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Re: Are Some Genotypes Worse than Others?

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Posted
Posted

Yes.

Chronic disease is profitable. A cured disease brings

an end to profits.

I saw a famous hepatologist, for whom I have great

respect and affection. He is, however a naive man in

that, like you, he is shocked by the suggestion that

these companies do not ride white horses while

carrying big swords.

--- Jackie on wrote:

> IN MY PERSONAL opinion,, YES! Not everyone feels

> that way, but I DO ,, and that is why Im not going

> out of my way to start down THAT road of discussion.

> I DO have a right to my own opinion,, dont I???

>

> " Johanna (Hep C - MO) "

> wrote:I'm sorry, but are you seriously suggesting

> that the drug companies " want "

> or view your sickness in only a profitable light?

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.(Business)

>

> On Sat, September 3, 2005 10:58 pm, Jackie on

> said:

> > Sandy

> > Im sorry to say but I TOTALLY agree with you

> regarding the Drug

> > companies,, its much to their advantage to have us

> sick CHRONICALLY so we

> > can continue to use their poisons,,

> > Well its probably NOT in MY best interest to get

> started on this

> > subject,, lol

> >

> > sandy katt wrote:

> > I need more.

> >

> >

> >

> > Why don't you research further and find out the

> stats

> > for two years after treatment?

> >

> > Unless, of course, 6 months is all the health

> duration

> > you are after.

> >

> > Selected information is being put out by a

> company in

> > who's interest it is to sell a drug treatment. In

> my

> > humble opinion, a person who believes that the R

> & amp; I

> > companies want to find a cure is naive. A chronic

> > disease is preferrable to their pockets.

> >

> > Has anyone heard anything new about VERTEX?

> >

> > --- Bhprice425@... wrote:

> >

> > > Let me know if you need more.

> > >

> > > Research has shown that it is more effective to

> > > treat HCV using a combination

> > > of pegylated interferon and ribavirin than

> treating

> > > without ribavirin. For

> > > people infected with HCV only, SVR is achieved

> in

> > > about 45-50% with genotype 1,

> > > and over 80% with genotype 2 or 3 when treated

> with

> > > the combination.

> > > http://www.atdn.org/simple/pifn.html

> > >

> > > The currently acceptable therapy for HCV is a

> > > combination of interferon and

> > > ribavirin. Conjugation of polyethylene glycol

> (PEG)

> > > to interferon--pegylated

> > > interferon--is the newest advance in the

> treatment

> > > of HCV patients. Pegylation

> > > increases the elimination half-life of

> interferon,

> > > providing improved efficacy

> > > with once-weekly dosing. SVR rates in patients

> > > infected with genotype 1 HCV

> > > have increased from 10-15% with interferon

> > > monotherapy to over 50% using the

> > > pegylated interferon-ribavirin combination.

> Patients

> > > infected with genotype 2 or

> > > 3 achieve SVR rates of 80% and more.

> > >

> >

>

http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > Pipeline Innovations in Hepatitis C Treatments

> > > However, approximately 50% of patients infected

> with

> > > HCV genotype 1 do not

> > > achieve

> > > a sustained virologic response (SVR) with

> initial

> > > interferon-based ...

> > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > May I recommend the Clinicians Guide Volume

> > > VII........it's a guide for

> > > doctors to treat Hepatitis C .....all the

> latest by

> > > the best hepatologists in the

> > > nation.

> > > Silvia

> > > www.projectsinknowledge.com/

> > > init/g/1688/1688_Monograph.pdf

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Guest guest

Guest guest

Posted
Posted

Yes.

Chronic disease is profitable. A cured disease brings

an end to profits.

I saw a famous hepatologist, for whom I have great

respect and affection. He is, however a naive man in

that, like you, he is shocked by the suggestion that

these companies do not ride white horses while

carrying big swords.

--- Jackie on wrote:

> IN MY PERSONAL opinion,, YES! Not everyone feels

> that way, but I DO ,, and that is why Im not going

> out of my way to start down THAT road of discussion.

> I DO have a right to my own opinion,, dont I???

>

> " Johanna (Hep C - MO) "

> wrote:I'm sorry, but are you seriously suggesting

> that the drug companies " want "

> or view your sickness in only a profitable light?

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.(Business)

>

> On Sat, September 3, 2005 10:58 pm, Jackie on

> said:

> > Sandy

> > Im sorry to say but I TOTALLY agree with you

> regarding the Drug

> > companies,, its much to their advantage to have us

> sick CHRONICALLY so we

> > can continue to use their poisons,,

> > Well its probably NOT in MY best interest to get

> started on this

> > subject,, lol

> >

> > sandy katt wrote:

> > I need more.

> >

> >

> >

> > Why don't you research further and find out the

> stats

> > for two years after treatment?

> >

> > Unless, of course, 6 months is all the health

> duration

> > you are after.

> >

> > Selected information is being put out by a

> company in

> > who's interest it is to sell a drug treatment. In

> my

> > humble opinion, a person who believes that the R

> & amp; I

> > companies want to find a cure is naive. A chronic

> > disease is preferrable to their pockets.

> >

> > Has anyone heard anything new about VERTEX?

> >

> > --- Bhprice425@... wrote:

> >

> > > Let me know if you need more.

> > >

> > > Research has shown that it is more effective to

> > > treat HCV using a combination

> > > of pegylated interferon and ribavirin than

> treating

> > > without ribavirin. For

> > > people infected with HCV only, SVR is achieved

> in

> > > about 45-50% with genotype 1,

> > > and over 80% with genotype 2 or 3 when treated

> with

> > > the combination.

> > > http://www.atdn.org/simple/pifn.html

> > >

> > > The currently acceptable therapy for HCV is a

> > > combination of interferon and

> > > ribavirin. Conjugation of polyethylene glycol

> (PEG)

> > > to interferon--pegylated

> > > interferon--is the newest advance in the

> treatment

> > > of HCV patients. Pegylation

> > > increases the elimination half-life of

> interferon,

> > > providing improved efficacy

> > > with once-weekly dosing. SVR rates in patients

> > > infected with genotype 1 HCV

> > > have increased from 10-15% with interferon

> > > monotherapy to over 50% using the

> > > pegylated interferon-ribavirin combination.

> Patients

> > > infected with genotype 2 or

> > > 3 achieve SVR rates of 80% and more.

> > >

> >

>

http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > Pipeline Innovations in Hepatitis C Treatments

> > > However, approximately 50% of patients infected

> with

> > > HCV genotype 1 do not

> > > achieve

> > > a sustained virologic response (SVR) with

> initial

> > > interferon-based ...

> > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > May I recommend the Clinicians Guide Volume

> > > VII........it's a guide for

> > > doctors to treat Hepatitis C .....all the

> latest by

> > > the best hepatologists in the

> > > nation.

> > > Silvia

> > > www.projectsinknowledge.com/

> > > init/g/1688/1688_Monograph.pdf

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Guest guest

Guest guest

Posted
Posted

I would never suggest that this companies are operating from a totally

altruistic place, but I'm realistic enough to recognize that for them this

is a job too - one that serves the public and those they employ.

If it's a choice between someone riding a white horse and producing a

crappy cure, and someone with a white coat, a family a mortgage and car

payments, who recognizes that his job depends on him doing the best job he

can -

I'll go with the white coat everytime.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:24 am, sandy katt said:

> Yes.

>

> Chronic disease is profitable. A cured disease brings

> an end to profits.

>

> I saw a famous hepatologist, for whom I have great

> respect and affection. He is, however a naive man in

> that, like you, he is shocked by the suggestion that

> these companies do not ride white horses while

> carrying big swords.

>

> --- Jackie on wrote:

>

> > IN MY PERSONAL opinion,, YES! Not everyone feels

> > that way, but I DO ,, and that is why Im not going

> > out of my way to start down THAT road of discussion.

> > I DO have a right to my own opinion,, dont I???

> >

> > & quot;Johanna (Hep C - MO) & quot;

> > wrote:I'm sorry, but are you seriously suggesting

> > that the drug companies & quot;want & quot;

> > or view your sickness in only a profitable light?

> >

> > Johanna Koskinen, Outreach Coordinator

> > Hepatitic C Multicultural Outreach(HepC-Missouri)

> > http://www.hepcmo.org Email: johanna@...

> >

> > Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> > Phone#: 1.(Business)

> >

> > On Sat, September 3, 2005 10:58 pm, Jackie on

> > said:

> > > Sandy

> > > Im sorry to say but I TOTALLY agree with you

> > regarding the Drug

> > > companies,, its much to their advantage to have us

> > sick CHRONICALLY so we

> > > can continue to use their poisons,,

> > > Well its probably NOT in MY best interest to get

> > started on this

> > > subject,, lol

> > >

> > > sandy katt wrote:

> > > I need more.

> > >

> > >

> > >

> > > Why don't you research further and find out the

> > stats

> > > for two years after treatment?

> > >

> > > Unless, of course, 6 months is all the health

> > duration

> > > you are after.

> > >

> > > Selected information is being put out by a

> > company in

> > > who's interest it is to sell a drug treatment. In

> > my

> > > humble opinion, a person who believes that the R

> > & amp;amp; I

> > > companies want to find a cure is naive. A chronic

> > > disease is preferrable to their pockets.

> > >

> > > Has anyone heard anything new about VERTEX?

> > >

> > > --- Bhprice425@... wrote:

> > >

> > > > Let me know if you need more.

> > > >

> > > > Research has shown that it is more effective to

> > > > treat HCV using a combination

> > > > of pegylated interferon and ribavirin than

> > treating

> > > > without ribavirin. For

> > > > people infected with HCV only, SVR is achieved

> > in

> > > > about 45-50% with genotype 1,

> > > > and over 80% with genotype 2 or 3 when treated

> > with

> > > > the combination.

> > > > http://www.atdn.org/simple/pifn.html

> > > >

> > > > The currently acceptable therapy for HCV is a

> > > > combination of interferon and

> > > > ribavirin. Conjugation of polyethylene glycol

> > (PEG)

> > > > to interferon--pegylated

> > > > interferon--is the newest advance in the

> > treatment

> > > > of HCV patients. Pegylation

> > > > increases the elimination half-life of

> > interferon,

> > > > providing improved efficacy

> > > > with once-weekly dosing. SVR rates in patients

> > > > infected with genotype 1 HCV

> > > > have increased from 10-15% with interferon

> > > > monotherapy to over 50% using the

> > > > pegylated interferon-ribavirin combination.

> > Patients

> > > > infected with genotype 2 or

> > > > 3 achieve SVR rates of 80% and more.

> > > >

> > >

> >

> http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > > Pipeline Innovations in Hepatitis C Treatments

> > > > However, approximately 50% of patients infected

> > with

> > > > HCV genotype 1 do not

> > > > achieve

> > > > a sustained virologic response (SVR) with

> > initial

> > > > interferon-based ...

> > > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > > May I recommend the Clinicians Guide Volume

> > > > VII........it's a guide for

> > > > doctors to treat Hepatitis C .....all the

> > latest by

> > > > the best hepatologists in the

> > > > nation.

> > > > Silvia

> > > > www.projectsinknowledge.com/

> > > > init/g/1688/1688_Monograph.pdf

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > > >

> > > >

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Guest guest

Guest guest

Posted
Posted

I would never suggest that this companies are operating from a totally

altruistic place, but I'm realistic enough to recognize that for them this

is a job too - one that serves the public and those they employ.

If it's a choice between someone riding a white horse and producing a

crappy cure, and someone with a white coat, a family a mortgage and car

payments, who recognizes that his job depends on him doing the best job he

can -

I'll go with the white coat everytime.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:24 am, sandy katt said:

> Yes.

>

> Chronic disease is profitable. A cured disease brings

> an end to profits.

>

> I saw a famous hepatologist, for whom I have great

> respect and affection. He is, however a naive man in

> that, like you, he is shocked by the suggestion that

> these companies do not ride white horses while

> carrying big swords.

>

> --- Jackie on wrote:

>

> > IN MY PERSONAL opinion,, YES! Not everyone feels

> > that way, but I DO ,, and that is why Im not going

> > out of my way to start down THAT road of discussion.

> > I DO have a right to my own opinion,, dont I???

> >

> > & quot;Johanna (Hep C - MO) & quot;

> > wrote:I'm sorry, but are you seriously suggesting

> > that the drug companies & quot;want & quot;

> > or view your sickness in only a profitable light?

> >

> > Johanna Koskinen, Outreach Coordinator

> > Hepatitic C Multicultural Outreach(HepC-Missouri)

> > http://www.hepcmo.org Email: johanna@...

> >

> > Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> > Phone#: 1.(Business)

> >

> > On Sat, September 3, 2005 10:58 pm, Jackie on

> > said:

> > > Sandy

> > > Im sorry to say but I TOTALLY agree with you

> > regarding the Drug

> > > companies,, its much to their advantage to have us

> > sick CHRONICALLY so we

> > > can continue to use their poisons,,

> > > Well its probably NOT in MY best interest to get

> > started on this

> > > subject,, lol

> > >

> > > sandy katt wrote:

> > > I need more.

> > >

> > >

> > >

> > > Why don't you research further and find out the

> > stats

> > > for two years after treatment?

> > >

> > > Unless, of course, 6 months is all the health

> > duration

> > > you are after.

> > >

> > > Selected information is being put out by a

> > company in

> > > who's interest it is to sell a drug treatment. In

> > my

> > > humble opinion, a person who believes that the R

> > & amp;amp; I

> > > companies want to find a cure is naive. A chronic

> > > disease is preferrable to their pockets.

> > >

> > > Has anyone heard anything new about VERTEX?

> > >

> > > --- Bhprice425@... wrote:

> > >

> > > > Let me know if you need more.

> > > >

> > > > Research has shown that it is more effective to

> > > > treat HCV using a combination

> > > > of pegylated interferon and ribavirin than

> > treating

> > > > without ribavirin. For

> > > > people infected with HCV only, SVR is achieved

> > in

> > > > about 45-50% with genotype 1,

> > > > and over 80% with genotype 2 or 3 when treated

> > with

> > > > the combination.

> > > > http://www.atdn.org/simple/pifn.html

> > > >

> > > > The currently acceptable therapy for HCV is a

> > > > combination of interferon and

> > > > ribavirin. Conjugation of polyethylene glycol

> > (PEG)

> > > > to interferon--pegylated

> > > > interferon--is the newest advance in the

> > treatment

> > > > of HCV patients. Pegylation

> > > > increases the elimination half-life of

> > interferon,

> > > > providing improved efficacy

> > > > with once-weekly dosing. SVR rates in patients

> > > > infected with genotype 1 HCV

> > > > have increased from 10-15% with interferon

> > > > monotherapy to over 50% using the

> > > > pegylated interferon-ribavirin combination.

> > Patients

> > > > infected with genotype 2 or

> > > > 3 achieve SVR rates of 80% and more.

> > > >

> > >

> >

> http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > > Pipeline Innovations in Hepatitis C Treatments

> > > > However, approximately 50% of patients infected

> > with

> > > > HCV genotype 1 do not

> > > > achieve

> > > > a sustained virologic response (SVR) with

> > initial

> > > > interferon-based ...

> > > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > > May I recommend the Clinicians Guide Volume

> > > > VII........it's a guide for

> > > > doctors to treat Hepatitis C .....all the

> > latest by

> > > > the best hepatologists in the

> > > > nation.

> > > > Silvia

> > > > www.projectsinknowledge.com/

> > > > init/g/1688/1688_Monograph.pdf

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > > >

> > > >

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Guest guest

Guest guest

Posted
Posted

Oh please, spare me the turning down of the nose! My brother-in-law is a

doctor, and the 100k you're talking about tells me you're watching too

much tv. It's just not true. And the ones who do make that much (of which

there are very few), will tell you that number is on paper and not in

their pocket. I've watched doctors over the past five years close down

their offices because they can't keep up with the cost of what it takes to

operate an office.

You're idea that a doctor lives a life of luxury just isn't true. The few

who do are living in the hills of Beverly, doing face lifts and tummy

tucks.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:26 am, Ric said:

>

> yea I'm thrilled that I'm not a doctor making 100K a year and

> driving a BMW

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

>

> It's a pleasure having you join in our conversations. We hope you have

> found the support you need with us.

>

> If you are using email for your posts, for easy access to our group, just

> click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/

>

> Happy Posting

>

>

>

>

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Guest guest

Guest guest

Posted
Posted

Apologies if you get this twice. I find the plethora

of emails confusing. i am new to 'groups'.

Yes. I AM seriously suggesting that profits are the

bottom line and driving motivation behind corporate

movement.

How could you possible think otherwize? I know you are

an angel of mercy. CEO's are angels for money.

Johanna, do you know the true stats for HCV remission

after peg interferon type treatment for the #1

genotypes, a & b?

Perhaps you could confirm that of 100 people with

either of those #1 genotypes, only 50 will respond to

the treatment. Of those 50, only 25 (50% of the

already halved group) will sustain that remission for

over 6 months. Of those 25, half will relapse within

two years.

The 'treating' companies like to publish statistics

lumped together with all genotypes. I did a lot of

reading about this disease and all sorts of treatments

when I was diagnosed. A placebo, as I understand it,

has a 35% response rate.

I do understand that these are the only accepted

treatments western medicine currently has to offer. I

do believe, however, that people have the right to

make their medical decisions based on fact rather than

marketing strategies.

I am not angry with you so please excuse any such tone

in this missive. I am very distressed at having the

disease; at being forcibly shoved into particular

slots of personal behavior when there are many

innocent ways I could have picked it up; at there

being little, if any, research done with people who

have spontaneously thrown off the disease (who are

just people like me but I have yet to throw off the

disease), at what possible reason the medical

community could have to continue to support this sort

of torture with the #1 genotypes ...

Apologies but this is my truth.

--- " Johanna (Hep C - MO) " wrote:

> I'm sorry, but are you seriously suggesting that the

> drug companies " want "

> or view your sickness in only a profitable light?

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.(Business)

>

> On Sat, September 3, 2005 10:58 pm, Jackie on

> said:

> > Sandy

> > Im sorry to say but I TOTALLY agree with you

> regarding the Drug

> > companies,, its much to their advantage to have us

> sick CHRONICALLY so we

> > can continue to use their poisons,,

> > Well its probably NOT in MY best interest to get

> started on this

> > subject,, lol

> >

> > sandy katt wrote:

> > I need more.

> >

> >

> >

> > Why don't you research further and find out the

> stats

> > for two years after treatment?

> >

> > Unless, of course, 6 months is all the health

> duration

> > you are after.

> >

> > Selected information is being put out by a

> company in

> > who's interest it is to sell a drug treatment. In

> my

> > humble opinion, a person who believes that the R

> & amp; I

> > companies want to find a cure is naive. A chronic

> > disease is preferrable to their pockets.

> >

> > Has anyone heard anything new about VERTEX?

> >

> > --- Bhprice425@... wrote:

> >

> > > Let me know if you need more.

> > >

> > > Research has shown that it is more effective to

> > > treat HCV using a combination

> > > of pegylated interferon and ribavirin than

> treating

> > > without ribavirin. For

> > > people infected with HCV only, SVR is achieved

> in

> > > about 45-50% with genotype 1,

> > > and over 80% with genotype 2 or 3 when treated

> with

> > > the combination.

> > > http://www.atdn.org/simple/pifn.html

> > >

> > > The currently acceptable therapy for HCV is a

> > > combination of interferon and

> > > ribavirin. Conjugation of polyethylene glycol

> (PEG)

> > > to interferon--pegylated

> > > interferon--is the newest advance in the

> treatment

> > > of HCV patients. Pegylation

> > > increases the elimination half-life of

> interferon,

> > > providing improved efficacy

> > > with once-weekly dosing. SVR rates in patients

> > > infected with genotype 1 HCV

> > > have increased from 10-15% with interferon

> > > monotherapy to over 50% using the

> > > pegylated interferon-ribavirin combination.

> Patients

> > > infected with genotype 2 or

> > > 3 achieve SVR rates of 80% and more.

> > >

> >

>

http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > Pipeline Innovations in Hepatitis C Treatments

> > > However, approximately 50% of patients infected

> with

> > > HCV genotype 1 do not

> > > achieve

> > > a sustained virologic response (SVR) with

> initial

> > > interferon-based ...

> > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > May I recommend the Clinicians Guide Volume

> > > VII........it's a guide for

> > > doctors to treat Hepatitis C .....all the

> latest by

> > > the best hepatologists in the

> > > nation.

> > > Silvia

> > > www.projectsinknowledge.com/

> > > init/g/1688/1688_Monograph.pdf

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Posted
Posted

Hon,

Don't you dare apologize for anything. I'm not getting any vibe from you

except one of sincere and honest frustration! And if you can't voice that

here, where can you voice it!?!,

As for the numbers you're quoting, yes it would be wonderful if people

could get 'the facts,' but the problem is so high up the ladder (I'm

talking more about those who package and sell the miracles, as opposed to

the ones who are really creating/producing/discovering them), that we tend

to forget that somewhere in that big company are a group of men and women

who truly are trying to solve the riddle of this dreaded virus.

I've had opportunity to meet some of those scientists, and I've seen their

eyes - their passion and determination. I've also talked with a scientist

= grown man fighting back tears because his mother died from end-stage

liver disease.

Being angry and frustrated is totally justified. I'm just trying to show

that the anger can be at the total industry, because the real heroes are

the ones you'll never see on the web, or in the news, or shaking the hands

of the president.

Does that make sense?

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:41 am, sandy katt said:

> Apologies if you get this twice. I find the plethora

> of emails confusing. i am new to 'groups'.

>

> Yes. I AM seriously suggesting that profits are the

> bottom line and driving motivation behind corporate

> movement.

>

> How could you possible think otherwize? I know you are

> an angel of mercy. CEO's are angels for money.

>

> Johanna, do you know the true stats for HCV remission

> after peg interferon type treatment for the #1

> genotypes, a & amp; b?

>

> Perhaps you could confirm that of 100 people with

> either of those #1 genotypes, only 50 will respond to

> the treatment. Of those 50, only 25 (50% of the

> already halved group) will sustain that remission for

> over 6 months. Of those 25, half will relapse within

> two years.

>

> The 'treating' companies like to publish statistics

> lumped together with all genotypes. I did a lot of

> reading about this disease and all sorts of treatments

> when I was diagnosed. A placebo, as I understand it,

> has a 35% response rate.

>

> I do understand that these are the only accepted

> treatments western medicine currently has to offer. I

> do believe, however, that people have the right to

> make their medical decisions based on fact rather than

> marketing strategies.

>

> I am not angry with you so please excuse any such tone

> in this missive. I am very distressed at having the

> disease; at being forcibly shoved into particular

> slots of personal behavior when there are many

> innocent ways I could have picked it up; at there

> being little, if any, research done with people who

> have spontaneously thrown off the disease (who are

> just people like me but I have yet to throw off the

> disease), at what possible reason the medical

> community could have to continue to support this sort

> of torture with the #1 genotypes ...

>

> Apologies but this is my truth.

>

> --- & quot;Johanna (Hep C - MO) & quot; wrote:

>

> > I'm sorry, but are you seriously suggesting that the

> > drug companies & quot;want & quot;

> > or view your sickness in only a profitable light?

> >

> > Johanna Koskinen, Outreach Coordinator

> > Hepatitic C Multicultural Outreach(HepC-Missouri)

> > http://www.hepcmo.org Email: johanna@...

> >

> > Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> > Phone#: 1.(Business)

> >

> > On Sat, September 3, 2005 10:58 pm, Jackie on

> > said:

> > > Sandy

> > > Im sorry to say but I TOTALLY agree with you

> > regarding the Drug

> > > companies,, its much to their advantage to have us

> > sick CHRONICALLY so we

> > > can continue to use their poisons,,

> > > Well its probably NOT in MY best interest to get

> > started on this

> > > subject,, lol

> > >

> > > sandy katt wrote:

> > > I need more.

> > >

> > >

> > >

> > > Why don't you research further and find out the

> > stats

> > > for two years after treatment?

> > >

> > > Unless, of course, 6 months is all the health

> > duration

> > > you are after.

> > >

> > > Selected information is being put out by a

> > company in

> > > who's interest it is to sell a drug treatment. In

> > my

> > > humble opinion, a person who believes that the R

> > & amp;amp; I

> > > companies want to find a cure is naive. A chronic

> > > disease is preferrable to their pockets.

> > >

> > > Has anyone heard anything new about VERTEX?

> > >

> > > --- Bhprice425@... wrote:

> > >

> > > > Let me know if you need more.

> > > >

> > > > Research has shown that it is more effective to

> > > > treat HCV using a combination

> > > > of pegylated interferon and ribavirin than

> > treating

> > > > without ribavirin. For

> > > > people infected with HCV only, SVR is achieved

> > in

> > > > about 45-50% with genotype 1,

> > > > and over 80% with genotype 2 or 3 when treated

> > with

> > > > the combination.

> > > > http://www.atdn.org/simple/pifn.html

> > > >

> > > > The currently acceptable therapy for HCV is a

> > > > combination of interferon and

> > > > ribavirin. Conjugation of polyethylene glycol

> > (PEG)

> > > > to interferon--pegylated

> > > > interferon--is the newest advance in the

> > treatment

> > > > of HCV patients. Pegylation

> > > > increases the elimination half-life of

> > interferon,

> > > > providing improved efficacy

> > > > with once-weekly dosing. SVR rates in patients

> > > > infected with genotype 1 HCV

> > > > have increased from 10-15% with interferon

> > > > monotherapy to over 50% using the

> > > > pegylated interferon-ribavirin combination.

> > Patients

> > > > infected with genotype 2 or

> > > > 3 achieve SVR rates of 80% and more.

> > > >

> > >

> >

> http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > > Pipeline Innovations in Hepatitis C Treatments

> > > > However, approximately 50% of patients infected

> > with

> > > > HCV genotype 1 do not

> > > > achieve

> > > > a sustained virologic response (SVR) with

> > initial

> > > > interferon-based ...

> > > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > > May I recommend the Clinicians Guide Volume

> > > > VII........it's a guide for

> > > > doctors to treat Hepatitis C .....all the

> > latest by

> > > > the best hepatologists in the

> > > > nation.

> > > > Silvia

> > > > www.projectsinknowledge.com/

> > > > init/g/1688/1688_Monograph.pdf

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Hon,

Don't you dare apologize for anything. I'm not getting any vibe from you

except one of sincere and honest frustration! And if you can't voice that

here, where can you voice it!?!,

As for the numbers you're quoting, yes it would be wonderful if people

could get 'the facts,' but the problem is so high up the ladder (I'm

talking more about those who package and sell the miracles, as opposed to

the ones who are really creating/producing/discovering them), that we tend

to forget that somewhere in that big company are a group of men and women

who truly are trying to solve the riddle of this dreaded virus.

I've had opportunity to meet some of those scientists, and I've seen their

eyes - their passion and determination. I've also talked with a scientist

= grown man fighting back tears because his mother died from end-stage

liver disease.

Being angry and frustrated is totally justified. I'm just trying to show

that the anger can be at the total industry, because the real heroes are

the ones you'll never see on the web, or in the news, or shaking the hands

of the president.

Does that make sense?

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:41 am, sandy katt said:

> Apologies if you get this twice. I find the plethora

> of emails confusing. i am new to 'groups'.

>

> Yes. I AM seriously suggesting that profits are the

> bottom line and driving motivation behind corporate

> movement.

>

> How could you possible think otherwize? I know you are

> an angel of mercy. CEO's are angels for money.

>

> Johanna, do you know the true stats for HCV remission

> after peg interferon type treatment for the #1

> genotypes, a & amp; b?

>

> Perhaps you could confirm that of 100 people with

> either of those #1 genotypes, only 50 will respond to

> the treatment. Of those 50, only 25 (50% of the

> already halved group) will sustain that remission for

> over 6 months. Of those 25, half will relapse within

> two years.

>

> The 'treating' companies like to publish statistics

> lumped together with all genotypes. I did a lot of

> reading about this disease and all sorts of treatments

> when I was diagnosed. A placebo, as I understand it,

> has a 35% response rate.

>

> I do understand that these are the only accepted

> treatments western medicine currently has to offer. I

> do believe, however, that people have the right to

> make their medical decisions based on fact rather than

> marketing strategies.

>

> I am not angry with you so please excuse any such tone

> in this missive. I am very distressed at having the

> disease; at being forcibly shoved into particular

> slots of personal behavior when there are many

> innocent ways I could have picked it up; at there

> being little, if any, research done with people who

> have spontaneously thrown off the disease (who are

> just people like me but I have yet to throw off the

> disease), at what possible reason the medical

> community could have to continue to support this sort

> of torture with the #1 genotypes ...

>

> Apologies but this is my truth.

>

> --- & quot;Johanna (Hep C - MO) & quot; wrote:

>

> > I'm sorry, but are you seriously suggesting that the

> > drug companies & quot;want & quot;

> > or view your sickness in only a profitable light?

> >

> > Johanna Koskinen, Outreach Coordinator

> > Hepatitic C Multicultural Outreach(HepC-Missouri)

> > http://www.hepcmo.org Email: johanna@...

> >

> > Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> > Phone#: 1.(Business)

> >

> > On Sat, September 3, 2005 10:58 pm, Jackie on

> > said:

> > > Sandy

> > > Im sorry to say but I TOTALLY agree with you

> > regarding the Drug

> > > companies,, its much to their advantage to have us

> > sick CHRONICALLY so we

> > > can continue to use their poisons,,

> > > Well its probably NOT in MY best interest to get

> > started on this

> > > subject,, lol

> > >

> > > sandy katt wrote:

> > > I need more.

> > >

> > >

> > >

> > > Why don't you research further and find out the

> > stats

> > > for two years after treatment?

> > >

> > > Unless, of course, 6 months is all the health

> > duration

> > > you are after.

> > >

> > > Selected information is being put out by a

> > company in

> > > who's interest it is to sell a drug treatment. In

> > my

> > > humble opinion, a person who believes that the R

> > & amp;amp; I

> > > companies want to find a cure is naive. A chronic

> > > disease is preferrable to their pockets.

> > >

> > > Has anyone heard anything new about VERTEX?

> > >

> > > --- Bhprice425@... wrote:

> > >

> > > > Let me know if you need more.

> > > >

> > > > Research has shown that it is more effective to

> > > > treat HCV using a combination

> > > > of pegylated interferon and ribavirin than

> > treating

> > > > without ribavirin. For

> > > > people infected with HCV only, SVR is achieved

> > in

> > > > about 45-50% with genotype 1,

> > > > and over 80% with genotype 2 or 3 when treated

> > with

> > > > the combination.

> > > > http://www.atdn.org/simple/pifn.html

> > > >

> > > > The currently acceptable therapy for HCV is a

> > > > combination of interferon and

> > > > ribavirin. Conjugation of polyethylene glycol

> > (PEG)

> > > > to interferon--pegylated

> > > > interferon--is the newest advance in the

> > treatment

> > > > of HCV patients. Pegylation

> > > > increases the elimination half-life of

> > interferon,

> > > > providing improved efficacy

> > > > with once-weekly dosing. SVR rates in patients

> > > > infected with genotype 1 HCV

> > > > have increased from 10-15% with interferon

> > > > monotherapy to over 50% using the

> > > > pegylated interferon-ribavirin combination.

> > Patients

> > > > infected with genotype 2 or

> > > > 3 achieve SVR rates of 80% and more.

> > > >

> > >

> >

> http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > > Pipeline Innovations in Hepatitis C Treatments

> > > > However, approximately 50% of patients infected

> > with

> > > > HCV genotype 1 do not

> > > > achieve

> > > > a sustained virologic response (SVR) with

> > initial

> > > > interferon-based ...

> > > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > > May I recommend the Clinicians Guide Volume

> > > > VII........it's a guide for

> > > > doctors to treat Hepatitis C .....all the

> > latest by

> > > > the best hepatologists in the

> > > > nation.

> > > > Silvia

> > > > www.projectsinknowledge.com/

> > > > init/g/1688/1688_Monograph.pdf

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Hon,

Don't you dare apologize for anything. I'm not getting any vibe from you

except one of sincere and honest frustration! And if you can't voice that

here, where can you voice it!?!,

As for the numbers you're quoting, yes it would be wonderful if people

could get 'the facts,' but the problem is so high up the ladder (I'm

talking more about those who package and sell the miracles, as opposed to

the ones who are really creating/producing/discovering them), that we tend

to forget that somewhere in that big company are a group of men and women

who truly are trying to solve the riddle of this dreaded virus.

I've had opportunity to meet some of those scientists, and I've seen their

eyes - their passion and determination. I've also talked with a scientist

= grown man fighting back tears because his mother died from end-stage

liver disease.

Being angry and frustrated is totally justified. I'm just trying to show

that the anger can be at the total industry, because the real heroes are

the ones you'll never see on the web, or in the news, or shaking the hands

of the president.

Does that make sense?

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 12:41 am, sandy katt said:

> Apologies if you get this twice. I find the plethora

> of emails confusing. i am new to 'groups'.

>

> Yes. I AM seriously suggesting that profits are the

> bottom line and driving motivation behind corporate

> movement.

>

> How could you possible think otherwize? I know you are

> an angel of mercy. CEO's are angels for money.

>

> Johanna, do you know the true stats for HCV remission

> after peg interferon type treatment for the #1

> genotypes, a & amp; b?

>

> Perhaps you could confirm that of 100 people with

> either of those #1 genotypes, only 50 will respond to

> the treatment. Of those 50, only 25 (50% of the

> already halved group) will sustain that remission for

> over 6 months. Of those 25, half will relapse within

> two years.

>

> The 'treating' companies like to publish statistics

> lumped together with all genotypes. I did a lot of

> reading about this disease and all sorts of treatments

> when I was diagnosed. A placebo, as I understand it,

> has a 35% response rate.

>

> I do understand that these are the only accepted

> treatments western medicine currently has to offer. I

> do believe, however, that people have the right to

> make their medical decisions based on fact rather than

> marketing strategies.

>

> I am not angry with you so please excuse any such tone

> in this missive. I am very distressed at having the

> disease; at being forcibly shoved into particular

> slots of personal behavior when there are many

> innocent ways I could have picked it up; at there

> being little, if any, research done with people who

> have spontaneously thrown off the disease (who are

> just people like me but I have yet to throw off the

> disease), at what possible reason the medical

> community could have to continue to support this sort

> of torture with the #1 genotypes ...

>

> Apologies but this is my truth.

>

> --- & quot;Johanna (Hep C - MO) & quot; wrote:

>

> > I'm sorry, but are you seriously suggesting that the

> > drug companies & quot;want & quot;

> > or view your sickness in only a profitable light?

> >

> > Johanna Koskinen, Outreach Coordinator

> > Hepatitic C Multicultural Outreach(HepC-Missouri)

> > http://www.hepcmo.org Email: johanna@...

> >

> > Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> > Phone#: 1.(Business)

> >

> > On Sat, September 3, 2005 10:58 pm, Jackie on

> > said:

> > > Sandy

> > > Im sorry to say but I TOTALLY agree with you

> > regarding the Drug

> > > companies,, its much to their advantage to have us

> > sick CHRONICALLY so we

> > > can continue to use their poisons,,

> > > Well its probably NOT in MY best interest to get

> > started on this

> > > subject,, lol

> > >

> > > sandy katt wrote:

> > > I need more.

> > >

> > >

> > >

> > > Why don't you research further and find out the

> > stats

> > > for two years after treatment?

> > >

> > > Unless, of course, 6 months is all the health

> > duration

> > > you are after.

> > >

> > > Selected information is being put out by a

> > company in

> > > who's interest it is to sell a drug treatment. In

> > my

> > > humble opinion, a person who believes that the R

> > & amp;amp; I

> > > companies want to find a cure is naive. A chronic

> > > disease is preferrable to their pockets.

> > >

> > > Has anyone heard anything new about VERTEX?

> > >

> > > --- Bhprice425@... wrote:

> > >

> > > > Let me know if you need more.

> > > >

> > > > Research has shown that it is more effective to

> > > > treat HCV using a combination

> > > > of pegylated interferon and ribavirin than

> > treating

> > > > without ribavirin. For

> > > > people infected with HCV only, SVR is achieved

> > in

> > > > about 45-50% with genotype 1,

> > > > and over 80% with genotype 2 or 3 when treated

> > with

> > > > the combination.

> > > > http://www.atdn.org/simple/pifn.html

> > > >

> > > > The currently acceptable therapy for HCV is a

> > > > combination of interferon and

> > > > ribavirin. Conjugation of polyethylene glycol

> > (PEG)

> > > > to interferon--pegylated

> > > > interferon--is the newest advance in the

> > treatment

> > > > of HCV patients. Pegylation

> > > > increases the elimination half-life of

> > interferon,

> > > > providing improved efficacy

> > > > with once-weekly dosing. SVR rates in patients

> > > > infected with genotype 1 HCV

> > > > have increased from 10-15% with interferon

> > > > monotherapy to over 50% using the

> > > > pegylated interferon-ribavirin combination.

> > Patients

> > > > infected with genotype 2 or

> > > > 3 achieve SVR rates of 80% and more.

> > > >

> > >

> >

> http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > > Pipeline Innovations in Hepatitis C Treatments

> > > > However, approximately 50% of patients infected

> > with

> > > > HCV genotype 1 do not

> > > > achieve

> > > > a sustained virologic response (SVR) with

> > initial

> > > > interferon-based ...

> > > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > > May I recommend the Clinicians Guide Volume

> > > > VII........it's a guide for

> > > > doctors to treat Hepatitis C .....all the

> > latest by

> > > > the best hepatologists in the

> > > > nation.

> > > > Silvia

> > > > www.projectsinknowledge.com/

> > > > init/g/1688/1688_Monograph.pdf

> > > >

> > > >

> > > > [Non-text portions of this message have been

> > > > removed]

> > > >

> > > >

> > > >

> > > >

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Posted
Posted

Thanx, jax.

We know different people. Two friends with #1 each did

not clear. They are the only people I know who took

the treatment.

Odd, my liver guy didn't seem to think inflamation was

all that serious. I have little scarring but more

inflamation.

For me, I don't want the treatment if I am not gonna

feel better.

I do yoga as regularly as possible (after three years,

lol, I still suck at it) and have strengthened from a

weak kitten to a tough chicken! :-Þ

I self prescribed a billion supplements and they did

seem to lower my viral load. I tried Chinese herbs and

they were a waste of my money. I am now on a raw and

living foods diet. I see a psych and get regular

massage.

My viral load, at diagnosis, was 77 mil. It is now

down to around 1.5 mil and has been as low as 338,000.

My liver enzymes are no longer elevated.

I am trying to heal my own self. No one else can do

it.

I don't want more sickness. I want to be well. I so

miss my energy. I live a half life.

I am applying for disability. It is rough. I had to

close a successful business because I had no more

energy to run it.

The yoga is painful but I feel better when I do it

than when I don't.

I wish us each better and less painful days and more

energized tomorrows.

--- Jackie on wrote:

> Of course I will answer your questions,, thats what

> we are here for!!!

> 1. no I dont feel well,,

> 2.no , my energy has not returned, no joint aches

> are still there, infact I now have to take Morphine

> to control my body aches.

> 3. I am trying to get stronger, bought a bowflex, am

> trying to get up the nerve and strength to use it,

> lol,,, I only had one spider angioma and yes that is

> gone but the rest of the spider veins are still

> there on my legs, but my mom has them as do all the

> women in my family, so I think the chance to have

> those is just high in my family and dont have much

> to do with the hep,

> 4.I took the Peg-intron and Riba,, I ended tx having

> to have another blood transfusion which is how I got

> the hep to begin with,, but my anemia has totally

> resolved and all labs are in the normal range.

> Would I do tx again? IF needed, YES I would.. even

> tho I now have osteo, probably RA, sarcoidosis,and

> cataracts in my eyes and fibro from tx,, I would

> still do it because all of these problems are not

> fatal in and of themselves, but the hep was gonna

> kill me, it was moving along rather quickly,, my

> grade of inflammation was 3 so it was eatin my

> liver, lol,,,

> Im very surprised that you have read that only 13%,,

> I have read that geno1's are about 40-50%,, and most

> of the geno 1's that I know have cleared and have

> remained so,,

> Feel free to ask any other questions,,

> hugs

> jax

>

>

> sandy katt wrote:

> Congrats, Jax;

>

> I am very happy for you. From what I have read, you

> are in a lucky 13%.

>

> May I ask you questions please? If not, just don't

> reply.

>

> 1. Do you feel well?

>

> 2. Has your energy returned? Are the joint aches

> gone?

>

> 3. Have you been able to get yourself stronger? Did

> the spiderveins disappear?

>

> 4. Do you still have after effects from your

> 'treatment'? Which drug combo did you take?

>

> 5. How tough was it? Really.

>

> Blessings

>

>

>

> --- Jackie on wrote:

>

> > Hi Sandy

> > Im still clear and I finished tx 2 1/2 years ago,

> > with genotype 1a, vl about 600,000 with stage 3-4

> > damage with early cirrhosis,, and now am stage 0-1

> > with NO activity. Im counting my self lucky

> because

> > my liver has regressed in damage but I know that

> it

> > could come back at any time while Im hoping to be

> in

> > that 97% who it never shows up again!

> > welcome to the group

> > jax

> >

> > sandy katt wrote:

> > There are no experts in HCV.

> >

> > There are only doctors who care and know more

> about

> > the body and how the liver works. These are

> > specialists.

> >

> > If there were experts, there would be a way to

> clear

> > most bodies of the virus.

> >

> > The guy who turned me onto this 'group' remissed

> > after

> > 10 years.

> >

> > Is this a big group? Who here has been 'treated'

> and

> > is now in remission longer than 1 year?

> >

> > --- Bhprice425@... wrote:

> >

> > > Look in www.projectsinknowledge.com it's the

> > site

> > > with all the experts.

> > >

> > >

> > > If you are clear 6 months after treatment then

> you

> > > have a 97% chance of

> > > remauining clear......the NIH says so.

> > >

> > > After 2 years ...yes I have heard of a few

> > > case....rare but they do exist.

> > > There's is one case on recent news that turned

> out

> > > positive after 8 and half

> > > years....

> > >

> > > Reemergence of hepatitis C virus after 8.5 years

> > in

> > > a patient with

> > > hypogammaglobulinemia: evidence for an occult

> > viral

> > > reservoir.

> > > Lee WM, Polson JE, Carney DS, Sahin B, Gale M

> Jr.

> > > Department of Internal Medicine, Division of

> > > Digestive and Liver

> > > Diseases, University of Texas Southwestern

> Medical

> > > Center, Dallas, USA.

> > > The question of whether viruses persist after

> > > apparent clearance of

> > > infection remains unanswered. Here, we describe

> a

> > > patient with

> > > hypogammaglobulinemia whose acute hepatitis C

> > virus

> > > (HCV) infection

> > > appeared to resolve after receipt of interferon

> > > therapy, relapse immediately,

> > > and then clear spontaneously--only to relapse

> > after

> > > receipt of corticosteroid

> > > therapy, and clear again, 8.5 years later.

> > > Sequencing indicated that the

> > > viruses detected during each relapse were

> > virtually

> > > identical, with the

> > > hypervariable region 1 of E2 appearing to be

> > > monoclonal, which is typical of patients

> > > with hypogammaglobulinemia. Nonstructural 5A

> > > sequences exhibited quasispecies

> > > diversity initially but, after 8.5 years, had

> > become

> > > monoclonal. The prolonged period of negativity

> for

> > > HCV RNA followed by

> > > relapse suggests that HCV may persist in

> apparent

> > > sustained viral responders.

> > > PMID: 16107964 [PubMed - in process]

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Posted
Posted

Thanx, jax.

We know different people. Two friends with #1 each did

not clear. They are the only people I know who took

the treatment.

Odd, my liver guy didn't seem to think inflamation was

all that serious. I have little scarring but more

inflamation.

For me, I don't want the treatment if I am not gonna

feel better.

I do yoga as regularly as possible (after three years,

lol, I still suck at it) and have strengthened from a

weak kitten to a tough chicken! :-Þ

I self prescribed a billion supplements and they did

seem to lower my viral load. I tried Chinese herbs and

they were a waste of my money. I am now on a raw and

living foods diet. I see a psych and get regular

massage.

My viral load, at diagnosis, was 77 mil. It is now

down to around 1.5 mil and has been as low as 338,000.

My liver enzymes are no longer elevated.

I am trying to heal my own self. No one else can do

it.

I don't want more sickness. I want to be well. I so

miss my energy. I live a half life.

I am applying for disability. It is rough. I had to

close a successful business because I had no more

energy to run it.

The yoga is painful but I feel better when I do it

than when I don't.

I wish us each better and less painful days and more

energized tomorrows.

--- Jackie on wrote:

> Of course I will answer your questions,, thats what

> we are here for!!!

> 1. no I dont feel well,,

> 2.no , my energy has not returned, no joint aches

> are still there, infact I now have to take Morphine

> to control my body aches.

> 3. I am trying to get stronger, bought a bowflex, am

> trying to get up the nerve and strength to use it,

> lol,,, I only had one spider angioma and yes that is

> gone but the rest of the spider veins are still

> there on my legs, but my mom has them as do all the

> women in my family, so I think the chance to have

> those is just high in my family and dont have much

> to do with the hep,

> 4.I took the Peg-intron and Riba,, I ended tx having

> to have another blood transfusion which is how I got

> the hep to begin with,, but my anemia has totally

> resolved and all labs are in the normal range.

> Would I do tx again? IF needed, YES I would.. even

> tho I now have osteo, probably RA, sarcoidosis,and

> cataracts in my eyes and fibro from tx,, I would

> still do it because all of these problems are not

> fatal in and of themselves, but the hep was gonna

> kill me, it was moving along rather quickly,, my

> grade of inflammation was 3 so it was eatin my

> liver, lol,,,

> Im very surprised that you have read that only 13%,,

> I have read that geno1's are about 40-50%,, and most

> of the geno 1's that I know have cleared and have

> remained so,,

> Feel free to ask any other questions,,

> hugs

> jax

>

>

> sandy katt wrote:

> Congrats, Jax;

>

> I am very happy for you. From what I have read, you

> are in a lucky 13%.

>

> May I ask you questions please? If not, just don't

> reply.

>

> 1. Do you feel well?

>

> 2. Has your energy returned? Are the joint aches

> gone?

>

> 3. Have you been able to get yourself stronger? Did

> the spiderveins disappear?

>

> 4. Do you still have after effects from your

> 'treatment'? Which drug combo did you take?

>

> 5. How tough was it? Really.

>

> Blessings

>

>

>

> --- Jackie on wrote:

>

> > Hi Sandy

> > Im still clear and I finished tx 2 1/2 years ago,

> > with genotype 1a, vl about 600,000 with stage 3-4

> > damage with early cirrhosis,, and now am stage 0-1

> > with NO activity. Im counting my self lucky

> because

> > my liver has regressed in damage but I know that

> it

> > could come back at any time while Im hoping to be

> in

> > that 97% who it never shows up again!

> > welcome to the group

> > jax

> >

> > sandy katt wrote:

> > There are no experts in HCV.

> >

> > There are only doctors who care and know more

> about

> > the body and how the liver works. These are

> > specialists.

> >

> > If there were experts, there would be a way to

> clear

> > most bodies of the virus.

> >

> > The guy who turned me onto this 'group' remissed

> > after

> > 10 years.

> >

> > Is this a big group? Who here has been 'treated'

> and

> > is now in remission longer than 1 year?

> >

> > --- Bhprice425@... wrote:

> >

> > > Look in www.projectsinknowledge.com it's the

> > site

> > > with all the experts.

> > >

> > >

> > > If you are clear 6 months after treatment then

> you

> > > have a 97% chance of

> > > remauining clear......the NIH says so.

> > >

> > > After 2 years ...yes I have heard of a few

> > > case....rare but they do exist.

> > > There's is one case on recent news that turned

> out

> > > positive after 8 and half

> > > years....

> > >

> > > Reemergence of hepatitis C virus after 8.5 years

> > in

> > > a patient with

> > > hypogammaglobulinemia: evidence for an occult

> > viral

> > > reservoir.

> > > Lee WM, Polson JE, Carney DS, Sahin B, Gale M

> Jr.

> > > Department of Internal Medicine, Division of

> > > Digestive and Liver

> > > Diseases, University of Texas Southwestern

> Medical

> > > Center, Dallas, USA.

> > > The question of whether viruses persist after

> > > apparent clearance of

> > > infection remains unanswered. Here, we describe

> a

> > > patient with

> > > hypogammaglobulinemia whose acute hepatitis C

> > virus

> > > (HCV) infection

> > > appeared to resolve after receipt of interferon

> > > therapy, relapse immediately,

> > > and then clear spontaneously--only to relapse

> > after

> > > receipt of corticosteroid

> > > therapy, and clear again, 8.5 years later.

> > > Sequencing indicated that the

> > > viruses detected during each relapse were

> > virtually

> > > identical, with the

> > > hypervariable region 1 of E2 appearing to be

> > > monoclonal, which is typical of patients

> > > with hypogammaglobulinemia. Nonstructural 5A

> > > sequences exhibited quasispecies

> > > diversity initially but, after 8.5 years, had

> > become

> > > monoclonal. The prolonged period of negativity

> for

> > > HCV RNA followed by

> > > relapse suggests that HCV may persist in

> apparent

> > > sustained viral responders.

> > > PMID: 16107964 [PubMed - in process]

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Posted
Posted

Look, if positive attitude is all I need than I don't

need conventional treatment, do I?

I don't know all of your terms.

Post transplant - there is a company, in Israel, which

has a 100% post transplant clearance. For me, I am not

post transplant and feel lucky about that.

What is 'co-infected'? HIV also?

What is decompensating?

You have, it seems, missed my question. I do

understand that 50% respond to treatment, initially.

My qustion is how many stay cleared after treatment?

For how long?

You say you have many patients. You say you have

worked with these many for 6 years. After the 6 years,

how many (by percentage) have remained clear with only

one course of this treatment and who, initially, had

genotype #1?

I think my attitude is very positive. I am a pleasant

person. Only falsehood and misleading of the desperate

upset me.

I am, for the nonce, quite positive in that my

attitude is good and realistic and my decision to

aceept or reject an interfron treatment is based on

recearch and fact, as I see it, rather than ignorance

and a Pollyanna dependency on others.

I am not disparaging you or your work. Why do you seek

to disparage me? Based on personal research, I have

not come up with such optimistic results as you claim.

Others are free to make their own decisions. I have

made mine and it has nothing to do with your quick and

judgemental opinion of someone you don't know at all.

I am, to this point in time, entirely entitled to

accept or reject your medical opinion on treatment.

<<But you definetly need to have a positive

> attitude....which you seem to be lacking.>>

Are you a psychiatrist too? You have a bit of mean

about you, johanna. Are you offering faith based

medicine? You don't even know if treatment was

recommended for me, do you now?

--- Bhprice425@... wrote:

> I'm sorry....What group do you mean?

>

> I'm a nurse and Hepatitis C Speaker/Consultant

> ....I have worked with

> hepatitis C patients for 6 years now and have had

> many many patients who remain

> clear. As a matter of fact very few relapse.

>

> From the last group of ten that I'm helping

> online....all genotype

> 1....including 1 post transplant, 1 co-infected and

> 1 decompensating....so far 4

> obtained SVR, 2 have 3 more months to go. 2 are at

> week 24 and 1 is on Infergen at

> 16 weeks of treatment. Only one had to stop

> treatment because of a

> hypersensitivity reaction.....and she had cleared at

> week 12.

>

> But you definetly need to have a positive

> attitude....which you seem to be

> lacking.

> Silvia

>

>

> [Non-text portions of this message have been

> removed]

>

>

>

>

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Posted
Posted

Hon,

I think you've got me confused with another poster on the board. If you

scroll down, you'll see you're responding to someone else's post - not

mine.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 1:17 am, sandy katt said:

> Look, if positive attitude is all I need than I don't

> need conventional treatment, do I?

>

> I don't know all of your terms.

>

> Post transplant - there is a company, in Israel, which

> has a 100% post transplant clearance. For me, I am not

> post transplant and feel lucky about that.

>

> What is 'co-infected'? HIV also?

>

> What is decompensating?

>

> You have, it seems, missed my question. I do

> understand that 50% respond to treatment, initially.

> My qustion is how many stay cleared after treatment?

> For how long?

>

> You say you have many patients. You say you have

> worked with these many for 6 years. After the 6 years,

> how many (by percentage) have remained clear with only

> one course of this treatment and who, initially, had

> genotype #1?

>

> I think my attitude is very positive. I am a pleasant

> person. Only falsehood and misleading of the desperate

> upset me.

>

> I am, for the nonce, quite positive in that my

> attitude is good and realistic and my decision to

> aceept or reject an interfron treatment is based on

> recearch and fact, as I see it, rather than ignorance

> and a Pollyanna dependency on others.

>

> I am not disparaging you or your work. Why do you seek

> to disparage me? Based on personal research, I have

> not come up with such optimistic results as you claim.

>

> Others are free to make their own decisions. I have

> made mine and it has nothing to do with your quick and

> judgemental opinion of someone you don't know at all.

> I am, to this point in time, entirely entitled to

> accept or reject your medical opinion on treatment.

>

> >

>

> Are you a psychiatrist too? You have a bit of mean

> about you, johanna. Are you offering faith based

> medicine? You don't even know if treatment was

> recommended for me, do you now?

>

>

> --- Bhprice425@... wrote:

>

> > I'm sorry....What group do you mean?

> >

> > I'm a nurse and Hepatitis C Speaker/Consultant

> > ....I have worked with

> > hepatitis C patients for 6 years now and have had

> > many many patients who remain

> > clear. As a matter of fact very few relapse.

> >

> > From the last group of ten that I'm helping

> > online....all genotype

> > 1....including 1 post transplant, 1 co-infected and

> > 1 decompensating....so far 4

> > obtained SVR, 2 have 3 more months to go. 2 are at

> > week 24 and 1 is on Infergen at

> > 16 weeks of treatment. Only one had to stop

> > treatment because of a

> > hypersensitivity reaction.....and she had cleared at

> > week 12.

> >

> > But you definetly need to have a positive

> > attitude....which you seem to be

> > lacking.

> > Silvia

> >

> >

> > [Non-text portions of this message have been

> > removed]

> >

> >

> >

> >

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Posted
Posted

I have to disagree on this one Jackie....but of course being a nurse I'm

going to see it from a whole different perspective. However there is one thing

that upsets me.

So much HCV science has moved on to small molecule cures, a lot of the focus

is off various adjunctive therapies. In other words, okay, we may see your

polymerase inhibitor ten years from now, but what can we do to make IFN work

better now?

I have recently been researching the causal relationship between interferon

resistance and insulin resistance and found lots of info that has been there

for several years and perhaps it could have helped us clear a few

more.....important info that nobody made public.

Silvia

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Posted
Posted

I have to disagree on this one Jackie....but of course being a nurse I'm

going to see it from a whole different perspective. However there is one thing

that upsets me.

So much HCV science has moved on to small molecule cures, a lot of the focus

is off various adjunctive therapies. In other words, okay, we may see your

polymerase inhibitor ten years from now, but what can we do to make IFN work

better now?

I have recently been researching the causal relationship between interferon

resistance and insulin resistance and found lots of info that has been there

for several years and perhaps it could have helped us clear a few

more.....important info that nobody made public.

Silvia

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Posted
Posted

yep, it IS all about the money,, I would say that the researchers are doing the

best they can and yes, they would like to help, but the top line of ppl who run

the FDA, AMA and the pharmies are all in bed with each other and they DO

suppress any research in natural substances because they cannot make lots and

lots and lots of money with them.. its all about the money...

sandy katt wrote:Yes.

Chronic disease is profitable. A cured disease brings

an end to profits.

I saw a famous hepatologist, for whom I have great

respect and affection. He is, however a naive man in

that, like you, he is shocked by the suggestion that

these companies do not ride white horses while

carrying big swords.

--- Jackie on wrote:

> IN MY PERSONAL opinion,, YES! Not everyone feels

> that way, but I DO ,, and that is why Im not going

> out of my way to start down THAT road of discussion.

> I DO have a right to my own opinion,, dont I???

>

> " Johanna (Hep C - MO) "

> wrote:I'm sorry, but are you seriously suggesting

> that the drug companies " want "

> or view your sickness in only a profitable light?

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.(Business)

>

> On Sat, September 3, 2005 10:58 pm, Jackie on

> said:

> > Sandy

> > Im sorry to say but I TOTALLY agree with you

> regarding the Drug

> > companies,, its much to their advantage to have us

> sick CHRONICALLY so we

> > can continue to use their poisons,,

> > Well its probably NOT in MY best interest to get

> started on this

> > subject,, lol

> >

> > sandy katt wrote:

> > I need more.

> >

> >

> >

> > Why don't you research further and find out the

> stats

> > for two years after treatment?

> >

> > Unless, of course, 6 months is all the health

> duration

> > you are after.

> >

> > Selected information is being put out by a

> company in

> > who's interest it is to sell a drug treatment. In

> my

> > humble opinion, a person who believes that the R

> & amp; I

> > companies want to find a cure is naive. A chronic

> > disease is preferrable to their pockets.

> >

> > Has anyone heard anything new about VERTEX?

> >

> > --- Bhprice425@... wrote:

> >

> > > Let me know if you need more.

> > >

> > > Research has shown that it is more effective to

> > > treat HCV using a combination

> > > of pegylated interferon and ribavirin than

> treating

> > > without ribavirin. For

> > > people infected with HCV only, SVR is achieved

> in

> > > about 45-50% with genotype 1,

> > > and over 80% with genotype 2 or 3 when treated

> with

> > > the combination.

> > > http://www.atdn.org/simple/pifn.html

> > >

> > > The currently acceptable therapy for HCV is a

> > > combination of interferon and

> > > ribavirin. Conjugation of polyethylene glycol

> (PEG)

> > > to interferon--pegylated

> > > interferon--is the newest advance in the

> treatment

> > > of HCV patients. Pegylation

> > > increases the elimination half-life of

> interferon,

> > > providing improved efficacy

> > > with once-weekly dosing. SVR rates in patients

> > > infected with genotype 1 HCV

> > > have increased from 10-15% with interferon

> > > monotherapy to over 50% using the

> > > pegylated interferon-ribavirin combination.

> Patients

> > > infected with genotype 2 or

> > > 3 achieve SVR rates of 80% and more.

> > >

> >

>

http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > Pipeline Innovations in Hepatitis C Treatments

> > > However, approximately 50% of patients infected

> with

> > > HCV genotype 1 do not

> > > achieve

> > > a sustained virologic response (SVR) with

> initial

> > > interferon-based ...

> > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > May I recommend the Clinicians Guide Volume

> > > VII........it's a guide for

> > > doctors to treat Hepatitis C .....all the

> latest by

> > > the best hepatologists in the

> > > nation.

> > > Silvia

> > > www.projectsinknowledge.com/

> > > init/g/1688/1688_Monograph.pdf

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Posted
Posted

yep, it IS all about the money,, I would say that the researchers are doing the

best they can and yes, they would like to help, but the top line of ppl who run

the FDA, AMA and the pharmies are all in bed with each other and they DO

suppress any research in natural substances because they cannot make lots and

lots and lots of money with them.. its all about the money...

sandy katt wrote:Yes.

Chronic disease is profitable. A cured disease brings

an end to profits.

I saw a famous hepatologist, for whom I have great

respect and affection. He is, however a naive man in

that, like you, he is shocked by the suggestion that

these companies do not ride white horses while

carrying big swords.

--- Jackie on wrote:

> IN MY PERSONAL opinion,, YES! Not everyone feels

> that way, but I DO ,, and that is why Im not going

> out of my way to start down THAT road of discussion.

> I DO have a right to my own opinion,, dont I???

>

> " Johanna (Hep C - MO) "

> wrote:I'm sorry, but are you seriously suggesting

> that the drug companies " want "

> or view your sickness in only a profitable light?

>

> Johanna Koskinen, Outreach Coordinator

> Hepatitic C Multicultural Outreach(HepC-Missouri)

> http://www.hepcmo.org Email: johanna@...

>

> Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

> Phone#: 1.(Business)

>

> On Sat, September 3, 2005 10:58 pm, Jackie on

> said:

> > Sandy

> > Im sorry to say but I TOTALLY agree with you

> regarding the Drug

> > companies,, its much to their advantage to have us

> sick CHRONICALLY so we

> > can continue to use their poisons,,

> > Well its probably NOT in MY best interest to get

> started on this

> > subject,, lol

> >

> > sandy katt wrote:

> > I need more.

> >

> >

> >

> > Why don't you research further and find out the

> stats

> > for two years after treatment?

> >

> > Unless, of course, 6 months is all the health

> duration

> > you are after.

> >

> > Selected information is being put out by a

> company in

> > who's interest it is to sell a drug treatment. In

> my

> > humble opinion, a person who believes that the R

> & amp; I

> > companies want to find a cure is naive. A chronic

> > disease is preferrable to their pockets.

> >

> > Has anyone heard anything new about VERTEX?

> >

> > --- Bhprice425@... wrote:

> >

> > > Let me know if you need more.

> > >

> > > Research has shown that it is more effective to

> > > treat HCV using a combination

> > > of pegylated interferon and ribavirin than

> treating

> > > without ribavirin. For

> > > people infected with HCV only, SVR is achieved

> in

> > > about 45-50% with genotype 1,

> > > and over 80% with genotype 2 or 3 when treated

> with

> > > the combination.

> > > http://www.atdn.org/simple/pifn.html

> > >

> > > The currently acceptable therapy for HCV is a

> > > combination of interferon and

> > > ribavirin. Conjugation of polyethylene glycol

> (PEG)

> > > to interferon--pegylated

> > > interferon--is the newest advance in the

> treatment

> > > of HCV patients. Pegylation

> > > increases the elimination half-life of

> interferon,

> > > providing improved efficacy

> > > with once-weekly dosing. SVR rates in patients

> > > infected with genotype 1 HCV

> > > have increased from 10-15% with interferon

> > > monotherapy to over 50% using the

> > > pegylated interferon-ribavirin combination.

> Patients

> > > infected with genotype 2 or

> > > 3 achieve SVR rates of 80% and more.

> > >

> >

>

http://www.vh.org/adult/provider/internalmedicine/hepatitisc/

> > > Pipeline Innovations in Hepatitis C Treatments

> > > However, approximately 50% of patients infected

> with

> > > HCV genotype 1 do not

> > > achieve

> > > a sustained virologic response (SVR) with

> initial

> > > interferon-based ...

> > > www.projectsinknowledge.com/Init/G/1708/ - 83k

> > > May I recommend the Clinicians Guide Volume

> > > VII........it's a guide for

> > > doctors to treat Hepatitis C .....all the

> latest by

> > > the best hepatologists in the

> > > nation.

> > > Silvia

> > > www.projectsinknowledge.com/

> > > init/g/1688/1688_Monograph.pdf

> > >

> > >

> > > [Non-text portions of this message have been

> > > removed]

> > >

> > >

> > >

> > >

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Posted
Posted

Well, I don't like large public corporations as much as any blue-stater but

I have to step up and put in a word for Roche, the makers of the

Pegasys/Copegus combo. They virtually paid for my second round of treatment

in it's entirety. All visits to the hepatologist. All lab work. All of

the Pegasys and Copegus. They paid the co-pays on other prescription drugs

I required. They also paid all of my dermatologist expenses through the

sixth month post-treatment to manage the severe case of psoriasis that the

treatment kicked off.

Doug

_____

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

Sent: Sunday, September 04, 2005 5:31 PM

To: Hepatitis_C_Central

Subject: Re: Are Some Genotypes Worse than Others?

yep, it IS all about the money,, I would say that the researchers are doing

the best they can and yes, they would like to help, but the top line of ppl

who run the FDA, AMA and the pharmies are all in bed with each other and

they DO suppress any research in natural substances because they cannot make

lots and lots and lots of money with them.. its all about the money...

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Posted
Posted

Well, I don't like large public corporations as much as any blue-stater but

I have to step up and put in a word for Roche, the makers of the

Pegasys/Copegus combo. They virtually paid for my second round of treatment

in it's entirety. All visits to the hepatologist. All lab work. All of

the Pegasys and Copegus. They paid the co-pays on other prescription drugs

I required. They also paid all of my dermatologist expenses through the

sixth month post-treatment to manage the severe case of psoriasis that the

treatment kicked off.

Doug

_____

From: Hepatitis_C_Central

[mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

Sent: Sunday, September 04, 2005 5:31 PM

To: Hepatitis_C_Central

Subject: Re: Are Some Genotypes Worse than Others?

yep, it IS all about the money,, I would say that the researchers are doing

the best they can and yes, they would like to help, but the top line of ppl

who run the FDA, AMA and the pharmies are all in bed with each other and

they DO suppress any research in natural substances because they cannot make

lots and lots and lots of money with them.. its all about the money...

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Posted
Posted

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 7:04 pm, Doug Nicholson said:

> Well, I don't like large public corporations as much as any

> blue-stater but

> I have to step up and put in a word for Roche, the makers of the

> Pegasys/Copegus combo. They virtually paid for my second round of

> treatment

> in it's entirety. All visits to the hepatologist. All lab work. All of

> the Pegasys and Copegus. They paid the co-pays on other prescription

> drugs

> I required. They also paid all of my dermatologist expenses through the

> sixth month post-treatment to manage the severe case of psoriasis that

> the

> treatment kicked off.

>

> Doug

>

>

> _____

>

> From: Hepatitis_C_Central

> [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

> Sent: Sunday, September 04, 2005 5:31 PM

> To: Hepatitis_C_Central

> Subject: Re: Are Some Genotypes Worse than Others?

>

>

> yep, it IS all about the money,, I would say that the researchers are

> doing

> the best they can and yes, they would like to help, but the top line of

> ppl

> who run the FDA, AMA and the pharmies are all in bed with each other and

> they DO suppress any research in natural substances because they cannot

> make

> lots and lots and lots of money with them.. its all about the money...

>

>

>

>

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Posted
Posted

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 7:04 pm, Doug Nicholson said:

> Well, I don't like large public corporations as much as any

> blue-stater but

> I have to step up and put in a word for Roche, the makers of the

> Pegasys/Copegus combo. They virtually paid for my second round of

> treatment

> in it's entirety. All visits to the hepatologist. All lab work. All of

> the Pegasys and Copegus. They paid the co-pays on other prescription

> drugs

> I required. They also paid all of my dermatologist expenses through the

> sixth month post-treatment to manage the severe case of psoriasis that

> the

> treatment kicked off.

>

> Doug

>

>

> _____

>

> From: Hepatitis_C_Central

> [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

> Sent: Sunday, September 04, 2005 5:31 PM

> To: Hepatitis_C_Central

> Subject: Re: Are Some Genotypes Worse than Others?

>

>

> yep, it IS all about the money,, I would say that the researchers are

> doing

> the best they can and yes, they would like to help, but the top line of

> ppl

> who run the FDA, AMA and the pharmies are all in bed with each other and

> they DO suppress any research in natural substances because they cannot

> make

> lots and lots and lots of money with them.. its all about the money...

>

>

>

>

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Posted
Posted

Yes, Doug,

Roche is VERY Good about providing treatment for those who can't afford

it. And their guidelines are very reasonable, too.

I don't have time to argue about who's in it for money. This is America,

for crying out loud. If someone can make a product that doesn't cost

someone something, then I'll be the first to change my opinion. In the

meantime, my feelings remain the same. Nothing's free - I dont' care who

it;s for.

I'm sure Trump does a lot of charity work, but even he does it knowing it

will benefit him in the long run.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 7:04 pm, Doug Nicholson said:

> Well, I don't like large public corporations as much as any

> blue-stater but

> I have to step up and put in a word for Roche, the makers of the

> Pegasys/Copegus combo. They virtually paid for my second round of

> treatment

> in it's entirety. All visits to the hepatologist. All lab work. All of

> the Pegasys and Copegus. They paid the co-pays on other prescription

> drugs

> I required. They also paid all of my dermatologist expenses through the

> sixth month post-treatment to manage the severe case of psoriasis that

> the

> treatment kicked off.

>

> Doug

>

>

> _____

>

> From: Hepatitis_C_Central

> [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

> Sent: Sunday, September 04, 2005 5:31 PM

> To: Hepatitis_C_Central

> Subject: Re: Are Some Genotypes Worse than Others?

>

>

> yep, it IS all about the money,, I would say that the researchers are

> doing

> the best they can and yes, they would like to help, but the top line of

> ppl

> who run the FDA, AMA and the pharmies are all in bed with each other and

> they DO suppress any research in natural substances because they cannot

> make

> lots and lots and lots of money with them.. its all about the money...

>

>

>

>

Link to comment
Share on other sites
Guest guest

Guest guest

Posted
Posted

Yes, Doug,

Roche is VERY Good about providing treatment for those who can't afford

it. And their guidelines are very reasonable, too.

I don't have time to argue about who's in it for money. This is America,

for crying out loud. If someone can make a product that doesn't cost

someone something, then I'll be the first to change my opinion. In the

meantime, my feelings remain the same. Nothing's free - I dont' care who

it;s for.

I'm sure Trump does a lot of charity work, but even he does it knowing it

will benefit him in the long run.

Johanna Koskinen, Outreach Coordinator

Hepatitic C Multicultural Outreach(HepC-Missouri)

http://www.hepcmo.org Email: johanna@...

Toll-free/24-Hour Hotline: 1.888.436.HEPC(4372)

Phone#: 1.(Business)

On Sun, September 4, 2005 7:04 pm, Doug Nicholson said:

> Well, I don't like large public corporations as much as any

> blue-stater but

> I have to step up and put in a word for Roche, the makers of the

> Pegasys/Copegus combo. They virtually paid for my second round of

> treatment

> in it's entirety. All visits to the hepatologist. All lab work. All of

> the Pegasys and Copegus. They paid the co-pays on other prescription

> drugs

> I required. They also paid all of my dermatologist expenses through the

> sixth month post-treatment to manage the severe case of psoriasis that

> the

> treatment kicked off.

>

> Doug

>

>

> _____

>

> From: Hepatitis_C_Central

> [mailto:Hepatitis_C_Central ] On Behalf Of Jackie on

> Sent: Sunday, September 04, 2005 5:31 PM

> To: Hepatitis_C_Central

> Subject: Re: Are Some Genotypes Worse than Others?

>

>

> yep, it IS all about the money,, I would say that the researchers are

> doing

> the best they can and yes, they would like to help, but the top line of

> ppl

> who run the FDA, AMA and the pharmies are all in bed with each other and

> they DO suppress any research in natural substances because they cannot

> make

> lots and lots and lots of money with them.. its all about the money...

>

>

>

>

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