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Re: Labels, SDD Category

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Oh I definitely am not throwing his diagnosis out of the window...I am not in

denial at all about his disability or the importance in obtaining the help he

needs ...I know that autism isn't something you just get over

So I very much understand where your coming from and agree about that

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You can be careful about who you tell about the " label. " However it's

important to establish a written record, even if only you know how to

find it, that he has that diagnosis, and that he got it before he was

18 years old. My mother threw away my label, and it took YEARS for me

to get on disability when autism-related problems prevented me from

working any longer in my fifties. Those were touch-and-go years with

no family left, when I had to support my own children.

Looking indistinguishable isn't the same as functioning like everyone

else. He can accomplish more in life if he can get the occasional

accommodations he needs, rather than having to struggle to look like

everyone else while he is performing at 100 percent all the time.

Also, there might be " executive function " problems that arise at middle

school or high school age. For them, you might need to admit to the

schools that he needs accommodations in order to excel at college-prep

or honors courses.

Patty

http://www.autistics.cc

ILOVEmySONshine@... wrote:

> My child is very much high functioning and I feel that maybe in a few

> yrs.

> when his communication continues to pick up more and more he will

> probally be

> mostly indistinguishable from his peers so I don't want him to be

> stuck with

> the label autism catagory...And don't get me wrong it's not a matter

> of me and

> what I think about autism -it's about how other kids are and how he

> could be

> treated due to the label

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You can be careful about who you tell about the " label. " However it's

important to establish a written record, even if only you know how to

find it, that he has that diagnosis, and that he got it before he was

18 years old. My mother threw away my label, and it took YEARS for me

to get on disability when autism-related problems prevented me from

working any longer in my fifties. Those were touch-and-go years with

no family left, when I had to support my own children.

Looking indistinguishable isn't the same as functioning like everyone

else. He can accomplish more in life if he can get the occasional

accommodations he needs, rather than having to struggle to look like

everyone else while he is performing at 100 percent all the time.

Also, there might be " executive function " problems that arise at middle

school or high school age. For them, you might need to admit to the

schools that he needs accommodations in order to excel at college-prep

or honors courses.

Patty

http://www.autistics.cc

ILOVEmySONshine@... wrote:

> My child is very much high functioning and I feel that maybe in a few

> yrs.

> when his communication continues to pick up more and more he will

> probally be

> mostly indistinguishable from his peers so I don't want him to be

> stuck with

> the label autism catagory...And don't get me wrong it's not a matter

> of me and

> what I think about autism -it's about how other kids are and how he

> could be

> treated due to the label

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