Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 It is my understanding that though there are test that " might " indicate a diagnosis of Lupus (SLE) vs Stills, there is not one test that will also say " yes " one has lupus just as there is not one test that says " yes " one has Stills. This comes from my own personal experience of course. As I have " some " test that are positive that " could " indicate Lupus such as the +ANA and C3, C4, however, some of my " symptoms " lean closer at times to that of Stills. To complicate things, " some " of my symptoms could also be Lupus related. I have seen what I consider to be some of the best of doctors and not one of these grand doctors has the technology as of July 2001 to make the distinction in my case between Stills vs Lupus----however, they feel it is one of them. My RA factor is negative however and I have been told that to have RA it would be positive or it could become a positive diagnosis later on in life--in essence one does not need to have a +RA factor to have a diagnosis of RA either. Just don't know if a test to determine one of these three diagnosis from the other has yet been discovered. Certainly not since my visit at the NIH in July as much was tested there because my doc wanted another opinion. Love, K Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 Kathleen, that was a great response and mirrored what my doctors have told me, Louise. SaavyN@... wrote: > > It is my understanding that though there are test that " might " indicate a > diagnosis of Lupus (SLE) vs Stills, there is not one test that will also say > " yes " one has lupus just as there is not one test that says " yes " one has > Stills. This comes from my own personal experience of course. As I have > " some " test that are positive that " could " indicate Lupus such as the +ANA > and C3, C4, however, some of my " symptoms " lean closer at times to that of > Stills. To complicate things, " some " of my symptoms could also be Lupus > related. I have seen what I consider to be some of the best of doctors and > not one of these grand doctors has the technology as of July 2001 to make the > distinction in my case between Stills vs Lupus----however, they feel it is > one of them. My RA factor is negative however and I have been told that to > have RA it would be positive or it could become a positive diagnosis later on > in life--in essence one does not need to have a +RA factor to have a > diagnosis of RA either. Just don't know if a test to determine one of these > three diagnosis from the other has yet been discovered. Certainly not since > my visit at the NIH in July as much was tested there because my doc wanted > another opinion. > Love, K > > Visit the Still's Disease Message Board > http://disc.server.com/Indices/148599.html > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 K- Thanks so much for the info. It's amazing how even the best of docs can't come up with a definitive diagnosis. Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 K- Thanks so much for the info. It's amazing how even the best of docs can't come up with a definitive diagnosis. Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 K- Thanks so much for the info. It's amazing how even the best of docs can't come up with a definitive diagnosis. Eleanor Quote Link to comment Share on other sites More sharing options...
Guest guest Posted November 11, 2001 Report Share Posted November 11, 2001 I found this really interesting. I have been told by three different doctors that I do not have Lupus or RA but have Stills. I thought there was a test that could determine Lupus?? If not, I wonder what my doctors are basing their dx on?? (The RA I understand . . . ) Jen Re: Stills vs Lupus vs RA It is my understanding that though there are test that " might " indicate a diagnosis of Lupus (SLE) vs Stills, there is not one test that will also say " yes " one has lupus just as there is not one test that says " yes " one has Stills. This comes from my own personal experience of course. As I have " some " test that are positive that " could " indicate Lupus such as the +ANA and C3, C4, however, some of my " symptoms " lean closer at times to that of Stills. To complicate things, " some " of my symptoms could also be Lupus related. I have seen what I consider to be some of the best of doctors and not one of these grand doctors has the technology as of July 2001 to make the distinction in my case between Stills vs Lupus----however, they feel it is one of them. My RA factor is negative however and I have been told that to have RA it would be positive or it could become a positive diagnosis later on in life--in essence one does not need to have a +RA factor to have a diagnosis of RA either. Just don't know if a test to determine one of these three diagnosis from the other has yet been discovered. Certainly not since my visit at the NIH in July as much was tested there because my doc wanted another opinion. Love, K Visit the Still's Disease Message Board http://disc.server.com/Indices/148599.html Quote Link to comment Share on other sites More sharing options...
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