Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 (My name is Kathy. I am homeschooling my 7 yr old grandson, Zachary. He had a stroke when he was born. He seemed to progress normally until he was 3 years old.) Hi Kathy, welcome to the group. First of all I would keep him on the med's but talk to his Dr. about sleeping so much. (looking for ways to better teach him, and the " magic curriculum " of which I have come to the conclusion that there is none. Zach is having trouble with letter and number recognition. He is making progress, we repeat, repeat, repeat. We are at a standstill, until he gets the letters and numbers down. If you have any suggestions, I would appreciat it.) I am in a another group of people who Hs. their autistic kids called AUT-2B-HOME (do a web search using Tammy Glaser's name(moderator)to view her site and see if the group might be of interest to you-lots of teaching ideas) Anyway, a suggestion I saved for a friend that sounded really good, was using the video called 'Alphabet Soup' by Wegman...A couple people mentioned this is how their kids learned the alphabet. Also, my eleven year old has always loved all the Scarry books. Check your local library and see if he likes them, I think he will. There are many on the market. There is an old one (the library might have as it is out of print) called 'The Best Story Book Ever', my son loved this. We must have taken it out of the library a hundred times. I would put the effort into reading to him over and over any favorite books and getting him to draw, scribble whatever. My son loved to draw machines/inventions when he was younger. Also do a search on Charlotte Mason Home School; many use her methods...Good luck, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 10, 2003 Report Share Posted December 10, 2003 (My name is Kathy. I am homeschooling my 7 yr old grandson, Zachary. He had a stroke when he was born. He seemed to progress normally until he was 3 years old.) Hi Kathy, welcome to the group. First of all I would keep him on the med's but talk to his Dr. about sleeping so much. (looking for ways to better teach him, and the " magic curriculum " of which I have come to the conclusion that there is none. Zach is having trouble with letter and number recognition. He is making progress, we repeat, repeat, repeat. We are at a standstill, until he gets the letters and numbers down. If you have any suggestions, I would appreciat it.) I am in a another group of people who Hs. their autistic kids called AUT-2B-HOME (do a web search using Tammy Glaser's name(moderator)to view her site and see if the group might be of interest to you-lots of teaching ideas) Anyway, a suggestion I saved for a friend that sounded really good, was using the video called 'Alphabet Soup' by Wegman...A couple people mentioned this is how their kids learned the alphabet. Also, my eleven year old has always loved all the Scarry books. Check your local library and see if he likes them, I think he will. There are many on the market. There is an old one (the library might have as it is out of print) called 'The Best Story Book Ever', my son loved this. We must have taken it out of the library a hundred times. I would put the effort into reading to him over and over any favorite books and getting him to draw, scribble whatever. My son loved to draw machines/inventions when he was younger. Also do a search on Charlotte Mason Home School; many use her methods...Good luck, Gail Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Kathy, A great way Toby has learnt the alphbet is through a system called Letter land! I am not sure if you can get it in america but if you look under google you may get some info! The letter landers are: Annie Apple Hairy Hatman Orange Bouncy Ben Impy Ink Puppy Clever Cat Jumping Jim Quarrelsome Queen Dippy Duck Kicking King Robber Red Ellie Elephant Lucy Lamplady Sammy Snake Fireman Fred Munching Mike Ticking Tess Golden Girl Naughty Nick Uppy Umberella Vase Violets Water Witch Max & Maxine the twins Yoyo Man Zig Zag Zebra Each of the characters have there own stories and they also have the Vowel Men. The way the characters are drawn make it easy for our kids to learn to make the correct shapes and how to build up sounds phonetically. There are stories such as sammy snake and hairyhat man (who always has bare feet as he is quiet!) walk together hairyhat man turns round to sammy snake and says SHH. A really good system! Very focal which is how autistic people learn best! Hope this helps Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Kathy, A great way Toby has learnt the alphbet is through a system called Letter land! I am not sure if you can get it in america but if you look under google you may get some info! The letter landers are: Annie Apple Hairy Hatman Orange Bouncy Ben Impy Ink Puppy Clever Cat Jumping Jim Quarrelsome Queen Dippy Duck Kicking King Robber Red Ellie Elephant Lucy Lamplady Sammy Snake Fireman Fred Munching Mike Ticking Tess Golden Girl Naughty Nick Uppy Umberella Vase Violets Water Witch Max & Maxine the twins Yoyo Man Zig Zag Zebra Each of the characters have there own stories and they also have the Vowel Men. The way the characters are drawn make it easy for our kids to learn to make the correct shapes and how to build up sounds phonetically. There are stories such as sammy snake and hairyhat man (who always has bare feet as he is quiet!) walk together hairyhat man turns round to sammy snake and says SHH. A really good system! Very focal which is how autistic people learn best! Hope this helps Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Again The letterland website is www.letterland.com Sherryxx > Hi Kathy, > > A great way Toby has learnt the alphbet is through a system called > Letter land! I am not sure if you can get it in america but if you > look under google you may get some info! > > The letter landers are: > Annie Apple Hairy Hatman Orange > Bouncy Ben Impy Ink Puppy > Clever Cat Jumping Jim Quarrelsome Queen > Dippy Duck Kicking King Robber Red > Ellie Elephant Lucy Lamplady Sammy Snake > Fireman Fred Munching Mike Ticking Tess > Golden Girl Naughty Nick Uppy Umberella > > Vase Violets Water Witch Max & Maxine the twins > Yoyo Man Zig Zag Zebra > > Each of the characters have there own stories and they also have the > Vowel Men. The way the characters are drawn make it easy for our kids > to learn to make the correct shapes and how to build up sounds > phonetically. > > There are stories such as sammy snake and hairyhat man (who always > has bare feet as he is quiet!) walk together hairyhat man turns round > to sammy snake and says SHH. A really good system! Very focal which > is how autistic people learn best! > > Hope this helps > Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Again The letterland website is www.letterland.com Sherryxx > Hi Kathy, > > A great way Toby has learnt the alphbet is through a system called > Letter land! I am not sure if you can get it in america but if you > look under google you may get some info! > > The letter landers are: > Annie Apple Hairy Hatman Orange > Bouncy Ben Impy Ink Puppy > Clever Cat Jumping Jim Quarrelsome Queen > Dippy Duck Kicking King Robber Red > Ellie Elephant Lucy Lamplady Sammy Snake > Fireman Fred Munching Mike Ticking Tess > Golden Girl Naughty Nick Uppy Umberella > > Vase Violets Water Witch Max & Maxine the twins > Yoyo Man Zig Zag Zebra > > Each of the characters have there own stories and they also have the > Vowel Men. The way the characters are drawn make it easy for our kids > to learn to make the correct shapes and how to build up sounds > phonetically. > > There are stories such as sammy snake and hairyhat man (who always > has bare feet as he is quiet!) walk together hairyhat man turns round > to sammy snake and says SHH. A really good system! Very focal which > is how autistic people learn best! > > Hope this helps > Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Sherry, is there a website we can go to order this? MISSY SAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. Re: Hello, I am new > Hi Kathy, > > A great way Toby has learnt the alphbet is through a system called > Letter land! I am not sure if you can get it in america but if you > look under google you may get some info! > > The letter landers are: > Annie Apple Hairy Hatman Orange > Bouncy Ben Impy Ink Puppy > Clever Cat Jumping Jim Quarrelsome Queen > Dippy Duck Kicking King Robber Red > Ellie Elephant Lucy Lamplady Sammy Snake > Fireman Fred Munching Mike Ticking Tess > Golden Girl Naughty Nick Uppy Umberella > > Vase Violets Water Witch Max & Maxine the twins > Yoyo Man Zig Zag Zebra > > Each of the characters have there own stories and they also have the > Vowel Men. The way the characters are drawn make it easy for our kids > to learn to make the correct shapes and how to build up sounds > phonetically. > > There are stories such as sammy snake and hairyhat man (who always > has bare feet as he is quiet!) walk together hairyhat man turns round > to sammy snake and says SHH. A really good system! Very focal which > is how autistic people learn best! > > Hope this helps > Sherryxx > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Sherry, is there a website we can go to order this? MISSY SAHM to some special kids!!! Excuse Me While I Go Raise Tomorrow's Future. Re: Hello, I am new > Hi Kathy, > > A great way Toby has learnt the alphbet is through a system called > Letter land! I am not sure if you can get it in america but if you > look under google you may get some info! > > The letter landers are: > Annie Apple Hairy Hatman Orange > Bouncy Ben Impy Ink Puppy > Clever Cat Jumping Jim Quarrelsome Queen > Dippy Duck Kicking King Robber Red > Ellie Elephant Lucy Lamplady Sammy Snake > Fireman Fred Munching Mike Ticking Tess > Golden Girl Naughty Nick Uppy Umberella > > Vase Violets Water Witch Max & Maxine the twins > Yoyo Man Zig Zag Zebra > > Each of the characters have there own stories and they also have the > Vowel Men. The way the characters are drawn make it easy for our kids > to learn to make the correct shapes and how to build up sounds > phonetically. > > There are stories such as sammy snake and hairyhat man (who always > has bare feet as he is quiet!) walk together hairyhat man turns round > to sammy snake and says SHH. A really good system! Very focal which > is how autistic people learn best! > > Hope this helps > Sherryxx > > > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Missy After I posted earlier I found the website www.letterland.com This tells you all about it so you may get some more info there. They just use this system at Toby's school (mainstream) for all kids and it seems to work really well. At first I was concerned they would always refer to letters as annie apple etc. but by the time they are 6-7 they stop but if they are confused you can use it to remind them! It seems to sink in really well. Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted December 11, 2003 Report Share Posted December 11, 2003 Hi Missy After I posted earlier I found the website www.letterland.com This tells you all about it so you may get some more info there. They just use this system at Toby's school (mainstream) for all kids and it seems to work really well. At first I was concerned they would always refer to letters as annie apple etc. but by the time they are 6-7 they stop but if they are confused you can use it to remind them! It seems to sink in really well. Sherryxx Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 That viral load is significant , it is in the med to high range . Have you had a biopsy yet ? The viral load is important but a biopsy can tell you if that viral load is causing damage .It gives the doctors a baseline to work with .Are you going to do the treatment ? rsuz1103 wrote:Hello, I am newly diagnosed with hepatitis C and I received my lab report this morning : 1,206,743 copies/ml 6,1 log 232,066 UI/ml Is that viral load high or not ? Thanks a lot for your comments. Suzanne It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 That viral load is significant , it is in the med to high range . Have you had a biopsy yet ? The viral load is important but a biopsy can tell you if that viral load is causing damage .It gives the doctors a baseline to work with .Are you going to do the treatment ? rsuz1103 wrote:Hello, I am newly diagnosed with hepatitis C and I received my lab report this morning : 1,206,743 copies/ml 6,1 log 232,066 UI/ml Is that viral load high or not ? Thanks a lot for your comments. Suzanne It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 That viral load is significant , it is in the med to high range . Have you had a biopsy yet ? The viral load is important but a biopsy can tell you if that viral load is causing damage .It gives the doctors a baseline to work with .Are you going to do the treatment ? rsuz1103 wrote:Hello, I am newly diagnosed with hepatitis C and I received my lab report this morning : 1,206,743 copies/ml 6,1 log 232,066 UI/ml Is that viral load high or not ? Thanks a lot for your comments. Suzanne It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Another thing to watch for is " What is the viral load in 3 months? " . How much has it increased? Bill --- elizabeth savage wrote: > That viral load is significant , it is in the med to > high range . Have you had a biopsy yet ? The viral > load is important but a biopsy can tell you if that > viral load is causing damage .It gives the doctors a > baseline to work with .Are you going to do the > treatment ? > > rsuz1103 wrote:Hello, > > I am newly diagnosed with hepatitis C and I received > my lab report > this morning : > 1,206,743 copies/ml > 6,1 log > 232,066 UI/ml > Is that viral load high or not ? > > Thanks a lot for your comments. > > Suzanne > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Another thing to watch for is " What is the viral load in 3 months? " . How much has it increased? Bill --- elizabeth savage wrote: > That viral load is significant , it is in the med to > high range . Have you had a biopsy yet ? The viral > load is important but a biopsy can tell you if that > viral load is causing damage .It gives the doctors a > baseline to work with .Are you going to do the > treatment ? > > rsuz1103 wrote:Hello, > > I am newly diagnosed with hepatitis C and I received > my lab report > this morning : > 1,206,743 copies/ml > 6,1 log > 232,066 UI/ml > Is that viral load high or not ? > > Thanks a lot for your comments. > > Suzanne > > > > > It's a pleasure having you join in our > conversations. We hope you have found the support > you need with us. > > If you are using email for your posts, for easy > access to our group, just click the link-- > http://groups.yahoo.com/group/Hepatitis_C_Central/ > > Happy Posting > > > > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Yes Hon, You do need to have a biopsy or a fibrosure at the very least to see how much damage you have... Just to give a different perspective, I haven't had a biopsy (Von Willebrand disease) nor a fibrosure test (my hep doc says they are inaccurate). I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load had been 580,000. > ------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Yes Hon, You do need to have a biopsy or a fibrosure at the very least to see how much damage you have... Just to give a different perspective, I haven't had a biopsy (Von Willebrand disease) nor a fibrosure test (my hep doc says they are inaccurate). I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load had been 580,000. > ------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Well I guess IF you are going to do tx for sure,, you " could " choose not to have one,, however if you are still in the deciding phase, it might help you make a decision.. The fibrosure is not as accurate as the biopsy ,that is for sure,, however I have read and heard that if you are at the far ends of the scale that they are more accurate,, it gets fuzzy if you are in stage 2-3 area, but not if 1 or 4... I sure fought my doc cuz I didnt want to have one,, but ended up doing it and was glad cuz that is how I found out I was stage 3-4 with early cirrhosis so I really needed to treat, and I did and Im now almost 3 years post tx and clear at 2 years.... But Im glad you put your 2 cents in too, its so hard to make a decision so the more info one has or more opinions offered, the better! thanks david! jax s wrote: Yes Hon, You do need to have a biopsy or a fibrosure at the very least to see how much damage you have... Just to give a different perspective, I haven't had a biopsy (Von Willebrand disease) nor a fibrosure test (my hep doc says they are inaccurate). I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load had been 580,000. > ------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 24, 2005 Report Share Posted September 24, 2005 Well I guess IF you are going to do tx for sure,, you " could " choose not to have one,, however if you are still in the deciding phase, it might help you make a decision.. The fibrosure is not as accurate as the biopsy ,that is for sure,, however I have read and heard that if you are at the far ends of the scale that they are more accurate,, it gets fuzzy if you are in stage 2-3 area, but not if 1 or 4... I sure fought my doc cuz I didnt want to have one,, but ended up doing it and was glad cuz that is how I found out I was stage 3-4 with early cirrhosis so I really needed to treat, and I did and Im now almost 3 years post tx and clear at 2 years.... But Im glad you put your 2 cents in too, its so hard to make a decision so the more info one has or more opinions offered, the better! thanks david! jax s wrote: Yes Hon, You do need to have a biopsy or a fibrosure at the very least to see how much damage you have... Just to give a different perspective, I haven't had a biopsy (Von Willebrand disease) nor a fibrosure test (my hep doc says they are inaccurate). I'm in week 21 of 48 of treatment, and cleared by 12 weeks. My viral load had been 580,000. > ------------------------------ > Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 > > But Im glad you put your 2 cents in too, its so hard to make a decision so > the more info one has or more opinions offered, the better! thanks david! Yes, I think it's important that people hear all the situations and different viewpoints. It may be confusing, but I'm sure it's useful in the end. I should also mention that we know I have some degree of chirrosis, because I have minor varices. Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Not everyone has side effects , and if they do when they start is anyones guess .. Treatment failure makes it harder to respond in the future at least to current meds . Clinical trial meds are the new ones and are only availble at certain places . Biopsy is not painful they give ya something to knock ya out and afterwards there is tenderness in the location for a few days . But not as bad as it sounds , more scarey is the unknown factor , LOL . Alot of docs make the patient go on antidepressants before the treatment starts , and insomnia is a common side effect but is easily treated . Permanent sides depends on your bodys ability to handle to medications , so there is no way to tell unless you already have an compromised imune system or thyroid problems . Oh and biopsy results come within a week usually ,but some take up to 2 weeks . I hope this was allthe questions , lol I tried to get them all " suzanne.ruhlmann " wrote:Thanks Jackie, , Bill, and Silvia for all the information you provide about hair loss, need to do biopsy, treatment and viral load. Some ther question come to my mind : - Do you know if new treatments with less side effects could potentially be released in the near future or the reference of a Web site where I could find the info ? - Are relapses frequent after successful treatment ? - In case of treatment failure, is it less likely to have a therapeutic response with further treatments attempts ? - Does it take a long time to get the results of a biopsy ? - Is a biopsy very painful ? - Do the side effects of treatment appear immediately or after several weeks ? - Do you have permanent side effects that won't subside after end of treatment ? - Did you feel irritable or depressed or had insomnia during treatment ? - Does fever last only 24 hours after injection ? Sorry for all those questions. Regards, Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Not everyone has side effects , and if they do when they start is anyones guess .. Treatment failure makes it harder to respond in the future at least to current meds . Clinical trial meds are the new ones and are only availble at certain places . Biopsy is not painful they give ya something to knock ya out and afterwards there is tenderness in the location for a few days . But not as bad as it sounds , more scarey is the unknown factor , LOL . Alot of docs make the patient go on antidepressants before the treatment starts , and insomnia is a common side effect but is easily treated . Permanent sides depends on your bodys ability to handle to medications , so there is no way to tell unless you already have an compromised imune system or thyroid problems . Oh and biopsy results come within a week usually ,but some take up to 2 weeks . I hope this was allthe questions , lol I tried to get them all " suzanne.ruhlmann " wrote:Thanks Jackie, , Bill, and Silvia for all the information you provide about hair loss, need to do biopsy, treatment and viral load. Some ther question come to my mind : - Do you know if new treatments with less side effects could potentially be released in the near future or the reference of a Web site where I could find the info ? - Are relapses frequent after successful treatment ? - In case of treatment failure, is it less likely to have a therapeutic response with further treatments attempts ? - Does it take a long time to get the results of a biopsy ? - Is a biopsy very painful ? - Do the side effects of treatment appear immediately or after several weeks ? - Do you have permanent side effects that won't subside after end of treatment ? - Did you feel irritable or depressed or had insomnia during treatment ? - Does fever last only 24 hours after injection ? Sorry for all those questions. Regards, Suzanne Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Don't need more BAD male voices! Please. ;-) How are you doing, Ric? Sal Re: Hello, I am new Hi Stan. Don't be nervous. Jump in here. We need male voices in here (bad).......welcome. ric It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Don't need more BAD male voices! Please. ;-) How are you doing, Ric? Sal Re: Hello, I am new Hi Stan. Don't be nervous. Jump in here. We need male voices in here (bad).......welcome. ric It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
Guest guest Posted September 25, 2005 Report Share Posted September 25, 2005 Don't need more BAD male voices! Please. ;-) How are you doing, Ric? Sal Re: Hello, I am new Hi Stan. Don't be nervous. Jump in here. We need male voices in here (bad).......welcome. ric It's a pleasure having you join in our conversations. We hope you have found the support you need with us. If you are using email for your posts, for easy access to our group, just click the link-- http://groups.yahoo.com/group/Hepatitis_C_Central/ Happy Posting Quote Link to comment Share on other sites More sharing options...
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