Guest guest Posted April 14, 2001 Report Share Posted April 14, 2001 , Mom to Hi, I am Jan. We live in TX. My son has CVID and SDS(shwachman's syndrome). My daughter, no PID, has asthma and allergies. She is very small for her age and has been having lots of bruising. If she gets a small abrasion it is usually surrounded by a bruise too. Most of her bruises are currently on her legs, including thighs and calves with two on the bottom. Most are small to medium, just abundant. Her abrasions, cuts, and scratches are also slow to heal and often leave a small flat of indented scar. Her teacher even commented on her legs this week as it has been warm and she is wearing shorts or capris. The ped.'s nurse said to watch if they fade away in a normal amount of time and if I was still concerned to schedule an appointment. I have suspected that it might be caused by her Pulmicort inhaler. She takes Pulmicort inhaler, Flonase, and Singulair. She has lots of asthma in the fall, but is not having any symptons currently. In the fall she takes Pulmicort twice a day, in the later fall and winter once a day, and goes off for the summer. She is doing so well that I called and asked the allergy doctor if she could step down to once every other day until she goes off for the summer. He said yes and to monitor the peak flow. She is starting that reduction now. No one has not thought the bruising was caused by the corticosteroid in inhaler before but I keep wondering. She is otherwise energetic and feeling good and looks fine. I know she grows better when off the cortico steroids (pulmicort or beclovent when younger) in the summer. She just shoots up. She is a 3rd grader. I found on the internet that steroids cause bruising, but not mentioned on corticosteroids. Maybe she is sensitive to it. When on Beclovent inhaler (started at age 4) she got broken capillaries on her face. Please let me know if you find out anything. I am quite interested. Thanks, Jan Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/16/2003 6:47:20 PM Central Standard Time, vking@... writes: > > Well, this is what is going on so far. I wrote a letter and spoke to > ’s teacher. Of course she is already on the defensive and > implying that the bruises are coming from home. I am also speaking with > the special ed counselor about getting CPI training. is very > aggressive and I want them to know how to handle him without injury to > himself or others. This is the third time we have had issues with injury > to since he began going to school. He has been abused by two > different teachers in the past. I do feel that this time it is an issue > with lack of education on the part of teacher and staff. I pray I am > right about this. Angel has never had an abusive teacher she has had one that was neglegent though just leaving Angel in the corner to self mutilate. Cps " had a case " on going on us for a while but realized we were doing all we could and backed out after one case worker broke the law made passes at me would come to my home when I was alone and such and such not to mention he threatened to take the kids if there was one more mark on Angel though he admitted to never finding anything but the marks she put on herself in front of him. We got a new case worker after complaining and she finally closed the case. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 In a message dated 9/16/2003 6:47:20 PM Central Standard Time, vking@... writes: > > Well, this is what is going on so far. I wrote a letter and spoke to > ’s teacher. Of course she is already on the defensive and > implying that the bruises are coming from home. I am also speaking with > the special ed counselor about getting CPI training. is very > aggressive and I want them to know how to handle him without injury to > himself or others. This is the third time we have had issues with injury > to since he began going to school. He has been abused by two > different teachers in the past. I do feel that this time it is an issue > with lack of education on the part of teacher and staff. I pray I am > right about this. Angel has never had an abusive teacher she has had one that was neglegent though just leaving Angel in the corner to self mutilate. Cps " had a case " on going on us for a while but realized we were doing all we could and backed out after one case worker broke the law made passes at me would come to my home when I was alone and such and such not to mention he threatened to take the kids if there was one more mark on Angel though he admitted to never finding anything but the marks she put on herself in front of him. We got a new case worker after complaining and she finally closed the case. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 >>CPI training? what is that? CPI 'S Nonviolent Crisis Intervention Program I've taken it at ESC-17 http://www.esc17.net . It mainly focuses on how to break a hold, hair pull, bite, choke, etc. with out injuring the child. It also gives you a way to safely restrain and a team transport. Your local ESC should offer something along the same lines. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 >>CPI training? what is that? CPI 'S Nonviolent Crisis Intervention Program I've taken it at ESC-17 http://www.esc17.net . It mainly focuses on how to break a hold, hair pull, bite, choke, etc. with out injuring the child. It also gives you a way to safely restrain and a team transport. Your local ESC should offer something along the same lines. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 >>CPI training? what is that? CPI 'S Nonviolent Crisis Intervention Program I've taken it at ESC-17 http://www.esc17.net . It mainly focuses on how to break a hold, hair pull, bite, choke, etc. with out injuring the child. It also gives you a way to safely restrain and a team transport. Your local ESC should offer something along the same lines. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 >>Have you ever considered that maybe something he's eating at lunch may have set off this reaction(something he evidentally eats or drinks daily) or perhaps, is there a change of some sort in your class routine around 1:30 or something you're doing at that time in class that he's protesting? Well said! Sometimes it takes an outside person to see the pattern. Those involved are so busy tending to the child's behavior that it's not humanly possible to see all the influences. Also consider red dye or food additives. We have a student in my son's school that has a horrible time if they get even a minute taste of red dye. Amazing what you find it in. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 >>Have you ever considered that maybe something he's eating at lunch may have set off this reaction(something he evidentally eats or drinks daily) or perhaps, is there a change of some sort in your class routine around 1:30 or something you're doing at that time in class that he's protesting? Well said! Sometimes it takes an outside person to see the pattern. Those involved are so busy tending to the child's behavior that it's not humanly possible to see all the influences. Also consider red dye or food additives. We have a student in my son's school that has a horrible time if they get even a minute taste of red dye. Amazing what you find it in. Tonya Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 I too have an aggressive child who is on 4 psychoactive medicines and is on the DAN protocol, goes to school nd receives their SI/OT and privately. However I do believe when a child is aggressive - the parent has an obligation to work with the school to decrease aggression and maintain safety of everyone. I am heartbroken when I learn that Sam has scratched/biten or hurt a peer or a teacher. Sometimes there are situations that provoke her acting out and the school has a responsibility to work w/ me to fish those out and mimimize that potential. However there have been some incidents when there appears to be no antecendent. I fully understand the schools and teachers have enormous expectations placed on them consequently alot is placed on the kids to learn more and do more at a younger age. I beleive there is a tendency to overdiagnose and medicate. Instead of looking at the standard or expectation. The American Academy of Pediatrics/Adolescents practice guideline for Autism state that the only appropriate and necessary time to medicate an individual with Autism is when they are aggressive to others and themselves. That is why I am proactive in seeking medicines. I try not to force my views on anyone else. I also don't want my kid hurting anyone including teachers or my kid being hurt by anyone either. However some of the issues congress has been trying to insert in IDEA regarding aggressive and disruptive behavior - you got to wonder if if springs from parents having concerns or being reluctant to look at meds for kids who may be real challenges in the classroom. Just food for thought Jeneane Houston Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 17, 2003 Report Share Posted September 17, 2003 I too have an aggressive child who is on 4 psychoactive medicines and is on the DAN protocol, goes to school nd receives their SI/OT and privately. However I do believe when a child is aggressive - the parent has an obligation to work with the school to decrease aggression and maintain safety of everyone. I am heartbroken when I learn that Sam has scratched/biten or hurt a peer or a teacher. Sometimes there are situations that provoke her acting out and the school has a responsibility to work w/ me to fish those out and mimimize that potential. However there have been some incidents when there appears to be no antecendent. I fully understand the schools and teachers have enormous expectations placed on them consequently alot is placed on the kids to learn more and do more at a younger age. I beleive there is a tendency to overdiagnose and medicate. Instead of looking at the standard or expectation. The American Academy of Pediatrics/Adolescents practice guideline for Autism state that the only appropriate and necessary time to medicate an individual with Autism is when they are aggressive to others and themselves. That is why I am proactive in seeking medicines. I try not to force my views on anyone else. I also don't want my kid hurting anyone including teachers or my kid being hurt by anyone either. However some of the issues congress has been trying to insert in IDEA regarding aggressive and disruptive behavior - you got to wonder if if springs from parents having concerns or being reluctant to look at meds for kids who may be real challenges in the classroom. Just food for thought Jeneane Houston Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You are posting as a guest. If you have an account, sign in now to post with your account.
Note: Your post will require moderator approval before it will be visible.