my 10 y.o. with his > > difficulty in falling asleep, but it took at least a > > month. I also give him benadril every night for > > allergies and sleep. He sleeps about 9 hours and > > seems rested. > > barb ps: What does Dr. G say about these sleep > > problems? > > --- tlschuldt2001 <tlschuldt2001@...> wrote: > > > My child has been on the protocal since Oct. > > > Over the last 4 > > > months her sleep patterns have become so bad that we > > > are desperate. > > > It seems that she never gets in to deep restorative > > > sleep. === message thread truncated for space purposes === ``````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ```````````````````````````````````````` Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 3, 2003 Report Share Posted April 3, 2003 My son falls asleep under his mattress. We are making a weighted blanket. Re: Sleep disturbance > > > > > Paxil seems to have helped my 10 y.o. with his > > > difficulty in falling asleep, but it took at least a > > > month. I also give him benadril every night for > > > allergies and sleep. He sleeps about 9 hours and > > > seems rested. > > > barb ps: What does Dr. G say about these sleep > > > problems? > > > --- tlschuldt2001 <tlschuldt2001@...> wrote: > > > > My child has been on the protocal since Oct. > > > > Over the last 4 > > > > months her sleep patterns have become so bad that we > > > > are desperate. > > > > It seems that she never gets in to deep restorative > > > > sleep. > > === message thread truncated for space purposes === > > ``````````````````````````````````````` > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > ```````````````````````````````````````` > > > > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 You hit onto a hot topic around our house the past three months. Our son, who will be four later this month, had been a near perfect, 12-hour per night sleeper from the age of eight months. Though there has been plenty about him that kept us up at night (if you know what I mean), his lack of sleeping properly wasn't one of them. That all changed on Dec. 23rd when he had trouble sleeping for the first time in a long while and it's never been the same since. Last Friday night he went to bed at 3:30 am. Then on Sunday, he went to be at around 9 pm but got up at 1:45 am and didn't go back to sleep until 6 am. I'm still recovering ... The only place we can get him to go to sleep is in his toy-room hammock. He refuses to fall asleep in his own bed, instead getting up and tearing off all is clothes while running around his room through all hours of the night (yes, there have been some clean-ups after those episodes so we try to avoid them.) Needless to say, we are all exhausted around here. Dr. G ordered us to cut back on his SSRI a bit, however, we're not convinced that's going to do it because the sleep problems didn't begin when the SSRI dose went up. They began 10 days after he began taking Paxil on Dec. 13th. We stayed on that for seven weeks and then switched to Celexa which we've been with for two months. isn't doing horribly but his floortime isn't near as good and his focus and patience are not what they used to be. Unfortunately, right before our last consult (March 5), suddenly started going to bed perfectly for eight nights in a row. As a result, we didn't make a big deal about the sleep issues with Dr. G during the phone call. You can rest assured that it will be a central topic when we talk with him next week. It seems to me that kids who don't get proper rest can't make the kinds of improvements they might otherwise. Our son made huge progress through the fall but it has slowed this winter, the same time that his sleep became erratic. I wish I could tell you that I thought SSRI's would help your daughter's sleep but that hasn't been our experience. However, every kid is different so maybe it will. My only advice is to be clear with Dr. G during your consult about how difficult this is on you and your child and to stress that you think it is interfering with the progress she could be making. You might also want to stress that she didn't have this problem before the protocol. Also, ask him what has happened with other kids who have had sleep problems like this? Do they eventually come out of it??? Is it just a matter of time??? Those are all things that we plan to ask about. Dave --- In , " tlschuldt2001 " <tlschuldt2001@y...> wrote: > My child has been on the protocal since Oct. Over the last 4 > months her sleep patterns have become so bad that we are desperate. > It seems that she never gets in to deep restorative sleep. She has > trouble going to sleep and wakes at 1 or 2 am and stays up until 5 > am. We are all exhausted and she is miserable. These sleep issues > are definately worse since starting the protocal. We just started > Paxil today. Will this help or hinder? We've been on Valtrex, > famvir (current) , nizoral and lamisil (current) and now Paxil. > Anyone have experience with this? Thanks, Terri Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Gaylen In our experienc Dr G started on 1mg and built up slowly over about 5 months. To be clear in our case it was the sleep problems that got worse - other function (awareness, interest language) improved from shortly after the SSRI was introduced and with each upward adjustment of the dosage - thats how we got through the months of no sleep. Muki Googahly@... wrote: In a message dated 4/3/03 10:55:27 AM Central Standard Time, mumakedi@... writes: << The SSRI's made it even worse (he was getting 2-4 hours in 24) until we reached the correct dosage (in our case it was 5-6 mg prozac) and then suddenly our kid started falling asleep easily, sleeping through the night, waking refreshed and with improved function >> How long did it take to get to the correct dosage? (I'm preparing myself for the start of SSRIs but I'm not sure I'm ready for months of a regressed kiddo) Gaylen ````````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 The instructions we received from our OT included not letting the weighted blanket remain on for more than 20-30 minutes. Never all night. I forget which of the sensory dysfunction areas this helps, but at the clinic my son settled right down when I covered him with it...I would encourage everyone who can, to have a sensory evaluation by an occupational therapy clinic. Margaret Re: Sleep disturbance > > > > > > > Paxil seems to have helped my 10 y.o. with his > > > > difficulty in falling asleep, but it took at least a > > > > month. I also give him benadril every night for > > > > allergies and sleep. He sleeps about 9 hours and > > > > seems rested. > > > > barb ps: What does Dr. G say about these sleep > > > > problems? > > > > --- tlschuldt2001 <tlschuldt2001@...> wrote: > > > > > My child has been on the protocal since Oct. > > > > > Over the last 4 > > > > > months her sleep patterns have become so bad that we > > > > > are desperate. > > > > > It seems that she never gets in to deep restorative > > > > > sleep. > > > > === message thread truncated for space purposes === > > > > ``````````````````````````````````````` > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > ```````````````````````````````````````` > > > > > > > > Responsibility for the content of this message lies strictly with > > the original author, and is not necessarily endorsed by or the > > opinion of the Research Institute. > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 In a message dated 4/3/03 11:58:27 PM Central Standard Time, mumakedi@... writes: << In our experienc Dr G started on 1mg and built up slowly over about 5 months. To be clear in our case it was the sleep problems that got worse - other function (awareness, interest language) improved from shortly after the SSRI was introduced and with each upward adjustment of the dosage - thats how we got through the months of no sleep. >> That makes sense. I'd assume he would have changed the med if you hadn't seen other improvements. It sure would be nice if we could just get improvements but it always seems we have to take the good with some not so good. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 Where can I get a weighted blanket -- or how do I make one? Re: Sleep disturbance > My son falls asleep under his mattress. We are making a weighted blanket. Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 quietquilt.com theraproducts.com and probably many other occupational/sensory therapy vendors.. Margaret Re: Sleep disturbance > > > > My son falls asleep under his mattress. We are making a weighted blanket. > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 4, 2003 Report Share Posted April 4, 2003 thanks Re: Sleep disturbance > > > > My son falls asleep under his mattress. We are making a weighted blanket. > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 Hi Barb, I would be interested in where to purchase this cocoon type sleeping accessorie. thanks Tammy Donnaaron <donnaaron@...> wrote: LOL - when my son wakes up in the morning he's always completely swaddled -- the sheets and blankets are wound all around him! Now I know why! Donna Re: Sleep disturbance > > interesting > > > > Margaret wrote: > > > > > Our son's OT recommended a weighted blanket for > 20 minutes at bedtime... === message thread truncated === ``````````````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ``````````````````````````````````````````````` --------------------------------- Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 Tammy, One thing many children seen to like is a bag, about the size of a large garbage bag made out of spandex. It provides pressure but also has give. I have seen them in catalogues, where people fill them with balls, like the ones in the Mcs ball pits and let their children wedge themselves in with the balls. A wonderful sensory experience. Re: Sleep disturbance > Hi Barb, > I would be interested in where to purchase this cocoon type sleeping accessorie. > thanks > Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 I do not actually own one, altho I would like to purchase one myself. They have used it often in ot, and loves it. It is a very stretchy, thick fabric, and the cocoon comes in different sizes. They are available in those magazines that ots purchase sensory things, so you could ask an ot that works with your son if you can look in one of her catalogues. If you are handy, you can also buy this fabric at the fabric store and make your own. It is only a few long seams. It's a thick polyester, very stretchy fabric. You could make it to the exact amount of tightness your son likes. It ends up resembling a sleeping bag, but it is always closed. I've noticed that my son often pulls his arms out of his sleeves to " cocoon " his body. He is often cold so this also makes him feel warmer. --- TAMMY <tammyblanchette2002@...> wrote: > Hi Barb, > I would be interested in where to purchase this > cocoon type sleeping accessorie. > thanks > Tammy > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 I'm pretty sure you can buy the body sock at Southpaw. I think their website is southpaw.com but you may need to do a search for the exact name. When we were thinking of using one of these, several folks told me they were very easy to make cheaply by buying spandex material and sewing it together. Our state MHMR bought Southpaw's deluxe weighted blanket package for Curtis several years ago. It consists of four heavy blankets that velcro together. They were great when he really needed them and we've used them for several kids. Gaylen Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 5, 2003 Report Share Posted April 5, 2003 Last year my Ot did a sensory evaluation then made up a sensory diet. Which recognised his need to feed his senses. Like a food diet your senses need to be feed through out the day. Recognising this need, getting a few new suggestions and implementing them seemed to help his body and brain function. And he defiantly gets to sleep quicker. Especially in down times when his sensory requirements are heightened ( go off the planet.) I had been to IKEA and brought a rainbow coloured, soft & silky 2.metre soft toy snake. It had a unique design, the tail was tailored to wrap around you. Which it did as soon as my son picked it up. At my speech pathologist's (she's a GOD) suggestion I threaded a heavy gauge chain through it. Now, I realise, we already have a version of a weight blanket. With a few other sense thrown in. But the one I enjoy best is All of the BIG cuddles, squeezes and loves that I get every time he goes to bed or wakes up. He even lets me kiss and nibble his ear. I give him the words to tell me how gooey and tickle it feels and to stop,mum, because that feels yucky. But he knows how much I like eating my children. I do find that all therapies become more effective if you can manage to make them a natural part of your life. Yes, other people, even children look and wonder. We're too busy giggling to work out if it's abuse or therapy. Jeni Re: Sleep disturbance > > > > My son falls asleep under his mattress. We are making a weighted blanket. > Responsibility for the content of this message lies strictly with > the original author, and is not necessarily endorsed by or the > opinion of the Research Institute. > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted April 6, 2003 Report Share Posted April 6, 2003 thanks , I will certainly look into this. Tammy Doug McCreary <dmccreary@...> wrote: Tammy, One thing many children seen to like is a bag, about the size of a large garbage bag made out of spandex. It provides pressure but also has give. I have seen them in catalogues, where people fill them with balls, like the ones in the Mcs ball pits and let their children wedge themselves in with the balls. A wonderful sensory experience. Re: Sleep disturbance > Hi Barb, > I would be interested in where to purchase this cocoon type sleeping accessorie. > thanks > Tammy ________________________________________ ```````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. ________________________________________ Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 I, personally, would not increase the melatonin. I would blame yeast and I would use Candex, following the instructions on the bottle ~precisely~. We use the adult dose for a 47 lb 7 year old to good effect. --- Rhonda <joyandcharles@...> wrote: > We began chelating our 2.5 year old ASD son last > weekend. Last night > he was wide awake from 2:00-5:00am. He played like > it was 7am. He > wasn't cranky or anything. We are giving Melatonin > about 1/2 hour > before bed(just started with the chelation). This > type of sleep > disturbance has never happened before, even with an > ongoing ear > infection. We are giving 3mg of Melatonin. Can we > increase the > dosage...he's 37Lbs. > > He has had an ongoing ear infection and is on > Cefzil. His ped. said > to go ahead with the chelation(we actually found > someone who > understands the importance of getting rid of the > metals!). FYI...he > is on the Specific Carbohydrate Diet, with some > exceptions to allow a > treat when he takes his " medicine " (DMSA). He's been > on antibiotics > several times and never had sleep problems so we > don't think that is > the problem. Could the chelation be causing his > wakefulness? > > We would appreciate suggestions. With a sick 9 > month old, sleep is > precious. > > Thanks, > Rhonda and Bartt > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 That should be enough Melatonin for his size. maybe try a different brand. We like Kirkman melatonin plus - it has some magensium in too. I think maybe yeast might be the problem, that can cause night waking too. Or is he still napping in the day and not needing that now? Or maybe he feels so much better, he doesn;t want to waste time sleeping, he wnats to play and enjoy the world? Just my ramblings Mandi in UK We began chelating our 2.5 year old ASD son last weekend. Last night he was wide awake from 2:00-5:00am. He played like it was 7am. He wasn't cranky or anything. We are giving Melatonin about 1/2 hour before bed(just started with the chelation). This type of sleep disturbance has never happened before, even with an ongoing ear infection. We are giving 3mg of Melatonin. Can we increase the dosage...he's 37Lbs. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 Consider probiotics. Have you tried chelation without the melatonin? S <tt> We began chelating our 2.5 year old ASD son last weekend. Last night <BR> he was wide awake from 2:00-5:00am. He played like it was 7am. He <BR> wasn't cranky or anything. We are giving Melatonin about 1/2 hour <BR> before bed(just started with the chelation). This type of sleep <BR> disturbance has never happened before, even with an ongoing ear <BR> infection. We are giving 3mg of Melatonin. Can we increase the <BR> dosage...he's 37Lbs.<BR> <BR> He has had an ongoing ear infection and is on Cefzil. His ped. said <BR> to go ahead with the chelation(we actually found someone who <BR> understands the importance of getting rid of the metals!). FYI...he <BR> is on the Specific Carbohydrate Diet, with some exceptions to allow a <BR> treat when he takes his " medicine " (DMSA). He's been on antibiotics <BR> several times and never had sleep problems so we don't think that is <BR> the problem. Could the chelation be causing his wakefulness?<BR> <BR> We would appreciate suggestions. With a sick 9 month old, sleep is <BR> precious.<BR> <BR> Thanks,<BR> Rhonda and Bartt <BR> <BR> <BR> <BR> </tt> <br><br> <tt> =======================================================<BR> Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 1, 2005 Report Share Posted May 1, 2005 > > Consider probiotics. We're doing them daily with Nystatin. Have you tried chelation without the melatonin? Nope...Maybe we will. Thanks. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted May 2, 2005 Report Share Posted May 2, 2005 We use rx clonidine but it wasn't until we added Inositol that he slept through the night. RE: [ ] sleep disturbance > > Consider probiotics. Have you tried chelation without the melatonin? > S > > > > > <tt> > We began chelating our 2.5 year old ASD son last weekend. Last night <BR> > he was wide awake from 2:00-5:00am. He played like it was 7am. He <BR> > wasn't cranky or anything. We are giving Melatonin about 1/2 hour <BR> > before bed(just started with the chelation). This type of sleep <BR> > disturbance has never happened before, even with an ongoing ear <BR> > infection. We are giving 3mg of Melatonin. Can we increase the <BR> > dosage...he's 37Lbs.<BR> > <BR> > He has had an ongoing ear infection and is on Cefzil. His ped. said <BR> > to go ahead with the chelation(we actually found someone who <BR> > understands the importance of getting rid of the metals!). FYI...he <BR> > is on the Specific Carbohydrate Diet, with some exceptions to allow a <BR> > treat when he takes his " medicine " (DMSA). He's been on antibiotics <BR> > several times and never had sleep problems so we don't think that is <BR> > the problem. Could the chelation be causing his wakefulness?<BR> > <BR> > We would appreciate suggestions. With a sick 9 month old, sleep is <BR> > precious.<BR> > <BR> > Thanks,<BR> > Rhonda and Bartt <BR> > <BR> > <BR> > <BR> > </tt> > > <br><br> > <tt> > =======================================================<BR> > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 29, 2005 Report Share Posted November 29, 2005 , I finally succumbed to Ambien, because I teach and have to be up around 6:30. I hope things improve... Quote Link to comment Share on other sites More sharing options...
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