Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 Rose, By enzyme therapy, do you mean digestive enzymes? I'm giving my ds Houston enzymes. Its been a month and have seen great improvements. He can now have a banana in the evening and not be up all night due to phenols. I doubt Dr. G approves of this. Doesn't he say just a multivitamin? I will ask at our first appt. in May. I will really hate to give them up but am assuming we will have to. I will do thorough documentation of before and after, however. EnzymeTherapy Anyone doing enzyme therapy? What is Dr. G's stance on this? Thanks~~ Rose Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 19, 2003 Report Share Posted March 19, 2003 and Rose, I posted to Dr. Goldberg quite some time ago (before we had our initial visit with him) asking about an enzyme called Peptizyde (made by Houston Nutraceuticals. Below is Dr. G's response to me... _______________________________________________________________________ " Dear Caroline, While as always caution, one must carefully evaluate the action good and bad of any product they given a child, of what¹s out there Peptizyde doesn¹t sound bad too consider ASSUMING all ingredients can be verified and truly have FDA approval, quality control is appropriate, there are NO desiccated animal products (extremely dangerous) used, etc. It¹s important to note (i.e. measure eosinophils on a CBC differential) if your diet restrictions are in themselves effective, then as you note, pursue further therapies. Please see other posting re how to proceed while waiting (Again, I hope this will change soon). Take care, MJG " _______________________________________________________________________ In light of the above advice, I chose not to use enzymes with my son. The reply from Dr. Goldberg seems upbeat, but since I could not verify the FDA approval, quality control, desiccated animal products issue, etc., I have never brought the issue up again. Knowing what I know now, I don't think Dr. Goldberg would ever approve using it for breaking down milk. Another time I asked Dr. Goldberg if he thought our kids would EVER be able to eat a " normal " diet again. He replied that as they get better, fewer things seem to bother them and that maybe they would eventually be able to add some things back into their diet, but he felt that the one thing they would never be able to have was milk. I know this is a bummer, but as we move along with the treatments, I have sort of lost the desire to do anything " extra " that might throw my son off and cloud the issue... we are always so anxious to get on to the next med! We just try hard to find substitutes for his old favorites. We found out that mayonnaise is actually pretty good on pizza (I know it sounds strange, but Pizza Hut had a " Club Chicken " pizza like that last summer and it was good so that we have been using the mayo idea at home ever since!). Best of luck to you both. Caroline ----------------- > On 3/19/03 2:17 AM, " susan wald " <susanwald@...> wrote: > Rose, > > By enzyme therapy, do you mean digestive enzymes? I'm giving my ds Houston > enzymes. Its been a month and have seen great improvements. He can now have > a banana in the evening and not be up all night due to phenols. > > I doubt Dr. G approves of this. Doesn't he say just a multivitamin? > > I will ask at our first appt. in May. I will really hate to give them up but > am assuming we will have to. I will do thorough documentation of before and > after, however. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Caroline, Thank you for the response. I took my ds and myself off dairy 6 mos. ago. It made a huge difference for both of us (my lifelong severe seasonal allergies are history). Dh doesn't support this, however, and insists on having the occasional pizza (although he does not dare cross me with ice cream). We went out for pizza 3 days ago. My ds on enzymes had no reaction. Previously he would have had severe facial tics and been more easily agitated. I could always tell before when he had ingested any casien. My dh claims there is no link. I do not take enzymes. I had diarrhea hours after, and severe stomach upset. Dh said it was psychosymatic. Ha. This was the first food " challenge " after a month on enzymes. I still feel ds doesn't need dairy for any reason, but its nice to have the enzymes at this point to cover any infractions that may occur. I originally started them because I feel ds has a wheat issue but GF at home wasn't possible. My hope is to get dh on board with , and of course the diet. Being off of dairy is pretty easy overall, I feel better, and ds acts so much better. I will never be eating cheese pizza again, that's for sure! Not worth it. Re: EnzymeTherapy and Rose, I posted to Dr. Goldberg quite some time ago (before we had our initial visit with him) asking about an enzyme called Peptizyde (made by Houston Nutraceuticals. Below is Dr. G's response to me... Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Thank you for the info. How about a calcium supplement? Thanks again~~ Rose Re: EnzymeTherapy Hi - Here's my impression of Dr. G's opinions re digestive enzymes.... He prefers that 'triggers' be removed rather than enzymes being used because the offending foods are being ingested. He is concerned about ingredients/sources of enzymes being potential negatives, and is basically a minimalist in what we give our kids because you never know what's going to set them off. He mentions dessicated thingies (can't remember what) have been in them in the past - so he is very concerned about their cleanliness. He doesn't get as upset about enzymes as he does megadosing vitamins and using lots of other supplements - I don't think he's as critical about them, just a little negative. He prefers the multivitamin as well as Acidophilus - wants us to use a probiotic but one that only contains as many as 3 strains - again, minimalist. I have no idea if he insists on enzymes being stopped on the protocol or not. I would guess he does so that negative food reactions can be found and the foods eliminated. I don't know if he takes much into consideration about phenols or not. I wouldn't think a reaction to phenols is quite the same as other types of reactions - I haven't really looked into that aspect much although my kids do react to them. Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Thanks Caroline~~ I was just concerned that it should be added to our " routine " since it was recommended in " Children with Starving Brains " . It wasn't suggested to help digest inappropriate foods, but to further return a balance to the child's system. Also Caroline, I really appreciate a Mom like you who has done all the leg-work. It makes my job SOOOO much easier. All the best~~ Rose Re: EnzymeTherapy and Rose, I posted to Dr. Goldberg quite some time ago (before we had our initial visit with him) asking about an enzyme called Peptizyde (made by Houston Nutraceuticals. Below is Dr. G's response to me... _______________________________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 and Rose, Even with Enzyme, you still need be very careful. always does not have any outright reaction to Gluten or Casein. He is taking Kirkman Labs enzyme complete. He loves Pizza, so I let him have pizza one weekend, and he was fine, next weekend he had Pizza one more time, and he could not sleep well at night. I thought if I give him pizza at lunch he may be OK. So third week he had Pizza at lunch, and he still could not sleep at night. He has difficulty sleep when he eats subway meat ball sandwich too. So now, he eats pizza rarely when he goes to birthday party or on a play date. By the way, in a little over weeks, I am planning on only give multivitamins. I plan to follow Dr. G instruction as exact as possible. He has twenty years experience treating these kids, I am going to work with him as much as I can. Jin In , " Rose Derkay " <Momusic40@m...> wrote: > Thanks Caroline~~ > I was just concerned that it should be added to our " routine " since it was recommended in " Children with Starving Brains " . It wasn't suggested to help digest inappropriate foods, but to further return a balance to the child's system. Also Caroline, I really appreciate a Mom like you who has done all the leg-work. It makes my job SOOOO much easier. > All the best~~ > Rose > Re: EnzymeTherapy > > and Rose, > > I posted to Dr. Goldberg quite some time ago (before we had our initial > visit with him) asking about an enzyme called Peptizyde (made by Houston > Nutraceuticals. > > Below is Dr. G's response to me... ______________________________________________________________________ Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 20, 2003 Report Share Posted March 20, 2003 Jin, I was wondering how you and your son were doing, we haven't heard from you in a while. I was wondering what you are doing right now with supplements. I agree on the pizza, it is rare my son gets it and I always cringe. I would prefer to keep him off dairy completely. I'm using the enzymes in the interim until dh gets on board. He has stopped giving our ds red licorice, so there is hope. Good luck with your appt. next month with Dr. G. Please let us know how it goes. Re: EnzymeTherapy and Rose, Even with Enzyme, you still need be very careful. always does not have any outright reaction to Gluten or Casein. He is taking Kirkman Labs enzyme complete. He loves Pizza, so I let him have pizza one weekend, and he was fine, next weekend he had Pizza one more time, and he could not sleep well at night. I thought if I give him pizza at lunch he may be OK. So third week he had Pizza at lunch, and he still could not sleep at night. He has difficulty sleep when he eats subway meat ball sandwich too. So now, he eats pizza rarely when he goes to birthday party or on a play date. By the way, in a little over weeks, I am planning on only give multivitamins. I plan to follow Dr. G instruction as exact as possible. He has twenty years experience treating these kids, I am going to work with him as much as I can. Jin In , " Rose Derkay " <Momusic40@m...> wrote: Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 , We are doing very well. has been doing well since winter with no sign of regression (last year around this time he started to regress). From over a month a go, he started finish his home work every week. I have been encourage him finish his school work at school, and he has been bring home very little work from school recently. I will a monthly conference next week and I will have a better picture. He has not have any sign of anxiety so far this year. He developmental therapist (who uses Dr. Greenspan's method) thinks it is because that he is doing less therapy this school year than last year, and I agree. If any of you feel over burnt by the amount of therapy you are doing, you may want to give a try to reduce some of the therapy, it may benefit both you and your child. Lymphocyte is mostly in normal range compare two test he took previously. This time when he took the test was and (still is) doing well. The two times before he was doing terrible. I hope this means he can be helped by Dr. G's protocol. He is still on vitamins and supplements and I am planning on removing it in a week. I am glad to hear that you are husband getting on board. It is a long process, but it will work out. Mine is giving me hard time about seeing Dr. G right now. He thinks we should see Dr. Shaw (after read his book), I had to tell him Dr. Shaw is not a medical doctor, it is one thing to talk about anti fungi in book than actually treating it for many years. Then he start to ask about if Dr. G' has any book, or research paper published. I am asking him to watch Dr. G's video tape right now. Thanks to Marc, I received the video yesterday. But I am quite nervous and I really want to ask Dr. G not to use SSRI. I am going to ask this question in separate mail. , also watch out for tomatoes, I read that it is not agree with a lot of people. I think as some sort of reaction to it. Take care; I will let you know how everything went. Jin > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Rose, You're welcome. I'm so glad to help! For our child, Dr. Goldberg was pretty firm about not giving him a calcium supplement. I'm not sure whether this is universal in his practice or by individual case. He did say that the American Academy of Pediatrics had put out a statement saying that children did not need milk to get enough calcium in their diets. He also said he had concerns about kids getting too much calcium... I guess that can cause trouble, too. We check calcium levels in our son's regular blood work (it's included in the labs that Dr. G orders for our son). I have no idea if that is an indicator of appropriate calcium levels or not. Caroline > On 3/20/03 9:23 AM, " Rose Derkay " <Momusic40@...> wrote: > Thank you for the info. How about a calcium supplement? > Thanks again~~ > Rose I understand... we had thought about that, too. >It wasn't suggested to help digest inappropriate foods, but to further return a balance to the child's system. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 , Glad to hear you've had good improvements removing dairy! Maybe your dh will come around in time... mine did. I have had the same experience with Montezuma after eating trying to reintroduce dairy into my diet (but the cheesecake looked so good!). I have a friend who was in the same boat as you for a while, but her dh finally became convinced and now he is " on board " . It can happen! Hang in there. Caroline > On 3/20/03 2:01 AM, " susan wald " <susanwald@...> wrote: > Caroline, > > Thank you for the response. I took my ds and myself off dairy 6 mos. ago. It > made a huge difference for both of us (my lifelong severe seasonal allergies > are history). Dh doesn't support this, however, and insists on having the > occasional pizza (although he does not dare cross me with ice cream). > > We went out for pizza 3 days ago. My ds on enzymes had no reaction. > Previously he would have had severe facial tics and been more easily agitated. > I could always tell before when he had ingested any casien. My dh claims > there is no link. > > I do not take enzymes. I had diarrhea hours after, and severe stomach upset. > Dh said it was psychosymatic. Ha. > > This was the first food " challenge " after a month on enzymes. I still feel ds > doesn't need dairy for any reason, but its nice to have the enzymes at this > point to cover any infractions that may occur. I originally started them > because I feel ds has a wheat issue but GF at home wasn't possible. > > My hope is to get dh on board with , and of course the diet. Being off of > dairy is pretty easy overall, I feel better, and ds acts so much better. I > will never be eating cheese pizza again, that's for sure! Not worth it. > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted March 21, 2003 Report Share Posted March 21, 2003 Jin, Thanks for the update. Glad is doing so well. We also had a bad anxiety issue last year with lots of regression. It is so hard, and yes, sometimes easing up on their workload is helpful. I heard Dr. Shaw speak recently. His Great Plains Lab is opening a clinic to treat autistic children. I think his yeast book is good, although have not finished reading it yet. Yeast happens to be a big issue for my ds. Shaw made a comment, however, that he has been chelating his 12 yr. old autistic stepdaughter for 6 mos. and all the heavy metals aren't out yet. I do not believe in chelation and would not do that to my child. So, if your husband wants to work with Dr. Shaw, it would probably involve chelating . And yes, his Dr. is Ph.D., not medical. He was a research scientist. A lot of people out there have some good ideas on treatment, or a piece of the treatment. However I agree with you. Dr. G's protocol seems to be the safest and most thorough. Yes, tomatos are a high phenolic food, and my ds has phenol issues. He was up at 4 a.m. laughing, and it was probably from the tomato sauce at dinner. It seems like all the foods he likes he has issues with. Sigh. Re: EnzymeTherapy , We are doing very well. has been doing well since winter with no sign of regression (last year around this time he started to regress). From over a month a go, he started finish his home work every week. I have been encourage him finish his school work at school, and he has been bring home very little work from school recently. I will a monthly conference next week and I will have a better picture. He has not have any sign of anxiety so far this year. He developmental therapist (who uses Dr. Greenspan's method) thinks it is because that he is doing less therapy this school year than last year, and I agree. If any of you feel over burnt by the amount of therapy you are doing, you may want to give a try to reduce some of the therapy, it may benefit both you and your child. Lymphocyte is mostly in normal range compare two test he took previously. This time when he took the test was and (still is) doing well. The two times before he was doing terrible. I hope this means he can be helped by Dr. G's protocol. He is still on vitamins and supplements and I am planning on removing it in a week. I am glad to hear that you are husband getting on board. It is a long process, but it will work out. Mine is giving me hard time about seeing Dr. G right now. He thinks we should see Dr. Shaw (after read his book), I had to tell him Dr. Shaw is not a medical doctor, it is one thing to talk about anti fungi in book than actually treating it for many years. Then he start to ask about if Dr. G' has any book, or research paper published. I am asking him to watch Dr. G's video tape right now. Thanks to Marc, I received the video yesterday. But I am quite nervous and I really want to ask Dr. G not to use SSRI. I am going to ask this question in separate mail. , also watch out for tomatoes, I read that it is not agree with a lot of people. I think as some sort of reaction to it. Take care; I will let you know how everything went. Jin > Jin, > > I was wondering how you and your son were doing === message string truncated === ````````````````````````````````````````````````````````````````` Responsibility for the content of this message lies strictly with the original author, and is not necessarily endorsed by or the opinion of the Research Institute. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.