Re: Re: feeding tubes - another story, almost as long

[Guest guest]

----- Original Message -----

From: rstrindle

>I have read that the statistics frequently cited about tube fed kids

>having lower life expectancy are highly skewed. It is true terminal

>and very severe cases are likely to be tube fed, and that they will

>not live long, no matter what. But the time they are alive is much

>healthier and more comfortable.

How right you are . The tube has allowed us to enjoy our daughter far more

than the pre-tube frustration and effort ever would have. It is a joy to see her

healthy and comfortable, and the benefits far outweigh the disadvantages.

Your email expressed perfectly the fears, frustrations and the dilemma in

choosing tube feeding, but also highlighted the positive aspect of it, and I am

glad that your experience of it has been so good, and that it has changed your

lives for the better. I am glad, too, that you shared your story because I get

to feel quite isolated at times, not hearing much about tube feeds. Even though

for us it is now a natural and regular part of our day, it is still nice to

share such situations with others in the same boat.

(Hannah's mum)